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Juca

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Juca last won the day on May 16 2018

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About Juca

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    Switzerland

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  1. Time to change doctors. I went through quite a few family doctors (and took about 2 years) until I found one that could diagnose me. A doctor that takes you seriously and is able to diagnose celiac is a keeper. He is better than most but still has a limited understanding of the disease, so...
  2. My Tissue Transglutaminase IgA took more than 2 years to normalize, even on a very strict gluten-free diet. Symptoms regressed pretty fast (about 6 months) but my latest endoscopy shows that I am still a Marsh 3C, which would officially, make me a "non-responsive" celiac. However, I am followed by...
  3. The brain fog/memory problems were caused by the gluten. However, I felt even worse in the beginning of the diet, but it eventually gets much better and goes away completely. Some people give up on the diet too soon because of this, that you might feel worse in the beginning, and not give it...
  4. Hi everyone, I am doing great on the gluten-free diet and my antibody tests finally normalized after 3 years. However, my repeat biopsy revealed that I am still a Marsh 3C and I am still unable to absorb any iron. Specialists assume I might never heal or, at best, might need quite a few years...
  5. 3 years on gluten-free diet: I feel great but still flat villi and zero iron absorption.
  6. Before my diagnosis, my stool would turn much lighter before a flare up. Followed within a few days of fat malabsorption and later all the other nasty and unconfortable symptoms. It seems to be quite typical. I read the old book on celiac disease by Dr. Sidney Haas, and in there he describes this...
  7. Yes, it is normal to have more gas.. especially if you are eating more fruits (more FODMAPS). It will be temporary, though. Check which foods are FODMAP rich and don't eat too much for a while. Early in my gluten-free diet, I had so much pain, that I almost went to the emergency room. It turns...
  8. I think it was a gastroenteritis that started it all. I caught it from a child I was looking after. He were both very sick. I never seemed to recover from it. Every now and then I would get again diarrhoea, flatulence and temporary lactose intolerance. I saw several GPs but no one seemed to think...
  9. Why are you on the Fasano diet? Isn't it meant to eliminate contaminations on patient's diets, when they are not responding to it? By what you are saying, you seem to be responding positively. In any case, all celiacs benefit from a easy to digest diet in the first few months (or longer): ...
  10. I might have not understood your predicament exactly but... let me try to help. If your stool isn't completely flat, that leads me to conclude that the "round end" is probably harder that the "flat end". I have had problems with stools that started hard/normal and progressed to soft or even...
  11. During my initial recovery period I found that having digestive enzymes with meals (look for ones that also have some acid in it) helped a lot. I keep the ones from Solgar around for any tummy issues. I later found peppermint oil to be quite useful. Whenever necessary, I take a capsule 30min...
  12. You need to get tested. In the meantime, stop eating sugar and artificial sweeteners. It helps with all sorts of digestive issues and it won't mess with you tests (keep eating bread and pasta).
  13. I know your body better than me surely, but you can also consider that some nuts are high in Fodmaps and that can be causing your bloating, not gluten. I had bloating and really bad abdominal pain, and it was just the Fodmaps. If so, you can only eat small amounts of them at a time (cashews...
  14. Thank you for the positivity, it helps.. I was severely anemic, but since I had IV iron, a normal blood test wouldn't mean much. Unless iron doesn't last much in the body, and poor absorption would already show up.. I will find out. Same with B12, still having injections. Thyroid...