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Rachel--24

Omg...i Might Be On To Something

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:) Thanks Andrea,

I did alot of research on Lyme last year (forgot alot of it) but dont wanna overload my brain right now especially not knowing the test results yet. I think I better hold off. Too much scientificness is probably not so good for me right now. :P

I dont know how long I have to wait for the results...maybe someone else on the board knows. I know others have been tested with Igenix here.

One things for sure...this Dr. isnt cheap but I'm willing to do what I have to in order to get better. As long as I dont feel like I'm just throwing my money away the way I felt going to Kaiser and getting nowhere. I might as well have just had a bonfire with all my money....it would have saved me a whole lot of stress and at least I would have gotten something out of it. I could have warmed my hands and feet by the fire. :)

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I know what you mean about the money.

We decided to get the kids and Mitch tested for allergies. The doctor we are seeing is not covered by our insurance. We are on state assisted insurance. We want to make him our regular doctor (he's mainline trained with an interest in toxicology and allergies). He looks at the whole picture and works to determine what is wrong. We figure he's more of the type of doctor we are looking for.

Gotta turn over the computer to Mitch again....just wanted to check if you'd written anything else. :P

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Hi Donna :)

Hi Andrea :)

Rachel, it sounds like you had a really productive appt with the new doctor :) . You are right, I did mention Bioset, I was suppose to start it but didn't get to it. It is very similar to NAET in principle, but I'm not exactly clear on how. I am thinking I was told it goes to the cellular level?

I am also happy to hear that he took his time with you, and took all of your symptoms seriously, and better yet offered solutions. Sounds like you are in good hands. And how great of The Dave to go with you for support, that's a very good Dave :lol:

Did you happen to ask him about taking supplements when so sensitive/reactive? And if so what was his take?

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wow so much to read. :blink:

please keep us posted and I'll try to watch for the ANSWER AND TRY TO FIND IT AMONGST ALL THE OTHER INFO.

JUDY

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Guest Robbin

Wow, I finally got caught up with this and I CANNOT BELIEVE the dental problems! About ten years ago, after not having problems at all with my teeth, my dentist at the time decided that the old fillings were in bad shape and needed to be replaced. He over -filled them and had to re-drill them a couple of times and my bite was never the same. I had a perfect bite before (only thing that was ever right on this body) and no problems and it was around the same time that the severe FM problems began. I since then have had broken and chipped teeth because the bite was so screwed up. This must have been a major idea that the dental community cooked up to get more income since cavities were not as bad for kids as in the past. Business must have been slow, so they decided to rip out all the old work on everyone. As I read everyone's experiences, I was once again struck at how we all have these same problems.

This relevation, coupled with what rinne has discovered about lyme has me wondering why we aren't all dead yet. :blink: Geez, I have been misdiagnosed, cut open, re-drilled, bit by ticks& green head flies, given anesthetics that made me vomit, medicines I probably never needed, food that was poisoning me and I still keep dragging on....

I am so sorry that you all are in the same rocky boat. :( This is the beginning of good health for us all, I sincerely believe that there is a light at the end of the tunnel and it is close my friends. I am doing the salt/vit. C therapy with rinne to possibly rid myself of lyme and then tackle the tooth/mercury problem. This was something I had hoped to avoid facing and I always was in denial that it was the cause since I so hate to go to yet another dr. or dentist and get the "hypochondriac" label. ( I wish there were a way to do it completely naturally, safe and without a dr. I am so sick of them. ) I have always wondered about the link between fillings and FM, but wow, the gluten and other food issues--this is interesting and maybe life-changing for some of us. Isn't is curious that we all seem to have teeth/jaw problems too? I think we should invite a researcher to use us as a scientific study of some kind. Like guinea pigs or rabbits, lol. Take care everyone-you are all in my thoughts and prayers.

Donna--Geewhiz, you have had enough already, get well soon!!!!! Rachel, once again, thank you so much for this thread. Maybe this dr. can finally get you some help.

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Robbin,

If you are interested in having mercury fillings removed I can get the name and possibly number of the dentist in Georgia that will do the whole mouth for around $2000 I think. My allergist/mecury toxicity doctor said there is a dentist there that does it and is supposed to be good.

The doctor I see for allergies believes that they revolve around the mercury. My allergies didn't start until my late teens, which would coincide with fillings in my early teens.

