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Rachel--24

Omg...i Might Be On To Something

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It gets up to 130?! :o OMG! I would DEFINITELY pass out! :lol: That's insane!!! :o :o

I don't know what kind of sauna it is. How would I know?

Did it have a heater in the corner? That is a regular sauna. FIR saunas have panels. Regular saunas are generally about 180 degrees or higher, so the one you were in was most likely hotter than mine!

Since I'm not following the candida diet strictly I've been using a little Agave nectar, but I'll have to give that up shortly. :(

My LLMD says some agave is okay on the Lyme/candida diet. It's low glycemic ... of course, like fruit, you can't overdo it (like I do when I eat pancakes .... but hey, I started putting extra eggs and whey protein in my pancakes to give them more protein!).

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I got my No Fenol enzymes. :)

I'm gonna start taking them tonight but I'm not sure yet what I'll eat and I'm just a wee bit scared. :ph34r:

I'm scared it wont work...and I'm scared that it WILL work and give me a big dose of die-off from yeast. :ph34r:

Anyways...trying it out should give me more clues as to whether or not I'm on the right track with this. I'm back to experimenting. :P

Hopefully I'll have some idea whether I'm benefiting or not by the time I see Amy in 2 weeks.

This is some of the info. about No Fenol.

It is not clear at this time exactly why phenol-targeting enzymes help with phenolic compounds but may be that the enzymes are breaking down the food in such a way that the phenol structure is disrupted, or the food is processed in a way that does not involve the detox or PST pathway.

Phenols are a very large group or compounds of all different types. Salicylates are a sub-group of phenols that are characterizes by having a carboxy group. It may be that the enzymes in these products are removing this carbohydrate group which allow the compound to be processed by the body with out causing distress.

Phenol-targeting enzymes may also be working in a similar way as the Specific Carbohydrate Diet(SCD). This diet is intended for those suffering from bowel dysfunctions such as:

Crohn's Disease

Ulcerative Colitis

Celiac Disease

Irritable Bowel Disease

Irritable Bowel Syndrome

The Specific Carbohydrate Diet has helped some with autism conditions where other restrictive diets have not. This diet is based on the idea that carbohydrates have the greatest influence on intestinal microbes, such as yeast and bacteria.

The SCD eliminates the availability of carbohydrates in an effort to severely limiting the energy source of these microbes. When carbohydrates are not digested and absorbed in the small intestine, they remain as a source of food and fuel for microbes in the small and large intestines.

They produce harmful acids and toxins that injure the gut and pollute the body. This starts the cycle where further damage to the gut only promotes further lack of digestion and nutrient absorption, more microbial growth, and an increase in toxins.

The SCD specifically selects carbohydrates that require minimal digestion and are quickly absorbed. This leaves virtually nothing for intestinal microbes to feed on. As the microbes die-off, the harmful by-products are reduced. The gut heals and overall digestion improves, and this strengthens the immune system and good health returns.

The fiber (pheno) targeting enzymes appear to be accomplishing the same thing as the SCD does with food eliminations. And as with the SCD, those starting phenol-targeting enzyme products noticed a surge in energy and feeling awake.

Enzymes such as these phenol-targeting products are commonly given to animals specifically to counter this exact same situation of 'wasted' or unused food. This is a very standard, well-studied practice in animal science. The idea is to maximize the breakdown of the harder to digest fiber in feed. This provides more nutrition and energy from the food and reduces the amount of waste moving through the system. This waste can promote harmful pathogen, toxins, and excess ammonia.

The nitrogen is used by the body as amino acids and this greatly reduces ammonia in the system and given off by the animal. High ammonia is a problem with some people with autism, so phenol-targeting enzymes may be something to consider for this subgroup. It may have a connection with amines sensitivity, amino acid deficiencies and high ammonia levels seen in some subgroups.

With these enzymes, some people noted a decrease in total quantity of waste (not to be confused with actual constipation where the waste is just too condensed and building up). Once again, there are very detailed and practical reasons why these enzymes are producing the benefits seen, and help a wide range of conditions.

