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amanda12

Lab Testing Significance Question

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NNowak......

Geez.......and I thought I had a bad experience!  😳. How horrible you had to endure such arrogance from the GI crowd!  Your post was well written and very typical of how people with potential Celiac are treated.  What is it about this diet that makes these doctors so resistant to obtaining a diagnosis?  Why do so many think all the symptoms have to be gut related?  

I got the eating disorder snarkiness too because I was always underweight.  I would tell them I eat like a lumberjack and still could not gain weight.  They always had an answer........you have a great metabolism!  Yeah, right.......I have Hashi’s thyroid disease.  Don’t think so.

Your advice is great and spot on!  It’s all about the research. Just learn the diet well and watch yourself get better.  The difference can be amazing!

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13 hours ago, amanda12 said:

My PCP is great, but I don't get the idea he is comfortable managing celiac disease. I do know he have no trouble referring me out. I will keep looking for a doctor and hopefully I will find one that is good. Columbus is a large city, you would think it wouldn't be this hard!

Hi Amanda,

Hopefully you are on Facebook.  There is a gluten-free group on Facebook for the Columbus area.  I suggest joining that FB group and asking them for a doctor recommendation.

https://www.facebook.com/groups/320392650815/

The Gluten-Free Gang of Central Ohio

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10 hours ago, Gemini said:

NNowak......

Geez.......and I thought I had a bad experience!  😳. How horrible you had to endure such arrogance from the GI crowd!  Your post was well written and very typical of how people with potential Celiac are treated.  What is it about this diet that makes these doctors so resistant to obtaining a diagnosis?  Why do so many think all the symptoms have to be gut related?  

I got the eating disorder snarkiness too because I was always underweight.  I would tell them I eat like a lumberjack and still could not gain weight.  They always had an answer........you have a great metabolism!  Yeah, right.......I have Hashi’s thyroid disease.  Don’t think so.

Your advice is great and spot on!  It’s all about the research. Just learn the diet well and watch yourself get better.  The difference can be amazing!

Thank you, Gemini. 
I’m fortunate that the first 20 years of being a Celiac I was cared for by a smart OB/GYN. That practice respected the fact I do research, and was always willing to discuss my concerns. The changes in insurance mandated I have a primary care physician in 2017, in order to get to the bottom of my fall and obtain answers regarding my chronic pain. This is where the issues began. My poor sister has had 20 years of hardships with arrogant physicians, which results in very poor health and quality of life. 
 

I’m not shy, and I come prepared if I’m going to converse on a topic. These days docs simply want to take a 10 minute window with a “subject,” order up a bunch of tests and collect their money. There is zero follow up. It is utterly disgusting that the patients records are not referred to prior to their appointment, if at all - my time and quality of life is just as valuable as the docs.  Questions to gently put the docs on track are not appreciated by them. You know, the GI nurse actually asked me how often I force myself to vomit because I now have a hiatal hernia??  The lengths these practitioners go to in order to dismiss a patient is astounding.  I choose to find humor in it - what other profession allows the abuse of ill people (customers) to cover up incompetence/laziness??  
 

This is why I went to functional medicine for care. It cost 1/10th of what I’ve already paid to the docs and hospital - and I have a Dx!!  She also started me on low dose naltrexone (LDN) to “reset” my immune response. For those of you with a collection of chronic autoimmune issues, I HIGHLY recommend you research LDN as a possible treatment. 
 

We are all in the same boat and are blessed to have this forum to communicate and support each other. There is a lot of wisdom here!!  

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11 hours ago, GFinDC said:

Hi Amanda,

Hopefully you are on Facebook.  There is a gluten-free group on Facebook for the Columbus area.  I suggest joining that FB group and asking them for a doctor recommendation.

https://www.facebook.com/groups/320392650815/

The Gluten-Free Gang of Central Ohio

Thank you! I was actually searching to see it there was a group in Central Ohio yesterday and much not of searched the right thing. Thanks for this info, I asked to join! Great asset on top of this forum.

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12 hours ago, NNowak said:

Thank you, Gemini. 
I’m fortunate that the first 20 years of being a Celiac I was cared for by a smart OB/GYN. That practice respected the fact I do research, and was always willing to discuss my concerns. The changes in insurance mandated I have a primary care physician in 2017, in order to get to the bottom of my fall and obtain answers regarding my chronic pain. This is where the issues began. My poor sister has had 20 years of hardships with arrogant physicians, which results in very poor health and quality of life. 
 

I’m not shy, and I come prepared if I’m going to converse on a topic. These days docs simply want to take a 10 minute window with a “subject,” order up a bunch of tests and collect their money. There is zero follow up. It is utterly disgusting that the patients records are not referred to prior to their appointment, if at all - my time and quality of life is just as valuable as the docs.  Questions to gently put the docs on track are not appreciated by them. You know, the GI nurse actually asked me how often I force myself to vomit because I now have a hiatal hernia??  The lengths these practitioners go to in order to dismiss a patient is astounding.  I choose to find humor in it - what other profession allows the abuse of ill people (customers) to cover up incompetence/laziness??  
 

This is why I went to functional medicine for care. It cost 1/10th of what I’ve already paid to the docs and hospital - and I have a Dx!!  She also started me on low dose naltrexone (LDN) to “reset” my immune response. For those of you with a collection of chronic autoimmune issues, I HIGHLY recommend you research LDN as a possible treatment. 
 

We are all in the same boat and are blessed to have this forum to communicate and support each other. There is a lot of wisdom here!!  

NNowak.......you have hit the nail on the head with your critique of the medical profession as it stands today.  I understand there are many people today going to doctors but that is no excuse for doing business the way they do.  It is now quantity over quality and if you don’t have something that is easy to find, you are not going to get the help you need.

I, too, go to a functional medicine doctor for most of my needs.  Yes, I have to pay cash for her services but I get the help I need without a boatload of meds.  Plus, now I have a high deductible plan, like many people, so I still pay out of pocket for the mainstream crowd and get some help but not what it should be.  They have this protocol they follow and if you fall outside of that box, you have to be on your toes and advocate for yourself or good luck!

I have been on LDN for almost a year but have not found it to be that helpful for me.  From what I have learned, it works really well for pain issues.  Many people get great results with it.  Mine are not pain related so not sure if it will do the trick.  I am having some Sjogren’s flares at the moment, all from stress, and haven’t seen much in the way of results.  My niece, on the other hand, has Celiac and that elusive fibromyalgia, and she swears by LDN for pain relief.  I agree that anyone with pain should give it a whirl because there are no side effects from it.  

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