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Rachel--24

Omg...i Might Be On To Something

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Weirdly enough, now that I've really been good on the candida diet, I'm getting more headaches and am stuffed up more often now. Go figure.

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I didn't notice any change when I went dairy free a year ago. Absolutely nothing changed. I still get headaches, still am congested all the time, etc. So, it's really hard to stay away from something when you notice no change. :(

That's why I started back on dairy. Enterolab said I was sensitive, but I saw no change whatsoever getting off it, or getting back on it, so what's the point? It wasn't worth it.

Not that I think dairy is good for you .... but I think sugar is a whole lot worse.

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The past few days, have had feelings of being feverish, but no fever. Face is hot and feels flushed, but isn't. Getting hot flashes too. This started about the same time the headache did (Wed pm).

The detox bath helped with the general feeling of yuk but didn't do diddly for the headache.

Any ideas? Die off, just part of candida or lyme, or could have picked up a bug somewhere?

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Nyxie, my vote is for die off. I had a HORRID headache when I first went on the candida diet years ago, which lasted for nearly 2 weeks. The body aches also continued about that long. I felt MUCH better after that first two weeks. {{{length of time varies with each person, lol}}}

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Thanks Donna!

Hope this passes soon. Just got "volunteered" to entertain a friend one day this weekend. He may end up taking the bus up this way rather than me going to pick him up.

------------------

Btw, this is the same friend that ended up in the hospital a little while ago. He refused to be held for 72 hours observation. Too bad. Probably would have done him some good.

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If I do have a PST deficiency I think that would be the main cause of my gut issues. I do feel that this is likely the main reason for my symptoms of toxicity and obviously the reason for having to follow such a restricted diet.

It seems like the Epsom salt baths are making a difference already. I also ordered No Fenol enzymes and those should be here any day now. I'm really excited to try it! :)

As far as I know theres only 3 ways to increase PST function.

First is eliminating the phenols so that the load is reduced. Salicylates inhibit PST enzymes up to 50%. :blink:

Second is making sulfates available by taking epsom salt baths.

Third is No-Fenol...or another brand of enzymes that are used for breaking down phenols.

I'm betting by doing these things and increasing PST function I may start dumping higher levels of metals following chelation. I'll have to ask Amy about this though.

It does explain alot about my gut issues though. Mercury robs the body of sulfates and sulfates are essential for a healthy gut and for PST function/detoxification.

I think its interesting that hormones and neurotransmitters need to be detoxed through the PST. I wonder if that would explain why I feel toxic and reactive after I get any kind of adrenaline rush from being scared or angry?? <_<

I react to my body's own "fight or flight" response. :huh:

This was confirmed in BioSET....I was reactive to most of my own hormones. :(

Have you figured out how you find out if you have a PST deficiency??

My phase II pathways are sluggish, but I don't react to to many foods. Mainly dairy or sugary foods due to having candida. Although those reactions are small unless I overdo it. Which I tend to do when it comes to chocolate ice cream. :(

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Keep meaning to ask and keep forgetting....

Is there any kind of hot beverage (besides lemon water) that you can drink on the candida diet? I miss tea, but it's too acidic. I tickle the tiger as it is by having my one cup of coffee in the mornings.

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I haven't found one yet Nyxie, lol. I'm drinking hot water, which I initially thought was GROSS, but now am actually kind of fond of. :D Course, I'm STILL not following the candida diet either so I should live it up, lol :ph34r:

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Nyxie, what about herbal teas, they shouldn't be as acidic as regular tea ... something like Yogi detox, or Egyptian Licorice? Licorice has the bonus of tasting like sugar water (but not like licorice).

Finally heard from my LLMD .... he has me taking two additional Malarone per day temporarily .... I started taking two yesterday, so I'll add another for a total of three per day. I normally take one, but added another yesterday while I was waiting to hear because I couldn't take it any longer. It was the worst air hunger I had had yet. It was already feeling a little better by this morning.

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I haven't found one yet Nyxie, lol. I'm drinking hot water, which I initially thought was GROSS, but now am actually kind of fond of. :D Course, I'm STILL not following the candida diet either so I should live it up, lol :ph34r:

Bleah. Was thinking of maybe making hot lemonade? Add some stevia or xylitol to the hot lemon water.

Nyxie, what about herbal teas, they shouldn't be as acidic as regular tea ... something like Yogi detox, or Egyptian Licorice? Licorice has the bonus of tasting like sugar water (but not like licorice).

I thought you weren't supposed to have herbal teas because of the possible fungus on them? If I can have herbal teas, wooo!

