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Guest Floridian

Fourty Something Women

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If I have been gluten-free for 2 1/2 years, what numbers should my anti-glidian (sp) numbers be? They retested because my neuro problems are kind of getting worse and I am wondering if I have been lax in the gluten-free

I believe that the results would be negative for antigliadin after gluten-free for that long.

B12 deficiency is common in older persons and those with autoimmune disorders of any kind. You get neuropathy from low B12, also can be klutzy, and very tired


Sandy

Type 1 diabetes - 1986

hypothyroid -1993

pernicious anemia

premature atrial beats

neuropathy

retinopathy

daughter is: age 15

central hypotonia and developmental delay

balance issues (rides an adult 3 wheel bike)

hypothyroid 1996

dermatographia - a form of angioedema 2002

celiac 2004 - by endoscopy

diagnosed Aspergers at age 7 - responded very well (HUGE difference) to gluten-free diet

recovered from Kawasaki (2003)

lactose intolerant - figured out in Oct/06

Gilberts syndrome (April/07)

allergy to stinging insects

scoliosis Jan 2008

nightshade intolerance - figured out April 2008

allergy to Sulfa antibiotics

son is 13

type 1 diabetic - 2003 diagnosed on his 9th birthday

celiac - 2004 by endoscopy

lactose intolerant - figured out Nov/06

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Other things can cause the anti-gliadin to be high, that's why they no longer recommend it as one of the tests. If they do the whole panel, I think that the numbers should be negative, or very very low - but keep in mind that some completely normal people can have antibodies that are a little bit high.


"But then, in all honesty, if scientists don't play god, who will?"

- James Watson

My sources are unreliable, but their information is fascinating.

- Ashleigh Brilliant

Leap, and the net will appear.

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They are redoing the whole panel as the office staff did not know how to take just the one test out for the lab orders.

My B12 is fine. I get checked every 3 months for that, D and all the other vitamins.

When I got diagnosed with gluten ataxia, I was told that staying gluten free would prevent it from getting any worse. Or that is what I thought the doctor said LOL. The problem is that I am having a lot of brain type problems and that is why the retesting. Maybe, I think I am totally gluten-free, but I might have become lax and am getting some still in my body. Hopefully the test will be negative. But, my question was what the numbers should be if I have been gluten-free for 2 1/2 years? I think over 10 means you have Celiac, but if no gluten is SUPPOSE to be getting into your body, would the number be 0?


"Throw yourself a pity-party and you'll be the only guest." - Earlene Fowler

Diag. Celiac Disease by positive blood test 2/03/2004

Allergies - corn, soy, casein, egg whites and wheat

Morphia Scleroderma

Osteoarthritis

Hypothyroid and Hperthyroid

Essential Tremors

Asthma

Migraines

Fibromyalgia - diag. in 1978 when they called it Fibrositis

PAD Peripheral Artery Disease

Angina and Atrial Fibrillation

Gluten Ataxia

Vitiligo

Scoliosis of the spine (caused by malabsorption and it is horribly painful) This would be enough reason for someone to go gluten free.

Ocular Myastenia Gravis

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Other things can cause the anti-gliadin to be high, that's why they no longer recommend it as one of the tests. If they do the whole panel, I think that the numbers should be negative, or very very low - but keep in mind that some completely normal people can have antibodies that are a little bit high.

Can the anit-gliadin numbers be high from eating other gliadin containing grains? I'm not an expert on any of this but I know for me I react to other grains in a lot of the gluten-free foods, like amaranth, in the same way I do wheat. Just a thought.

Hang in there Armetta :)

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I don't know the specifics of gluten antibodies, but antibodies in general can cross react. So some similar protein might cause a small rise in your antigliadin antibodies, or your particular antibody spectrum might have something that causes the ELISA to give a slight false positive. So when I do an ELISA, I count everything that is less than my lowest standard, but a little bit above background as a negative result. This doesn't mean I call it 0, it's just below the level of detection. (Actually I usually give it a number because 0s are hard to use in calculations).

So Miss Mouse, Your numbers probably won't be 0, but if your lab tells you that anything less than 10 is negative, and you have a 9, assume that means it's negative. But for your own peace of mind you could do a run through your kitchen and double check everything. At least you'd feel proactive and I think staying in control of your life always feels good.

Hang in there, "Mom".


"But then, in all honesty, if scientists don't play god, who will?"

