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Rachel--24

Omg...i Might Be On To Something

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The last time I ate was at 8:30pm.

What gives?

I don't know what time you go to bed, but eating to close to bedtime may be a problem as well.

what do you guys use to get omegas?

One of my doctors (the ART person) has my family on Nordic Naturals fish oil.

As far as the mercury, I don't know if it's much of an issue, but we are also taking toxin binders.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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melmak,

Forgive me for butting in here, but do you eat the cashews regularly? I had horrible reflux after going gluten-free--I even had cardiac testing twice (echocardiogram & holter monitor and then a full on stress echo) because of it. After determining it wasn't my heart, I realized through an elimination diet that it was the legumes I was eating.

Cashews are related and cause me to have reflux--and gas that shoots upward. It literally feels like it could be a heart atttack, so I can understand a bit of what you're going through.

Just a "for what it's worth"--I hear the sadness and desparation in your posts. I went through an extended period of not being able to eat much of anything with out getting sick. It took me 2 years to get to the stage I'm at now--not perfect, but definately better.

If you ever want to PM me, I'm here :)


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Thanks Jerseyangel.

It kills me to be like this. I am not a sad person, I am not a woe-is-me person. I hate this more than I can say because I feel it is eating my life and personality away.

I haven't had cashews in a few weeks, so maybe its them.

I have the overwhelming urge to say f-it and just eat whatever I want because it doesn't seem to matter what I eat, I still feel like crap.

I am not eating any solid food until my barium swallow next week. I just cannot be in that much pain and be able to work.

I don't know how you made it 2 years, seems like a minor miracle.

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melmak,

Good luck next week--I truly hope that they can see what's causing all this. It's so hard, but when you do get a handle on it, things will begin to get better.

Try and hang in there a little longer :) We're all here for you.


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Julie, last year I made the Namaste blondies and added a can of pumpkin to it. It was GREAT! You don't need to make any other adjustments to the recipe.

Carla, I saw your post about this in the Baking section and I actually tried the pumpkin blondies out, pretty good but mine came out a little rubbery (I am baking at high altitude, so I am not sure if that makes a difference).

The spice cake mix with the spices really make a statement, and then the added pumpkin I used made them taste just like these gluten filled pumpkin bars i use to make.

Anyway, off topic, but I am just so happy to have access to the Namaste products - I actually can eat them since they don't have most of the things that bother me.

Donna, great news you don't have to take your allergy shots anymore!

Mia mia, good luck with chelation and your colonic today. You've really done well with all of this, such a trooper. Stay postive :)

Not off the top of my head do I know anything about plant sterols, why do you ask?

Charlie, I am using Carlson cod liver oil for the time being.

I had not heard that about flax oil, do you have a link? I always showed up allergic to it and wondered why, so it's interesting to hear that many others don't do well with it.

melmak, I know you are frustrated, belive me most all of us here have been , some still are, in your shoes. Not being able to eat anything and having violent reactions to all that we ingest is very challenging. I struggled with it for years.

I hope you get some answers at your appt.

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Have you tried lemon juice in hot water? Sounds crazy, but Carla suggested it to me and it really does help.

I'm glad it's working for you. :) I use a whole lemon in room temp water .... but it sounds good in hot water ... like tea.

It is alkalinizing.

Melmak, I'm sorry you're feeling so bad. I had that, too, even up till about a month ago. Severe stomach pain with any food. It wasn't any specific intolerance. Nuts and prunes would have ripped me up! Oddly enough, potato chips (Lays Stax and Ruffles) always settled okay, so I relied on them more than once for calories!

Smoothies (undenatured whey and raspberries) and decaf lattes have gotten me through the last few months calorie wise.

Julie, that's strange about the blondies ... maybe it is the altitude ... here they were really moist!


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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Potato chips have been my caloric staple. They are the only thing I have been able to consistently eat.

The prunes are the only fruit I can tolerate (only if stewed) and has been my only source of fiber, so I am worried about given them up, but I think at this point I have to.

I am going to see how long I can do just formula, it makes me bloat, but at least I don't regurgitate it.

My friends are now taking bets on what I have.

So far there are dibs on partially obstructed bowel and bacterial overgrowth not being actually dealt with and still kicking around.

I am not sure what the "prize" will be, but I will think of something for the winner.

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Melmak,

I'm betting on the cashews. You've had problems with moldy foods and the cashews fit into that category.

If you havent had problems with potato chips or prunes in the past....I'd suspect the cashews first.

