Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

should i even take a multi vitamin?


DJFL77I

Recommended Posts

DJFL77I Experienced

https://www.glutenfreeliving.com/blog/multivitamin-necessary-celiac-disease/

After speaking with Welstead, I asked Dr. Guandalini whether taking a supplement is necessary and, if so, which brand he would recommend. “Once in full remission on a strict gluten-free diet, celiac patients can be considered just as healthy as individuals who do not have celiac, with no additional needs for vitamins or other types of supplements,” he said. “If the patient chooses to supplement, a general multivitamin preparation would be more than adequate.”

Many people need to supplement because they consume a great deal of packaged gluten-free food, which is highly processed and stripped of most minerals and vitamins. If you do choose to take a multivitamin, a one-a-day like Rainbow Light is fine and no different from vitamins marketed toward celiac patients, such as CeliAct and Alorex.

Overall, following a strict gluten-free diet and eating nutrient-dense foods like those mentioned above are the most important steps you can take. After the gut has healed, patients who follow a healthful gluten-free diet don’t need any supplementation. As it turns out, at the end of the day, food truly is the best medicine.

 

 

most recently, about 2 weeks ago , I had B12 and Iron checked...  both seemed normal..    does that mean i'm absorbing ok?

I want to get a full vitamin + mineral panel done...  if that would come back normal , do I even need to take a multivitamin?      I've been taking one for about 3 days... 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

See my other response to you.  
 

Take the multi.  You bought them.  They will not hurt and they may make you feel better.  
 

You are under a doctor’s care and seeing a dietician.  Lucky you.  If they were really worried about your health, they would have done more.  Maybe you are pretty healthy and you do not need additional care.  You are young, right? 
 

If you are not deficient in iron or B-12, you are able to absorb your other vitamins and minerals.  Whether you are consuming good foods that contain vitamins and minerals is a different story.  If you live on junk food and never go out into the sunshine, you could be deficient in vitamins.  That will happen to non-celiacs too.  
 

Please  consider talking to your doctor about your mental health.  You are really struggling.  A new celiac disease diagnosis and a pandemic.  Hard to deal with so many new things.  Do you live with family?  

knitty kitty Grand Master

B12 can be stored in the liver for two to five years.  Most of the eight B vitamins are water soluble and must be replenished every day, but B12 is the exception. 

Other B vitamins, such as thiamine, can become depleted in as little as nine days.  (Ever watch television show "Naked and Afraid"?  The people on that show develop vitamin and mineral deficiencies.  It's not just about calories.)

The liver also stores iron.  Iron stores can last from six months (if you're a menstruating female) to three years (if you're a male).  

There are four stages of anemia before changes in red blood cells occurs.  By the time you get changes in the size and color of red blood cells, you've been deficient for a while.  

 

Here's some informative articles that might help you decide for yourself.  

https://www.merckmanuals.com/home/disorders-of-nutrition/vitamins/vitamin-b12-deficiency

https://www.nhs.uk/conditions/vitamin-b12-or-folate-deficiency-anaemia/causes/

https://www.uspharmacist.com/article/iron-deficiency-anemia-a-closer-look

 

DJFL77I Experienced
18 minutes ago, cyclinglady said:

You are under a doctor’s care and seeing a dietician.  Lucky you.  If they were really worried about your health, they would have done more.  Maybe you are pretty healthy and you do not need additional care.  You are young, right? 
 

If you are not deficient in iron or B-12, you are able to absorb your other vitamins and minerals.  Whether you are consuming good foods that contain vitamins and minerals is a different story.  If you live on junk food and never go out into the sunshine, you could be deficient in vitamins.  That will happen to non-celiacs too.  
 

Please  consider talking to your doctor about your mental health.  You are really struggling.  A new celiac disease diagnosis and a pandemic.  Hard to deal with so many new things.  Do you live with family?

Young.. I dunno. I'm 42..     i'm just not used to being sick in any way.. I literally went for 15 straight years before this without even having a common cold.

I haven't been eating any junk foods.. I'm only eating meats and potatoes and some veggies and fruits ..  Bryers vanilla Ice cream is the only thing I've been having as a snack..  I do have walnuts but haven't been eating them..

 

Awol cast iron stomach Experienced
6 hours ago, DJFL77I said:

most recently, about 2 weeks ago , I had B12 and Iron checked...  both seemed normal..    does that mean i'm absorbing ok?

I want to get a full vitamin + mineral panel done...  if that would come back normal , do I even need to take a multivitamin?      I've been taking one for about 3 days... 

It sounds like they did the blood draw and looked for the big concerns iron and b-12. Since they didn't specifically point one out. I would consider as a patient that to mean I was not deficient and within the normal range value. 