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:) Thanks Andrea,

I did alot of research on Lyme last year (forgot alot of it) but dont wanna overload my brain right now especially not knowing the test results yet. I think I better hold off. Too much scientificness is probably not so good for me right now. :P

I dont know how long I have to wait for the results...maybe someone else on the board knows. I know others have been tested with Igenix here.

One things for sure...this Dr. isnt cheap but I'm willing to do what I have to in order to get better. As long as I dont feel like I'm just throwing my money away the way I felt going to Kaiser and getting nowhere. I might as well have just had a bonfire with all my money....it would have saved me a whole lot of stress and at least I would have gotten something out of it. I could have warmed my hands and feet by the fire. :)

Hi Rachel, glad to see that you're trying to get to the root of the problem again. I think you're taking a good path.

I think he would love me, because all my symptoms started after the chemical exposure I had, when taking the metalic ionic supplements.

I had a lymes test, ironically it was the first thing the mainstream doctors suggested, and it came back negative. also my mother swears she had lymes disease, even tho the test was neg, she went on doxycycline for a year for it anyway with her doctors approval. The main treatment for lymes is massive antibiotics long term until you feel better. She said that she had joint pain and after the year of antibiotics she started to feel better. But it still comes and goes. My mom is 53. She never had food sensitivies, jaw pain face swelling or any chem intolerances or skin reactions, salivating, blisters, thyroid etc, just fatigue and joint pain.

I wonder if he could help someone like me who was chemically poisoned by coal derived metallic sludge. What is the doctors name, maybe he does phone consultations.

BTW, metal is stored intracelluarly inside the nucleus and cytoplasm of cells where is it undetected through hair and unrie and dmps, the reason is that the cells sequester the metal to prevent it from circulating around the body and causing oxidative damage and Nitric ox, and iron, and lipid perioxidation from happening. they should test you for your bodys ability to detoxify and see if that is impaired like oxidative damage profile, glutatione etc,. if those can even be tested.

Im rambling now, obviously im very passionate about metallic chemicals and oxidative damage, its the root cause of all my problems, how to fix it tho?????

Let me know if anything helps, hope you dont get too overwhelemed with all this stuff.

does this give you some hope? I would be hopeful

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I rememeber when I was reading about Lyme testing last year I felt like it was kind of useless...there was alot of controversary about it and everyone saying they give false negatives....missing most cases.

Igenix lab was the exception it seemed. I'm kind of glad the Kaiser doc didnt have me tested because I doubt they use this lab. Anyways I feel confident if I have it Igenix will find it and if I'm negative I think I can rest assured. I just want to say if anyone gets tested for Lyme....make sure its not the ELISA test...get tested through Igenix so you can get more accurate results. If you're like me your mind will never be at ease until you have confidence in the validity of the tests. I drive myself crazy sometimes. :wacko:

http://www.remedyfind.com/treatments/52/1536/

Have a great day everyone. I'll be back later but in the meantime has anyone here been tested for Lyme and know about how long it will take to get the results back? I'm gonna try to call the Dr.'s office and find out later today....dont know why I didnt ask this question. :huh:

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Rachel - I can't tell if you're excited about the results of your appointment, but I AM, lol! That sounds so promising, and like you say, even if it comes back negative, you can be very confident in that result AND it rules out one more thing, which gets you closer to the REAL thing! Hum, I can't remember when I went camping last, but my sister lives up near Yosemite and I visited her ocassionally right before I got so sick. I still think I might like to check out this doctor at some point just because of the mercury in my mouth.

Wow, I finally got caught up with this and I CANNOT BELIEVE the dental problems! About ten years ago, after not having problems at all with my teeth, my dentist at the time decided that the old fillings were in bad shape and needed to be replaced. He over -filled them and had to re-drill them a couple of times and my bite was never the same. I had a perfect bite before (only thing that was ever right on this body) and no problems and it was around the same time that the severe FM problems began. I since then have had broken and chipped teeth because the bite was so screwed up. This must have been a major idea that the dental community cooked up to get more income since cavities were not as bad for kids as in the past. Business must have been slow, so they decided to rip out all the old work on everyone. As I read everyone's experiences, I was once again struck at how we all have these same problems.

