Jump to content

  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Reaction to gluten but also BUTTER

soph93

By soph93
in Related Issues & Disorders

 Share

Recommended Posts

soph93 Newbie
soph93
Posted

Hi all,

For years now I have been struggling with severe bloating and cramping after eating certain foods. I have been to the doctors several times and had scans, blood tests, the lot. However, eventually they gave up and told me that I just had IBS. I decided to try eliminating food groups myself, starting with gluten as I noticed particular flare ups every time after pizza, sunday dinners, chinese and burritos. I have been gluten free for approximately 2 weeks now and have been feeling lots better and no flare ups. 

It wasn't until this weekend that I had a cheese sandwich made with gluten-free bread, cheddar cheese, lettuce, pepper and butter - with this I had a packet of Walkers crinkle cut crisps. After this meal, I had a huge flare up and felt so sick and nauseous for the rest of the day - and I am now still suffering from this flare up as it takes days sometimes weeks for my stomach to deflate after. 

I've been trying to pinpoint what I have eaten in this meal to cause this and my instant thoughts was that I may have a dairy intolerance also. However, I had eaten cheese the day before and was fine, and also have normal milk with my gluten free cereal, as well as poached eggs without any flare ups (I do bloat after eating boiled eggs on their own however). The crisps didn't have any gluten allergy warnings on the back, only milk - however I was fine eating the same packet of crisps a few days prior also. 

This led me to the conclusion that it must of been the butter! I also ate a gluten free pie today and feel really ill after that so wondering if I'm starting to see a link. Is it possible to have a gluten intolerance and have a sensitivity to just butter and boiled eggs but fine drinking milk and eating eggs cooked another way?

I'm very confused and doctors seem to no help. I'm just sick of forever having to wear baggy clothes incase of a flare up and being in pain all the time!!

Thanks,
Soph93

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
1 minute ago, soph93 said:

Hi all,

For years now I have been struggling with severe bloating and cramping after eating certain foods. I have been to the doctors several times and had scans, blood tests, the lot. However, eventually they gave up and told me that I just had IBS. I decided to try eliminating food groups myself, starting with gluten as I noticed particular flare ups every time after pizza, sunday dinners, chinese and burritos. I have been gluten free for approximately 2 weeks now and have been feeling lots better and no flare ups. 

It wasn't until this weekend that I had a cheese sandwich made with gluten-free bread, cheddar cheese, lettuce, pepper and butter - with this I had a packet of Walkers crinkle cut crisps. After this meal, I had a huge flare up and felt so sick and nauseous for the rest of the day - and I am now still suffering from this flare up as it takes days sometimes weeks for my stomach to deflate after. 

I've been trying to pinpoint what I have eaten in this meal to cause this and my instant thoughts was that I may have a dairy intolerance also. However, I had eaten cheese the day before and was fine, and also have normal milk with my gluten free cereal, as well as poached eggs without any flare ups (I do bloat after eating boiled eggs on their own however). The crisps didn't have any gluten allergy warnings on the back, only milk - however I was fine eating the same packet of crisps a few days prior also. 

This led me to the conclusion that it must of been the butter! I also ate a gluten free pie today and feel really ill after that so wondering if I'm starting to see a link. Is it possible to have a gluten intolerance and have a sensitivity to just butter and boiled eggs but fine drinking milk and eating eggs cooked another way?

I'm very confused and doctors seem to no help. I'm just sick of forever having to wear baggy clothes incase of a flare up and being in pain all the time!!

Thanks,
Soph93

 

Did you get tested for Celiac?  Even if it isn't Celiac , it could take more than 2 weeks to see if gluten is the problem.  

If you have been tested for Celiac and it is negative.  You might want to try to start with a very simple gluten-free diet - just a few ingredients like chicken, salt, pepper, olive oil, rice, potatoes.  Get your self feeling better and then add things back in.  Eating so many different foods with so many ingredients makes it impossible to know what one thing is bothering you.  

Ennis-TX Grand Master
Ennis-TX
Posted

Ditto kareng, first are you celiac, and were you tested? You need to see about a firm diagnosis.
Open Original Shared Link
IF you are celiac then with damaged villi you do not digest or break down lactose.....the villi that are blunted/destroyed are responsible with the enzymes to break them down....so higher lactose dairy foods will be worse then lower ones. We normally suggest removing all dairy products when your first diagnosed for a few months. Mine never went away and I got whey allergy, so I use vegan cheese and butter flavored coconut oil for my cooking, baking, eating. I can give you a list to try later but normally we also suggest a WHOLE FOODS ONLY diet and simple meals of sheet pan meals, crock pot meals, omelettes, soups, stews, omelettes simple baked chicken etc.

