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Rachel--24

Omg...i Might Be On To Something

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Rachel-

I never did e-coffees but i do regular warm water enemas i notice that I often feel bad aftewards though even if i have had a good release I think that it just stirs up things inside of my really sensitive system and my body can't handle all that stirring up.All my health care people have always felt the ecoffees would be way to strong for me they can be hard on your body this may be true for you to because I know you are sensitive like me.

About the e-coffees...I dont do them anymore. I havent done any in a few months now because I found that alot of the time I was reacting. I was reacting with the same typical symptoms that I get when I eat the wrong foods. :huh:

So does anyone know if the e-coffee would enter the bloodstream?? I get symptoms as if I'm ingesting it.

Theres alot of things I cannot tolerate on my skin...any lipstick, lotions, hair products, toothpaste, etc....with natural ingredients (salicylates) all cause me problems. I had major symptoms every time I tried castor oil packs....after 3 attempts I realized that my body was NOT liking it and it wasnt helping me to detox....it was making me MORE toxic! :blink:

The phenols that I cant eliminate build up fast and cause all sorts of problems....but does anyone think that with e-coffee I'm taking in the phenols?? Coffee is high in phenols so if it gets into my system it would cause reaction.

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It felt pretty good to eat dairy! I don't know how I'll feel in the morning, but so far so good!

When I started this thread the subtitle was "I might be able to eat dairy!!" I thought I was onto something with having a corn intolerance. :P

Obviously, there was much more to it. I can eat stoneyfield ice cream w/out any obvious reaction....but in the overall picture it was stressing my system and feeding candida bigtime. My candida antibodies were sky high while eating ice cream....they went down more than 50% when I stopped the ice cream.

Even if you dont feel a reaction...it can have a cumulative effect...you might be stressing your system which will slow down your healing process.

Thats basically what all my Dr.'s told me...none of them wanted me on dairy and especially ice cream....but once I was on the ice cream it was NOT easy to get myself off of it. :ph34r:

I agree with Carla....its probably not something you wanna start consuming at this early stage in treatment.

The thread title got changed about halfway through because the title no longer matched the content of the thread....we had strayed just a bit. :lol:

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Rachel-

I never did e-coffees but i do regular warm water enemas i notice that I often feel bad aftewards though even if i have had a good release I think that it just stirs up things inside of my really sensitive system and my body can't handle all that stirring up.All my health care people have always felt the ecoffees would be way to strong for me they can be hard on your body this may be true for you to because I know you are sensitive like me.

I actually do ok with warm water e's....there were a couple times where I've felt "off" but ususally its not a problem for me. The ecoffee seems like it causes a reaction though. When I wasnt already in a reactive state I've been able to handle it but if I was already reacting to everything around me...the coffee just added to it....whereas water doesnt really do that to me.

Also if I was handling the coffee....I would eventually react if I tried doing them on a regular basis.

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So does anyone know if the e-coffee would enter the bloodstream?? I get symptoms as if I'm ingesting it.

Well. Lisa already answered this .... but yeah, the whole idea of the coffee in the enema is that it is taken via the bloodstream to the liver. The reason it's done up through the colon instead of the normal way of consuming coffee is that there is a vein that goes between the colon and liver, so to coffee goes directly to the liver and stimulates it to produce glutathione.

I don't think it goes all over your body though ..... I think the idea of that particular system in your body ... the reason for that vein, is to protect your body from absorbing toxins from your colon into your bloodstream, so it goes directly to the liver for cleansing.

But if you're sensitive to something in the coffee, it is a bad idea. IMO.

I do not get the "buzz" I would get if I actually drank the pot of coffee, LOL.

Note to self: The next time you take a detox bath, shut the door or the kitties will come in and laugh at you the entire time.

I'd like to see a YouTube of your kitties laughing .... is it like this?

Even if you dont feel a reaction...it can have a cumulative effect...you might be stressing your system which will slow down your healing process.

its probably not something you wanna start consuming at this early stage in treatment.

I totally agree. I was extremely strict with sugar for a year ... alcohol, too.

In December I decided I was going to enjoy the holidays this year (I was sick the past two or three Christmases), so I ate whatever I wanted. I ate sugar several times per week ..... but I've never really "Racheled" sugar, LOL.

My LLMD asked after I told him this what my reaction was. Apparently he thought it was significant that I ate sugar all month and didn't react at all. That leads me to believe that it is very detrimental to treatment .... it does feed the bugs.