Finally heard from my LLMD .... he has me taking two additional Malarone per day temporarily .... I started taking two yesterday, so I'll add another for a total of three per day. I normally take one, but added another yesterday while I was waiting to hear because I couldn't take it any longer. It was the worst air hunger I had had yet. It was already feeling a little better by this morning.

That's great! Hope you continue to improve. :)

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Nyxie, if you're sensitive to fungus, you might skip the herbal teas .... I drank/drink them.

Kassandra, yay on the sauna! It does feel good afterward.

Funny thing ... back when I was in high school we had a sauna my junior and senior year. I took one every week .... I actually think I was the only one in the family who used it regularly. I wonder how much that helped me stay healthy back then.

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Kassandra, yay on the sauna! It does feel good afterward.

Funny thing ... back when I was in high school we had a sauna my junior and senior year. I took one every week .... I actually think I was the only one in the family who used it regularly. I wonder how much that helped me stay healthy back then.

That's interesting, it may have helped. :)

Carla, when you take a sauna how long does it take you to sweat?

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Rachel, I think you raise an important issue here. It helps so much to understand the whole process of what something does in the body (like ecoffee) and then what our own bodies are struggling with to figure out what to do. Sounds like ecoffee hasn't worked and maybe you are on to why.

I'm trying to put things together too. Ecoffee helps me. In my ART testing the coffee I was using (2 kinds) didn't test well though. However, I am deficient in glutathione, cysteine, the sulfer amino acids. I react poorly to IV MgSO4, but test well for MgCl. According to ASYRA my sulfur pathways are okay--tested twice two months apart. I think Carla posted that ecoffee stimulates production of glutathione. I test ok for IV glutathione but poorly for the skin cream or sublingual forms.

Rachel, does this ring any bells from the study you have done?

Sherry

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Sherry, in conjunction with the ecoffee, I drink whey protein powder twice daily .... why is a precursor to glutathione, so maybe adding something like that would help you produce more.

Kassandra, you took a sauna in a conventional one, right? They are totally different than a FIR sauna, so we won't be comparing apples to apples. It takes me 20 minutes or so to START sweating. But my sauna isn't as hot as a conventional sauna .... it's only about 90 degrees when I get in, about 130 when I get out.

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I'm so oooollllld I remember when we used to use Certo :D Mixed with borrage oil. Boy the patients did not like to see me coming with a glass of that.... :P

Borage seed oil never became popular, but it seemed to have good effects.

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hEY everyone

Wow I don't know if I can't understand most post because of them or because of me, if that makes any sense. I quit eating ice cream like 2 days ago and I feel ugly. Well will see. oh and good job everyone. :)

liza

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Kassandra, you took a sauna in a conventional one, right? They are totally different than a FIR sauna, so we won't be comparing apples to apples. It takes me 20 minutes or so to START sweating. But my sauna isn't as hot as a conventional sauna .... it's only about 90 degrees when I get in, about 130 when I get out.

It gets up to 130?! :o OMG! I would DEFINITELY pass out! :lol: That's insane!!! :o :o

I don't know what kind of sauna it is. How would I know?

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Bleah. Was thinking of maybe making hot lemonade? Add some stevia or xylitol to the hot lemon water.

Yeah, Stevia in anything hot = blech for me :lol: Hope that goes well for you! :P Hot lemonade sounds good though...my mom used to give it to me with a little honey when I was young and didn't feel well. Since I'm not following the candida diet strictly I've been using a little Agave nectar, but I'll have to give that up shortly. :(

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What do you think about this product for magnesium skin application.

http://www.magneticclay.com/store/Departme...nesium-Oil.aspx

It looks good but I really dont know anything about the brand or how pure it really is. I'm at the point where I just dont try anything w/out also having it tested. I feel better about using things I test well for and also I prefer the brands recommended by my Dr.'s because they are usually high quality and designed for people who are sensitive....like me.

In the past I tried alot of things on my own and the majority of it had a negative impact on my body.....so I'm pretty much scared of guessing.

If you can get it tested for you that would be great...otherwise you can just try it and see if it helps you.

I'm looking at the creams...but not so much for the magnesium...I'm wanting a sulfate cream. I'm looking at what brands the parents use for their autistic kids...usually they are using high quality stuff because the kids are highly sensitive. I'm not sure if I'll order a brand online and then bring it to my appt. with Dr. Amy....or just wait until I see her and see if she has any recommendations. I'll probably just order it....otherwise I wont be able to have her test it.

