Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

No Wheat Starch Allowed In Us?


Misa

Recommended Posts

Misa Rookie

Hiya

Did a print out of the food list on this site and noticed that wheat starch is not accepted as safe in the US and Canada! Over here in Scandinavia the health food stores and many supermarkeds stock products labelled glutenfree (rolls, bread, vaffles, pizza crusts, pancakes) which all are made of wheat starch. And it is totally accepted for celiac disease. Says on ingredients list that they contain 0.3 or 0.4% gluten per bread.

Any opinions would be much appreciated.

Misa :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jnkmnky Collaborator

I do not allow my child to eat wheat starch. I've heard both sides of this. I think it's a good idea.

flagbabyds Collaborator

Different countries have different regulations on how much gluten can go into a product with it still saying that it is gluten free. I don't eat anything with the name wheat in it except buchwheat.

Guest nini

I wouldn't trust it... JMHO

tarnalberry Community Regular

There are a couple reasons for this, the primary one being that European nations have a standard to go by - the CODEX standard - that puts a quantifiable number on what amount of gluten is allowed to be in "gluten-free" foods. The US has no rule regulating this. In part, due to this, European food manufacturers have produced a wheat starch that is so highly processed to remove the proteins, that it can meet the definition for a "gluten-free" food. Because the US has no such standards, wheat starch here is not processed as rigorously, and has more gluten than the CODEX standard would allow.

Doctors in Europe, it seems, for the most part feel that a diet including foods made of CODEX standard wheat starch are safe for their patients. I do not know what testing (e.g. follow up blood testing, follow up biopsy, symptomatic results) they do to determine this, nor do I know how many servings of CODEX standard wheat starch per day were used in those tests.

Due to the lack of availability of more refined wheat starch in the US, and what is often seen as a stricter restriction on gluten-levels (by us on the board, anyway), it's not generally accepted as safe by a lot of US celiacs.

KaitiUSA Enthusiast

No wheat starch for me

Misa Rookie

So you wouldn't touch wheat starch even if the strict guidelines applied to the US....Hmm, this has got me thinking that I should perhaps stick with the rice crackers and buckwheat.....Best to be safe than sorry....Thanks for responding :D

Misa :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf4life Enthusiast

I have to agree with Tiffany. The wheat starch here isn't a high enough quality to be gluten free. I have a wheat starch story...

I licked the knife after frosting some gluten free cupcakes for my daughers birthday party. It was a different brand than I usually use and it was really tasty. So as I take a spoonful and pop it into my mouth, I casually look on the label and out popped the words WHEAT STARCH. I apparently grabbed the wrong flavor after reading all the labels at the store and ended up getting quite sick after just one spoonful of the frosting. Thank God I had my normal gluten-free frosting and extra cupcakes, so my daughter could still have a cupcake. But I was not very happy for the next week or so. I felt awful.

BTW, I found it very ironic that all her friends were eating gluten free cupcakes with gluten frosting! LOL :rolleyes:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Beware Taila gluten-free frozen pizzas

    2. - cristiana replied to cristiana's topic in Related Issues & Disorders
      29

      Ectopic heartbeats - any relation to digestive issues?

    3. - Helen Vajk commented on Lindsay Cochrane's article in Spring 2007 Issue
      2

      The Kiss of Death: How My Romantic Life Suffered after being Diagnosed with Celiac Disease

    4. - Russ H replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Coeliac or not coeliac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,201
    • Most Online (within 30 mins)
      10,442

    Bren88
    Newest Member
    Bren88
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      I just went ti Sprouts today after we dropped off my grandson at home.The brand Talia I almost bought.i was looking forward and saw that it DOES contain and in Itty bitty small sentence,  ( those with sensitive diagetive shouldn't consum.I ALMOST bought, PLEASE READ EVERY LABEL so you don't get glutened!
    • cristiana
      I just thought I'd update this post. My father has had some issues with his heart rythym and we found giving him an electrolyte drink plus a vitamin D supplement with extra calcium containing food (yoghurt) made a big difference, and very quickly. My own problems with ectopic heartbeats started up again with warmer weather so I thought I'd take a leaf out of his book, and now, for the second time, after just one Phizz Electrolyte Drink, and a dose of vitamin D (Fultium D 800 x 4) with a milkshake, my ectopics disappeared within the hour.   Probably the Phizz drink rather than the D with calcium, but maybe it all helped?  Just mentioning this in case anyone is looking for answers.
    • Russ H
      Do you have the standard range for the test results you received? A level of anti-tTG2 antibodies at least 10x the standard range is almost certainly (>98%) due to coeliac disease. Moderately raised levels can be caused by other conditions as well as coeliac disease. Accuracy of the No-Biopsy Approach for the Diagnosis of Celiac Disease in Adults: A Systematic Review and Meta-Analysis It is possible to have latent or early stage coeliac disease without histological changes visible by microscope. As has been suggest in this thread, if the repeat test comes up negative and serology is high, request an HLA genetic test from your specialist. Only 40 % of the population carries an HLA gene variant enabling the development of coeliac disease - if you test negative for this, it is quite unlikely that you have coeliac disease.  
    • Wheatwacked
      Hi @Ginger38, By now you know that these things improve without gluten. I once saw an interview with a corporation executive where he proudly declared that his wheat products are more addictive than potato chips. Dr Fuhrman (Eat to Live) said find foods that are friendly to you to be friends with.  
    • cristiana
      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possible way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
×
×
  • Create New...