But, for you I was thinking more along the lines that you have this sensitivity, probably due to Lyme, that you need to listen to your body and avoid it. Once you start healing and feeling better, than start testing!

I did have a treat once per month during treatment to avoid that I have to have ice cream or die feeling! :lol:

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Well. Lisa already answered this .... but yeah, the whole idea of the coffee in the enema is that it is taken via the bloodstream to the liver. The reason it's done up through the colon instead of the normal way of consuming coffee is that there is a vein that goes between the colon and liver, so to coffee goes directly to the liver and stimulates it to produce glutathione.

I don't think it goes all over your body though ..... I think the idea of that particular system in your body ... the reason for that vein, is to protect your body from absorbing toxins from your colon into your bloodstream, so it goes directly to the liver for cleansing.

But if you're sensitive to something in the coffee, it is a bad idea. IMO.

I do not get the "buzz" I would get if I actually drank the pot of coffee, LOL.

If my liver cant process phenols...they accumlaute to toxic levels making me feel alot worse and alot more reactive. So can this still occur with ecoffee?? Does it need to go through the liver in the same way as the foods I eat or anything that enters my body through the skin?

I can see how a person with good pathway function would benefit from coffee enemas but what if the PST enzymes are deficient...then I'm assuming the phenols wouldnt clear the body even though they're going in the other end?

Would it be the same as any other phenols that build up because they cant be metabolised? Can that be the case with ecoffee if there is poor phase II liver detoxification due to PST deficiency?

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This is purely conjecture on my part, but I would say if your liver can't process coffee, a coffee enema would be a bad idea since it goes straight to the liver.

It would seem that if it's your liver that has trouble with it, that sending it directly there would be even worse than drinking it! :o

I also *think* but am not 100% certain, that by the time the food goes to the liver it's in the form of blood.

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Even if you dont feel a reaction...it can have a cumulative effect...you might be stressing your system which will slow down your healing process.

Thats basically what all my Dr.'s told me...none of them wanted me on dairy and especially ice cream....but once I was on the ice cream it was NOT easy to get myself off of it. :ph34r:

I agree with Carla....its probably not something you wanna start consuming at this early stage in treatment.

I don't really have any plans on eating ice cream on any kind of a regular basis. Cheese on the other hand, I would LOVE to be able to eat it again. That's allowed on my "lyme" diet. ;) (According to my LLMD)

I totally agree. I was extremely strict with sugar for a year ... alcohol, too.

In December I decided I was going to enjoy the holidays this year (I was sick the past two or three Christmases), so I ate whatever I wanted. I ate sugar several times per week ..... but I've never really "Racheled" sugar, LOL.

My LLMD asked after I told him this what my reaction was. Apparently he thought it was significant that I ate sugar all month and didn't react at all. That leads me to believe that it is very detrimental to treatment .... it does feed the bugs.

But, for you I was thinking more along the lines that you have this sensitivity, probably due to Lyme, that you need to listen to your body and avoid it. Once you start healing and feeling better, than start testing!

I did have a treat once per month during treatment to avoid that I have to have ice cream or die feeling! :lol:

Wait, so are you saying that I shouldn't eat it because the sugar? :lol: I eat sugar fairly often. I try really hard not to, but sometimes those cravings get the best of me. :ph34r:

I don't even think I reacted to it. I mean, yes my stomach hurt for like 5 minutes, but that could have been because I hadn't eaten in hours? :rolleyes::lol: And, it's hard to tell whether the headache was Lyme or the dairy. I get headaches very often...

Everyone,

Does anyone take modified citrus pectin? Does it need to be taken away from things?

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So does anyone know if the e-coffee would enter the bloodstream?? I get symptoms as if I'm ingesting it.

The phenols that I cant eliminate build up fast and cause all sorts of problems....but does anyone think that with e-coffee I'm taking in the phenols?? Coffee is high in phenols so if it gets into my system it would cause reaction.

I'm sure some of it gets in as it is absorbed in the intestine to some degree.

I am trying some coffee formulated just for ecoffee, recommended by Dr. E. It is green coffee. I'll post the link if I can find it. Maybe it is different than other coffee.

Sherry

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The coffee is S.A. Wilson. I tested two other organic coffees with ART and both didn't test well. This one tested quite a bit better Dr. E said.