Besides reducing the microbe's food supply, these phenol-targeting enzymes act as a yeast fighter directly.

Within days of its release, a number of parents said they saw a jump in yeast control when these enzymes was added. Yeast have outer coatings made or protein and cellulose. Proteases and cellulase can break this coating down directly.

The phenol-targeting enzyme products contains a lot of cellulase which no doubt contributed to eliminating some yeast. Once the cell wall is broken, other yeast fighting herbs or medications can also get in and more effectively conquer the yeast.

Someone on a yeast diet may find any products containing high amounts of cellulases and proteases to be a helpful addition. Enzymedica makes an anti-yeast product called Candidase which contains just cellulase and protease. Pure Essence makes a product called Candex that contains carbohydrate enzymes and cellulase. These products are a in a similar class of fiber-digesting enzymes. If one does not produce good results a different in on the same class might work fine.

It is interesting to note that a few people who did not see great improvement on other enzymes saw a burst of improvement and a happy child with the phenol-targeting enzymes. I suspect this is due to either phenolic foods or yeast. Yeast flare-ups have been responsible for masking the gains seen with enzymes in other cases, so that would be a consistent explanation.

At the moment, phenol-targeting enzymes seem most likely to benefit those with:

yeast

bowel disorders

phenol sensitivities (having difficulty digesting fruits and vegetables, highly phenolic foods, artificial chemicals and additives)

symptoms such as high ammonia

Those with slight phenol sensitivities may not need phenol-targeting enzymes, or may find best results with only a partial capsule at a time, one fourth, one third, or one half capsule.

For yeast, consider taking phenol-targeting enzymes alone or with a protease enzyme product between meals. Several parents are finding that phenol-targeting enzymes plus grapefruit seed extract is (GSE) or oil of oregano an excellent combination for fighting yeast.

The cellulase enzymes can break down the outer protective yeast cell walls, and the GSE or oregano can work more efficiently. Also, the GSE is known to be a higher phenolic compounds and the phenol-targeting enzymes make this more tolerable in phenol sensitive people. Phenol-targeting enzymes may enhance the effectiveness of any anti-fungal used in control yeast in the same way.

http://www.enzymestuff.com/nofenolfile.htm

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Did it have a heater in the corner? That is a regular sauna. FIR saunas have panels. Regular saunas are generally about 180 degrees or higher, so the one you were in was most likely hotter than mine!

I'm going to check the heat next time I'm in there! LOL! I can't imagine I stayed in there at 180 degrees! :o I believe it is a regular sauna.

For now, I won't be purchasing a FIR sauna. Too much $$$$. :( So I'll make do with what I have access to. :D

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Hi, I just caught up.....This morning I received a newsletter from Mercola (I keep getting them and they are sometimes interesting) and the last note was about ART and Klinghart! (the tilew of the newsletter is something with vitaminD, and this note had a note "Dr. Mercola recommends"

"

Get to the Root of Chronic Illness...

Dr. Dietrich Klinghardt's is one of my primary medical mentors. His 3-part course on Autonomic Response Testing (ART) teaches non-invasive techniques for detecting and treating the underlying causes of illness and we use it at our clinic. You'll discover how to remedy all 7 factors of chronic illness, detect heavy metal toxicity, and address aging concerns plus deep-seated psychological and spiritual issues. If you are a health professional this course is HIGHLY recommended."

The link from the newsletter is http://www.mercola.com/seminars/klinghardt/2008

Now it says the whole things originated in Europe. I am in Europe and must find out how to find it here. Must be Germany....

Kassandra: the cortisol testing and timing is a bit tricky. If you normally get up at let's say four in the afternoon , then the 9 am testing is worthless, because one needs the numbers from just after getting up. No matter when you get up. So the first time you went to get the test done just after 9 would have been fine.....There was an article here in the doctor's magazine (there should be a pubmed abstract too, must find it) about this pitfall. A young man showed low cortisol at am testing and high cortisol at pm testing, which would be suggestive of cushings or things like that. They ran batteries of tests on him and found nothing. Turns out he normally slept during the day and got up in the evening....They conclude that it may be wise to ask the patient aboutwhen he mormally gets up to avoid costly and unneccessary testing. And why dd they test his cortisolin the first place.