- James Watson

My sources are unreliable, but their information is fascinating.

- Ashleigh Brilliant

Leap, and the net will appear.

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ARmetta - I don't know about the numbers, but just hope for good news for you...and it sounds just a little like what Lynne goes through....hey, where has she been? makes me worry she's not feeling well at all.....

No dingos were harmed last night.....Sandy - love your crazy stories! I, too am wondering if skunk smell came out of dress! what a debacle -

Annie seems to always feel fabulous - - she did have giardia for a while, but never lets anything get her down. I've had her 3.5 years, she has not lagged a day in her perky little life, and has not failed to lift my spirits in her joy and devotion to me (she's like a therapy dog, senses everything and never leaves my side).....it's like sunshine resides within this dog. Even while sick, she would have the energy to trample a painting.... :lol:

Anywho thanks all for giving me hugs for my whining over painting.....I am just grieving its damage and cursing my stupidity! :angry: but am happy in knowing that I think I want to paint again.....no specimens at this time but something will show itself soon, somewhere....maybe I'll get back into the very bright, Neo-Fauve oils again.......

Let's see...on Gray's Anatomy - - WHICH IS MAKING ME SO FRUSTRATED AND UPSET I DON"T KNOW WHAT TO DO.......going to write a letter - - I can't take it - - -I can't take it - - - but Izzy got a check for 8.7 million dollars from Denny's dad....... :o:o:o What will she do with that money - - I think something crazy and stupid that will make us mad...... :angry:


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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I, too am wondering if skunk smell came out of dress! what a debacle -

Alas I will never know - I worked at an emergency clinic then...the call came in at 8pm on a Friday (skunks come out in early evening). The wedding was the next day.... at my end I picked up the phone and all I could hear was loud voices yellling - GET HIM OUT! Then someone explained what happened. I told them to open windows, air out the dress and short of that - there is nothing they could do. No all night drycleaners around :o

I felt bad for the bride - can you imagine - even with airing it out, there would be faint odour that would have people asking "What's that smell?"... :huh:

I have all sorts of stories that make me chuckle at the trouble pets get themselves into.

One male dog learned that at minus 30, you should not pee against a chain link fence - -yes he got too close and his privates got stuck to the metal :o:blink: - he spent 2 days in clinic, catheterized, on anti inflammatories and pain control.

Another dog came in with fairly bad concussion. We think owner is just upset when he says - "she ran into a car". So I say "how long ago was she hit, did the wheel go over her at all?".... Owner pauses, then looks at his dog and says: "No, umm, the car was parked, I was bike riding with her and she ran full tilt into the car". :huh: ..apparently distracted by a cat.....

both animals recovered completely, i felt soooo bad for the little guy and his fence incident - that HAD to hurt so bad


Sandy

Type 1 diabetes - 1986

hypothyroid -1993

pernicious anemia

premature atrial beats

neuropathy

retinopathy

daughter is: age 15

central hypotonia and developmental delay

balance issues (rides an adult 3 wheel bike)

hypothyroid 1996

dermatographia - a form of angioedema 2002

celiac 2004 - by endoscopy

diagnosed Aspergers at age 7 - responded very well (HUGE difference) to gluten-free diet

recovered from Kawasaki (2003)

lactose intolerant - figured out in Oct/06

Gilberts syndrome (April/07)

allergy to stinging insects

scoliosis Jan 2008

nightshade intolerance - figured out April 2008

allergy to Sulfa antibiotics

son is 13

type 1 diabetic - 2003 diagnosed on his 9th birthday

celiac - 2004 by endoscopy

lactose intolerant - figured out Nov/06

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Can the anit-gliadin numbers be high from eating other gliadin containing grains? I'm not an expert on any of this but I know for me I react to other grains in a lot of the gluten-free foods, like amaranth, in the same way I do wheat. Just a thought.

Hang in there Armetta :)

Me too Julie.

I didn't test intolerant to millet, amaranth or quinoa....but if I have a lot of millet bread (like with french toast), I have a reaction. I did test moderately intolerant to gliadin as well as gluten though.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Let's see...on Gray's Anatomy - - WHICH IS MAKING ME SO FRUSTRATED AND UPSET I DON"T KNOW WHAT TO DO.......going to write a letter - - I can't take it - - -I can't take it - - - but Izzy got a check for 8.7 million dollars from Denny's dad....... :o:o:o What will she do with that money - - I think something crazy and stupid that will make us mad...... :angry:

I was wondering if Izzy will end up with the vet? They both lost a spouse, and didn't he cook for her when she was down?


