Jump to content

  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Stupid things people say about your Celiac disease!

BuddhaBar
 Share

Recommended Posts

BuddhaBar Collaborator
BuddhaBar
Posted

I'm really curious about stupid things people have said about your Celiac disease. Funny, annoying or mean things. Make a list 😀

1. "What does lactose free milk taste like"? 
I don't know. I'm not lactose intolerant and I've never mentioned anything about lactose to anyone. 

2. "You don't have to eat the crust. Just eat the filling!"
Yeah, that's a very good idea! Just eat the cheese and the pepperoni. It hasn't touched the crust!

3. "My daughter is allergic too, but to nuts"
Poor girl. Lucky me though, I don't have any allergies.

4. "Can you eat eggs? Can you eat rice? Can you eat potatoes? Can you eat fish? Can you eat nuts? Can you eat...." etc etc
Just ask me if I can eat ANYTHING without getting sick. That would save both time, energy and oxygen.

5. "Just go vegan!"
Yup, because wheat, barley and rye are actually animals.

6. "I don't eat gluten either. Gluten is not healthy. Well, I eat some gluten sometimes, but not everyday because it's not healthy"
Oh! Can we do an immune system transplant, please? Give me yours and I'll give you mine. 

7. "I would never buy anything gluten free. It's too expensive"
Yeah, but it's a very small price to pay for health! 

That's all I can remember for now. Please, do your list!




 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

We have a friend who has known me know for at least 15 years, and I've been gluten-free through the entire time. We've been over to their home over 100 times, and they have been over to ours over 100, yet, every time I eat at their home she serves things that are clearly not gluten-free, for example she'll put out wheat crackers with the cheese, and when I put out my gluten-free crackers which I always bring with me (among other gluten-free things!), she ALWAY says "really, crackers have gluten in them?"

You can pretty much substitute almost any wheat item into this exchange, it could be pizza, muffins, pancakes, you name it...it's always the big surprise to her that these things have gluten and are made with wheat. She means no harm by it, but it always amazes me that she never seems to grasp the concept of gluten-free, and what it means.

BuddhaBar Collaborator
BuddhaBar
Posted
  • Author

Ah, the people who never learn no matter how many times you tell them. Fortunately I've found a great way to deal with those people. I just tell them they don't have to bother at all and that I will deal with my disease myself. Don't bother cooking for me, I'll bring my own food. 

Dealing with some family members who feel disrespected when I don't want to eat their food, but hey post-diagnosis I had to throw away most of my own kitchen equipment because of traces of gluten. It's kinda the same thing. Has nothing to do with respect. Gluten are protein molecules. It's not like one loaf of bread is one gluten unit that's easy to avoid. 

Scott Adams Grand Master
Scott Adams
Posted

To continue your list:

8. ) Really, ___________ has gluten in it?! (add any obvious item here, a cake, pizza, crackers, bread, rolls, etc.)

9) Can’t you eat just a little bit, it’s really good? (add in any obvious gluten item).

 

PS - This thread might be article worthy!

 

Scott Adams Grand Master
Scott Adams
Posted

10) Celiac disease sounds psychosomatic to me, the gluten-free diet could be just a placebo effect. (a lawyer I worked for said this to me shortly after my diagnosis.)

Scott Adams Grand Master
Scott Adams
Posted

11) No gluten, I would kill myself! (yes, I’ve heard this one several times)

Ivana Enthusiast
Ivana
Posted

"Maybe when you heal you can eat gluten again." 

Praising the food I liked but can't eat anymore in front of me. "OMG so good!" Then asking me: "You want to kill us now, don't you?" :)

But I actually try not to mind when people say such things. I was equally ignorant about celiac before my diagnosis and would have probably been the same. And I also don't think others can really grasp what it also means mentally when you are not free to eat whatever and have to be on the lookout all the time. 

(Medical workers who are as ignorant are a problem, though.) 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


paigem Newbie
paigem
Posted

I once had someone adamantly tell me that I was just faking it to stay skinny... this person was the mother of my boyfriend at the time. 

trents Grand Master
trents
Posted

"Can you eat vanilla ice cream?"

Scott Adams Grand Master
Scott Adams
Posted

Our salads come with croutons, can't you just pull them off? (a clue you're in the wrong restaurant!)

BuddhaBar Collaborator
BuddhaBar
Posted
  • Author

Our local Dominos: "Well, we bake the gluten free pizza in the same oven as the regular pizzas so it might not be completely gluten free"

Please, remove the gluten free pizza from your menu. 

Co-worker about using the same butter: "It's only a few crumbs"

Well, the immune system reacts to one single bacteria so... 

