Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

Rachel--24 Collaborator
Sorry, another question: should I continue the Myer's cocktail? My nutritionist highly recommends it.

Have you had testing to verify deficiencies? How do you feel after you've had it? I do think it can be very beneficial if you're body is deficient and to support your immune system.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
tabasco32 Apprentice

Hey everyone! Good to see ya.

Well it's so hot here already in beautiful Fresno California. :P NOT!!!

I think 75 or 80 degrees. I have no air in my car so that's like a steam room to me right now.

I'm sweating all this stuff out and It makes me feel good. Though I am having this strange kind of arthritis pain in my neck and shoulders and hands but that's it. Oh and some bubble guts due to well, you know. Oh and some brain fog and more eye floaters.

So yeah Carla I was actually working on That YouTube thing. For real. So if anyone is interested, oh maybe not Donna. Yeah she won't open it so I guess I will just have to change my avatar daily so she can see pics of it. :D There's no way around it now Donna.

Do you think I can get in trouble for that? <_<

Must do it under a different alias. ;):)

Nyxie63 Apprentice

I just checked. There are already videos on ecoffee on youtube already.

Dunno whether to be pleased or shocked. :huh::o:lol:

Rachel--24 Collaborator

Haha...poor Donna...she'll b tortured with YouTube videos and demonstrational avatars! :o

Yeah Lisa....I think you might get in trouble for that! :P

Did all the Lymies get Scotts new newsletter? Its got some good stuff in it. He always gets to do all the fun stuff...I'm jealous! :lol:

I liked how he said that the Dr. K. events are like going to Disneyland. I bet they are!! I feel the same way about Dr. Amy's visits...I would be soooo excited to see Dr. K!!

I'm SO looking forward to my appt. on the 24th...and its always nice to see Scott as well. :)

Theres are links to his recent articles....including his interview with Dr. Cowden. Some info. about Enula for Babesia in the article.

Anyone who wants the newsletter....let me know and I'll forward it to you.

itchygirl Newbie
I had a stool test run, but didn't see the fine print about eating 60 grams of fat a day while on the test, so fecal fat came back fine. *headsmack*

Never had trypsinogen tested.

I do, however, have gallbladder-like symptoms when eating higher fat meals although tests can't find anything wrong with my gallbladder.

I had to do 100 grams of fat a day for three days before the test and 100 grams a day for the three days of the test. The only way I could do that much fat was to eat whole cartons of haagen daz! :lol: Have you had an MRCP with secretin? Or just the HIDA test?

Rachel--24 Collaborator
I just checked. There are already videos on ecoffee on youtube already.

Dunno whether to be pleased or shocked. :huh::o:lol:

:o:o

I dont think I wanna see them. :P

I'm totally up for seeing all kinds of parasites and other "unpleasant" things....but ecoffee?? Nah....I think I'll have to pass. Its not alot of fun doing them....and I imagine alot less fun watching someone else do it. :ph34r:

Nyxie63 Apprentice
I had to do 100 grams of fat a day for three days before the test and 100 grams a day for the three days of the test. The only way I could do that much fat was to eat whole cartons of haagen daz! :lol:

OMG! 100grams? I would have been in such agony! Then again, Haagen daz...... mmmmmmmm. :D

Have you had an MRCP with secretin? Or just the HIDA test?

Just the HIDA scan.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nyxie63 Apprentice
:o:o

I dont think I wanna see them. :P

Thinking I was probably right not posting the links then, huh? :D :D

AndreaB Contributor

Rachel,

Could you please send me Scott's newsletter. I'd like to see the Cowden article. :)

tabasco32 Apprentice

That's it. :huh: Just a whole carton? I should have bought into share's of HD ice cream! Oh and SFF ice cream too. Oh yeah count me in on the Dr. Cowden protocol. Does anyone here take cellusure?

Rachel--24 Collaborator

Andrea...I just sent it to you. :)

LoriG Contributor

Rachel,

Thanks for your help. A lot to think about!!

I've had 2 Myers and have felt awful after both. Not sure what that means?! A detoxing perhaps? No, I have never had blood testing for deficiences, only energetic testing.

To complete what you said about assuming what is wrong - my husband told me tonight he is tired of me doing that and I need to get tested right for these things. So please lay it out for me clearly what are the best tests for?

Heavy Metals - ( I know provoked urine and hair analysis to verify, right?)

Candida - blood antibodies: what is it called? maybe MD could run it

Parasites/Bacteria Infections - stool test? does it matter which one?

Leaky Gut - your above mentioned urine test

Food Allergies - Elisa if I decide to do that

Vitamin/Minerals - any particular one here? just one MD runs covered by insurance?!

You are so helpful! THANK YOU!!