I'm in the Midwest so before proper  diagnosis I was tested and found to be vitamin D deficient. Not unusual K suppose for my undiagnosed state and geographic location. The times western med Dr wanted me on a specific supplement or vitamin they gave me a prescription. The times I was prescribed specific supplements by a western med Dr was when I was vitamin D deficient and during my pregnancies. One Ob had me on extra folic acid in addition to my prenatal multi. The other OB wanted me on a specific prenatal multi. In the past I had a beloved chiropractic/naprapathy Dr who monitored my calcium/ magnesium. 10 years ago I had the Dr who discovered I was D deficient.It depends on the Dr. and where I was stage/ health wise. They were upfront about it and prescribed it like they would a prescription. 

Do you have access to your online reports of lab blood test? You can request them . The medical system my current Dr's are in post my results in my online portal within a few days of my blood draw. She reviews them and leaves me a note at the bottom. My last report showed my value in one column and the normal range off to the side. 

 

DJFL77I Experienced
3 hours ago, Awol cast iron stomach said:

Do you have access to your online reports of lab blood test?

 

 

here is what my bloodwork looked like early March when I first went in about 3 weeks after symptoms started

 

 

 

 

l1.gif

l2.gif

Kate333 Rising Star

Your tests are all normal and your diet is great, so you probably are getting enough V/Ms from healthy, natural food.   

I also recently had complete vitamin/mineral blood tests and my results were also normal (although my vitamins D and magnesium were on the low end of normal).  But my PCP doc recommended I take supplements, including a high dose vitamin B (all the Bs), to boost those vitamin levels but primarily because of my chronic fatigue/sleep/anxiety issues to see if they help me feel any better.

CL's advice about considering the effect of stress on overall health is spot on!  Speaking for myself as a "newbie"  (on gluten-free diet for only 6 months), 2020 has been the hardest year of my life, trying to cope with the twin, sudden gut-punches of both celiac disease diagnosis and pandemic has been overwhelming to say the least.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DJFL77I Experienced
9 hours ago, Kate333 said:

Your tests are all normal and your diet is great, so you probably are getting enough V/Ms from healthy, natural food.   

not sure how if they found my villi are blunted...

DJFL77I Experienced
9 hours ago, Kate333 said:

I also recently had complete vitamin/mineral blood tests and my results were also normal (although my vitamins D and magnesium were on the low end of normal).  But my PCP doc recommended I take supplements, including a high dose vitamin B (all the Bs), to boost those vitamin levels but primarily because of my chronic fatigue/sleep/anxiety issues to see if they help me feel any better.

I wanted to have vitamin and mineral panel just to see but the Dr said I don think we need too.  I'm still going to get it though...

there's a complex B multivitamin:

https://www.amazon.com/Now-Supplements-Vitamin-B-50-Capsules/dp/B0013OSL5S/ref=mp_s_a_1_3?dchild=1&keywords=now+b-50&qid=1594130906&sr=8-3

and just B1:  https://www.amazon.com/NOW-Vitamin-B-1-Thiamine-Tablets/dp/B0009P3DRS/ref=mp_s_a_1_3?dchild=1&keywords=now+thiamine+100mg&qid=1594130844&sprefix=now+thiamine&sr=8-3

docaz Collaborator
10 hours ago, DJFL77I said:

not sure how if they found my villi are blunted...

Blunted villi can range from mildly blunted to almost flat. If your villi have only lost the tip and are rounded (blunted) instead of greatly reduced in size, the absorption is mostly unaffected. If you want to go into more depth you could ask the pathologist to reviewed the slides to send you an image of a typical section that shows the damage and you can see for yourself because that is actually easily evaluated even by a lay person. What is more difficult to evaluate is the white cell infiltrate because not all of them are diagnostic for celiac disease and also not all blunting is caused by celiac disease. Here is a diagram of the extremes but most celiac patients have something inbetween 

https://www.alamy.com/stock-photo-coeliac-disease-or-celiac-disease-small-bowel-showing-coeliac-disease-176992313.html

This is what it looks like under a microscope

https://celiac.org/about-the-foundation/featured-news/2015/03/biopsy-samples-diagnosis-celiac-disease/

The many dark dots in the flattened celiac sample are the white cell infiltrate. 

ravenwoodglass Mentor

You have gotten some great advice on this and other posts. I do have one thing to add. You mention in another thread that you are eating lactose free ice cream and cottage cheese. You may want to drop all dairy until you are doing a bit better. There are some good dairy free ice creams (although personally I would avoid soy based for now) as well as sherbets and other non-dairy frozen treats. It is not uncommon for celiacs to have an issue with dairy until they have fully healed and when you reintroduce dairy start with hard cheeses like cheddar which have much less lactose. Some folks will have an intolerance to casien the protein in dairy not lactose which is the sugar. Once you have healed well go ahead and add back in dairy and see how it goes. I hope you heal quickly but have patience as it can take some time.

DJFL77I Experienced
On 7/25/2020 at 8:00 PM, Kate333 said:

Your tests are all normal and your diet is great, so you probably are getting enough V/Ms from healthy, natural food.     

did you ever ask your DR what your dizziness might be coming from

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Breakfast ideas besides oatmeal as Avenin can be gluten?

