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Guest Floridian

Fourty Something Women

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it's good to have Cissie back!! Raconteur and Chair of the dept. of Celiac Oddities and.....what was your title?? :lol:

CECILE - - don't make me come out there and hurt you.....please know that very often pharmaceutical companies have a reduced rate plan for cheaper drugs. I think it's an application process, ask your doctor and PLEASE also look into the samples, doctors have tons but put a phone call in so she'll save them for you!!


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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Did anyone watch The View today? They had a woman on that mentioned gluten free viatmins. Maybe they will start talking about it. I know Elisabeth has mentioned gluten free before, anyway here's to hoping :D:D:D


Nostaglia is a file that removes the rough edges from the good old days!!!!

" 15 years of it's stress!"

"blood work show's a disease called celiac,

but it can't be that because it's rare!"

Diagnosed via blood and biopsy 2003

Not a medical professional just a silly celiac

offering support, my

experience and advice

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I thought that I just read that they are intercepting the drugs from Canada and are not delivering them. It figures. And I think it is starting in Jan. the people in AZ that go to Mexico for their drugs will have to have a passport.


"Throw yourself a pity-party and you'll be the only guest." - Earlene Fowler

Diag. Celiac Disease by positive blood test 2/03/2004

Allergies - corn, soy, casein, egg whites and wheat

Morphia Scleroderma

Osteoarthritis

Hypothyroid and Hperthyroid

Essential Tremors

Asthma

Migraines

Fibromyalgia - diag. in 1978 when they called it Fibrositis

PAD Peripheral Artery Disease

Angina and Atrial Fibrillation

Gluten Ataxia

Vitiligo

Scoliosis of the spine (caused by malabsorption and it is horribly painful) This would be enough reason for someone to go gluten free.

Ocular Myastenia Gravis

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Guest Robbin

:lol::lol::lol: CISSIE!!!! SO GLAD YOU ARE BACK!! Did you make any Long Island Iced Tea, girlfriend?!!!

Armetta, you are right, they ARE confiscating the meds at the Canadian border. My dh tried to get one of his horrendously expensive meds that insurance wasn't covering and they notified him they had it at customs. He just said forget it and is dishing out the bucks here. What a situation this whole country is in medical wise.

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oh Cecile....I have heard of some vitamins, God knows where, will see if I can find out for you.

GUESS WHAT....

Bulldogs are losing, 58 to 23 :lol::rolleyes::lol::rolleyes::lol::rolleyes::lol::rolleyes:

edit: I"m sorry....it's actually SIXTY - TWO to 23 :P:P:P

exactly as I predicted, a landslide......


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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Guess it's the small things that count, huh? *sniff* having a melancholy day......last year at this time, I was AT all the games :( .....of course drinking beer and feelign quite sick! bleh... :huh:


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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I was at the health food store and they had some childrens vitamins so I bought them because it read... no guten added... well I took one and it hurt my tummy.... I have no idea why... I'm still trying to find a good supplement that I can tolerate.

Celia, hi my dear friend.

was at chiro fri and still realing from her new take on me.

watched the view and amazed that all the supplements she was talking about eg. ear ache drops for kids etc my chiro has on her shelf. she only supplys her pt with these options as she's so picky about ingred and knows what's best for each of us...and she furious with the cost rip off in health food stores sooooo it's alot of work for her but sells to us at her cost and she of couse picks up the shipping cost.

i'll put a list here of the supplements i get from her if you want. and the company who makes them

let me know.

won't post if ppl aren't interested. i'll get the bottles and line them up.

j


Judy in Southern CA

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Guest Robbin

:) Thanks, Judy, I will have to check into those vitamins too. They all seem to make me sick.

Now, on another topic, I received this notice and thought you all would like to pass it on to any men in your life.

NEW EVENING CLASSES FOR MEN!!! ALL ARE WELCOME!!!

Starting this month!!!

Note: Due to the complexity and level of difficulty, each course will accept a maximum of eight participants. Sign up early and get a discount registration.

1. HOW TO FILL ICE CUBE TRAYS.

Step by step with slide presentation.

2. TOILET PAPER: DOES IT GROW ON THE HOLDERS?

Roundtable discussion.

