Does anyone else experience this?

[Hoppy1]

I was diagnosed with Celiac Disease officially in 2009.  I had experienced symptoms for years- the extreme fatigue, the stomach pain, dermatitis, weight loss, depression, etc.  You name it-I had it.  Anyway, now that I am post diagnosis, when I do accidently encounter gluten, the effects seem way more violent in nature.  For instance, after what I think is gluten is ingested (I say this because I’m sure I haven’t had food poisoning or the stomach flu this many times), it starts with stomach pain but also nausea.  This all happens about an hour after supposed ingestion.  That’s not even the worst of it.  Suddenly I will feel a massive flush over my body and experience a panic attack and immediately begin vomiting and/or diarrhea.  Mostly vomiting.  That won’t stop.  Does anyone else experience this?  I’m wondering if it is age as well- I’m 42 now vs when celiac was wreaking havoc on my body in my 20’s and 30’s. 

[cyclinglady]

I was just anemic when I was diagnosed.  No GI issues.  But now, when expososed to gluten, I get severe reactions (GI).  So, I think your response is common.  I avoid gluten like crazy.  Who wants to feel that bad?  

 

[Ennis-TX]

Yeah my reactions after going gluten free were much worse when I was exposed again...pretty much the whole vomiting for hours, but violent to the point of sometimes rupturing capillaries and full blown ataxia unable to move, then D for days, brain fog, muscle issues, nerve issues, etc.
Before dia, vomiting was mild but almost daily, constipation was a big issue, cramping stomach issues seemed more minor and I was used to them as daily life, the worst was the brain fog, fatigue, sleeping most the day, and at the end before getting dia. I was dealing with looping thoughts, and onset of ataxia based brain damage causing random issues with lack of pain, and inability to think straight with huge burst of anger.

I question if I was just used to and numb to the gut issues and stomach issues prior...or if it was a rebound effect of my immune system having the ability to rest and hit back full strength instead of always tired and fighting a losing battle.

[Hoppy1]

20 hours ago, cyclinglady said:

I was just anemic when I was diagnosed.  No GI issues.  But now, when expososed to gluten, I get severe reactions (GI).  So, I think your response is common.  I avoid gluten like crazy.  Who wants to feel that bad?  

 

I am anemic as well- pretty much due to losing all my iron and nutrients due to celiac.  I realize I have to be much more careful.

[cyclinglady]

Have you had follow-up testing to see if your celiac disease is still active?  It could be something else or it could be due to gluten exposures.