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EmMothRa

Gluten Challenge - Any Relief!?

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Hi All,

I'm new here, I was hoping that someone could help me out.  I am currently being tested for Celiac disease, however I have been on a Paleo diet since Jan this year (the reason I noticed my rather unwanted reaction to wheat once I re-introduced it). However as I have been Gluten free (and feeling so good!) I now have to do a Gluten challenge for 6 weeks before my blood test. 

My symptoms are chronic Diarrhea, bloating and pain. I was wondering if anyone had any advise on how to ease the symptoms, I have a weekend this weekend and really don't won't to spend the whole time in search of a bathroom !!!

Also from what I've read it sounds like I shouldn't stop eating Gluten in case I need a biopsy is this correct. For obvious reason I don't want Gluten in my diet anymore, being symptom free for a fair few weeks now and it's no fun having it all start again! 

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Welcome my fellow paleo friend lol. Yes I might suggest you take the smallest amount of gluten needed for the test and take it at night before bed to help sleep it off. You only need like half a slice of bread a day or a few wheat crackers. Pepto bismal, and teas for digestion might help sooth it.

Welcome to the forums and sounds like you have a plan down once diagnosed already, I might suggest you check out the newbie 101 forums for additional info. If you need any help on ideas for foods I have a comprehensive list I will show, I have found a few grain free alternatives for foods myself like julian bakery breads and cheeses daiya cheese, my own cheese sauces, Simply Mills makes all kinds of nut based mixes even found 2 pizza companies that make paleo based pizza crust frozen.  and options for mixes. I also do a ton of things from scratch like my own paleo cinnamon cake, garlic cheesy bread, and cheddar biscuits all grain, gluten, dairy, and soy free. Check the recipe section for some things I have done (I do chef work for people to make money on the side and love cooking).

If you have any other issues with symptoms feel free to ask the community here for advice.

https://www.celiac.com/forums/topic/91878-newbie-info-101/

https://www.celiac.com/forums/topic/117090-gluten-free-food-alternatives-list/

 


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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21 minutes ago, Ennis_TX said:

Welcome my fellow paleo friend lol. Yes I might suggest you take the smallest amount of gluten needed for the test and take it at night before bed to help sleep it off. You only need like half a slice of bread a day or a few wheat crackers. Pepto bismal, and teas for digestion might help sooth it.

Welcome to the forums and sounds like you have a plan down once diagnosed already, I might suggest you check out the newbie 101 forums for additional info. If you need any help on ideas for foods I have a comprehensive list I will show, I have found a few grain free alternatives for foods myself like julian bakery breads and cheeses daiya cheese, my own cheese sauces, Simply Mills makes all kinds of nut based mixes even found 2 pizza companies that make paleo based pizza crust frozen.  and options for mixes. I also do a ton of things from scratch like my own paleo cinnamon cake, garlic cheesy bread, and cheddar biscuits all grain, gluten, dairy, and soy free. Check the recipe section for some things I have done (I do chef work for people to make money on the side and love cooking).

If you have any other issues with symptoms feel free to ask the community here for advice.

https://www.celiac.com/forums/topic/91878-newbie-info-101/

https://www.celiac.com/forums/topic/117090-gluten-free-food-alternatives-list/

 

Thanks, yes as soon as I can I will be straight back onto the Paleo, thanks for letting me know I don't need to eat tons to get an accurate result. Only half a day in and already suffering ? Better stock up on the Pepto Bismal !! ??

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I found Immodium to be the most effective in stopping the D during the many long years it took to get diagnosed. Pepto liquid helped a great deal with stomach pain but didn't do a thing for me to help with the D.  An anti-inflammatory helped with some of the other pain, like joint and headaches but didn't give complete relief. If things get too bad do contact your doctor as there are prescription meds that may help.

Hopefully 6 weeks will be long enough to get you a positive on blood tests and do keep eating gluten if you are going to have the biopsy done. Your body has already given you clear indications that it doesn't like gluten but getting a diagnosis can be important.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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I don't know if this will help you but I had been on Prevacid due to reflux for 5 years before being diagnosed with Celiac.  At the time of diagnosis, I was nearly asymptomatic.  I didn't have reflux after I went gluten-free so I stopped taking Prevacid. Also, I had to buy a complete new wardrobe of slacks because I hadn't realized how bloated I was from the gluten. 