Rachel--24 Collaborator
That's it. :huh: Just a whole carton? I should have bought into share's of HD ice cream! Oh and SFF ice cream too.

Yeah...for me it was Stoneyfield! OMG...those were the days!! I ate cartons of the stuff daily....for about 9 months straight. :D

Course....thats when my yeast antibodies were through the roof. <_<

Oh well....I was definately liking it....even if I was almost non-verbal most days. :lol:

Rachel--24 Collaborator
Heavy Metals - ( I know provoked urine and hair analysis to verify, right?)

Candida - blood antibodies: what is it called? maybe MD could run it

Parasites/Bacteria Infections - stool test? does it matter which one?

Leaky Gut - your above mentioned urine test

Food Allergies - Elisa if I decide to do that

Vitamin/Minerals - any particular one here? just one MD runs covered by insurance?!

Lori....I'll be back later with a list of some good labs for testing these things. I'm out the door right now. :)

LoriG Contributor

itchygirl, Yes you see an associate of Mercola's trained by him for $2700, which covers 2 days of visits/tests

Rachel, By the way, what IS the CAUSE of leaky gut? Your reasoning sure makes a whole lot of sense, but how do you test the cause of it?

CarlaB Enthusiast

I saw Scott's newsletter.

I'm doing okay on the enula .... the day after the first day, I felt horrible .... so it must work.

Green12 Enthusiast

Welcome itchygirl :)

Did all the Lymies get Scotts new newsletter?

I got it, haven't read through it yet though.

Rachel--24 Collaborator
Rachel, By the way, what IS the CAUSE of leaky gut? Your reasoning sure makes a whole lot of sense, but how do you test the cause of it?

There is not one single cause for leaky gut....alot of things can cause or contribute to leaky gut. For example if mercury were to suppress the immune system it can create an imbalance of good/bad bugs in the gut. Antibiotics, poor diet, alcohol, chemicals, etc. can all make the situation worse.

If you have an overgrowth of yeast it can cause leaky gut. If you have parasites...they can cause leaky gut. Dysbiosis (pathogens in the gut) is a cause of leaky gut which then leads to food intolerance. Food intolerance causes even more inflmmation/damage to the gut.

It can be a vicious cycle. It would be alot easier to correct if there were only one cause for leaky gut (such as gluten intolerance) but thats not always the case. It can be several things going on but the main thing is that the immune system is suppressed....allowing for all of this to occur.

Heres a list of some things that can contribute to leaky gut...

Overuse of antibiotics, steroids, NSAIDS (aspirin, ibuprofen, etc)

Poor diet - high in refined foods and sugars and nutritional deficiencies

Incomplete digestion

Heightened exposure to environmental toxins

Stress

Parasitic infestations

Antibiotics because they lead to the overgrowth of abnormal flora in the gastrointestinal tract (bacteria, parasites, candida, fungi)

Alcohol and caffeine (strong gut irritants)

Foods and beverages contaminated by parasites like Giardia lamblia, cryptosporidium, blastocystis hominis and others

Foods and beverages contaminated by bacteria like helicobacter pylori, klebsiella, citrobacter, pseudomonas and others

Chemicals in fermented and processed food (dyes, preservatives, peroxidized fats)

Enzyme deficiencies (e.g. celiac disease, lactase deficiency causing lactose intolerance)

NSAIDS (non-steroidal anti-inflammatory drugs) like ASA, ibuprofen, indomethacin, etc.

Prescription corticosteroids (e.g. prednisone, hydrocortisone, DepoMedrol, etc.)

High refined carbohydrate diet (e.g. candy bars, cookies, cake, soft drinks, white bread)

Prescription hormones like the birth control pill

Mold and fungal mycotoxins in stored grains, fruit and refined carbohydrates

Green12 Enthusiast
So yeah Carla I was actually working on That YouTube thing. For real. So if anyone is interested, oh maybe not Donna. Yeah she won't open it so I guess I will just have to change my avatar daily so she can see pics of it. :D There's no way around it now Donna.

Thinking I was probably right not posting the links then, huh? :D :D

:lol::lol:

Donna R U N!!!!!!!!!!!!!!!!!!!!!

confusedks Enthusiast
I hope everyone else is doing well. Kassandra, I hope you get dinner tonight. ;)

LOL! I don't think I will. My mom is working all day. Unless she surprises me because I'm having a really bad day. :(

Yeah...for me it was Stoneyfield! OMG...those were the days!! I ate cartons of the stuff daily....for about 9 months straight. :D

You guys have to stop it! I am really considering challenging dairy and all this ice cream talk is KILLING ME! LOL! :lol:

Everyone,

I went this morning nice and early (had to wake up at 7.30 to get to the lab by 8.30 :o ) to have my blood drawn. They took 7 tubes! :o They never take that much from me because I am always so anemic, it doesn't do me any good. She had my lay down because I said something about passing out, lol. I was fine, but my arm is really hurting me now.