For now a keep a food diary and see whats bother you, foods intolerance issues and sensitivities are very common with celiac.
Open Original Shared Link
Open Original Shared Link

Jenv47 Newbie
Jenv47
Posted

100% yes it can be dairy and eggs.  I have celiac but I have to avoid cow’s milk and eggs.  I’ve had eggs cooked in a gluten free product and have been ok but certainly no dairy and would never eat an omelet....  I was tested and the cow dairy and egg increase my IGG response which is inflammatory-  not hives etc.. and I feel horrible 

soph93 Newbie
soph93
Posted
  • Author

Hi all, 

 

thanks for your comments. The blood tests for anything such as celiac came back negative, so I don't think I am celiac - more just a gluten sensitivity. 

I will try more of a simpler diet taking out both gluten and dairy and then see how I feel. thank you all for your comments.

cyclinglady Grand Master
cyclinglady
Posted

But did you get all the celiac blood tests?  I test positive to ONLY the DGP IgA.  If my GI had not ordered the complete panel, my diagnosis would have been missed.  Then there are about 10% of celiacs who are seronegative.  In that case, a biopsy is required.  

 

Ciglee Newbie
Ciglee
Posted

You don’t have celiac, move on. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted
(edited)

Hi soph,

You may still have celiac disease.  Celiac can be hard to diagnose.  Most people with celiac disease are still undiagnosed even today.

If you do have NCGS (non-celiac gluten sensitivity) you are part of a much bigger group of people who have a reaction to gluten foods but don't show up on the standard celiac tests.  Possibly 5% of people have NCGS, vs 1% who have celiac.

The treatment for both is the gluten-free diet.  However, there is some new research that suggests people with NCGS react to foods with FODMAP'S.  So a low FODMAP'S diet may help them.

But the advice to go on a simple, whole foods diet is good.  Reduce the variety of foods you eat each day so its easier to track reactions.  Recovering from celiac damage is a months to years thing, not days.  The immune system doesn't stop attacking right away.

Avoiding sugary foods and carbs can help with bloating.  Meat and veggies, and nuts are good.  There are lots of processed gluten-free baked goods available but it is better to avoid those at the gluten-free diet start.

You may want to do an elimination diet at some point.  But I'd wait on that awhile.

Edited by GFinDC
cyclinglady Grand Master
cyclinglady
Posted
(edited)
2 hours ago, Ciglee said:

You don’t have celiac, move on. 

What?  How can you (most likely not a doctor) make that call?  We try to be supportive on this forum which is dedicated to celiac disease, Non-Celiac Gluten Sensitivity or other autoimmune issues where a gluten free diet might help.  

What brings you back?  You last posted in 2013.  Are you experiencing current issues that may be attributed to a gluten exposure?  I am curious.  

Edited by cyclinglady

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Gluten-Free Bulgogi Beef: A Sweet and Savory Korean Barbecue Favorite

    2. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Breakfast ideas besides oatmeal as Avenin can be gluten?

      I read gluten-free oatmeal Avenin can cause gluten like symptoms. I read Bobs Redmill gluten-free creamy buckwheat cereal and Millet are good alternatives with ultra low heavy metals, mold but it seems it takes longer to prepare the minute oats. What have you changed your breakfast to.
    3. RMJ
      - RMJ replied to Ginger38's topic in Coping with Celiac Disease
      5

      The Struggle Has Overtaken Me

      Ginger38, that sounds very difficult. Each dietary restriction makes it harder to figure out what to eat. Before my celiac diagnosis I already watched out for my cholesterol level and migraine triggers, but those are much easier than diabetes restrictions. One “bad” meal isn’t that much of a problem for cholesterol levels, and my migraines only happened if I ...
    4. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Ginger38's topic in Coping with Celiac Disease
      5

      The Struggle Has Overtaken Me

      Reading the original post on this thread made me think of "How To Eat An Elephant". The key point is that a whole, big problem can seem insurmountable but if you break it into bite-sized pieces it is much easier to accomplish. Here is the google description. It's not bad: If you're facing a daunting goal, you can use these steps to "eat your elephant...
    5. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten challenge - Need some guidance

      I don't know the answer to your question any better than a google search, but I am sure someone else will step up and answer. I am popping up to recommend that you keep a careful diary (in case you weren't already). Try to catalog what you are eating and experiencing. Bring a copy to your next visit (and if you have access to the Dr, also send a copy...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,180
    • Most Online (within 30 mins)
      10,442
    Nancy sirois
    Newest Member
    Nancy sirois
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      Breakfast ideas besides oatmeal as Avenin can be gluten?