Sherry

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Theres alot of things I cannot tolerate on my skin...any lipstick, lotions, hair products, toothpaste, etc....with natural ingredients (salicylates) all cause me problems. I had major symptoms every time I tried castor oil packs....after 3 attempts I realized that my body was NOT liking it and it wasnt helping me to detox....it was making me MORE toxic! :blink:

This may be of some help to those with a salicylate sensitivity. I have had success with these products, which are also completely gluten-free. I have spoken with the owner, Andrea. She works very closley with her chemist to insure that no ingredients are derived from gluten sources--and his equipment doesn't even come in contact with gluten. I can even use the lip products from here--

http://www.andrearose.com/

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Oh gracious you are bringing by memories of my childhood. In my late teens while I was in nursing school I used to give coffee enemas for Dr. Bullock, who did elimination diets to treat RA. He's gone but I still run into a lot of his patients. Which is a good sign-that so many of them are still alive. :)

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Does anyone take modified citrus pectin? Does it need to be taken away from things?

I do (well, I'm out now, but will be ordering again soon--the brand I take is wildly expensive). I take it with some other things about 30 minutes before I eat, but no one said to do that...it's just convenient that way. It's a binder, sort of like chlorella, but not as bad as charcoal I think.

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Ok i posted this on the regular board but thought some of you would know more about this. I retested my malabsorption threw enterolab and my score is higher this time around. Does anyone know what can be causing this or what i should do to get the number to go down.

paula

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Oh gracious you are bringing by memories of my childhood. In my late teens while I was in nursing school I used to give coffee enemas for Dr. Bullock, who did elimination diets to treat RA. He's gone but I still run into a lot of his patients. Which is a good sign-that so many of them are still alive. :)

Ewww .... giving one to myself it about all I'm up to! It's good to hear about them being used by more in the medical field though.

Ok i posted this on the regular board but thought some of you would know more about this. I retested my malabsorption threw enterolab and my score is higher this time around. Does anyone know what can be causing this or what i should do to get the number to go down.

paula

Sorry, paula, I don't know. Was it a significant difference? Testing isn't perfect, if it's slightly different, it could be just the imperfections of testing showing.

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Ok i posted this on the regular board but thought some of you would know more about this. I retested my malabsorption threw enterolab and my score is higher this time around. Does anyone know what can be causing this or what i should do to get the number to go down.

paula

I would say something other than celiac is contributing to it.

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Ewww .... giving one to myself it about all I'm up to! It's good to hear about them being used by more in the medical field though.

Sorry, paula, I don't know. Was it a significant difference? Testing isn't perfect, if it's slightly different, it could be just the imperfections of testing showing.

last year it was 364, this year 589

paula

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Well, that's a pretty big difference. Have you been back to your GI for celiac testing? It might be good to get that checked out to verify you are gluten-free.

Otherwise, I'd say something else is contributing to it. Bacterial dysbiosis can also be a cause of fecal fat.

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No, Kassandra, I said but for YOU I was more concerned about having something you are sensitive to too early in your treatment!!! :lol:

LOL! I really wonder if I am sensitive to it. I have no symptoms today, other than just my normal herxing symptoms. ;)

Donna,

Thanks. I have a really hard time taking things 30 minutes before food, lol. It's like, when I'm hungry, I eat. I don't like to wait. And, what brand do you use? Mine is $60 for 22 days! Ouch!

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Kassandra,

I take PectaSol from DeeCee labs (which uses EcoNugenics Pectasol). I first got this in my HN doctor's office, but it was around $180 for 16 oz (just powder...not capsules). They wanted me to take it while I was having my amalgam's removed...I did and continued for over a year to take it everyday. The last 4 months or so I've been taking a month break in between each jar. I found the same thing on Amazon for about $147. Just this morning I was trying to think how long it lasts me. Probably a couple of months.

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Kassandra,

I take PectaSol from DeeCee labs (which uses EcoNugenics Pectasol). I first got this in my HN doctor's office, but it was around $180 for 16 oz (just powder...not capsules). They wanted me to take it while I was having my amalgam's removed...I did and continued for over a year to take it everyday. The last 4 months or so I've been taking a month break in between each jar. I found the same thing on Amazon for about $147. Just this morning I was trying to think how long it lasts me. Probably a couple of months.

That'a really expensive! :o I am supposed to take 10 grams a day, and one jar holds 227 grams, so it doesn't last long. If it lasts you a couple months, that's not that bad. These supplements cost SO much money! Ever since my last appt. it just got way more expensive!

