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JerryK

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jerseyangel Proficient
jerseyangel
Posted
Hey, I have those vertical ridges, too! I wonder if they'll go away?

After 1 year, mine did--as well as the horizontal dips I had in both thumbnails. This diet has been very good to my hair and nails! :D

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penguin Community Regular
penguin
Posted

I never knew that wasn't normal! I'd love for the dips and divots to go away from my nails, also!

I wish the diet would stay out of my hair, though! The last thing I need is THICKER hair!!! I already have the hair of 4 people! :blink:

megzmc3611 Rookie
megzmc3611
Posted
I apparently looked sick. Now I have people comming up to me saying how much better I look. I know that everyone thought that I was anorexic. Too bad they didn't tell me when I looked sick, they just told each other. :blink:

Same with me! Now people tell me they were really worried about me being anorexic.

Now that I am healthy...everyone is telling me how good I look and how I was way too skinny before.

lovegrov Collaborator
lovegrov
Posted

I looked perfectly healthy (I was slim but within a normal weight for my size) until I got so sick I had to be hospitalized for 11 days and miss 10 weeks of work. Although I had been somewhat tired from what turned out to be anemia, I was pretty much OK until I got so sick I couldn't function. I hope it doesn't take that to convince your doctor.

richard

jennyj Collaborator
jennyj
Posted

Almost two years ago, before I found out I was Celiac, I was extremely anemic. I was in the hospital waiting room waiting for my brother (who just got home from Iraq) to get out of surgery. His doctor came in and asked for his sister and I motioned to him. When he came up to me he said "Oh my god. Are you ok? Has someone been abusing you?" at which time he removed my glasses and stared into my eyes and felt my face. I told him no I was just severely anemic and asked him about my brother. He said that that could wait and if I needed help. Again I told him I was ok. He told me about my brothers surgery but also gave me his card.

Mango04 Enthusiast
Mango04
Posted

I was always about 5-10 pounds overweight and bloated before going gluten-free. My face always looked really puffy. That went away when I changed my diet. I don't know if I have celiac or just gluten intolerance though.

I do have those ridges on my nails. I didn't know that wasn't normal....

debmidge Rising Star
debmidge
Posted

My husband has looking anexoric and sickly (gray pasty coloring on face, deep dark circles around eyes) for many years and doctors would look past that and rely on blood tests (a celiac disease blood test was never done until 2003) and since blood work was normal they'd think he was well (despite looking like a walking skeleton). One gastro from a very large prestigious group here in North Jersey told him he needed psychological counseling as nothing was wrong with him. Are looks that deceiving? I guess the doctor was Dr. Magoo....

On another topic, I've had a viral flu several years ago and got 3 prescriptions: an anti biotic to prevent a bacterial secondary infection, an anti viral medication and a third for the bronchial symptoms as this flu affected my breathing (I am a non smoker too).

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lindalee Enthusiast
lindalee
Posted
I looked perfectly healthy (I was slim but within a normal weight for my size) until I got so sick I had to be hospitalized for 11 days and miss 10 weeks of work. Although I had been somewhat tired from what turned out to be anemia, I was pretty much OK until I got so sick I couldn't function. I hope it doesn't take that to convince your doctor.

richard

What were your symptoms? Do you have to go to the dr. to see if you are low on iron or anemic? That may be why I have been without energy. I am looking for a dr. I know I have celiac disease (was diagnosed as a baby but thought I outgrew it. Now I trying to get totally gluten-free. Thanks, LindaLee

schuyler Apprentice
schuyler
Posted

Apparently I looked pretty sick prior to my diagnosis, but I didn't notice it (and no one bothered to tell me). My appearance hasn't changed much, I'm still incredibly pale (but I've always been pale)and thin, with dark circles under my eyes and I'm covered in bruises. It's funny how before my diagnosis, no one bothered to tell me how sick I looked, but now, they can't shut their mouths about how sick I look.

About the fingernail ridges and dips, I never realized those were not normal! I've had those for so many years.

eleep Enthusiast
eleep
Posted

Well -- I've always had the "so thin people think I'm anorexic" problem, the dark circles (I'm a concealer addict) and fingernail ridges and paleness. At times, I was pretty clear that there was something decidedly wrong -- I went from being thin to having a gaunt face -- which I knew wasn't right.

I've also been a workout-person for the last eight years, so I think that people mistook some of the muscle mass for absolute health -- I know my ex-boyfriend did -- it makes me shudder to think about the fact that I was so sick at times and he found me so attractive -- or claimed to -- I think that was part of the reason he found it so hard to believe the celiac diagnosis and split.

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    • cristiana
      Coeliac or not coeliac

      By cristiana · Posted

      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possibly way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Coeliac or not coeliac

      By CC90 · Posted

      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Coeliac or not coeliac

      By Wheatwacked · Posted

      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Coeliac or not coeliac

      By trents · Posted

      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
    • cristiana
      Coeliac or not coeliac

      By cristiana · Posted

      Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal.  My TTG score was completely through the roof at the time, greater than 100 which was then the cut off max. for my local lab.  Yet when my biopsy results came back, I was told I was stage 3 on the Marsh scale.  I've come across the same thing with at least one other person on this forum who was told everything looked normal, but the report was not talking about the actual biopsy samples, which had to be looked at through a microscope and came back abnormal.
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