Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1-m):


7 7
DJFL77I

sleep issues?

Rate this topic

Recommended Posts


Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


DJ,

Take you some Magnesium Citrate with Meals or Magnesium Glycinate any time....(best for bed time)....

And  your Insomnia should improve....

Here is a great study on it.....if you need more convincing entitled

"The Effect of Magnesium Supplementation on Primary Insomnia in Elderly: A Double-Blind Placebo-Controlled Clinical Trial"

https://pubmed.ncbi.nlm.nih.gov/23853635/

You can also search for Georg Eby or Carolyn Dean "The Magnesium Miracle" author if you want to read more about how Magnesium helps our bodies...

I hope this is helpful but it is not medical advise.

Posterboy,

Share this post


Link to post
Share on other sites

Join eNewsletter

SomberCookie,

I was lucky to find Magnesium Citrate early in my journey.....I was using it for "Charlie Horses" and depression.....but it helped my fatigue as well and gave me wonderful restful REM  (dream) state as well.

I wish more people knew about Magnesium....we are said to "waste away" without enough Magnesium.

I am glad to hear.....it helped you....the way it did me.....the form matters....and once you find a highly

bioavialable form (like a Citrate with meals) the dreams, rest, and energy come back almost by "magic" but it is because you were low in Magnesium......to being with .....is why your sleep returned when you begin

supplementing with the missing Magnesium...

We can't make energy without it (Magnesium)...

As chlorophyll is to the plant.....Magnesium is too the animal!

I hope this is helpful but it is not medical advise.

Posterboy,

Share this post


Link to post
Share on other sites

Join eNewsletter

DJ,

I took the liberty to search for a good thread on Celiac.com about Magnesium and the flushing effect you are describing sometimes experienced on a empty stomach when taking Magnesium Citrate usually as powder.

https://www.celiac.com/forums/topic/118470-magnesium-citrate/?tab=comments#comment-977083

You should NEVER take a Magnesium Citrate in the concentrated liquid form.....used as a "flushing" agent for Colonoscopy.....and is probably what you are thinking about....unless you intend to clean your bowels out....because  it (Magnesium Citrate) in 10x to 20x the RDA amount will definitely do that!

Stick to a Liquidgel or Tablet with meals....or just use the Glycinate form and you won't  have the flushing issues Citrates can cause usually as a powder on an empty stomach or as the above mentioned liquid used to create a bowel movement....

See also this nice exhaustive article about the many different kinds of magnesium supplements and why choosing a high bioavailable form is half the battle....

https://www.dietvsdisease.org/best-magnesium-supplement/

I think the above article and linked thread above on Celiac.com will answer most all  your questions/concerns with taking Magnesium Citrate.....or as already  noted just find a Magnesium Glycinate form and you shouldn't have any of these issues with a Magnesium flush....

I hope this is helpful but it is not medical advise.

Posterboy,

Share this post


Link to post
Share on other sites

Join eNewsletter

A couple of months ago, there was a related thread -

https://www.celiac.com/forums/topic/122992-diagnosed-with-sleep-apnea/

- in which I was encouraged again, again, and again to take magnesium, and in which I protested again and again (etc) that my levels were normal, even, I believe, posting lab results! And, deep breath in, here’s what I have to say now.

In 2018, I did end up taking mag citrate for approximately four months.

I have "heart palpitations" and though I did not take magnesium for those,  (in my case SVT – supraventricular tachycardia), looking back to that time now, I see that I did not have a serious episode of SVT. And by serious, I mean basically highly disturbing, because as of today, people who have SVTs, very very generally, are told by their docs and cardiologists that it is not that concerning an arrhythmia.

It did not improve my sleep apnea.

Recently, I had been off the magnesium quite a while when I did have a serious (and again by serious, I mean highly disturbing) run of tachycardia that would not go away as it usually does in the timeframe I was expecting. Of course, it eventually did go away, but it lasted longer than it ever has. Then, due (I think) to the pandemic and the work I do and the general careless atmosphere of many I work with and live with, my muscles began tightening up in a way I had never experienced before and which left me feeling highly uncomfortable. So I thought about it. I thought, muscle tightening, stress, SVTs, maybe time to check back in with magnesium.