Nyxie, my vote is for die off. I had a HORRID headache when I first went on the candida diet years ago, which lasted for nearly 2 weeks. The body aches also continued about that long. I felt MUCH better after that first two weeks. {{{length of time varies with each person, lol}}}

Yup...the worst off I've ever been was the first week of my candida diet. I actually thought I might die. :(

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Have you figured out how you find out if you have a PST deficiency??

My phase II pathways are sluggish, but I don't react to to many foods. Mainly dairy or sugary foods due to having candida. Although those reactions are small unless I overdo it. Which I tend to do when it comes to chocolate ice cream. :(

I think they are working on a test for this but right now I think its identified by certain symptoms or clues in other types of tests. The most obvious clue is a sensitivity to salicylates and other phenols. If a person reacts poorly to aspirin as well as foods which are high in salicylates it would be a pretty good indication that the PST enzymes are low.

These are some of the things that would be restricted in order to lighten the load.

1. Synthetic colours (or food dyes)

2. Artificial flavours: they are petroleum based additives: for instance vanillin or MSG (Monosodium Glutamate) which is found in two forms: naturally in food and as an added flavour enhancer, MSG is used in many processed foods such as stock cubes, soya products, crisps and Chinese food.

3. Anti oxidants and preservatives: BHA (Butylated Hydroxyanisole) BHT (Butylated Hydroxytoluene) TBHQ (Tertiary Butylhydroquinone) which are petroleum based preservatives.

4. Salicylates: these natural chemicals found in fruits, vegetables, plants and nuts act as preservatives and insecticides. High levels of salicylates are found in almonds, apples, apricots, berries, cherries, chilli powder, cloves, coffee, cucumbers, currants, grapes and raisins, nectarines, oranges, paprika, peaches, peppers, plums, prunes, tangerines, tea, tomatoes, wine, oil of wintergreen (list from the Feingold Association of the United States). Salicylates are also found in aspirin.

5. Aspartame: an artificial sweetener found in sugar substitutes. While the Food and Drug Administration, which regulates the manufacture of food, drugs and cosmetics in America, states that aspartame is safe, several consumer associations claim that it can cause illnesses including cancer.

6. Nitrites and nitrates: common additives used in processed meat, fish and cheese.

7. Benzoates: they are flavourings and preservatives found in margarine, dry soup, salad dressings, condiments, sauces, soft drinks and some liquid medicine.

8. Sulfating agents: they are found in corn syrup and are generally used in dried fruits and to keep food white.

Everyone is different so some will react to only small amounts while others may tolerate more before they reach an amount that causes a reaction. Its cumulative...it just depends on how much a person can take in before things start to bottleneck.

Besides obvious reactions to phenols they also know that sulfates are wasted in the urine in nearly everyone with PST deficiency. They can test the urine for that.

Heres more info.

Preliminary studies by Rosemary Waring, of the University of Birmingham, UK, suggests an enzyme deficiency in autistic children [shattock has reported similar findings in children with ADD and ADHD.] This abnormality effects the sulfur-transferase system.

With insufficient phenol sulfer-transferase (PST), individuals have an extremely low capacity to oxidize sulfur compounds. Children with this enzyme deficiency are unable to fully metabolize certain foods and chemicals that contain phenols and amines. PST is necessary to break down hormones, some food components and toxic chemicals that we encounter daily. If the enzyme is deficient, the body cannot detoxify the system--that is, it will be unable to render these substances harmless.

If this happens, harmful substances that should be metabolized (broken down) would build up to abnormal levels. These substances include serotonin, dopamine and noradrenaline. The children most likely to show this deficiency (based on her small sample size) showed normal development for the first 18 months to two years of life, and also show family histories of asthma, skin problems and migraine, as well as sensitivity to foods (especially wheat, milk and salicylates.)

Many metabolic processes can be disturbed by phenolic compounds and cause many physical problems that may not have been previously thought connected to autism (excessive thirst, night sweating, facial flushing, reddened ears etc.)

There are some tests which can identify whether an individual has a weak detoxification pathway. However, normal levels of PST have not been established for children under the age of twelve. Dr. Waring has a test for children, which uses acetaminophen (Tylenol

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Rachel, I think you raise an important issue here. It helps so much to understand the whole process of what something does in the body (like ecoffee) and then what our own bodies are struggling with to figure out what to do. Sounds like ecoffee hasn't worked and maybe you are on to why.

