Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Update, Survived 2 Weeks On Gluten For Test

SandraLAVixen

Recommended Posts

SandraLAVixen Apprentice
SandraLAVixen
Posted

OMG, so I made it, I feel so alive but exhausted.

I was on gluten (eating breads, wheat, etc) to make sure I "symptomatic" for a revised Celiac profile and a Carcinoid 24hr urine test.

I haven't slept much for the past few days since the pain kept me up for so many nights and my stomach feels like the remains of a battle ground after a war. I feel like I had a 2 week long surgery on my stomach.

I'll update with the results as soon as I get them back from the lab, I really hope these tests are reliable since I know I was in pain during them.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Roda Rising Star
Roda
Posted

Two weeks very well may not be long enough back on gluten to give you accurate results, especially if you were gluten free prior for any length of time. It is generally accepted that one has to consume gluten (appx. 2-3 slices of bread or equivilent per day) for 3 months. To have the best chance of accurate testing.

If you have now exhausted all your testing you are going to do, go back to eating gluten free if it makes you feel bad.

Link to comment
Share on other sites
tom Contributor
tom
Posted

...

It is generally accepted that one has to consume gluten (appx. 2-3 slices of bread or equivilent per day) for 3 months.

No, it's not.

It's becoming rarer for Drs to use 3 months for the challenge.

New members have posted that theirs was 2 wks & was positive.

Study after study says 3 months is too long & that low-dose does the trick - 2-3 slices not required anymore either.

Open Original Shared Link

Open Original Shared Link

Link to comment
Share on other sites
ravenwoodglass Mentor
ravenwoodglass
Posted

If you reacted that strongly to the challenge you really do have your answer no matter what the test results are.

Link to comment
Share on other sites
SandraLAVixen Apprentice
SandraLAVixen
  • Author
Posted

I feel fairly confident about being on gluten for more than 2 weeks, but really, it was the most I could tolerate (pain wise).

I'm still waiting for the test results, I hope they find something because I really can't tolerate any more.

Since the tests I'm avoiding all breads for a while. It feels so good to be pain free for a while, I can finally sleep and think (slept for 14 hours last night).

Link to comment
Share on other sites
GFinDC Veteran
GFinDC
Posted

Good for you Sandra, your body has given you a pretty darn clear answer on gluten. If it makes you sick don't eat it. Easy advice, but learning to eat gluten-free can take some time. Remember your body trumps the medical tests. The tests can say you are a green man in the moon, but if your body doesn't like gluten, that is all you really need to know.

Link to comment
Share on other sites
Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Good luck!

I managed 3 weeks gluten challenge, and it made me so ill I had to give up.

I think, like you, I had my answer before my results - no more gluten for me, not for anything...

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      120,986
    • Most Online (within 30 mins)
      7,748
    Mazzamaloo
    Newest Member
    Mazzamaloo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • TessaBaker
      Hair loss

      By TessaBaker · Posted

      It sounds like you're dealing with a complex situation, and I can understand how frustrating it must be not to have a clear answer. Gut health can indeed play a significant role in various aspects of our well-being, including hair health.
    • Celiac16
      Thiamine supplementation

      By Celiac16 · Posted

      I have found similar benefits from thiamine. I was diagnosed with celiac at 16 and never really recovered despite strict gluten and dairy free diet and no detectable antibodies on checkup bloodworks. I’ve tried stopping the b1 but start to feel bad again- I wanted my doctors to do more extensive testing for the different thiamine transporters and enzymes which would be a better indication if I was deficient or dependent on it but everyone dismisses it (there are know genetic mutations where you need to take it daily for life). I have looked into Thiamine Responsive Megablast Anemia and I have a lot of the more mild symptoms of the disease that manifest when thiamine isn’t given to the patient such as optic neuritis… I just find the parallels interesting. i think that celiacs could be a side issue of inflammation that resulted from vitamin deficiencies. I was eating a lot of sugar leading up to my diagnosis and since eating gluten free didn’t make me feel much better, I’m wondering if this was more the underlying issue (sugar heavily depletes b1). I usually take 1.5g thiamine a day.
    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Thank you for your welcome and reply.  Yes I've been carefully reading labels looking for everything in bold and have been amazed by what I have seen. However Heinz tomato and basil soup is wheat free so I m thinking I already have ulcers?  The acid could be causing the pain . My pain always starts in one place then follows the same route through me . GP confirmed that is the route of our digestive system.  So much pain from stabbing to tearing. If I throw in milk with lactose it's horrific.  Many years of it now, won't go into details but been seeing a consultant for a supposedly different problem . Wondering what damage has been done over the years. Many thanks for your reply. Wishing you the very best.    
    • trents
      Waiting for urgent referral.

      By trents · Posted

      Welcome to the forum community, @Fluka66! Did you realize that the vast majority of all canned soups use wheat starch as a thickener, including such common commodities as Campbell's tomato soup?
    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Hello. Any help would really steady my nerves right now. I realised recently that certain food left me in agonising pain so eliminated from my diet. I also have a swollen lymph node. My very caring Dr did some blood tests and I went back the other day to see another equally caring Dr . She looked at the test results one result has come back with something wrong. It came very fast so I'm afraid I didn't catch what it was. Anyway the urgent referral to ENT. She did say as I had already eliminated gluten it wouldn't say anything on the results and neither Drs nor I were prepared to reintroduce gluten . I've just had some tomato soup and again in agony only thinking this must have aggravated maybe existing problems. Does anyone know what I'm facing now ? My swollen lymph node , pain when eating gluten and lactose and I'm assuming the acidity of tomatoes triggering pain.  I'm trying to stay calm and to be honest I've been in intolerable pain at times rendering me unable to stand up straight but I've always just got on with it . Guess I'm reaching out and would really appreciate any wise or unwise words at this stage. Wishing you all the very best as you live with this illness. Fluka66  
×
×
  • Create New...