This relevation, coupled with what rinne has discovered about lyme has me wondering why we aren't all dead yet. :blink: Geez, I have been misdiagnosed, cut open, re-drilled, bit by ticks& green head flies, given anesthetics that made me vomit, medicines I probably never needed, food that was poisoning me and I still keep dragging on....

I am so sorry that you all are in the same rocky boat. :( This is the beginning of good health for us all, I sincerely believe that there is a light at the end of the tunnel and it is close my friends. I am doing the salt/vit. C therapy with rinne to possibly rid myself of lyme and then tackle the tooth/mercury problem. This was something I had hoped to avoid facing and I always was in denial that it was the cause since I so hate to go to yet another dr. or dentist and get the "hypochondriac" label. ( I wish there were a way to do it completely naturally, safe and without a dr. I am so sick of them. ) I have always wondered about the link between fillings and FM, but wow, the gluten and other food issues--this is interesting and maybe life-changing for some of us. Isn't is curious that we all seem to have teeth/jaw problems too? I think we should invite a researcher to use us as a scientific study of some kind. Like guinea pigs or rabbits, lol. Take care everyone-you are all in my thoughts and prayers.

Donna--Geewhiz, you have had enough already, get well soon!!!!! Rachel, once again, thank you so much for this thread. Maybe this dr. can finally get you some help.

Thanks Robbin! I agree so much with what you've said here! It's amazing!

***

On a side note, I got my "scratch" test for food allergies yesterday...as expected it didn't show much...I had only one reaction (besides to the histamine control) and that was to oats! Up until November of last year I ate quite a bit of oats, but none since finding out about gluten...he asked if I noticed a difference after stopping eating oats, and I said that it was hard to tell because at the same time I cut out gluten, dairy, and went on the new allergy shots... So I have improved, just don't know exactly WHAT made the biggest difference, lol.

We talked about some of the things that could be causing my itching...he said he hasn't heard specifically of anyone having that kind of reaction to sugars, but that he wouldn't doubt that it was possible.

They didn't test for Mango specifically, but he said that often tropical fruits cause problems for certain people. He also said that there is a kind of test they will do...I can bring in any kind of food, or medicine, or whatever and they can do a scratch test with that, although he did say that the results are somewhat iffy because of the irritant factor. So I could bring in mango and they could test for it, lol. My regular doctor is still out on maternity leave, so this is the allergist that is interested in alternative medicine! He is very open minded about stuff, even the stool tests from Enterolabs and he seems honest about the degree of confidence in the results of the various tests.

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Rachel,

Chewing is so important-this doctor is right. Years ago when I taught nutrition that was one thing I told everybody-chew 100 times before swallowing. It's like enzimes when you do that. I like him. What kind of doctor is he? I am also interested in the Lyme issue. I have a dark spot on my side that I asked regular doctors to look at and they all said it was nothing. The house I used to have had lots of ticks in the trees,etc. I would find them on me and you have to remove them properly. Who has tweezers in the shower???? I have a friend who went through a rough time with Lyme and I'll call her to get the scoop. Exhaustion was her biggest problem. I need to go to the dr. and get things checked out but don't know who to go to. I think when they laugh at you or get mad it is because they DON'T know.

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Goodmorning everyone!

Donna,

I didn't think those "scratch" tests were very reliable. Have you had the elisa allergy test done? I'd be curious about what this doctor had to say about your situation too.

Rachel,

This lab sounds pretty good. Is Lyme only caused by ticks? I thought that was the main transmission but I would be surprised if it was the only transmission.

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Rachel, I am so glad that you seem to have found a competent Doctor who really wants to understand your problems. I am amazed at the suggestion of Lyme although living as I do in Lyme world these days I am more amazed that I wasn't thinking of Lyme with you. <_< It is scary to think mercury poisoning is preferable.

Lyme is also called the Great Pretender or Imitator, can't remember which, it affects people very differently. My friend, with Lyme, and I have been talking for 5 months and it never occured to either of us that I might have Lyme until she accidentally sent me the salt/c protocol and I looked at Lyme and went OMG.

I also had some dental work that required an old filling coming out about three years ago, a dam was used but nothing more. There is a connection between mercury and Lyme but I don't understand it yet.