What I can say after starting it about 4 days ago, is it seems to work for the muscle tightening. Of course, I cannot with 100% certainty say it’s the mag and not the stretches and relaxation exercises I’m doing, I cannot say with 100% certainty it’s not because I gave up sugar and caffeine for the last two weeks. Nevertheless, I do think doing all of that helped, and the mag is a big big part of that. It cannot “cure” sleep apnea. I don’t think it even helped that much back in 2018. I am of course still on the PAP. We’ll see what it does this time, but I notice zero improvement in my sometimes high AHIs then and now.

I’ve lost about a pound or two because magnesium will act as a laxative. I didn’t need to lose that weight, but think it’s not bad that I did.

Plumbago


Diagnosed with Celiac in 2010. Diagnosed with sleep apnea 2018.

Share this post


Link to post
Share on other sites

Join eNewsletter

Plumbago,

Glycinate will not cause a "laxative" effect the way Citrates in high doses do!

I have done both....I started with Citrates because they are highly absorb able....

Glycinate is well tolerated and can be taken without meals if so desired.....and work well to take at night..

The RDA is low for Magnesium many times you can take 600mg to 800mg tappering off to 400mg maintenance dose after a few months....

The CDA for Magnesium is 600mg for example....indicating our RDA is artificially low...

Try also taking some Benfotiamine the fat soluble B-1 found in the diabetic section with your Magnesium....if you have lingering fatigue issues this will most likely get rid of it...

Here is some links about Thiamine.....Thiamine and Magnesium work synergistcially together...

If you have been low (though having normal blood levels) the cells have been starved for Magnesium .....and probably Thiamine too....

https://www.hormonesmatter.com/two-new-cases-beriberi-thiamine-deficiency-modern-medicine/

Here is another entitled "Gastrointestinal Beriberi: A Forme Fruste of Wernicke's Encephalopathy?"

https://pubmed.ncbi.nlm.nih.gov/29982183/

https://www.hopkinsmedicine.org/news/articles/why-doctors-must-be-vigilant-about-wernickes-enchephalopathy

Here is another about how a mild thiamine deficiency can effect sleep patterns in the elderly

"Influence of Thiamine Supplementation on the Health and General Well-being of an Elderly Irish Population With Marginal Thiamin Deficiency"

https://academic.oup.com/geronj/article-abstract/46/1/M16/638741?redirectedFrom=fulltext

and you don't have to be old to have thiamine deficiency....it is just about then...the symptom's become more obvious......just more stressssssseeeeeddddd.......as it is important in the body to make energy....

Stress kills! everybody knows that adage right....well it maims us first!

It (low thiamine) is common in those who have GI problems....upto and including Celiac disease....presenting as electrolyte abnormalities called a Celiac Crisis and in SIBO often...

https://www.eonutrition.co.uk/post/thiamine-deficiency-a-major-cause-of-sibo

Here is my posterboy blog post that elaborates how a magnesium and/or thiamine deficiency can lead to refeeding syndrome being diagnosed as a Celiac crisis...

https://www.celiac.com/blogs/entry/2722-is-refeeding-syndrome-being-misdiagnosed-as-a-celiac-crisis-today-latest-research-indicates-a-celiac-crisis-could-be-refeeding-syndrome-being-misdiagnosed-instead/?tab=comments#comment-4576

Taking Magnesium helped you use your Thiamine....but not overcome the bodies' deficiency....but taking Benfotiamine should help with the any remaining energy/sleep issues you might still be having...

as long as your were low (even in people with normal serum levels) you would continue to be low in Thiamine...

see this research that explains why...entitled "Aggravation of Thiamine Deficiency by Magnesium Depletion. A Case Report"

https://pubmed.ncbi.nlm.nih.gov/4050546/

I was a little slow to get there but I agree with Dr. Lonsdale.....Magnesium and Thiamine are the Keys to Health...

https://pubmed.ncbi.nlm.nih.gov/25542071/

As always I hope this is helpful but it is not medical advise.

Keep us updated....I hope the Benfotiamine helps you....the research says it should...

It takes one month with meals to notice a significant difference and 3 months to notice a sustained difference!

To quote F. Scott Fitzgerald “Never confuse a single defeat with a final defeat!”

2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.

