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Update, Survived 2 Weeks On Gluten For Test

SandraLAVixen

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SandraLAVixen Apprentice
SandraLAVixen
Posted

OMG, so I made it, I feel so alive but exhausted.

I was on gluten (eating breads, wheat, etc) to make sure I "symptomatic" for a revised Celiac profile and a Carcinoid 24hr urine test.

I haven't slept much for the past few days since the pain kept me up for so many nights and my stomach feels like the remains of a battle ground after a war. I feel like I had a 2 week long surgery on my stomach.

I'll update with the results as soon as I get them back from the lab, I really hope these tests are reliable since I know I was in pain during them.

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Roda Rising Star
Roda
Posted

Two weeks very well may not be long enough back on gluten to give you accurate results, especially if you were gluten free prior for any length of time. It is generally accepted that one has to consume gluten (appx. 2-3 slices of bread or equivilent per day) for 3 months. To have the best chance of accurate testing.

If you have now exhausted all your testing you are going to do, go back to eating gluten free if it makes you feel bad.

tom Contributor
tom
Posted

...

It is generally accepted that one has to consume gluten (appx. 2-3 slices of bread or equivilent per day) for 3 months.

No, it's not.

It's becoming rarer for Drs to use 3 months for the challenge.

New members have posted that theirs was 2 wks & was positive.

Study after study says 3 months is too long & that low-dose does the trick - 2-3 slices not required anymore either.

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ravenwoodglass Mentor
ravenwoodglass
Posted

If you reacted that strongly to the challenge you really do have your answer no matter what the test results are.

SandraLAVixen Apprentice
SandraLAVixen
Posted
  • Author

I feel fairly confident about being on gluten for more than 2 weeks, but really, it was the most I could tolerate (pain wise).

I'm still waiting for the test results, I hope they find something because I really can't tolerate any more.

Since the tests I'm avoiding all breads for a while. It feels so good to be pain free for a while, I can finally sleep and think (slept for 14 hours last night).

GFinDC Veteran
GFinDC
Posted

Good for you Sandra, your body has given you a pretty darn clear answer on gluten. If it makes you sick don't eat it. Easy advice, but learning to eat gluten-free can take some time. Remember your body trumps the medical tests. The tests can say you are a green man in the moon, but if your body doesn't like gluten, that is all you really need to know.

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Good luck!

I managed 3 weeks gluten challenge, and it made me so ill I had to give up.

I think, like you, I had my answer before my results - no more gluten for me, not for anything...

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