Nostaglia is a file that removes the rough edges from the good old days!!!!

" 15 years of it's stress!"

"blood work show's a disease called celiac,

but it can't be that because it's rare!"

Diagnosed via blood and biopsy 2003

Not a medical professional just a silly celiac

offering support, my

experience and advice

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Sandy,

OUCH. Poor critters.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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I was wondering if Izzy will end up with the vet? They both lost a spouse, and didn't he cook for her when she was down?

I am quite sure that is the last we are seeing of the vet. And McDreamy - he IS going to break Meredith's heart....again........ :angry:

Okay we CAN eat quinoa, right? should I bother? is it good? what the heck is it anyway and what do I do with it? :blink:


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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Okay we CAN eat quinoa, right? should I bother? is it good? what the heck is it anyway and what do I do with it? :blink:

http://www.glutenfreeforum.com/index.php?s...+flakes+cookies

http://www.glutenfreeforum.com/index.php?showtopic=23839 cookies!

http://www.glutenfreeforum.com/index.php?s...c=24213&hl=

I made the "mock" oatmeal cookies they are good. It's supposed to be really healthy.

More than you'll even need to know...

http://www.hort.purdue.edu/newcrop/afcm/quinoa.html

Try it you'll like it!


Richard

"Not all who wander are lost" - J.R.R. Tolkien

Diagnosed 3/8/05

Sister also Celiac

Risus remedium optimum est

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Can the anit-gliadin numbers be high from eating other gliadin containing grains?

I had been told that my IgG will always be elevated, even after being gluten-free for extended periods--but it shouldn't be through the roof like when you're eating gluten. I was also told that my thyroid antibodies will always be elevated, even though my Hashimoto's is supposedly under control with Synthroid.

At any rate, that's what I'd been told--whether or not that is accurate, I couldn't tell you! Anybody know more details?

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One male dog learned that at minus 30, you should not pee against a chain link fence - -yes he got too close and his privates got stuck to the metal :o:blink: - he spent 2 days in clinic, catheterized, on anti inflammatories and pain control.

:lol::lol::lol: Poor little fella.I can just see his horror stricken little face.!! :o

I've found that dogs have very expressive faces!!

Armetta-sorry the Ataxia seems to be getting worse :(

As others have said..'hang in there!' :)


It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill

Nikki

Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)

black_cat.gif

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Sorry to add another serious question... but has anyone ever taken Prozac? And what were your expierences?

Silly.....serious questiosn are fine. we are all in this together.

Prozac - I was on it two different times, for not more than one week each - - was literally crawling out of my skin and thought I might die, or at least kill many people before I did :o ......BUT BUT BUT - - you must know that all drugs affect people VERY differently. I have been on other SSRI's and had no reaction of that sort at all. It is trial and error - - I know or have known many people who've been on prozac and it worked quite well, in fact I' ve not known any other person who reacted the way I did to prozac.

don't be robbed of your joy, Cecile.....try the Prozac, if it works, HOORAY, you may only need to be on it for a while, or forever, who cares, and it if doesn't work, try something else......

WHY AM I SO HUNGRY ALL THE TIME NOW???????????? :angry::angry::angry:


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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Sorry to add another serious question... but has anyone ever taken Prozac? And what were your expierences?

Hi Cecile, my experience with Prozac wasn't too good.

Apparently I had a rare reaction ( :rolleyes: trust me!) where I broke out in spots and it seemed to affect my fine motor skills amongst other things.

Having said that- to echo Susan, it is different horses for different courses.

In the past it's helped my hubby immensly and I know of many people who sing it's praises where it's really helped. :)


It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill

Nikki

Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)

black_cat.gif

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Thanks you guys... I've reacted to many different anti-depressants but never tried this... don't know if I'll bring it up to the doctor or not.... just trying to hear everyone's stories.

Thanks

Celia,

I've not taken it myself, but a good friend's daughter has. She has been on it for several years now--starting when she was about 18. The only problem I know of was when she tried to wean off of it--that was pretty difficult, and she ended up just staying on it.


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Silly.....serious questiosn are fine. we are all in this together.