Posterboy by the grace of God,

Share this post


Link to post
Share on other sites

Join eNewsletter

I don't have Wernickes. I'm not malnourished, I'm an alcoholic, I don't even drink, mentioned nothing about alcohol, or even stomach/gastro issues, but it seems you truly want to talk about thiamine deficiency, this is very important to you - I suggest perhaps opening a more relevant thread.

Thanks.

 


Diagnosed with Celiac in 2010. Diagnosed with sleep apnea 2018.

Share this post


Link to post
Share on other sites

Join eNewsletter

6 hours ago, plumbago said:

I don't have Wernickes. I'm not malnourished, I'm an alcoholic, I don't even drink, mentioned nothing about alcohol, or even stomach/gastro issues, but it seems you truly want to talk about thiamine deficiency, this is very important to you - I suggest perhaps opening a more relevant thread.

Thanks.

 

Thiamine deficiency is relative to this conversation.  

You don't wake up with Wernicke's.  Thiamine deficiency is subtle and sneaks in gradually.  You can have a subclinical thiamine deficiency for a long time and little symptoms go unnoticed or are dismissed.  (Same with magnesium deficiency.)

https://www.frontiersin.org/articles/10.3389/fpsyt.2019.00207/full

Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults

"Unfortunately, early symptoms of thiamine deficiency are not pronounced or distinctive enough to warrant a direct diagnosis. They include loss of appetite, nausea, weakness, apathy, fatigue, irritation, sleep disturbances, anorexia, and abdominal discomfort (106). Furthermore, the identification of specific clinical symptoms of thiamine deficiency is problematic because it is obscured by the contribution of other confounding conditions (comorbidities) such as infections and/or multiple nutritional deficiencies."

Thiamine is needed to provide the brain with energy so your brain can tell your body how to function, like how to breathe when you're asleep. Thiamine is also needed to turn off some of those brain chemicals that keep you awake.   And Thiamine needs magnesium to work properly.  

The above mentioned article also discusses thiamine transporter genes.  Thiamine transporters help thiamine get into your body's cells, sort of like a doorman or security guard only allowing certain people into a building.  The genes for the thiamine transporters are on the same chromosome as Celiac Disease and Diabetes and those other autoimmune diseases Celiacs are prone to get.  Once those transporter genes click off because of thiamine deficiency (often due to high caloric malnutrition), the only way to turn them back on is with high doses of thiamine.  

If you want to be dismissive just like some doctors who are instrumental in the eight year delay of getting a proper Celiac Disease diagnosis, be as closed minded as they are.  Knowledge is power.

 

On 6/15/2020 at 4:16 AM, DJFL77I said:

have you had issues with sleep?   for the last few days I've been having sleep issues where I would wake up after like 2 hours after going to sleep....  then try to fall asleep again.. 

DJFL771, 

You can try Thiamine and magnesium.  You can also try L-theanine.  It really helps.  Here's an article about it.

https://www.psychologytoday.com/us/blog/sleep-newzzz/201708/what-you-need-know-about-l-theanine

Hope this helps.

Knitty Kitty

 

 

Share this post


Link to post
Share on other sites

Join eNewsletter

I hesitated joining the thread because in my recent experience here (last two years), I’ve encountered responses that tend to reflect that the readers have simply not fully read, heard and appreciated the original commenters’ messages.

Quote

Thiamin (vitamin B1) deficiency due to celiac disease per se is rare but was reported in the presence of concomitant alcohol abuse or substance dependence

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3829244/

I know a little about Wernicke's, have treated patients with it as well as those with thiamine deficiency in general.

I posted my thoughts on mag. The OP can take from it what they will.

 


Diagnosed with Celiac in 2010. Diagnosed with sleep apnea 2018.

Share this post


Link to post
Share on other sites

Join eNewsletter

Hi DFL,

Insomnia is a somewhat common symptom in new celiacs from my understanding.  You can search the forum for threads about insomnia and maybe find some info on it.  My own opinion for what it's worth is that it may resolve on it's own in time.  After healing a while your gut should be able to absorb nutrients better and that should help with any deficiencies you might have.  Plus low level inflammation should decrease and GI symptoms decrease.  You can try some supplements now to improve your various nutrients levels faster.  Also maybe try avoiding caffeine in the afternoon/evening.  Melatonin might help a little too.