White ridges in the fingernails are also a symptom of Lyme, at least I am pretty sure I have seen it mentioned on the Lyme boards.

I think there is a great fiction being sold to us about Lyme disease and that fiction is that we are only at risk in certain parts of the country. In Canada within the past couple of years the government issued a report that there were only 20 cases in the whole country of 30 million people. LOL That is a bitter laugh. Read the boards, Lyme is everywhere and if you have been bitten once it changes your blood so that you become a beacon for ticks, sit in a room with 50 other people who don't have Lyme and that little tick will find you. We are told Lyme was "discovered" in 1972 in CT after a cluster of teenagers were diagnosed with RA, NO it was first identified in Europe in 1882.

At the risk of boring you with repeating what I have said before I think ticks and their bacteria have been with us forever, they didn't change, we did. I think the introduction of processed sugar into our diets and the use of it as a preservatives changed the balance in our body, sugar has turned us into super-hosts for all sorts of bacteria and parasites. I look at the time line and the shift and it seems clear to me that we are killing ourselves, perhaps someday someone will look back just as we do at previous civilizations and wonder what could have wiped us out. Oh and introducing sugar was not enough though, minerals were stripped from salt and bad iodine was added back into it making it harmful to our health to consume to much and we were told and told and told that salt is BAD. Everyone cut back on salt.

It is interesting how programmable we are as a species, I am thinking of soy and how it has been sold to us as a wonder health food and yet in China where they cultivated it for 3000 years it was never considered a primary food source. That should tell us something big.

The long term folks on the salt/c protocol maintain that it is the only thing you have to do to kill the Lyme but it takes, depending on how long you have had it, perhaps 4 years and then a maintanance dose for the rest of your life.

I am in dark mood today, I am four weeks into the salt/c and I've heard that a signifigant herx can happen around that time so perhaps this is part of it. I've been told that Lyme leads to dark and despairing thought patterns and those are patterns I have fought for many years.

There is a Zen koan that goes, "the inner tangle, the outer tangle, who will untangle this tangle?" That's how I feel, tangled.

I have six sisters and brothers, only one of us is functioning well healthwise, the rest of us are sick. Two brothers are as ill and perhaps more ill than I am. I have a sister who was diagnosed with Celiac but never told anything more from the doctor than "avoid wheat. :(

I woke this morning with my body racing and my heart feeling shattered. I feel like everyone just wants to profit from my illness, they are so happy to treat my symptoms, after all my symptoms could last forever. :angry: I have been content to accept their views and try out the treatments to see if they worked. Some treatments offer some relief but they do not go to the source and whether it is the chiropractor who was convinced that adjusting my spine every two weeks for the rest of my life or the acupuncterist who seems convinced my only problem is a poor digestion I don't feel seen and I feel that I am getting worse. I feel like they look at me and think that because I look healthy I am just some middle aged woman going through menopause.

I felt scorched inside after the CT scan but I trusted my friend the doctor who is of good heart, and many of them are, and she referred me to a doctor who I trusted because she had referred him and so I had the CT scan thinking x-ray plus contrast and that I wouldn't drink the contrast and therefore it was relatively safe. I felt really bad after the procedure and I still have a sore feeling and it has been nearly two months since the scan, I don't think so anymore, a CT scan adds a load of radiation to the body. I am kicking myself because if I had researched it I wouldn't have had it. I was burned but I know very well that if I say I felt that they would just tell me I am making it up. :angry:

I am going to cancel my endoscopy and colonoscopy, which I have now been waiting close to five months for, after reading the thread about the amnesiac drugs I don't want them in my body and I am unwilling to be unconscious. There is a risk to the procedures and bottom line I do not trust them to even know whether or not they are hurting me. I have been hurt before in hospitals.

It seems to me that so much of the problem when you are ill is that you need to trust someone to help you and many health care practioners are caring but that doesn't mean that they are capable of seeing that you may not fit into their system of treatment and then capable of telling you, "I can't do anything more than what I'm doing perhaps you need to explore this further, perhaps something else is going on."

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Donna,

I didn't think those "scratch" tests were very reliable. Have you had the elisa allergy test done? I'd be curious about what this doctor had to say about your situation too.

He says the scratch test is fairly reliable as to what you are NOT allergic too...for instance, one can be fairly certain that a negative is a negative, however he did say that positives are sometimes false positives...so if it came back with lots of reactions, I'd probably have to do dietary testing to figure out what was what.