The best tests are the saliva tests which you do at home. They test the free cortisol, which is way morea accurate. The blood tess are only able to test total cortisol and the free cortisol is anywhere from 2-3% of the total number.

When I had the cortisol tested, it was about 50 min to the lab and I was hiking with a feloow student and she was driving very aggressively (I do not like it when they drive too close and fast as I have been involved in a small accident before like that) and my heart raced most of the time, and this must have been driving my cortisol up..... the time it was below range, I had to wait for 20 minutes for the appointment at the doctor and then some minutes for the blood to be drawn and it was about half past nine. I did not feel so good either. The results were below the range but the doctor dismissed it because I was still up on m feet.....

Afterwards, I gave up and used some hydrocortsone cream when I needed some hydrocortisone. I notice sugar is bad-bad and when I eat something I do not tolerate I get low cortisol too (to me it looks like ny adrenals naturally make little cortisol and it is normally just enough but I need more when I eat something I do not tolerate like gluten and other things. The deficiency is relative to the increased needs I think. This would only show up in tets as small adrenal reserve.....(there are some tests for that but theyr would never test me for that I think. Doctor already has decided it is all in my head as most tests (for total cortisol after stressing to get to the lab) have been normal)

So, my conclusion would be to only get the tests for free cortisol (which are the saliva tests) and only do them un-stressed at home, otherwise the normal tests you are bound to have from the blood tests which are taken in stressed situations would show normal results)

News about Low Dose Naltrexone (which was mentioned here)

There is a new website now, just opened, www.ahsta.com , with a forum. Elaine Moore has contributed with some new infor about LDN. (She is writing a book about LDN now). Latest thing is one can take LDN in the morning (it makes you more awake and some people have sleep difficulties on the evening dose) and the effects of one dose last from 48 to 72 hours so one really only needs to take it every other day. The dose is weight-dependent (so 3 mg would be the right dose for me weighing just over 50 kg but I know that others have tried 1,5 mg)

nora

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Rachel, I hope all goes well and you don't feel bad. :)

Kassandra, there should be a thermometer in the sauna at the gym. Rachel got her portable sauna for around $300 ... of course, you could always ask your uncle for one for your birthday. ;) I'm sure he'd pick out one that would look great in your room, LOL.

Nora, good to see you back. Did you really catch up? I haven't seen you post here in a while, you must have had a lot of pages to read! :lol:

RPM, do you eat something green? Spinach? Sorry, idk what that could be.

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RPM, do you eat something green? Spinach? Sorry, idk what that could be.

For me, green stools indicate the presence of bile. Bile salts are green. This can also happen if you are taking iron suppliments. If your stool is green often, you may wish to mention this to your doc.

Now, if it ever turns white, that indicates a blockage in the bilary tree and is "run screaming to the ER" time. :o I've had white stool and that's freaky. But also accompanied by lots and lots of severe pain so you get the idea that something is seriously wrong. :(

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I dont test well for anything containing cysteine/sulfur....I dont test well for glutathione in any form. I've had problems with the oral glutathione as well as the IV. I also cant tolerate whey protein. I was taking it for awhile but definately had problems with it...and I was taken off of it after I didnt test well for it. Same thing with NAC.

If I had to guess I would say that my body is unable to convert cysteine to sulfates which is why I do not tolerate things like whey, NAC, glutathione, or any other supplement containing cysteine. They seem to increase toxicity instead of making me feel better. It sucks because I do understand the importance of these supplements.

I dont have a problem with epsom salts...but nothing needs to be converted here...the sulfates are ready to be utilized as soon as they're absorbed.

Not sure if any of this is helpful to you....but thats all I got right now. :)

Thanks, Rachel. What is TMG mentioned in the post you were quoting about what to supplement to help the body convert?

I'm not sure my body's responses are as clear cut as yours. I just looked at my Doctor's Data report and the sulfur level is considered normal, just past the median. But one of the new supplements I am using and tested well for, and which is helping me sleep, seems to have most of what was being suggested in that quote which helps the body convert cysteine.