3. DIFFERENCES BETWEEN THE LAUNDRY BASKET AND THE FLOOR.

Practicing with hamper. Pictures and graphics.

4. THE AFTER-DINNER DISHES AND SILVERWARE: DO THEY LEVITATE AND FLY INTO THE KITCHEN SINK OR DISHWASHER BY THEMSELVES?

Debate among panel of experts.

5. LOSS OF VIRILITY: LOSING THE REMOTE CONTROL TO YOUR SIGNIFICANT OTHER

Help line and support groups.

6. LEARNING HOW TO FIND THINGS, STARTING WITH LOOKING IN THE RIGHT PLACE INSTEAD OF TURNING THE HOUSE UPSIDE DOWN WHILE SCREAMING.

Open forum.

7. HEALTH WATCH: BRINGING HER FLOWERS IS NOT HARMFUL TO YOUR HEALTH

Power point presentation.

8. REAL MEN ASK FOR DIRECTIONS WHEN LOST.

Real life testimonial from the man who did.

9. IS IT GENETICALLY IMPOSSIBLE TO SIT QUIETLY AS SHE PARALLEL PARKS?

Driving simulation.

10. LIVING WITH ADULTS: BASIC DIFFERENCES BETWEEN YOUR MOTHER AND YOUR WIFE.

Role-playing.

11. HOW TO BE THE IDEAL SHOPPING COMPANION.

Relaxation exercises, meditation, and breathing techniques.

12. REMEMBERING BIRTHDAYS, ANNIVERSARIES, OTHER IMPORTANT DATES AND CALLING WHEN YOU ARE GOING TO BE LATE.

Bring your calendar or PDA to class.

13. GETTING OVER IT. LEARNING TO LIVE WITH BEING WRONG ALL THE TIME.

Individual counselors available.

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Shall we add these as well?

14. NON-VERBAL QUES AS A SECOND LANGUAGE

How to interpret and better respond to your wife when you've screwed up.

A "Role-playing" format

15. CHOSING THE RIGHT WORDS

A course designed for men to discover what they are really saying and how to

eliminate faux pas in their speech. In this course a man will learn how not to compare

their wives to their mothers, sisters, sexy neighbor lady, etc.

This course will eliminate "pissing" off your wife inadvertently.

This course is done in essay form as the student has to first go on permanent record with what he has said.

Course #10 is recommended to be taken first.

16. SPORTS ADDICTIONS

A 13-week intervention (one season) to eliminate addiction to overwhelming desire to attend games and watch them on TV. Basic requirement of this course is that addiction must be consuming to the point of ignoring wife and children and chores, the use of two TV's plus a radio in one room to consume sports, season tickets for more than one sport, and two of every size/type of golf club.

Sensory aversion techniques employed. WARNING: some pain and discomfort

17. BASIC STEPS ON MAKING DOCTOR APPOINTMENT

A one-shot class on using the telephone and making appointment; filing out medical history forms and answering basic medical and health insurance questions.

Guest instructor: Doctor's appointment clerk. Practice phone and forms at class.

Bring your calendar and PDA


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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Robbin and Celia

will send the list in emails ok.

This way I can forward my med list and it'll be easier for me.

also don't want to risk putting this info up on line and risk having ppl shoot it down.

it's good for me and don't need others telling me it's not.

will do asap.

love

judy


Judy in Southern CA

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Guest melannen

Would any of you be willing to give me advice about guys/my love life?? I need to talk to somebody, I'm so confused. :(

I don't want to post out in the open because you never know, he might stumble upon this site one day, but if I could PM some of you I'd really appreciate it....

Please? Anyone? I just need someone to talk to.

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Would any of you be willing to give me advice about guys/my love life?? I need to talk to somebody, I'm so confused. :(

I don't want to post out in the open because you never know, he might stumble upon this site one day, but if I could PM some of you I'd really appreciate it....

Please? Anyone? I just need someone to talk to.

Jessica, I'm here, feel free to pm or email.


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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Jessica......I believe I have more dating experience than anyone you or I know. :o in fact friends have actually urged me to write a book...oh dear gawd the stories I could tell.....but I've only gotten so far as the title: "A**holes I Have Known, And How To Avoid Them" ;) Sadly I didn't gain my wisdom until later in life....but I can help you with what's acceptable and unacceptable in a dating situation, I do this frequently for friends as I *try* to help them avoide the mistakes I made. Ahhhhhhhh....hindsight.

