Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

B12 Malabsorption?

slpinsd

Recommended Posts

slpinsd Contributor
slpinsd
Posted

When I got all of my bloodwork back, my Vitamin B12 level was very low )48 with normal levels 228-1132. I'm getting weekly B12injections. My iron, calcium were very normal. Folic acid and megnesium, potassium were in the low normal range. I was wondering if anyone had a B12 level markedly low, with normal iron who has been diagnosed Celiac? I do not have pernicious anemia, so the only other possibilities that I think could cause that (I had a negative biopsy) are h. pylori and/or low stomach acid. Also I think B12 is absorbed lower in the small intestine, which wasn't biopsied, so maybe that is where my damage is? If there is damege.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


darlindeb25 Collaborator
darlindeb25
Posted

My B12 level falls within the normal ranges and I still do a sublingual 1200 mcg B12 supplement daily. I have peripheral neuropathy now as a result of celiacs and they tell us that normal ranges are not high enough for us. B12 deficiencies open the door for other diseases to come in--try to keep your levels up--ok. Deb

Jen H Contributor
Jen H
Posted

Hey Slpinsd,

I also had low vitamin B levels and my doctor suggested a vitamin B complex. A few of my other levels were also low--vitamin D, magnesium, and calcium. Because we have celiac disease, we haven't been absorbing nutrients properly. Have you had a bone scan done to check for osteoporsis?

guy220d Rookie
guy220d
Posted
My B12 level falls within the normal ranges and I still do a sublingual 1200 mcg B12 supplement daily. I have peripheral neuropathy now as a result of celiacs and they tell us that normal ranges are not high enough for us. B12 deficiencies open the door for other diseases to come in--try to keep your levels up--ok. Deb

On your neuropathy, did your feet (heels, arches) hurt, even in the middle of the night? Or was it mostly tingling, burning? I've been having the foot and muscle pain

Jenn2005 Contributor
Jenn2005
Posted

My husband also gets B12 injections. His levels were low also (under the normal range) and he had normal iron levels also. He has recently had increased liver enzymes in his last bloodwork. He is getting the injections now once monthly he was getting them biweekly. The doctor said his levels were coming up now but he wants him to continue with the injections monthly.

Jennifer

  • 5 years later...
swcom120 Rookie
swcom120
Posted

Can some of you tell me what your symptoms were?

sa1937 Community Regular
sa1937
Posted

Can some of you tell me what your symptoms were?

This is a very old thread and it's likely the original posters aren't even active on the forum any more so it's doubtful they will even see your post.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Can some of you tell me what your symptoms were?

The most obvious symptoms for me were parasthesias which are numbness and tingling in my hands and feet and fatigue.

Sublingual B12 helped me a great deal.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,075
    • Most Online (within 30 mins)
      10,442
    Nan7472
    Newest Member
    Nan7472
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      Terrible Neurological Symptoms

      By Aretaeus Cappadocia · Posted

      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
×
×
  • Create New...