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

Share this post


Link to post
Share on other sites

Join eNewsletter

20 hours ago, plumbago said:

I don't have Wernickes. I'm not malnourished, I'm an alcoholic, I don't even drink, mentioned nothing about alcohol, or even stomach/gastro issues, but it seems you truly want to talk about thiamine deficiency, this is very important to you - I suggest perhaps opening a more relevant thread.

Thanks.

 

Plumbago et Al,

Forgive me this will be WTL....but maybe it will help you or someone else....

At every step of the way I have had to back track behind doctor's to find out what was wrong with me.....I am lucky I found Mangesium Citrate first....for it helped my energy and fatigue issues, and muscle cramps.....12 hours of sleep were never enough.

My point was if you were low in Magnesium because our body Magnesium to activate/convert Thiamine to it's active form in the body...you are probably low in Thiamine as well...even if your level's show normal in the blood stream...

If they are high in the bloodstream....the levels are low else where in the body IE the Cells'......the body is protecting the brain from low levels....and other part's of the body suffer's first.....like our energy production...

https://www.wellnessresources.com/news/magnesium-and-vitamin-b1-team-players-needed-for-brain-muscles-metabolism

Why did I say I had to back track....I had chronically aka "Genetically" high cholesterol levels....though I didn't know it a the time....I was low in Thiamine as we as Magnesium...

see this research entitled "Metabolic Benefits of Six-month Thiamine Supplementation in Patients With and Without Diabetes Mellitus Type 2"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3921172/

And after taking Benfotiamine...my high cholesterol diabetes....got better and have been better since...

This helps proverbially healthy people as well IE people without diabetes as well...

My Creatine levels got better too!.... a complication of diabetes....or could it be a complication from being too low in Thiamine?

You don't have to be Alcholic by any means to have WE or a Thiamine deficiency....

Think High Fructose Corn Syrup....see this research that explains why this is so entitled

"Fructose: It's “Alcohol Without the Buzz"

And what is probably happening in Obese people...see this research entitled..."Thiamine Deficiency in People with Obesity"

https://academic.oup.com/advances/article/6/2/147/4558021

Almost 30 percent of Obese people are low in Thiamine from High Calorie Malnutrition...

Dr. Londsdale has done the most work on the topic...

Heart Failure is a classic sign of Wet Beri Beri...see this research entitled "Characteristics of Thiamine and Its Relevance to the Management of Heart Failure"

https://pubmed.ncbi.nlm.nih.gov/18849553/

I must stop for now....before this gets extra, extra WTL...

A nice summary of how Micronutrients become low in Celiac's leading to Overt (Hidden) Malnutrition symptom's can be found in this Posterboy blog post I wrote trying to explain how these things are still happening and the doctor's don't know to test for them.....as it was in my case...

One more link....the best I know of how Co-morbid (Cofactor) deficiency effect Vitamin absorption...

https://www.deannaminich.com/vitamin-and-mineral-interactions-the-complex-relationship-of-essential-nutrients/

Many examples here of how an Vitamin is Antagonistic or Syngergistic...depending on it's cofactor(s)....thik like Calcium and Vitamin D...

And here is what they say about how Thiamine and Magnesium interact with each other...

quoting

"Vitamin B1 (Thiamin) Synergistic Nutrients

 Magnesium

Magnesium is required to convert thiamine to its biologically active form and is also required for certain thiamine-dependent enzymes.

Overcoming thiamine deficiency might not occur if magnesium deficiency is not co-treated."

Magnesium and Thiamine are "Team Players"....

https://www.wellnessresources.com/news/magnesium-and-vitamin-b1-team-players-needed-for-brain-muscles-metabolism

I hope this is helpful but It is not medical advise.

Thanks bee to God who helped me to see these things.

2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble (starfish), by the comfort wherewith we ourselves are comforted of God.”

Posterboy,

Plumbago since you work in the medical field you might enjoy reading this thread....it is a similar thread about how Low Magnesium levels can also lead to Low Potassium levels...

I wasn't able to help Wheatwacked either....just study it some....is all I ask before dismissing it out of hand...

You might find like taking Mangesium Citrate it (Benfotiamine) could help your remaining fatigue/energy issues.

Share this post


Link to post
Share on other sites

Join eNewsletter

Average intake of thiamin in the US is sufficient and meets or exceeds recommendations.