Now, the tiniest amount of gluten will cause a major reaction. Imodium will stop the D (thank you for that simple expression, ravenwoodglass). Psyllium hulls and water (Metamucil) will help keep the Imodium from causing constipation. Phazyme will help with the gas.

Please realize that you won't be absorbing complete nutrition from your food while this challenge is in progress.  If there are any nutrients you can take in sublingual form, do so.

Also, to put it tactfully, don't ever assume it's only gas while this is going on.


Karen B.

diagnosed with Celiac Nov. 2003

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Thanks Karen - Tell me about the bloat, it's not even 24 hours and I'm in my comfy jeans!! Thanks for the advise will stock up. Yep I'm already taking vitamin supplements as this is one of the reasons the doctor wants to do the celiac test, not absorbing iron, that would explain the whole tiredness thing! Feeling a bit warn out today and very bloated !!

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I have recently discovered that Anise is great for gas. It is a spice I order from spicely organics and certified gluten-free. Look up on it might be worth it and ordering some on amazon. Goes nice in tea, baked goods, eggs.  NOTE ANISE not Anise Star two different spices.

https://www.amazon.com/Spicely-Organic-Anise-Ground-Ounce/dp/B00A37ZQ86/ref=sr_1_3_s_it?s=grocery&ie=UTF8&qid=1494331138&sr=1-3&keywords=Spicely+Organic+Anise

I buy wholesale from the company direct and got a lb of it.

https://www.drugs.com/npc/anise.html

https://en.wikipedia.org/wiki/Anise


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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EmMothRa, just FYI - Sam's Club carries a generic form of Imodium,  I think the bottle of 200 was around $5. Why spend more than you have to?

Also, it's one of the things someone with Celiac should always have handy, just in case.   


Karen B.

diagnosed with Celiac Nov. 2003

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1 hour ago, Karen B. said:

EmMothRa, just FYI - Sam's Club carries a generic form of Imodium,  I think the bottle of 200 was around $5. Why spend more than you have to?

Also, it's one of the things someone with Celiac should always have handy, just in case.   

Thanks Karen - I'm actually in the UK but know where I can stock up ! I'm surviving so far, feeling pretty rotten but then I suppose that is to be expected. 

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I have horrible bloating and gas too when I eat gluten. The only thing that's every gave me relief for that is gas x chewables. Forget the directions on the back you can't overdose on simethicone, I chew 3 or 4 at a time. Also herbal tea has been a lifesaver. I get Bigelow's ginger and lemon with probiotics in it at the grocery store. It's gluten free and cheap. I sweeten it with some local honey. The hot ginger tea and honey really help with soothing the stomach just drink it hot so you'll drink it slow and won't give yourself more gas. 

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On 5/8/2017 at 0:34 PM, Ennis_TX said:

Welcome my fellow paleo friend lol. Yes I might suggest you take the smallest amount of gluten needed for the test and take it at night before bed to help sleep it off. You only need like half a slice of bread a day or a few wheat crackers. Pepto bismal, and teas for digestion might help sooth it.

Welcome to the forums and sounds like you have a plan down once diagnosed already, I might suggest you check out the newbie 101 forums for additional info. If you need any help on ideas for foods I have a comprehensive list I will show, I have found a few grain free alternatives for foods myself like julian bakery breads and cheeses daiya cheese, my own cheese sauces, Simply Mills makes all kinds of nut based mixes even found 2 pizza companies that make paleo based pizza crust frozen.  and options for mixes. I also do a ton of things from scratch like my own paleo cinnamon cake, garlic cheesy bread, and cheddar biscuits all grain, gluten, dairy, and soy free. Check the recipe section for some things I have done (I do chef work for people to make money on the side and love cooking).

If you have any other issues with symptoms feel free to ask the community here for advice.

https://www.celiac.com/forums/topic/91878-newbie-info-101/

https://www.celiac.com/forums/topic/117090-gluten-free-food-alternatives-list/

 

Hmm that sounds like you have allergy to wheat 

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51 minutes ago, Victoria5289 said:

Hmm that sounds like you have allergy to wheat 

I actually have celiac disease, and Ulcerative Colitis, so in addition to no gluten the UC has flare ups to dairy, soy, carbs, and the  sugars glucose, fructose, and sucrose.   Essentially I have to eat a paleo no grain low carb diet. I went with a keto diet as I get the most energy out of it. I also have some other food allergies and intolerance. At least I know the triggers for these and am making the most out of it.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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