You can PM me, too. :)


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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Jessica,

You can pm me to if you need to. :)


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Jessica......I believe I have more dating experience than anyone you or I know. :o in fact friends have actually urged me to write a book...oh dear gawd the stories I could tell.....but I've only gotten so far as the title: "A**holes I Have Known, And How To Avoid Them" ;) Sadly I didn't gain my wisdom until later in life....but I can help you with what's acceptable and unacceptable in a dating situation, I do this frequently for friends as I *try* to help them avoide the mistakes I made. Ahhhhhhhh....hindsight.

You can PM me, too. :)

LOL So true, Susan I'm sure knows much more about dating than I!!! But, I gave her the advice I had, however old-fashioned it was!! :lol: All I ever wanted was to be married ... I was no good at the dating stuff ...


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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Sadly, all I ever wanted was to be married, too. :( So....Carla can tell Jessica how to have a GOOD relationship, I can tell Jessica....what to avoid and how to take care of yourself....I just learned it way too late, I'm afraid......


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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Sadly, all I ever wanted was to be married, too. :( So....Carla can tell Jessica how to have a GOOD relationship, I can tell Jessica....what to avoid and how to take care of yourself....I just learned it way too late, I'm afraid......

Susan, I think you sound completely ready for a healthy relationship!! ;)


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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Susan, I think you sound completely ready for a healthy relationship!! ;)

OH Carla....that's not quite true. Need to get mysefl a little more together for that....the terrible irony is, when I finally gained my hard-earned wisdom to know the difference....my life and world turned so small.....um, who would date a woman who is sick half the time, or so tired she can hardly function at times, and pretty much unemployed?????? I don't even consider it at this time. The last two weekends, three different guys asked for my phone number....and there was no way. If they scrutinized my life..... :(

(dang, read fast, I will probably erase this)


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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(dang, read fast, I will probably erase this)

I read fast. You're being too hard on yourself. Why prejudge someone before getting to know them. They may surprise you. It's up to you whether you want to take the chance or not.

Remember the man on the roof waiting for God to save him and he refused everything sent his way?


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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I guess I took my nice pills this morning because I didn't quote you in case you decided to erase. To tell you the truth, what dating always was for me was more of a going out with someone who was a little more than a friend -- someone you may kiss goodnight, but it ends there. As I said, somehow I ended up being rather old-fashioned when it came to dating, which is why I had few men who ever wanted to date me, well, more than a date or two. :rolleyes: In the end, my husband realized that he hadn't met any other "nice" girls in college (he's my Mr. Darcy -- he dumped me because, umm, well ...), he decided to date by my rules and we got married as soon as I graduated when I was 21 and he was 22.

If you adopted these "dating rules" for a time at least, you might find it fun to go out and get to know a few men with no strings attached. It would take out the part of dating that is complicated (the chemistry!)... If I all of a sudden found myself single again (God forbid), I would go out, but not date, and I'd make that clear from the start. That way you really learn who the other person is, because, truly, you aren't going to even want to spend time together at all if there's no chemistry ... the chemistry part is what gets us in trouble and hung up on the wrong guy!! I would't really start "dating" (and all I mean by that is that the relationship is exclusive ... still "just a little more than friends" ;)) until I thought I wanted to marry the guy. If he was still around by that time after being just "a little more than friends", that would probably be his interest, too.

I know, I know, I don't live in the real world ... but it's still what I'd do. Guys like a challenge. ;) I think you might enjoy a nice evening out with a man once in a while ... just don't get involved till you're ready. I think you're more together than you give yourself credit for.


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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Carla,

I couldn't agree more. I wasn't raised that way but have become that way. Would have saved myself much heartbreak if I had been taught that from the beginning.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Carla: I too live in your world....and it's not a bad place to be.


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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oh thanks so much, girls, esp. you Carla for all that good advice.

I am in such a sad and crummy mood today.....am stepping AWAY from the computer because....will only post sad things. :blink:

It's a gorgeous day and I'm going to try and enjoy it....as best I can. If you only could understand the place I"m in.....it's hard to put into words but I guess I could just use your prayers.

And I will see you all later. ;)


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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