Diagnosed with Celiac in 2010. Diagnosed with sleep apnea 2018.

Share this post


Link to post
Share on other sites

Join eNewsletter

2 minutes ago, DJFL77I said:

Last night I dreamt I was in Africa and some guy was showing me the wild hippos.. i think im going insane

Doesn't sound that nutz to me! It just means (I think) you were not in a deep wave sleep but a more "superficial" type, as it were. And I'm no expert. Seems like you may need to sleep more deeply to get the rest you're after. I know that when I work overnights, the sleep I get the next morning until about 1 pm is among the best I ever have! (And I dislike working night shift intensely.!)


Diagnosed with Celiac in 2010. Diagnosed with sleep apnea 2018.

Share this post


Link to post
Share on other sites

Join eNewsletter

Egads!  For those who have ears to hear....

https://pubmed.ncbi.nlm.nih.gov/29477220/

The appearance of the patient can be deceptive, often being mistaken for psychosomatic disease in the early stages. 

https://pubmed.ncbi.nlm.nih.gov/22116701/

High calorie malnutrition, due to excessive ingestion of simple carbohydrates, is widely encountered in the U.S.A. today. 

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459027/

Despite the availability of dietary thiamine in wealthy countries, thiamine deficiency represents an important and usually overlooked issue. In developed countries, the predominant use of industrial food processing often depletes thiamine content along with other vitamins and nutrients. An increased consumption of processed food in the form of simple carbohydrates, not supplemented with adequate levels of thiamine, has been named “high calorie malnutrition” .

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6683263/#sec5-nutrients-11-01588title

The average daily micronutrient intake of male and female patients, particularly of vitamins B1, B2, B6, and B9 (folate), has been shown to be significantly lower in celiac patients on a GFD than in the general German population 

https://pubmed.ncbi.nlm.nih.gov/23198728/

More than one in 10 of both newly-diagnosed and experienced women had inadequate thiamin, folate, vitamin A, magnesium, calcium and iron intakes. 

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6681258/#!po=56.3953

Regarding thiamin, a study carried out by Shepherd et al. found that the inadequacy of thiamin was more common after GFD implementation than at time of diagnosis [81]. This can be explained by the fact that many gluten-free cereal products do not provide the same levels of thiamin, riboflavin, and/or niacin as enriched wheat flour products. As a result, a GFD that routinely includes gluten-free cereal products could be deficient in one or more of these nutrients, especially if these foods are, in large part, refined and unenriched [82].

https://www.liebertpub.com/doi/full/10.1089/acm.2011.0840

To demonstrate that fatigue and other disorders related to ulcerative colitis and Crohn's disease are the manifestation of an intracellular mild thiamine deficiency and not due to malabsorbtion, augmented requirements, or nutritional factors, and that this dysfunction is curable with high doses of thiamine administered orally or parenterally.

The administration of large quantities of thiamine increases the concentration in the blood to levels in which the passive transport restores the normal glucose metabolism in all cells and leads to a complete regression of fatigue.

Forgot one

https://pubmed.ncbi.nlm.nih.gov/6182942/

We conclude from these experiments that a deficiency in thiamine affects the serotonergic system and that the subsequent effects on sleep are a consequence of this serotonergic change.

Share this post


Link to post
Share on other sites

Join eNewsletter

Egads! The study

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6683263/#sec5-nutrients-11-01588title

is about children.

I'm an adult. Who is not malnourished. As I said.

But listen? Why do it?


Diagnosed with Celiac in 2010. Diagnosed with sleep apnea 2018.

Share this post


Link to post
Share on other sites

Join eNewsletter

2 hours ago, plumbago said:

Egads! The study

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6683263/#sec5-nutrients-11-01588title

is about children.

I'm an adult. Who is not malnourished. As I said.

But listen? Why do it?

Thanks for sharing your experiment that you discussed a few postings above.    I think we have some members who strongly believe that vitamin and mineral supplementation is critical for their health.  They strongly believe that it works for them.  As a result they can find any study that can support their beliefs.  I confess, I often cherry pick my attachments.  It is a human behavior.
 