Also, I often am fine eating something one day and then start reacting the next day or two as I continue to eat it. I think I have a threshold for most things that I'm reactive to and since I'm not one to "go easy" with the foods....I inevitably cross that threshold every time. :rolleyes:

I know you are frusterated....we've all been there....yet I dont think anyone here would be considered the "woe is me" type. :)


Rachel

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Charlie,

Yes...there is concern about mercury in fish oil. I'm pretty sure there are some brands which are tested regularly and free of mercury. I cant recall which brands because I'm not taking any so havent looked into it.

I didnt do well with the hemp oil....hemp seeds and oil were giving me massive headaches....very much like soy does.

I dont seem to do well with anything "plant" related....basically all the healthy stuff. :rolleyes:

I was eating eggs for the omegas but I guess I'm currently "omegaless". :huh:


Rachel

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Rachel,

I've cancelled the appointment on the 8th.

I just took some oregano oil......not the tastiest stuff is it? :blink: I'm coming down with a bladder infection (or something like that) and it was one of the things recommended for it. Since it's also good for the candida I figured I'd try it.

Talked to my doctor. I bought some cranberry juice and Braggs apple cider vinegar as well. I tend to be acidic so I figured it would be better to take the acv. Haven't had that yet.

My doctor said if I'm not better when we go in for Seth's 2 year check up, he'll take a sample and run tests....that's in 2 weeks. He's only over here every two weeks. I'm glad he's readily available on the phone though and that he's a holistic md. :)


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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I just wanted to drop in quickly. I got my 504 plan!!!!!!!!!!! Yay!!! Everything went well and now I don't have to feel guilty for being absent from school. They made great accomodations and hopefully it will be really helpful in the future. We are also supposed to be getting lab results for Lyme, and other general stuff, so I will post those later when we get them and I have time.

Kassandra


Dairy/Casein Free- March 2007

Gluten Free- May 2007

Soy Free- August 2007

Sugar Free- January 2008

Starch Free- January 2008

Egg Free (again!)- February 2008

Sulfur Free- May 2008

Dx'd Lyme Disease and co-infections- December 2007

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I just wanted to drop in quickly. I got my 504 plan!!!!!!!!!!! Yay!!! Everything went well and now I don't have to feel guilty for being absent from school. They made great accomodations and hopefully it will be really helpful in the future. We are also supposed to be getting lab results for Lyme, and other general stuff, so I will post those later when we get them and I have time.

Kassandra

Great news!!! :D

Can't wait for the update either. :)


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Charlie, I take Arctic Oils Omega Pure ... www.arcticoils.com. I buy them from my LLMD ... I think you have to get them through a doctor.

OmegaPure 600™ Nutritional Supplements is an ultra-pure great taste fish oil professional formula sourced from the arctic waters of Norway.

This highly concentrated and cholesterol free Professional Formula provides 600 mg of omega-3 essential fatty acids per softgel. In order to assure maximum freshness, the oil is stabilized with Vitamin E, as mixed tocopherols, is molecularly distilled and is independently verified to be free of PCBs, heavy metals, and pesticides. EPA and DHA from fish oil promote cardiovascular health by supporting optimal triglyceride and cholesterol levels and reducing platelet aggregation. Fish oil Nutritional Supplements has also been shown to promote optimal joint function and overall brain and nervous system function.

Great news, Kassandra! Chloe has an IEP here in Ohio, and it's a big help. She doesn't miss school from illness, she was having learning disabilities with her lead toxicity and Lyme Disease. It seems to be better now, but that IEP is still a comfort to us both.


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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Thank you! We are very excited too! :D It turns out the Dr.'s office forgot to send the blood work over! :angry: Hopefully we will get them tomorrow though. I realized that I have been really low energy wise since I got my period a few weeks ago. I feel anemic again...sigh. It's such a deep level of exhaustion that I can't seem to catch up, regardless of the fact that I slept 16 (no, that's NOT a typo! :rolleyes:) Friday night. Also, I slept 10 hours Saturday with a 2 hour nap and this same pattern for the last 3-4 days. I can't EVER sleep enough!

On a side note, we have had a lot of brush fires here in LA, and the air quality is terrible! I have had a headache from hell...could this be why? The sky is orange/brown because of the fires. It is pretty bad. I worry about going to school (which is even closer to the fires than our house) since I haven't been since the fires started. I went today (just for the 504 meeting) and I have had a bad headache ever since. Also, are there any natural remedies for headaches? I hate taking advil/mortin all the time.

Kassandra


Dairy/Casein Free- March 2007

Gluten Free- May 2007

Soy Free- August 2007

Sugar Free- January 2008

Starch Free- January 2008

Egg Free (again!)- February 2008

Sulfur Free- May 2008

Dx'd Lyme Disease and co-infections- December 2007

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Rachel,

I've cancelled the appointment on the 8th.