I dont know why but this seems to be the only way my brain works....it doesnt accept any diagnosis or treatment w/out really understanding the "whys" and "hows" of everything involved. I'm just not really satisfied with anything until I feel like I know whats really going on. Unfortunately this stuff gets really complicated. I took a break from it the past couple months and now I feel like I'm starting to figure things out again....so I'm excited to look into new possibilities.

I know mercury messed me up but it would be nice to know exactly what its done and where there are weaknesses that need to be addressed. I think chelation is important but I also think giving support to the areas that need it most can make the chelation much more successful.

Alot of treatments that are "suppossed" to help just dont have that desired effect....for whatever reason. I think some of it can be clues...we kind of have to be our own detectives to get to the bottom of it all.

I trust my Dr.'s but I also know that noone can possibly know my body better than me. I'm living with this 24/7 and I see Dr. Amy for one hour every 3 months. I cant expect her (or any of my other Dr.'s) to have every answer. I feel like in looking for my own answers and doing the research I'm helping them to help me. If I can tell them what I suspect...they can help me determine whether or not its significant.

I'm trying to put things together too. Ecoffee helps me. In my ART testing the coffee I was using (2 kinds) didn't test well though. However, I am deficient in glutathione, cysteine, the sulfer amino acids. I react poorly to IV MgSO4, but test well for MgCl. According to ASYRA my sulfur pathways are okay--tested twice two months apart. I think Carla posted that ecoffee stimulates production of glutathione. I test ok for IV glutathione but poorly for the skin cream or sublingual forms.

Rachel, does this ring any bells from the study you have done?

Sherry

I dont test well for anything containing cysteine/sulfur....I dont test well for glutathione in any form. I've had problems with the oral glutathione as well as the IV. I also cant tolerate whey protein. I was taking it for awhile but definately had problems with it...and I was taken off of it after I didnt test well for it. Same thing with NAC.

Alot of people will do better with IV glutathione than with the oral form....that seems to be common.

I only have info regarding the problems with PST. This is some of what I've read.

Dr. Waring found that 92% of autistic children seem to be wasting sulfate in the urine; for blood plasma levels are typically low and urinary levels are high.

There is also an abnormal cysteine to sulfate ratio. Cysteine is the amino acid that should be used to make sulfate, so it appears that the sulfate is probably being utilized far faster than the cysteine can be converted, leaving a deficit of sulfate (sugar wastes it), or the cysteine is not being metabolized

to sulfate. That may cause the cysteine to build up to toxic levels.

If I had to guess I would say that my body is unable to convert cysteine to sulfates which is why I do not tolerate things like whey, NAC, glutathione, or any other supplement containing cysteine. They seem to increase toxicity instead of making me feel better. It sucks because I do understand the importance of these supplements.

I dont have a problem with epsom salts...but nothing needs to be converted here...the sulfates are ready to be utilized as soon as they're absorbed.

Cysteine is formed from the essential amino acid methionine. Homocysteine, an intermediate between methionine and cysteine, and cysteine are powerful excitotoxins. In the aged, and in chronic disease, methionine is not efficiently converted to cysteine, but builds homocysteine.

This can create a deficiency of this vital amino acid, cysteine, and a lack of sulfate. A deficiency of cysteine, or a failure to metabolized it to sulfate, will produce multiple chemical sensitivities and food allergies.

Being a major part of the powerful antioxidants alpha lipoic acid and glutathione, a deficiency of

cysteine, or a failure to metabolize it into these antioxidants, would greatly affect the liver's ability to detoxify, and would lead to destruction throughout the body by free radicals

This would also allow buildup of the heavy metals lead, cadmium, mercury, and aluminum.

Supplementation of vitamin B2, B6, B12, folic acid, magnesium, and TMG may normalize metabolism of methionine into cysteine, but vitamin C is needed to prevent cysteine (which contributes its sulfur more readily) from converting to cystine, its oxidized form.

Not sure if any of this is helpful to you....but thats all I got right now. :)

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It gets up to 130?! :o OMG! I would DEFINITELY pass out! :lol: That's insane!!! :o :o

When I used the conventional sauna at the gym it would get that hot....and I LOVED it!! :D

I don't know what kind of sauna it is. How would I know?

Look up FIR saunas...you can read all the differences between this type of sauna and the regular saunas. As far as detoxing goes the FIR is superior....it pulls out more toxins in the sweat.

If you went to the gym for your sauna it was most likely a regular sauna....you get into a room and the heat makes you sweat. A FIR sauna actually penetrates your tissue and draws toxins out.

I have a small portable FIR sauna...its my little "spiceship". :)

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