I just had a physical this week.  All my labs came back normal.  I have no deficiencies.  I take no supplements.  I only took a 60 day supply of iron when I was first diagnosed (2013)  because my labs indicated that I was very deficient in iron and my hemoglobin was very low.    My doctor knew that by avoiding gluten, chances are, I would heal.  If not, supplementation might be necessary.  You have to weight the benefits vs the risks.  Right now, I worry about the raw materials for supplements (Final process done  in the US) that are manufactured in China with no oversight from the FDA.  Pretty scary.  I do consume a diet that is lower in carbs, avoid processed foods and eat plenty of nutritionally-dense foods.  I have healed.  Nope, not just based on feelings or a reduction in symptoms, but confirmed via a repeat endoscopy and biopsies.  I share this not to brag, but to let people know that it is possible to heal.  
 

Do some celiacs need supplementation?  Yes.  Their doctors should be screening them either right at diagnosis, or three or six months out.  A consultation to a dietician is also valuable.   Let’s face it, everything has a cost.  Perhaps waiting to see if common deficiencies resolve in a good gluten free diet is a good approach.  Certainly, I have never read about any treated celiac dying from malnutrition with the exception of those rare cases of refractory celiac disease.  Someone please let me know if this has occurred.  I know the risk exists, but this is very, very rare.  

Please know that Celiac disease is not the same as IBD (Crohn’s or UC).  However you can have both.  So, studies that reference nutritional deficiencies in an IBD patient probably do not apply to a celiac who can heal.  Studies on mice or are tiny, or even just clinical observations are interesting, but lack merit.  Just because they are on PUB Med or in a journal, do not mean they are accurate.  Several studies were pulled from very prestigious medical journal recently concerning COVID 19 because they were flawed and were called out by other scientists.  I wish there was not such confusing information out in internet-land.  It is why I consult with my doctors.  They definitely have an edge over me.  
 

https://celiac.org/about-celiac-disease/related-conditions/crohns-disease/

Everyone has to find their own way.  Everyone should consult with a doctor about their diet.   I realize that this is not always possible, but please make sure you are well read and are willing to take risks.  Supplements are processed food with no oversight from the FDA (look at how prescription drug recalls are increasing).  

To DFJ, sleep will come if it is related directly to active celiac disease.  Hormones are shifting, we are under stress for a pandemic and you have to treat your celiac disease with food.  It is stressful!  Hang in there.  

 

 

Edited by cyclinglady

Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test and Endoscopy: March 2013

Hashimoto's Thyroiditis -- Stable 2014

Anemia -- Resolved

Fractures (vertebrae): June 2013

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Diabetes -- January 2014

Celiac.com - Celiac Disease Board Moderator

Share this post


Link to post
Share on other sites

Join eNewsletter

To All,

I agree with Plumbago we need to start another thread that more accurately describes the direction this thread has taken....

I quoted the Micronutrient study because it showed in newly diagnosed Adult Celiac's....they are low according to the Mayo Clinic...entitled "Micronutrient Deficiencies Are Common in Contemporary Celiac Disease Despite Lack of Overt Malabsorption Symptoms" but I don't think nobody read it...

https://pubmed.ncbi.nlm.nih.gov/31248695/

Where they concluded....quoting

"Conclusion: Micronutrient deficiencies remain common in adults with celiac disease despite increased nonclassic presentation. This study provides support for micronutrient assessment at the time of celiac disease diagnosis."

Nonclassic meaning not Obvious symptom's....but hidden signs...

Knitty Kitty and I have experienced may of this Overt/Hidden symptoms.....like Fatigue, and in my case Low Albumin levels and low Potassium levels....and Creatine in my kidneys...

This is what happens when one develops a "Celiac Crisis".....where Overt/Hidden Malnutrition can lead to death....

This is not to say this is what is happening in your case Plumbago....

But B-Vitamins status does not always magically get better (for all of us at least)....heck I am still low in Vitamin D.

This shows were B-Vitamin status can be low for at least 10 years after some one begins eating gluten free...

"Evidence of poor vitamin status in coeliac patients on a gluten‐free diet for 10 years"

https://onlinelibrary.wiley.com/doi/full/10.1046/j.1365-2036.2002.01283.x

B-Vitamins are water soluble and easily are effected by Stress and we all know how much stress a pandemic can bring....