Prozac - I was on it two different times, for not more than one week each - - was literally crawling out of my skin and thought I might die, or at least kill many people before I did :o ......BUT BUT BUT - - you must know that all drugs affect people VERY differently. I have been on other SSRI's and had no reaction of that sort at all. It is trial and error - - I know or have known many people who've been on prozac and it worked quite well, in fact I' ve not known any other person who reacted the way I did to prozac.

don't be robbed of your joy, Cecile.....try the Prozac, if it works, HOORAY, you may only need to be on it for a while, or forever, who cares, and it if doesn't work, try something else......

WHY AM I SO HUNGRY ALL THE TIME NOW???????????? :angry::angry::angry:

Susie, I echo everything you said about Prozac!

Don't know why you're hungry all the time. Maybe you're getting better???

I love you dearly also!

Cissie

And in pops Cissie!! well welcome back, crazy lady!!!!!! :P

Look who's calling people crazy, Esteemed Goofiness!

I emailed you earlier today. Did it get lost in the ether again? :unsure:

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I had prozac once and I almost jumped off a bridge, which is something for someone who is afraid of heights. It made me very suicidal but then I don't react to drugs the way most people would.


Rusla

Asthma-1969

wheat/ dairy allergies, lactose/casein intolerance-1980

Multiple food, environmental allergies

allergic to all antibiotics except sulpha

Rheumitoid arthritis,Migraine headaches,TMJ- 1975

fibromyalgia-1995

egg allergy-1997

msg allergy,gall bladder surgery-1972

Skin Biopsy positive DH-Dec.1 2005, confirmed celiac disease

gluten-free totally since Nov. 28, 2005

Hashimoto's Hypothyroidism- 2005

Pernicious Anemia 1999 (still anemic on and off.)

Osteoporosis Aug. 2006

Creative people need maids.

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Yeah... I'm really worried about trying new meds... I've been doing okay with the lexapro and I think my problem is that I cut the dose in half because it is a bit expensive and wanted my script to last two months instead of one... I know... you all are going to yell at me.... please don't...

ohhh and the reason I was asking about prozac is because I read that it might help with ostoprosslfjkasjfljsklafjdkl however you spell that... you know... weak bones...

Hi Celia:

I didn't have a good experience with prozac, but it's been years since then. I just felt really hyper. Can you get samples of the Lexapro from your doctor? I used to ask for samples of Allegro because it was so expensive. That worked for a few months then they told me to get my prescription filled :blink::blink::blink:


Nostaglia is a file that removes the rough edges from the good old days!!!!

" 15 years of it's stress!"

"blood work show's a disease called celiac,

but it can't be that because it's rare!"

Diagnosed via blood and biopsy 2003

Not a medical professional just a silly celiac

offering support, my

experience and advice

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Our Walmart has been advertising that they are cutting the costs on hundreds of meds. Maybe Lexipro is one. You might call your Walmart and see. The price slashing is suppose to be a big one.


"Throw yourself a pity-party and you'll be the only guest." - Earlene Fowler

Diag. Celiac Disease by positive blood test 2/03/2004

Allergies - corn, soy, casein, egg whites and wheat

Morphia Scleroderma

Osteoarthritis

Hypothyroid and Hperthyroid

Essential Tremors

Asthma

Migraines

Fibromyalgia - diag. in 1978 when they called it Fibrositis

PAD Peripheral Artery Disease

Angina and Atrial Fibrillation

Gluten Ataxia

Vitiligo

Scoliosis of the spine (caused by malabsorption and it is horribly painful) This would be enough reason for someone to go gluten free.

Ocular Myastenia Gravis

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Yeah... I'm really worried about trying new meds... I've been doing okay with the lexapro and I think my problem is that I cut the dose in half because it is a bit expensive and wanted my script to last two months instead of one... I know... you all are going to yell at me.... please don't...

ohhh and the reason I was asking about prozac is because I read that it might help with ostoprosslfjkasjfljsklafjdkl however you spell that... you know... weak bones...

OHHH and OMG Cissi... thank God you are home safe... will go check my e-mail... I missed you so much you have no idea!

Well, thank God! What a relief! I thought you were depressed, you silly girl; didn't know you were thinking about your bones!

Fosamax is what I take for osteoporosis, plus vitamin D. I've never heard that prozac could help; must be something new.

I won't yell at you about cutting the lexapro dose in half, considering the circumstances. Maybe you could get it cheaper in Canada. I don't know how that works, but I assume it isn't too difficult a process, since a lot of people do it.

Love you much!

Cissie

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