 

LI$A Newbie
LI$A
Posted

My older sister and I both have Celiac.  She had a stroke last year and the rehab hospital had NO MENU or even a PLAN for patients with Celiac. She had to live on cottage cheese and eggs for 3 damn weeks.  Absolutely shameful.

 

trents Grand Master
trents
Posted

LI$A, where do you live?

If I were you I would take this issue up with the food services department at this hospital and push them to develop gluten-free offerings for their patients. If they are not responsive to your input, I would consider an writing an oped for the local newspaper informing the public in your community that this hospital may not be safe for people with gluten disorders. There is no excuse for any healthcare facility that offers inpatient care to not address this need when so many people need to avoid gluten. It is not unusual or rare any longer. 

Awol cast iron stomach Experienced
Awol cast iron stomach
Posted
On 1/10/2021 at 1:31 PM, Scott Adams said:

11) No gluten, I would kill myself! (yes, I’ve heard this one several times)

After sharing it with lunch mates everyone says I could never go without (gluten any food). The next day subconsciously everyone brings a gluten meal to lunch. 🤦

Awol cast iron stomach Experienced
Awol cast iron stomach
Posted

In  addition to gluten I have other intolerances.

I am often asked "What can you eat"

Whole foods.

"Oh I shop at Whole Foods all the time"

😉

RMJ Mentor
RMJ
Posted

A doctor saying “You probably don’t have that”.

My response:  The biopsy I had last week said that I do.

Scott Adams Grand Master
Scott Adams
Posted
5 hours ago, LI$A said:

My older sister and I both have Celiac.  She had a stroke last year and the rehab hospital had NO MENU or even a PLAN for patients with Celiac. She had to live on cottage cheese and eggs for 3 damn weeks.  Absolutely shameful.

 

This is literally every celiacs' worst nightmare!

Sam85 Rookie
Sam85
Posted

“Just build up your energy levels and you’ll be able to overcome this disease.” A family doctor said this to me, I’m not even sure what that meant 😳

BuddhaBar Collaborator
BuddhaBar
Posted
  • Author
7 hours ago, Sam85 said:

“Just build up your energy levels and you’ll be able to overcome this disease.” A family doctor said this to me, I’m not even sure what that meant 😳

 

Dr._Riviera.png

Kelly Kimball Newbie
Kelly Kimball
Posted

At a restaurant, I talked to the waitress re the "sauce" that would be on the main dish. I explained that I had an autoimmune disease and couldn't eat anything with gluten in it. I told her no wheat, barley or rye. She assured me that the "sauce" was OK. When she presented the dish, clearly covered in brown gravy, she explained that it "just had flour in it .......no wheat".

This was early in my days of learning to live Gluten Free.

trents Grand Master
trents
Posted
1 minute ago, Kelly Kimball said:

At a restaurant, I talked to the waitress re the "sauce" that would be on the main dish. I explained that I had an autoimmune disease and couldn't eat anything with gluten in it. I told her no wheat, barley or rye. She assured me that the "sauce" was OK. When she presented the dish, clearly covered in brown gravy, she explained that it "just had flour in it .......no wheat".

This was early in my days of learning to live Gluten Free.

Made me laugh and reminded me of a conversation I had with a big chain restaurant chef some years ago as I was preparing for a company celebration in a few days. As I discussed different non gluten menu options with him and was about to finalize a plan, I asked him about one more particular item I was interested in for the meal. "Does this have gluten in it?" I asked him. The reply, "Oh no. That's completely non dairy." 

  • 3 weeks later...
Juca Contributor
Juca
Posted

"Don't worry, I disinfected everything."  said the cook, spraying a flour filled kitchen with rubbing alcohol... yes, you can "kill" gluten like that. 

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Coeliac or not coeliac

      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
    2. cristiana
      - cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Coeliac or not coeliac

      Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal. My TTG score was completely through the roof at the time, greater than 100 which was then the cut...
    3. trents
      - trents replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Coeliac or not coeliac

      My bad. I should have reread your first post as for some reason I was thinking your TTG was within normal range. While we are talking about celiac antibody blood work, you might not realize that there is not yet an industry standard rating scale in use for those blood tests so just having a raw number with out the reference scale can be less than helpful...
    4. knitty kitty
      - knitty kitty replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Coeliac or not coeliac

      @CC90, Your Lansoprazole is a proton pump inhibitor and has immunosuppressive effects!!!! This is why your endoscopy didn't show much damage to the intestinal lining!! The Lansolprazole is suppressing tTg IgA antibodies in the intestines, but those antibodies are getting into the blood stream and causing inflammation and damage in other organs...
    5. knitty kitty
      - knitty kitty replied to kevert93's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Having issues with chips