This great study from the British Dietetic Association I think shows how Thiamine status can decrease on a gluten free diet......entitled "Nutritional Inadequacies of the Gluten-Free Diet in Both Recently-Diagnosed and Long-Term Patients With Coeliac Disease"

https://pubmed.ncbi.nlm.nih.gov/23198728/

Where they noted quoting

"The frequency of inadequacies was similar pre- and post-diagnosis, except for thiamin and vitamin A, where inadequacies were more common after GFD (Gluten Free Diet) implementation"

We all know currently gluten free foods are not currently enriched....why would we think our status would improve eating unenriched foods?

This research is 5+ years old.....and my doctor has never checked me for these Vitamin deficiencies...

But I do know my medical health got better after supplementation...

This is not to say supplementation is for everybody.....or that that everybody should supplement....I can only tell you it helped me...

But for many people taking a Co-enzyme B-Vitamin helps them "catch up" and replace Vitamins that their body can not currently absorb due to damaged villi....seems like a smart move IMO at least for those still suffering from symptom's like fatigue that has not got better after a year or even after 6 months..

I hope this is helpful but it is not medical advise.

Posterboy,

Share this post


Link to post
Share on other sites

Join eNewsletter

Hi DFL771,

Here is a link to search results for insomnia on the forum.

https://www.celiac.com/search/?q=insomnia&quick=1

 


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

Share this post


Link to post
Share on other sites

Join eNewsletter

On 6/25/2020 at 9:29 PM, plumbago said:

I'm an alcoholic,

I'm NOT an alcoholic.


Diagnosed with Celiac in 2010. Diagnosed with sleep apnea 2018.

Share this post


Link to post
Share on other sites

Join eNewsletter

@plumbago

I use my iPad all the time.  It is easier to use for internet surfing and our PCs are dedicated to our company.  But this spell correction or mistyping.  It happens to me all the time.  Thanks for the clarification.  😊


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test and Endoscopy: March 2013

Hashimoto's Thyroiditis -- Stable 2014

Anemia -- Resolved

Fractures (vertebrae): June 2013

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Diabetes -- January 2014

Celiac.com - Celiac Disease Board Moderator

Share this post


Link to post
Share on other sites

Join eNewsletter

12 hours ago, plumbago said:

I'm NOT an alcoholic.

Plumbago,

I said the same thing when my doctor diagnosed me with NAFLD.

Turns out it was probably from too much HFCS in my diet...

I mentioned this earlier but accidentally forgot to include the link..

"Fructose: It's “Alcohol Without the Buzz”"

https://academic.oup.com/advances/article/4/2/226/4591631

A few quick citations....and you can read it all when you get a chance...I think these quick notes summarize well what is happening when we have to much High Fructose Corn Syrup in our diet...

quoting...

"Ethanol is manufactured by the fermentation of fructose — the big difference is that for ethanol, the yeast performs the glycolysis, whereas for fructose, we humans perform our own glycolysis." and

"Therefore, it should not be surprising that the disease profile of fructose and ethanol overconsumption would also be similar."

This is over 7 years old....and it is no wonder big "Ag" arguing it is safe for us....still too this day....

They have a nice rebuttal by the Corn industry of why Fructose....is safer than Ethanol for you....despite causing similar metabolic issues....IE Insulin resistance etc...

They summarize by saying...

"Although fructose does not exhibit the same acute toxic effects of ethanol (i.e., central nervous system depression and resultant auto accidents), it recapitulates all the chronic toxic effects on long-term health. It is time for a paradigm shift in our societal treatment of fructose, recognizing that fructose is “alcohol without the buzz.”

And I agree it is time to acknowledge HFCS can cause many of the same issues as ethanol/alcohol does in our bodies...and we don't have to be drinking alcohol to have the same side effects from eating a diet with too much HFCS in it...like say a Thiamine deficiency....because the conversion  of sugars we consume to glucose all require thiamine....an over reliance of sugars....as I understand it....at about about 80+ percent of a CARB heavy diet....will trigger a mild to moderate thiamine deficiency...

I don't have the reference in front of me...but Knitty Kitty probably does...

I hope you find out what is triggering/causing your remaining fatigue issues...

I hope this is helpful but it is not medical advise.

Posterboy,

Share this post


Link to post
Share on other sites

Join eNewsletter

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Restore formatting

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

7 7


Join eNewsletter