Rinne - wow, sending you a big hug right now!

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Rinne,

I'm sorry you're going through a dark mood right now. Sounds like the salt/vit c trick is working pretty well for you.

I am one who never realized that Lyme was so prevelant.

I hope this episode of herx goes by quickly.

HUGS for you.

Has anyone else in your family been tested for celiac or lyme or such?

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Darn....I didnt have enough time on my lunch to post. Going back to work now but wanna reply to the posts still. :(

Be back later...

Great scientificness everyone. :)

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Thanks Donna and Andrea, I am happy for all the hugs I receive, now I'm in tears though to know that you do care.. LOL

One sister was diagnosed with Celiac and one brother tested also but his blood work came back negative. We all have digestive issues and naturally my father and mother do and it goes back and back.

A niece who is currently on the edge of death, weighing in at 78 pounds and with a diagnosis of Anorexia was treated for Lyme several years ago and with what I am reading it is quite likely Lyme in her case. I had no idea until the other day that she had been treated for Lyme.

I went into a good bookstore the other day and looked for a book on Lyme and there wasn't one, not even one, but plenty on MS for example and it is a common misdiagnosis. One woman had "MS" for twenty years and then discovered it was Lyme. I even read that they are having success treating RA with antibiotics which should make everyone think twice about what RA really is.

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Thanks Donna and Andrea, I am happy for all the hugs I receive, now I'm in tears though to know that you do care.. LOL

One sister was diagnosed with Celiac and one brother tested also but his blood work came back negative. We all have digestive issues and naturally my father and mother do and it goes back and back.

A niece who is currently on the edge of death, weighing in at 78 pounds and with a diagnosis of Anorexia was treated for Lyme several years ago and with what I am reading it is quite likely Lyme in her case. I had no idea until the other day that she had been treated for Lyme.

I went into a good bookstore the other day and looked for a book on Lyme and there wasn't one, not even one, but plenty on MS for example and it is a common misdiagnosis. One woman had "MS" for twenty years and then discovered it was Lyme. I even read that they are having success treating RA with antibiotics which should make everyone think twice about what RA really is.

Sorry to make you cry, lol, but I DO care about everyone here! I am mind-boggled to think about all the mis-diagnosises (is that a word) going on. I can't understand why someone who loves helping people (as in doctors) wouldn't want to really find the problem. When I do my job (and I do it because I need money, not necessarily because I LOVE what I do), I do it to the very best of my ability, and if something happens that I don't understand, I try to find out WHY it happened, not just fix the current problem...if I were a doctor, I think I'd probably drive myself crazy trying to figure out what was REALLY wrong with people, but I think I'd try. I know it's hard for them because so many things share common symptoms, but why not keep trying to find out instead of telling us we're crazy or sending us home with more drugs.

Okay, sorry for the rant... :P

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Sorry to make you cry, lol, but I DO care about everyone here! I am mind-boggled to think about all the mis-diagnosises (is that a word) going on. I can't understand why someone who loves helping people (as in doctors) wouldn't want to really find the problem. When I do my job (and I do it because I need money, not necessarily because I LOVE what I do), I do it to the very best of my ability, and if something happens that I don't understand, I try to find out WHY it happened, not just fix the current problem...if I were a doctor, I think I'd probably drive myself crazy trying to figure out what was REALLY wrong with people, but I think I'd try. I know it's hard for them because so many things share common symptoms, but why not keep trying to find out instead of telling us we're crazy or sending us home with more drugs.

Okay, sorry for the rant... :P

I totally agree Donna, not a rant at all :)

rinne, I also want to send you a big hug. Thanks for your very informative post and for expressing your thoughts, as always so eloquently. Please hang in there!

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Hi Rachell

are you still on histamine restricted diet?

what about diary? did you have any reaction to ice cream?

we reintoduced cream cheese and we are going to have some blood test soon.I have heard of so many people here in Norway that they can eat some diary and some bread,after a long time of eliminating them.

elisabet

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This is the beginning of good health for us all, I sincerely believe that there is a light at the end of the tunnel and it is close my friends.