    2. - RMJ replied to Ginger38's topic in Coping with Celiac Disease
      5

      The Struggle Has Overtaken Me

    3. - Aretaeus Cappadocia replied to Ginger38's topic in Coping with Celiac Disease
      5

      The Struggle Has Overtaken Me

    4. - Aretaeus Cappadocia replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten challenge - Need some guidance

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,182
    • Most Online (within 30 mins)
      10,442

    CC90
    Newest Member
    CC90
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read gluten-free oatmeal Avenin can cause gluten like symptoms. I read Bobs Redmill gluten-free creamy buckwheat cereal and Millet are good alternatives with ultra low heavy metals, mold but it seems it takes longer to prepare the minute oats. What have you changed your breakfast to.
    • RMJ
      Ginger38, that sounds very difficult.  Each dietary restriction makes it harder to figure out what to eat. Before my celiac diagnosis I already watched out for my cholesterol level and migraine triggers, but those are much easier than diabetes restrictions. One “bad” meal isn’t that much of a problem for cholesterol levels, and my migraines only happened if I consistently ate the triggers. After many years I’ve figured out how to bake gluten free but I think many recipes have more starch which wouldn’t work for diabetes. If you go with the elephant eating analogy, I think the first portion to work on would be the diabetes, since the immediate consequences of not being careful (passing out from low blood sugar, or diabetic coma from high blood sugar) are so severe. The next portion would be celiac. The serious consequences aren’t as immediate, but if you have celiac disease, I think of eating gluten like a booster shot - revving up the immune system, but to attack yourself leading to long term damage. It sounds like you are experiencing this damage now. I did a google search on “gluten free food for diabetics” and a number of sites with advice came up.  If your insurance will cover it and you can find one, a registered dietician who knows about both diabetes and celiac disease might help you figure out what to eat safely. Hopefully my post will both scare and encourage you, as requested, with a big dose of compassion because this sounds very difficult and you are clearly suffering.
    • Aretaeus Cappadocia
      Reading the original post on this thread made me think of "How To Eat An Elephant". The key point is that a whole, big problem can seem insurmountable but if you break it into bite-sized pieces it is much easier to accomplish. Here is the google description. It's not bad: If you're facing a daunting goal, you can use these steps to "eat your elephant": Identify the Elephant: Clearly define the large project or goal that feels overwhelming. Break it Down: Divide the major task into smaller "bite-sized" pieces. If a piece still feels too big, break it down further. Prioritize: Decide which "bite" to take first based on necessity or impact. Focus on the Now: Instead of worrying about the whole animal, focus only on the single step you are taking right now. Maintain Consistency: Progress comes from taking the "next right step" every day until the task is complete. Celebrate Small Wins If I understood Ginger38's post correctly, you are facing the prospect of a gluten challenge, but you are already eating gluten on an intermittent basis. It also sounds like many of the symptoms you attribute to gluten consumption are in full expression. Step back and take a deep breath. Get a notebook and start a gluten-related diary. Don't try to make it perfect; just record what you can about food intake and what you experience as you go along. Talk to your Dr's office (nurse, Dr, whomever) about the challenge. The most rigorous challenge is for someone who has already gone truly gluten free but now needs a clear diagnosis. Someone who is already eating gluten should not need as much "challenge". Even at that, google describes an example challenge as 1-2 slice of bread or 1/2 cup of pasta a day. If that describes your existing diet you are already there. For the moment, try to focus on getting past the challenge and test. Once you have the results, start planning accordingly.
    • Aretaeus Cappadocia
      I don't know the answer to your question any better than a google search, but I am sure someone else will step up and answer. I am popping up to recommend that you keep a careful diary (in case you weren't already). Try to catalog what you are eating and experiencing. Bring a copy to your next visit (and if you have access to the Dr, also send a copy a couple days in advance). Don't assume that they will read it. They might, but they also might be under tremendous time pressure and not get to it. Two other suggestions: if your healthcare provider has a web portal, sign on and search for "gluten challenge". They may have a standard page and Dr assumed you would find it on your own. If that doesn't work, call the Dr's office and ask the office for their official advice. You probably wouldn't need to speak to the Dr directly. There should be some nurse or staff member who could answer that
    • Xravith
      After few months going gluten free, I decided to reintroduce gluten in my diet so I can do a proper diagnosis for Celiac disease. During the gluten free period I felt incredibly good. I stopped having hypoglycemia symptoms, I gained some muscle (Still, I am considerably underweight) and my anxiety totally disappeared. I felt totally like a new person. Now, I almost reached the second week of gluten challenge and all my symptoms are progressively coming back. The first days I was ok, just a bit of acid reflux I could control with medicines. However, after the first week I started to feel real stomach pain and tiredness, my face is growing acne and sometimes (specially when I walk) i feel painful migraines.  I am afraid If I am eating too much gluten or not enough, the "4 slices of bread" indication confuses me. I am actually eating 20 g of bread, 3 biscuits and 40 g of croissant each day. My doctor was not very specific when he gave me the medical order for the gluten challenge, so I invented my own daily gluten menu. Do you have any suggestions? 4 weeks will be enough to do the blood test with my current gluten intake?  Thank you
×
×
  • Create New...