      By xxnonamexx · Posted

      I read gluten-free oatmeal Avenin can cause gluten like symptoms. I read Bobs Redmill gluten-free creamy buckwheat cereal and Millet are good alternatives with ultra low heavy metals, mold but it seems it takes longer to prepare the minute oats. What have you changed your breakfast to.
    • RMJ
      The Struggle Has Overtaken Me

      By RMJ · Posted

      Ginger38, that sounds very difficult.  Each dietary restriction makes it harder to figure out what to eat. Before my celiac diagnosis I already watched out for my cholesterol level and migraine triggers, but those are much easier than diabetes restrictions. One “bad” meal isn’t that much of a problem for cholesterol levels, and my migraines only happened if I consistently ate the triggers. After many years I’ve figured out how to bake gluten free but I think many recipes have more starch which wouldn’t work for diabetes. If you go with the elephant eating analogy, I think the first portion to work on would be the diabetes, since the immediate consequences of not being careful (passing out from low blood sugar, or diabetic coma from high blood sugar) are so severe. The next portion would be celiac. The serious consequences aren’t as immediate, but if you have celiac disease, I think of eating gluten like a booster shot - revving up the immune system, but to attack yourself leading to long term damage. It sounds like you are experiencing this damage now. I did a google search on “gluten free food for diabetics” and a number of sites with advice came up.  If your insurance will cover it and you can find one, a registered dietician who knows about both diabetes and celiac disease might help you figure out what to eat safely. Hopefully my post will both scare and encourage you, as requested, with a big dose of compassion because this sounds very difficult and you are clearly suffering.
    • Aretaeus Cappadocia
      The Struggle Has Overtaken Me

      By Aretaeus Cappadocia · Posted

      Reading the original post on this thread made me think of "How To Eat An Elephant". The key point is that a whole, big problem can seem insurmountable but if you break it into bite-sized pieces it is much easier to accomplish. Here is the google description. It's not bad: If you're facing a daunting goal, you can use these steps to "eat your elephant": Identify the Elephant: Clearly define the large project or goal that feels overwhelming. Break it Down: Divide the major task into smaller "bite-sized" pieces. If a piece still feels too big, break it down further. Prioritize: Decide which "bite" to take first based on necessity or impact. Focus on the Now: Instead of worrying about the whole animal, focus only on the single step you are taking right now. Maintain Consistency: Progress comes from taking the "next right step" every day until the task is complete. Celebrate Small Wins If I understood Ginger38's post correctly, you are facing the prospect of a gluten challenge, but you are already eating gluten on an intermittent basis. It also sounds like many of the symptoms you attribute to gluten consumption are in full expression. Step back and take a deep breath. Get a notebook and start a gluten-related diary. Don't try to make it perfect; just record what you can about food intake and what you experience as you go along. Talk to your Dr's office (nurse, Dr, whomever) about the challenge. The most rigorous challenge is for someone who has already gone truly gluten free but now needs a clear diagnosis. Someone who is already eating gluten should not need as much "challenge". Even at that, google describes an example challenge as 1-2 slice of bread or 1/2 cup of pasta a day. If that describes your existing diet you are already there. For the moment, try to focus on getting past the challenge and test. Once you have the results, start planning accordingly.
    • Aretaeus Cappadocia
      Gluten challenge - Need some guidance

      By Aretaeus Cappadocia · Posted

      I don't know the answer to your question any better than a google search, but I am sure someone else will step up and answer. I am popping up to recommend that you keep a careful diary (in case you weren't already). Try to catalog what you are eating and experiencing. Bring a copy to your next visit (and if you have access to the Dr, also send a copy a couple days in advance). Don't assume that they will read it. They might, but they also might be under tremendous time pressure and not get to it. Two other suggestions: if your healthcare provider has a web portal, sign on and search for "gluten challenge". They may have a standard page and Dr assumed you would find it on your own. If that doesn't work, call the Dr's office and ask the office for their official advice. You probably wouldn't need to speak to the Dr directly. There should be some nurse or staff member who could answer that
    • Xravith
      Gluten challenge - Need some guidance

      By Xravith · Posted

      After few months going gluten free, I decided to reintroduce gluten in my diet so I can do a proper diagnosis for Celiac disease. During the gluten free period I felt incredibly good. I stopped having hypoglycemia symptoms, I gained some muscle (Still, I am considerably underweight) and my anxiety totally disappeared. I felt totally like a new person. Now, I almost reached the second week of gluten challenge and all my symptoms are progressively coming back. The first days I was ok, just a bit of acid reflux I could control with medicines. However, after the first week I started to feel real stomach pain and tiredness, my face is growing acne and sometimes (specially when I walk) i feel painful migraines.  I am afraid If I am eating too much gluten or not enough, the "4 slices of bread" indication confuses me. I am actually eating 20 g of bread, 3 biscuits and 40 g of croissant each day. My doctor was not very specific when he gave me the medical order for the gluten challenge, so I invented my own daily gluten menu. Do you have any suggestions? 4 weeks will be enough to do the blood test with my current gluten intake?  Thank you
×
×
  • Create New...