I then came home and ate, watched a little TV and decided all the light was bothering me, and I wanted to lay down. Well, I fell asleep for 4 hours! :unsure::o I just woke up! :D I guess I was really tired. I am in a bad mood again, lol. I MUST be herxing. I am just feeling overall yucky.

I think I am anemic again. I can never take naps like that unless I am really anemic. Oh, and I've been going to starbucks every chance I get for their iced teas because they have the BEST ice. :lol:;)

dlp252 Apprentice

Yeah, I got Scott's newsletter but haven't printed or read it yet.

Forgot to say welcome to ItchyGirl! Welcome!!

Do you think I can get in trouble for that? <_<

Must do it under a different alias. ;):)

Haha...poor Donna...she'll b tortured with YouTube videos and demonstrational avatars! :o

Yeah Lisa....I think you might get in trouble for that! :P

Yeah, definitely not on a site like this, lol. Phew...might have to BLOCK you Lisa. :lol:

I just checked. There are already videos on ecoffee on youtube already.

Dunno whether to be pleased or shocked. :huh::o:lol:

:o :o Wow, good thing I don't hang out on YouTube, lol.

I had to do 100 grams of fat a day for three days before the test and 100 grams a day for the three days of the test. The only way I could do that much fat was to eat whole cartons of haagen daz! :lol: Have you had an MRCP with secretin? Or just the HIDA test?

Egads, I eat 100 grams of fat nearly every day! :o

Its not alot of fun doing them....and I imagine alot less fun watching someone else do it. :ph34r:

See, that's what I'm talking 'bout.

Donna R U N!!!!!!!!!!!!!!!!!!!!!

Running shoes all laced up. :P

itchygirl Newbie

I've never had the myers but have had vitamin infusions and I think they are supposed to leave you flushed, sweaty and generally icky. The myers has a lot of B vites, right?

Re: Mercola-When you think about it $2700 is not much for two days of tests. I mean, the last time I was in the hospital this spring the total cost was over $30,000 and that was one just proceedure with minor complications. As a regular consumer of medical services I can say with all honesty that I'd happily pay $2700 to actually have some medical professional actually pay attention to me :lol:

I've had 2 Myers and have felt awful after both. Not sure what that means?! A detoxing perhaps? No, I have never had blood testing for deficiences, only energetic testing.
truthsearcher Rookie

Just a few comments

To itchygirl

Yes I have low pancreatic enzymes of Chymotrypsisn which is a key pancreatic enzyme for protein digestsion and Elastase.

I had my tests done through Genova. My report reads that low pancreatic values may reflect pancreatic insufficiency, inadaquate stomach acid for enzyme activation, or prolonged transit time.

Lori,

I don't know if everyone else would agree but I would definitly get the 6 hours provoked urine test.

The 24 hr one is not as reliable says my LLMD. I had a hair test and 24 urine done just after I had my amalgams removed and no mercury showed up. No elevations in metals on the hair and

my 24 hour test showed high lead and aluminum being the highest of them all. Arsenic and cadmium up there as well.

My 6hr provoked urine test (done just 2 weeks ago) showed high lead and mercury! I knew mercury was there d/t the dozen or so fillings I use to have but lo and behold the mercury finally showed up.

I don't know what the exact numbers are right now I have an appt first week in April to discuss the results.

hth

truthsearcher Rookie

Oh and I wanted to say...

For those who just cannot hold a ecoffee or any e for that matter. My GI told me that if you have a Mega colon ( a colon that is stretch out, lost it tone d/t impaction or prolonged Constipation) you could lose the ability to hold liquids.

I had a menomometry sp? test done and this tests the ability to feel the "urge" for a bm and mine was way below normal so my lower part is all stretched out I can only do a ecoffee if I go really slow and stop for breaks and even then can only get 2 cups at the most in me.

hth

Rachel--24 Collaborator
Lori,

I don't know if everyone else would agree but I would definitly get the 6 hours provoked urine test.

I agree....I've only done 6 hour tests following a dose of IV DMPS. I think 24 hour tests might be too diluted.

The 24 hr one is not as reliable says my LLMD. I had a hair test and 24 urine done just after I had my amalgams removed and no mercury showed up. No elevations in metals on the hair and

my 24 hour test showed high lead and aluminum being the highest of them all. Arsenic and cadmium up there as well.

Most people who are mercury toxic wont have it showing up in hair. Other metals can show up in hair...but mercury usually does not. The hair analysis is definately useful as it can identify the probability of mercury toxicity even when there is no mercury coming out. If the essential minerals are out of balance its a pretty good indicator that mercury is an issue. Especially calcium, magnesium and zinc.