YAY...very encouraging Robbin!! Thats all I want....for all of us to get better. :)

Well that....and to be able to eat a hot fudge sundae with banana, whip cream, nuts and cherry on top. :D Sheeesh I must be going through withdrawl from having to go off dairy again. :P

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I think he would love me, because all my symptoms started after the chemical exposure I had, when taking the metalic ionic supplements.

Actually when he was talking about chemical exposures he was referring to big exposures...like occupational exposures. People got sick after 9/11 due to chemical exposure, gulf war syndrome, people who work with toxic chemicals on a daily basis....stuff like that. Major exposures like that can lead to chemical sensitvity and immune dysfunction. He doesnt seem like the type of Dr. to do phone consults though. He's an M.D....specializes in internal medicine. He gave me an examination...it really was no different from all the appts I had with specialists in Kaiser...except for the fact that he's a whole lot smarter. :)

BTW, metal is stored intracelluarly inside the nucleus and cytoplasm of cells where is it undetected through hair and unrie and dmps,

DMPS pulls metals out. Its a very powerful chelator....too powerful sometimes which is why it can cause more harm than good. People that have gone through chelation for mercury toxicity can actually feel the mercury being pulled out of their tissues....especially in the brain.....where mercury tends to store itself.

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Rachel - I can't tell if you're excited about the results of your appointment, but I AM, lol!

:lol::lol:

Donna,

Yeah...I'm excited....it took me a good nights sleep to feel better about everything though. Sometimes I get a little overwhelmed. Today I see things in a more positive light and the main thing is that I feel like my answer isn't so far away now....I feel like they'll diagnose me soon. Some people close to me arent too excited right now because they fear things like mercury and especially Lymes but it really is important to get diagnosed and start treating the problem whatever it may be.

Dave did a good job of calming my nerves yesterday and helping me to realize how much better it will be once I get answers.

I had scratch tests too but not for food....Kaiser doesnt offer scratch tests for food but I suspect I'd have been negative for everything anyways. I was negative for all the pollens, mites and dander and all that type of stuff.

The Dr. I saw yesterday said to never put test results before what our own body tells us. He said we should pay attention to our bodies regardless of what the tests might tell us....or not tell us.

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He's an M.D....specializes in internal medicine. He gave me an examination...it really was no different from all the appts I had with specialists in Kaiser...except for the fact that he's a whole lot smarter.

That's wonderful, pity there wasn't some kind of weeding out process that would result in all doctors being smart but I guess not. :lol:

Rachel, I've heard the tests can come back as quickly as 10 days from Igenex.

And thank you all for your support, I phoned a new friend and we met for tea, actually she had hot chocolate with whip cream and I had spring water, and we sat outside in the sun. It was and still is one of those perfect early autumn days.

Then, speaking of Autumn, and a follow up to my comment about the chiropractor I saw for over a year, I stopped at a yoga studio, part of my pro-active plan for health, and she was there. Autumn was the receptionist at the chiropractors the year I was going and she quit about the same time I quit going. I asked her about her leaving her job there because she was such a big part of the feeling of that place and it was a family feeling and I only had to look at her eyes to know that she had arrived at the same decision I had about them. Apparently a number of patients have talked to Autumn and feel much as I do. We yakked for at least an hour and I'm going for yoga in the morning.

I am beginning to think that the caregivers who are kind may be as dangerous as the ones who are callous if their conviction that they have the correct treatment interferes with their ability to recognize their limitations and the reality of the person seeking treatment. I see now how willing I was to trust someone simply based on the fact that they were caring.

Is anybody else as naive?

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Rachel,

Chewing is so important-this doctor is right. Years ago when I taught nutrition that was one thing I told everybody-chew 100 times before swallowing. It's like enzimes when you do that. I like him. What kind of doctor is he? I am also interested in the Lyme issue. I have a dark spot on my side that I asked regular doctors to look at and they all said it was nothing. The house I used to have had lots of ticks in the trees,etc. I would find them on me and you have to remove them properly. Who has tweezers in the shower???? I have a friend who went through a rough time with Lyme and I'll call her to get the scoop. Exhaustion was her biggest problem. I need to go to the dr. and get things checked out but don't know who to go to. I think when they laugh at you or get mad it is because they DON'T know.

Lee...you're right. They dismiss the complicated cases because they dont wanna appear incompetent. Its easier on their egos to tell us its all in our heads.