Ok...I got a call tonite about the scheduling. They didnt forget to call me this time. :)

I'm scheduled for Dec. 15th. YAY!! :D

I'm always excited to see Amy. :)


Rachel

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Mia mia, good luck with chelation and your colonic today. You've really done well with all of this, such a trooper. Stay postive :)

Ditto!! The sweetest trooper in Rachelville!! :wub:

Mia....I hope everything went well and that you're feeling ok. :)

Thanks for letting me know about your problems with the vitamin C...I still gotta call the Dr.'s office about that. I was gonna let it slide...but then I read your post. I guess it cant hurt to ask them to leave it out.

Julie and Mia....I owe you each of you a pm. :)


Rachel

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On a side note, we have had a lot of brush fires here in LA, and the air quality is terrible! I have had a headache from hell...could this be why? The sky is orange/brown because of the fires. It is pretty bad.

Yeah....the stuff we're getting exposed to from the fires is not good. Just what we need....more exposure to mercury and other pollutants. <_<

Fires is one way that we all get exposed to alot more mercury in the air. When trees and other foilage burn.....they release mercury.

Forests act as mercury traps because mercury in the atmosphere

Rachel

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I just wanted to drop in quickly. I got my 504 plan!!!!!!!!!!! Yay!!! Everything went well and now I don't have to feel guilty for being absent from school.

Yay!!!

Congrats Kassandra. I'm glad it all worked out. :)


Rachel

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So I researched thyroid problems as I have been gaining weight without changes to my diet, exercise (or lack thereof ;)) and I took a quiz that says I probably have an under active thyroid. Is this something that could be Lyme related? Or is this separate? OR could it just be symptoms that are related to Lyme and not really thyroid?

Kassandra


Dairy/Casein Free- March 2007

Gluten Free- May 2007

Soy Free- August 2007

Sugar Free- January 2008

Starch Free- January 2008

Egg Free (again!)- February 2008

Sulfur Free- May 2008

Dx'd Lyme Disease and co-infections- December 2007

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I have low thyroid probably because of the Lyme. I started on Armour Thyroid last week. :) Yeah, another thing that can be Lyme related. So can the weight gain. :angry:


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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So I researched thyroid problems as I have been gaining weight without changes to my diet, exercise (or lack thereof ;)) and I took a quiz that says I probably have an under active thyroid. Is this something that could be Lyme related? Or is this separate? OR could it just be symptoms that are related to Lyme and not really thyroid?

Kassandra

Carla already answered but I was going to say I think it can be related. Carla knows much more than me though. :P


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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I have low thyroid cuz the idiot conventional Dr.'s had the answers to all my problems from the start.....just kill my thyroid and everything will be FINE. :blink:

WTF?? :huh:

If only I had listened to my intuition back then...I know I'd be better off right now. :angry:

But yeah....Lyme can cause thyroid problems. Mercury and Lyme both tend to cause thyroid problems....particularly Hypothyroid.

I had the opposite....Hyperthyroid (Graves Disease).

Yeah...I think I'm always gonna be kinda upset about the fact that my thyroid got nuked.

Sorry to go on another rant about that. :rolleyes:


Rachel

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Ditto!! The sweetest trooper in Rachelville!! :wub:

Mia....I hope everything went well and that you're feeling ok. :)

Thanks for letting me know about your problems with the vitamin C...I still gotta call the Dr.'s office about that. I was gonna let it slide...but then I read your post. I guess it cant hurt to ask them to leave it out.

Julie and Mia....I owe you each of you a pm. :)

Rachel-

I asked for no vit. C yesturday it was definitly better. I still felt off from the DMPS but the colonics helped alot with those symptoms. As opposed to the mineral drip when they do the DMPS they give the Vit. C seperate so its really easy not to get it. The nurse there Denise - actually told me alot of people can react to the Vit. C so maybe we are not freaks for once!!!!

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Ok so the other day when i went for my foot bath i paid for 6 up front which was pricey but ende up saving money then i got home and looked up this one i had thought of ordering - And it cost less then the 6 appts!!!!!!!! I was so mad. So I called yesturday to see if they had already cashed the check and they haden't so I asked them not to and i went ahead and orederd one. Its not a super high tech one but i don't think i really need a super high tech one. I am actually really excited for it becasue I feel like on days when i feel really toxic i will have something I can do about it.

Rachel- I look forward to your PM

Miamia

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Lyme (and just about everything else) can also suppress the adrenals which has a lot of the same symptoms as low thyroid. I've been tested every which way for thyroid and it always comes out okay, but the adrenals are definitely fatigued because of all this stuff.

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