      Hi, @kevert93, Those Gluten Assist enzymes digest carbohydrates, not just gluten specifically. Eating a high carbohydrate meal can deplete Thiamine Vitamin B 1 causing digestive symptoms like you describe. You could also be having difficulty digesting the oils used in those chips. Thiamine in the form Benfotiamine can help. We need the eight...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,185
    • Most Online (within 30 mins)
      10,442
    Dennis E. Schertz
    Newest Member
    Dennis E. Schertz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Coeliac or not coeliac

      By trents · Posted

      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
    • cristiana
      Coeliac or not coeliac

      By cristiana · Posted

      Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal.  My TTG score was completely through the roof at the time, greater than 100 which was then the cut off max. for my local lab.  Yet when my biopsy results came back, I was told I was stage 3 on the Marsh scale.  I've come across the same thing with at least one other person on this forum who was told everything looked normal, but the report was not talking about the actual biopsy samples, which had to be looked at through a microscope and came back abnormal.
    • trents
      Coeliac or not coeliac

      By trents · Posted

      My bad. I should have reread your first post as for some reason I was thinking your TTG was within normal range. While we are talking about celiac antibody blood work, you might not realize that there is not yet an industry standard rating scale in use for those blood tests so just having a raw number with out the reference scale can be less than helpful, especially when the test results are marginal. But a result of 87.4 is probably out of the normal range and into the positive range for any lab's scale. But back to the question of why your endoscopy/biopsy didn't show damage despite significantly positive TTG. Because they took the trouble to take seven samples, it is not likely they missed damage because of it being patchy. The other possibility is that there hasn't been time for the damage to show up. How long have you been experiencing the symptoms you describe in your first post? Having said all that, there are other medical conditions that can cause elevated TTG-IGA values and sometimes they are transient issues. I think it would be wise to ask for another TTG-IGA before the repeat endoscopy to see if it is still high.  Knitty kitty's suggestion of getting genetic testing done is also something to think about. About 35% of the general population will have one or both genes that are markers for the potential to develop active celiac disease but only about 1% of the population actually develop celiac disease. So, having a celiac potential gene cannot be used to definitively diagnose celiac disease but it can be realistically used to rule it out if you don't have either of the genes. If your symptoms persist, and all testing is complete and the follow-up endoscopy/biopsy still shows no damage, you should consider trialing a gluten free diet for a few months to see if symptoms improve. If not celiac disease, you could have NCGS (Non Celiac Gluten Sensitivity). 
    • knitty kitty
      Coeliac or not coeliac

      By knitty kitty · Posted

      @CC90, Your Lansoprazole is a proton pump inhibitor and has immunosuppressive effects!!!!  This is why your endoscopy didn't show much damage to the intestinal lining!!  The Lansolprazole is suppressing tTg IgA antibodies in the intestines, but those antibodies are getting into the blood stream and causing inflammation and damage in other organs.   Proton pump inhibitors cause intestinal damage in the long run.  If you get off the Lansoprazole for a few months so your immune system is not blocked, then do a gluten challenge, and an endoscopy, THEN they would see intestinal damage. Sheesh!  Doctors can be so ignorant.  I've seen this so many times it's frustrating! Take the B Complex and Benfotiamine.  Get off the Lansoprazole.  Go with the DNA test results.   Welcome to the tribe! P.S. B vitamins are needed to correct anemia!  Not just iron.  
    • knitty kitty
      Having issues with chips

      By knitty kitty · Posted

      Hi, @kevert93, Those Gluten Assist enzymes digest carbohydrates, not just gluten specifically.  Eating a high carbohydrate meal can deplete Thiamine Vitamin B 1 causing digestive symptoms like you describe.  You could also be having difficulty digesting the oils used in those chips.  Thiamine in the form Benfotiamine can help. We need the eight B vitamins to digest our food, carbs, fats and proteins.  Poor digestion can cause symptoms like vomiting and stomach pain, brain fog, headaches, exhaustion.  Try taking a B Complex with the activated forms of the B vitamins (Life Extension's Bioactive B Complex is great!) and additional Benfotiamine.  The B vitamins are used to make digestive enzymes and will allow your digestive system to function properly.  The B vitamins also will improve headaches, exhaustion, and brain function.  Taking Thiamine in the form Benfotiamine will improve digestive symptoms and lower inflammation, too.  Benfotiamine and the B vitamins are safe.  The B vitamins are chemical compounds found in whole foods, not in highly processed foods like chips.   The body cannot make the B vitamins, so supplementing is beneficial.  Benfotiamine is safe and nontoxic even in high doses.
×
×
  • Create New...