Dont get the hair analysis expecting to see mercury and dont rule out mercury when you dont see it...the mineral profile can be very useful.

Also....dont rule out mercury if its not coming out in initial provoked urine challenges...or if the amount excreted is within reference range. The body doesnt always readily excrete mercury....it can take some time to start showing up. It may also depend on the type of chelator used for the test.

Its not uncommon to see other metals coming out...with mercury not showing up until later on.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Coeliac or not coeliac

    2. - cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Coeliac or not coeliac

    3. - trents replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Coeliac or not coeliac

    4. - knitty kitty replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Coeliac or not coeliac

    5. - knitty kitty replied to kevert93's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Having issues with chips

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,184
    • Most Online (within 30 mins)
      10,442

    Dennis E. Schertz
    Newest Member
    Dennis E. Schertz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
    • cristiana
      Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal.  My TTG score was completely through the roof at the time, greater than 100 which was then the cut off max. for my local lab.  Yet when my biopsy results came back, I was told I was stage 3 on the Marsh scale.  I've come across the same thing with at least one other person on this forum who was told everything looked normal, but the report was not talking about the actual biopsy samples, which had to be looked at through a microscope and came back abnormal.
    • trents
      My bad. I should have reread your first post as for some reason I was thinking your TTG was within normal range. While we are talking about celiac antibody blood work, you might not realize that there is not yet an industry standard rating scale in use for those blood tests so just having a raw number with out the reference scale can be less than helpful, especially when the test results are marginal. But a result of 87.4 is probably out of the normal range and into the positive range for any lab's scale. But back to the question of why your endoscopy/biopsy didn't show damage despite significantly positive TTG. Because they took the trouble to take seven samples, it is not likely they missed damage because of it being patchy. The other possibility is that there hasn't been time for the damage to show up. How long have you been experiencing the symptoms you describe in your first post? Having said all that, there are other medical conditions that can cause elevated TTG-IGA values and sometimes they are transient issues. I think it would be wise to ask for another TTG-IGA before the repeat endoscopy to see if it is still high.  Knitty kitty's suggestion of getting genetic testing done is also something to think about. About 35% of the general population will have one or both genes that are markers for the potential to develop active celiac disease but only about 1% of the population actually develop celiac disease. So, having a celiac potential gene cannot be used to definitively diagnose celiac disease but it can be realistically used to rule it out if you don't have either of the genes. If your symptoms persist, and all testing is complete and the follow-up endoscopy/biopsy still shows no damage, you should consider trialing a gluten free diet for a few months to see if symptoms improve. If not celiac disease, you could have NCGS (Non Celiac Gluten Sensitivity). 
    • knitty kitty
      @CC90, Your Lansoprazole is a proton pump inhibitor and has immunosuppressive effects!!!!  This is why your endoscopy didn't show much damage to the intestinal lining!!  The Lansolprazole is suppressing tTg IgA antibodies in the intestines, but those antibodies are getting into the blood stream and causing inflammation and damage in other organs.   Proton pump inhibitors cause intestinal damage in the long run.  If you get off the Lansoprazole for a few months so your immune system is not blocked, then do a gluten challenge, and an endoscopy, THEN they would see intestinal damage. Sheesh!  Doctors can be so ignorant.  I've seen this so many times it's frustrating! Take the B Complex and Benfotiamine.  Get off the Lansoprazole.  Go with the DNA test results.   Welcome to the tribe! P.S. B vitamins are needed to correct anemia!  Not just iron.  
    • knitty kitty
      Hi, @kevert93, Those Gluten Assist enzymes digest carbohydrates, not just gluten specifically.  Eating a high carbohydrate meal can deplete Thiamine Vitamin B 1 causing digestive symptoms like you describe.  You could also be having difficulty digesting the oils used in those chips.  Thiamine in the form Benfotiamine can help. We need the eight B vitamins to digest our food, carbs, fats and proteins.  Poor digestion can cause symptoms like vomiting and stomach pain, brain fog, headaches, exhaustion.  Try taking a B Complex with the activated forms of the B vitamins (Life Extension's Bioactive B Complex is great!) and additional Benfotiamine.  The B vitamins are used to make digestive enzymes and will allow your digestive system to function properly.  The B vitamins also will improve headaches, exhaustion, and brain function.  Taking Thiamine in the form Benfotiamine will improve digestive symptoms and lower inflammation, too.  Benfotiamine and the B vitamins are safe.  The B vitamins are chemical compounds found in whole foods, not in highly processed foods like chips.   The body cannot make the B vitamins, so supplementing is beneficial.  Benfotiamine is safe and nontoxic even in high doses.
×
×
  • Create New...