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The coffee is S.A. Wilson. I tested two other organic coffees with ART and both didn't test well. This one tested quite a bit better Dr. E said.

Sherry

Sherry, Dr. Amy recommends this green coffee as well. She says her patients do better with it for some reason.

This may be of some help to those with a salicylate sensitivity. I have had success with these products, which are also completely gluten-free. I have spoken with the owner, Andrea. She works very closley with her chemist to insure that no ingredients are derived from gluten sources--and his equipment doesn't even come in contact with gluten. I can even use the lip products from here--

http://www.andrearose.com/

Thanks Patti. :)

I checked out that site back when I first started the low salicylate diet. I had ordered some shampoo and conditioner...I cant remember if it was from the andrearose site or another site with salicylate free products. I didnt like the products though...I still have them cuz I only used them a few times. My hair was unmanageable with it. :(

I should check it out again though....maybe I can find some other products I can use. :)

Ok i posted this on the regular board but thought some of you would know more about this. I retested my malabsorption threw enterolab and my score is higher this time around. Does anyone know what can be causing this or what i should do to get the number to go down.

paula

I agree with Andrea...probably something other than celiac causing it. For me it was probably high phenol foods, supplements, etc. My malabsorption score was 913...I dont have Celiac and I was gluten-free/cf for 4 months prior to testing. I was also on a strict candida diet during that time as well.

I noticed improvement with absorption when I stopped taking all supplements and when I made more changes in my diet. I'm sure if I were to test today the number would be much lower....however, it could easily change in only a day or two according to what I eat.

I dont think malabsorption scores are consistent...they can change from day to day depending on how you're eating. Lots of thing can contribute....its certainly not limited to damage from gluten. Infections are another big possibility....and they usually go hand-in-hand with the food intolerances.

LOL! I really wonder if I am sensitive to it. I have no symptoms today, other than just my normal herxing symptoms. ;)

I didnt have any obvious symptoms either...which is why I ate truckloads of it for 9 months straight. :o It wasnt until I stopped eating it and noticed improvement that I realized it had been bringing me down.

3 out of 3 of my LLMD's said no dairy, no wheat and no sugar. These are especially bad for those who are chronically ill...they can cause more stress on an already weakened immune system. I shouldnt be talking since I'm definately not a good example. :ph34r:

I know these foods dont help me....but because of salicylate sensitivity most fruits and veggies are even worse for me. :(

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Kassandra,

Yeah, it's expensive. I just looked at the grams...16 oz is 454 grams and I take 10 grams per day (was taking 15) so that would last 45 days.

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I agree with Andrea...probably something other than celiac causing it. For me it was probably high phenol foods, supplements, etc. My malabsorption score was 913...I dont have Celiac and I was gluten-free/cf for 4 months prior to testing. I was also on a strict candida diet during that time as well.

I noticed improvement with absorption when I stopped taking all supplements and when I made more changes in my diet. I'm sure if I were to test today the number would be much lower....however, it could easily change in only a day or two according to what I eat.

I dont think malabsorption scores are consistent...they can change from day to day depending on how you're eating. Lots of thing can contribute....its certainly not limited to damage from gluten. Infections are another big possibility....and they usually go hand-in-hand with the food intolerances.

Well i wasnt taking supplements at the time and was just eating lean meat, veggies and apples and grapefruit. I wasnt eating very much at the time.

What are high phenol foods.

What kind of infections would you look into.

paula

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I didnt have any obvious symptoms either...which is why I ate truckloads of it for 9 months straight. :o It wasnt until I stopped eating it and noticed improvement that I realized it had been bringing me down.

3 out of 3 of my LLMD's said no dairy, no wheat and no sugar. These are especially bad for those who are chronically ill...they can cause more stress on an already weakened immune system. I shouldnt be talking since I'm definately not a good example. :ph34r:

I know these foods dont help me....but because of salicylate sensitivity most fruits and veggies are even worse for me. :(

Yea, I know. LOL. It's just SO good to eat dairy. I don't mid being gluten and soy free, but dairy....ugh! I LOVE dairy! :rolleyes: As of tomorrow I will stop eating it. In the meantime I had mac and cheese for lunch. :ph34r: :ph34r:

Ahh, well it was nice to be normal for a little while. B)

I didn't notice any change when I went dairy free a year ago. Absolutely nothing changed. I still get headaches, still am congested all the time, etc. So, it's really hard to stay away from something when you notice no change. :(

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