Sherry

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For me, green stools indicate the presence of bile. Bile salts are green. This can also happen if you are taking iron suppliments. If your stool is green often, you may wish to mention this to your doc.

Now, if it ever turns white, that indicates a blockage in the bilary tree and is "run screaming to the ER" time. :o I've had white stool and that's freaky. But also accompanied by lots and lots of severe pain so you get the idea that something is seriously wrong. :(

I have had some greenish/blackish stools; I haven't worried too much and assumed it was a combination of the charcoal I'm taking, or the andographis tincture I was on. When I have loose stool it tends to look this way. I think of bile as being yellow, but maybe also with a green hue.

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Now it says the whole things originated in Europe. I am in Europe and must find out how to find it here. Must be Germany....

Dr. K. is from Germany. :)

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Thanks, Rachel. What is TMG mentioned in the post you were quoting about what to supplement to help the body convert?

TMG is trimethylglycine extracted from sugar beets. TMG, also called anhydrous betaine, contains methyl groups. Methyl donors, such as TMG and Folic Acid, and methylated B vitamins, such as Methylcobalamin (methyl-B12) and P5P (methyl-B6) and methylated folic acid are required for converting homocysteine back into methionine and for the accurate synthesis of DNA and RNA, which is essential for the production of normal cells.

Methylation tends to be impaired in individuals within the autism spectrum, with an estimate by the Pfeiffer Clinic in Chicago of at least 85% of autistic children being classified as under-methylators. Methylation is required in order to produce glutathione which is an anti-oxidant critical to the body's natural process of detoxification and removal of heavy metals from the body.

Many people within the autism community use TMG or DMG to support methylation. Some find that one form works better for themselves or their child, than another.

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Hi. I was almost at the north pole, in Longyearbyen for a couple of weeks...I still have some pages to read in-between.....

I googled klinghardt and got some hits, yes, Germany. I still have to read through the pages.

nora

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Hi. I was almost at the north pole, in Longyearbyen for a couple of weeks...I still have some pages to read in-between.....

I googled klinghardt and got some hits, yes, Germany. I still have to read through the pages.

nora

If you're interested in Dr. K. I have lots of info. I can dig up. :)

You can also listen to his interview which is on his website...its very imformative and discusses candida, heavy metals, lyme, ART, heavy metals detox treatments, phsychological issues and toxins, etc.

The interview is at the bottom of this page.

http://www.klinghardt.org/heavy_metals.htm

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Kassandra: the cortisol testing and timing is a bit tricky.

Yea, I know this actually. They also are going to have me do a saliva test. I need to call them and ask about when I do that and how I get the test.

Kassandra, there should be a thermometer in the sauna at the gym. Rachel got her portable sauna for around $300 ... of course, you could always ask your uncle for one for your birthday. ;) I'm sure he'd pick out one that would look great in your room, LOL.

LOL! It's possible. I think unfortunately my brother has ruined any chance of me getting anything, as ALL of the familly's money goes to him. :angry::(

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LOL! It's possible. I think unfortunately my brother has ruined any chance of me getting anything, as ALL of the familly's money goes to him. :angry::(

My sauna isnt the most attractive...would definately clash with any decor...but it works and it can be folded up and put away. :)

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GREAT BIOSET APPT TODAY :D

I'm pretty excited, lol. When I saw Dr. S last month, he wanted me to ask Anna if they could test for the chelators. I'm going in once per month just for stuff like this. :P So today she tested me for the most used and the stuff they put in IVs. I tested fairly well for almost all of it, but DMSA was the best. She said I could take 1000 mg per day of that. I could also take EDTA, and did well with glutathione. DMPS was the lowest, but I could take that in small doses.

I told her that Dr. S was really reluctant to start any kind of chelation because of the mold situation, so she rechecked my toxicity, and EVERYTHING IS HOLDING AT ZERO!!! All the toxicity scores were 0!!! Yay.

She wants me to continue on all the drainage stuff she put me on last time, at least for a while.