I'd be curious to hear about your friends ordeal if you can find out. I never saw a tick bite on me or anything. I do remember a weird bite with a small circle around it....I remember thinking it was strange....mainly cuz it stayed there about a week or so. My ex recalls me having the bite too but we cant remember when it was...or if it was even anywhere around the time I got sick. I remember reading that you can get bit...have some initial flu-like symptoms and then be fine for awhile.

I had an episode like that where I had a high fever and flu-like symptoms back in 2000. I think it was right after a vacation in Tahoe. My ex had to call advice nurse and even dress me to go to the dr.s because I was pretty lethargic. It only lasted a day I think. I didnt get sick until more than 2 years later though...I dont know if symptoms could take that long to appear. I got sick after the dental work though.

The Dr. I'm seeing (who says CHEW, CHEW CHEW your food) is an M.D. His bio says he is board certified in internal medicine for 25 years. Studied acute medicine and chronic disease....has had great success in

blending his knowledge of Eastern and Western Modalities.

Its really hard to remember to chew...I forgot for my first 2 meals and then remembered the last time I ate....it sure makes me eat slower. I think it will help keep me from eating too much at once because I have to go so slow. He told me to count as I'm chewing to get myself in a habit of doing it.

Did you happen to ask him about taking supplements when so sensitive/reactive? And if so what was his take?

He pretty much knew without my telling him that supplements werent the best thing for me right now....that I probably wouldnt tolerate them. He said when patients cant take anything its important to get them to start detoxing, work on the diet, cut down on allergies...get the body a little stronger and start trying things later on. He said lots of people react to B vitamins especially....also one other thing (which I forgot :huh:)...I know for sure I react to B vitamins really bad. He wouldnt want me taking anything right now cuz he thinks I would react.

He said its very important to only add one thing at a time...never add more than one thing cuz you'll never figure out what works and what doesnt. Also go very slow....start out on a small dose and work your way up.

It seems to me that so much of the problem when you are ill is that you need to trust someone to help you and many health care practioners are caring but that doesn't mean that they are capable of seeing that you may not fit into their system of treatment and then capable of telling you, "I can't do anything more than what I'm doing perhaps you need to explore this further, perhaps something else is going on."

This is basically what the Dr. at the HealthNow clinic told me....they cant seem to get me better or find out whats wrong so they sent me to this other Dr. who is more knowledgeable about this stuff. The HealthNow Dr.'s mainly dealt with gluten issues, leaky gut, parasites, etc. I'm glad they saw that we werent getting anywhere and decided they werent the best to help me right now.

I'm sorry you're feeling bad right now from the Herx. :(

I'm curious about the Vitamin C/salt thing but will wait for a diagnosis to really get into new treatments.

Thanks for the very informative post. :)

Sorry to make you cry, lol, but I DO care about everyone here! I am mind-boggled to think about all the mis-diagnosises (is that a word) going on. I can't understand why someone who loves helping people (as in doctors) wouldn't want to really find the problem. When I do my job (and I do it because I need money, not necessarily because I LOVE what I do), I do it to the very best of my ability, and if something happens that I don't understand, I try to find out WHY it happened, not just fix the current problem...if I were a doctor, I think I'd probably drive myself crazy trying to figure out what was REALLY wrong with people, but I think I'd try. I know it's hard for them because so many things share common symptoms, but why not keep trying to find out instead of telling us we're crazy or sending us home with more drugs.

Okay, sorry for the rant... :P

GO Donna!!

I couldnt agree more. :)

I went into a good bookstore the other day and looked for a book on Lyme and there wasn't one, not even one, but plenty on MS for example and it is a common misdiagnosis.

I could swear I saw a book on Lymes in the bookstore a long time ago....I'll have to look again. I love going to the bookstore....now I have a purpose. :)

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This is basically what the Dr. at the HealthNow clinic told me....they cant seem to get me better or find out whats wrong so they sent me to this other Dr. who is more knowledgeable about this stuff. The HealthNow Dr.'s mainly dealt with gluten issues, leaky gut, parasites, etc. I'm glad they saw that we werent getting anywhere and decided they werent the best to help me right now.

That is exactly what I mean.

Thank you for your kind words. :) I'm feeling much better, getting up and getting out did me good.

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