She really wants me to continue the Serra Peptase for the lyme. She also really wants me to take magnesium and molybdenum.

So, I'm pretty excited to see Dr. S next month!! Hopefully he'll at least let me to a little challenge. :)

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Yay Donna!! I'm excited for you.

I'll probably have to reschedule my appt. with Dr. S. unless a miracle happens and my Doctors Data results are in by next Thursday.

I ordered more enzymes today. I'm really excited about these enzymes since they are not derived from fruits. They ARE derived from aspergillus but very unlikely to cause reaction unless a person has a known allergy to aspergillus.

Is there fungus in HNI enzymes?

NO! The enzymes derived from Aspergillus have been purified from the fungal matter using from 8 to 12 different methods of purification. No fungal matter is present in the enzyme product. If you have a known allergy to Aspergillus proteins, then caution should be used in taking any fungal-derived enzyme product, however, the allergenic portions of Aspergillus are usually those parts of the fungi removed from the enzymes during processing.

The one I'm currently taking is specifically for breaking down phenols but the enzyme (which is used in high amounts) also happens to fight candida....causing die off. An enzyme high in proteases can help to digest the dying yeast...limiting the die-off reactions.

I ordered another enzyme for this...its used for increasing DPPIV...so its purpose is to help digest gluten, dairy and soy. Some kids who use the enzymes are able to go off of the gluten-free/cf diet without having issues. Those would be the non-celiac kids who are reacting to gluten and dairy because they are unable to break it down.

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I'm gonna have fun having all these new things for Dr. Amy to test! :D

I'm gonna go get some friuts and veggies today to see how well I can tolerate the phenols with the No Fenol enzymes. I'm gonna try avocados...maybe some tomato for salsa!! Yeah....why not just start out with the worst ones. :P

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Yeah....why not just start out with the worst ones. :P

:lol: :lol: so very true :lol: :lol:

Well I just got an email from Anna. She said she'd email me the stuff she tested today because there was NO way I'd ever remember, lol.

I was wrong about the DMSA, I could handle 1000 mg TWICE A DAY, lol!!

DMPS was only 200 mg per day

then she has tDMPS which I think is a typo (I think this was supposed to be glutathione) was 1/2 tsp twice daily

TTFD (??? don't know what this is, lol) okay

Malic acid only 100 mg once a day

EDTA 600 mg twice daily

So overall not bad. :)

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Great news Donna! :D Very excited for you!!! :P

Okay...I need a dairy intervention!!!! All I want to eat is DAIRY. Even though I am waking up with dark circles under my eyes and PALE skin, lol...I still want to eat it! :ph34r:

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then she has tDMPS which I think is a typo (I think this was supposed to be glutathione) was 1/2 tsp twice daily

It could be transdermal DMPS....if she tested you for that?

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Great news Donna! :D Very excited for you!!! :P

Okay...I need a dairy intervention!!!! All I want to eat is DAIRY. Even though I am waking up with dark circles under my eyes and PALE skin, lol...I still want to eat it! :ph34r:

For me dairy is the most addictive food of all. Its easy for me to quit most foods cold turkey but dairy is harder for me. If I have a single glass of milk I will have constant cravings that take awhile to subside. All I'll think about is MORE milk!!

I was actually already like this long before I got sick. For as long as I can remember I couldnt go without milk. If there was no milk available I would get kind of "twitchy"....my body would get stressed out. I would relax as soon as I got the milk. It was a sign that something wasnt right.....but I didnt know it back then....I just thought milk was soooo yummy I just couldnt live without it.

Oh...and I also thought it was GOOD for me....you know strong bones and all that other stuff. :rolleyes:

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I'm gonna have fun having all these new things for Dr. Amy to test! :D

I'm gonna go get some friuts and veggies today to see how well I can tolerate the phenols with the No Fenol enzymes. I'm gonna try avocados...maybe some tomato for salsa!! Yeah....why not just start out with the worst ones. :P

You go girl. Why not some chili in that salsa, like jalepenos. :P

Way to go Donna! So does mean you are not that toxic no more?

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