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Guest marshlakemom

How Long After Being Gluten Free Did Your Sleep Improve

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Guest marshlakemom

I am curious if any of you can remember approximately how long after being completely gluten free that you noticed an improvement in your sleep patterns.

I have been having problems with my sleep for all of my life, and although diagnosed with Celiac at the age of thirty two, didn't remain true to the diet at all times, and consequently have major sleep issues.

I have been completeley gluten free now for just over a week, and haven't noticed any improvement yet, should I be looking at a three months off???

I know this sounds nuts that I haven't been following a completely gluten free diet, but I just have tested my fate for so long now, but I think I am finally getting it into my head that I NEED TO STAY OFF GLUTEN, and just maybe my sleep and exhaustion will improve.

Thanks guys,

Deb

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Deb:

I am sorry that you have been had a long line of sleep problems. This has not been one of mine, but quite the opposite.

Therefore, I am not the one to answer you questions, but perhaps others will post with similar experiences.

Be patient, there are others out there. :)


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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Deb, sorry you are not sleeping well. That was me too prior to being gluten free.

I think it took me about a month or two to see any improvement in my sleeping. To start with I was quite on edge when I first found out I had coeliac, so sleep was more of a problem at the start. But now I sleep like a log. Unless of course I have eaten something that does not agree with me, and that is usually gluten by mistake.

So Deb, it might take a while, it can be a bit like withdrawals as well, which does not help with sleep. But hang in there and I am sure you will notice an improvement in you sleep soon, and not only that but other things you probably never realised were gluten related.

Catherine

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I am curious if any of you can remember approximately how long after being completely gluten free that you noticed an improvement in your sleep patterns.

I have been having problems with my sleep for all of my life, and although diagnosed with Celiac at the age of thirty two, didn't remain true to the diet at all times, and consequently have major sleep issues.

I have been completeley gluten free now for just over a week, and haven't noticed any improvement yet, should I be looking at a three months off???

I know this sounds nuts that I haven't been following a completely gluten free diet, but I just have tested my fate for so long now, but I think I am finally getting it into my head that I NEED TO STAY OFF GLUTEN, and just maybe my sleep and exhaustion will improve.

Thanks guys,

Deb

It took me 4-5 months (and a Super B Complex vitamin everyday...i take nature made because they are gluten free ;) ).


Gluten Free...negative blood results...absolutely positive diet results.

Dairy Free...absolutely positive diet results.

Egg Free...there goes another one...absolutely positive diet results.

Allergic to Codeine.

"Life is like a box of chocolates...you never know which ones may have gluten in them:)"

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Sleep was something that improved for me right away after going gluten-free. I was having problems sleeping prior to that--both falling asleep and staying asleep.


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Guest marshlakemom

Hi All

You guys are great, thanks for the responses, I appreciate each one. I know I'm being a "bit" optimistic by thinking my sleep should improve within a week, and I agree that our body probably does go through a bit of withdrawal once becoming completely gluten free.

I will keep you posted.

Deborah

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I had lots of sleep problems before going gluten-free. It took a few months til it got significantly better. I'm 8 months gluten-free and still having problems sleeping. I haven't slept through the night in over nine years, but it's getting better.

So be patient. Especially if you've been damaged for many years like a lot of us, it will take many months of being strictly gluten-free to get better.

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Mine got a little better after 6 months, but it has only been in the last month that I can sleep all nite and wake up rested. So, one year for me ... marcia


Jan 1990 - Dx CFS/ME/FM (URI's, Ataxia, myoclonus, orthostatic hypotension, insomnia, brain fog, swollen lymph nodes, sore throat... ) Completely Disabled (housebound and bedridden at times)

2004 - Digestive pain all the time.

May 2004 - Hiatal hernia, erosive gastritis, gastroparesis (endoscopy)

August 2004 - Colon polyps, diverticulitus, internal hemorrhoids (colonoscopy)

No relief from Nexium, Prilosec, Protonix, Zelnorm, Miralax, Imodium, Lomotil ...

July 2005 - GP recommended WFDFSFEFCF + vegan (Also, anything that hurts free)

Immediately stopped needing naps and digestive pain reduced.

Sept 2005 - GFDFCFSFEF + chemical free - Immediately stopped feeling jittery / buzzing and digestive issues were much better.

June 2006 - Dx B12 and iron deficient. Started B12 injections and using cast iron pan.

August 2006 - MYOCLONUS GONE. (off Klonopin)

September 2006 - ATAXIA, INSOMNIA and Feeling like the floor was moving under my feet gone.

June 19, 2007 - Positive DQ2, Dx Celiac

October 2007 - Sleeping like a baby, waking up with energy, but still having fatigue/stamina issues

Nov 2007 - Started Paleo diet for chronic hypoglycemia

April 2008 - GTT normal. I'm no longer hypoglycemic. Started Low oxalate diet for kidney stones.

May 1, 2008 - Began salt loading for OI/NMH - noticed immediately muscle weakness was gone. I was sodium deficient but my labs don't reflect it. Still working on OI and PEM.

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I used to have really bad insomnia, the "not able to fall asleep no matter how tired you actually are" kind. This started to get better after about 2-3 months on the diet. I now only get that way if I've been glutened or am really stressed out. Its really nice to know that when I'm going to bed, I'll probably be asleep soon. I fall asleep so easily now that sometimes I wake up and I've fallen asleep with the light on.

I have Sonata as a backup for emergencies, and that helps me supplement when I'm having falling asleep issues.

Elonwy


Positive Bloodwork 7/8/05

Inconclusive Biopsy 7/20/05

gluten-free since 7/23/05

Never felt better.

"So here's us, on the raggedy edge, come a day when there won't be room for naughty men like us to slip about at all. - Malcolm Reynolds"

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The day I was Glutened last week - I ended up having a nightmare that night. Is that a normal reaction ??


Diagnosed May 2006 - Hashimotos Thyroid after being diagnosed in 1977 and told it didn't matter.

Diagnosed June 2006 with adrenal insufficiency.

Diagnosed June 2006 as Gluten Intolerant after I failed the Challenge Diet. Negative blood test.No biopsy.

Diagnosed June 2006 as B12 low. Needed weekly injections for a year.Still have them every 2 weeks.

Trialled Dairy Free Diet and reacted positively to that challenge in January 07.

News Flash! Coeliac Genetic Testing done April 08 . DQ2 Positive !

Diagnosed July 2010 FODMAP. Limits on Fructose, lactose, polyols, fructans. NO ONION! But I can have hard cheese, butter and cream again!!!

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I'm 1.5 years gluten-free and my sleep has improved, but not dramatically. My main problem is staying asleep. I've recently started taking time realeased melatonin and it's helping a lot.

S

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My sleep issues are connected to other things. I sleep a lot better when I can exercise, but I never had the energy to exercise because of the anemia. I've started getting enough energy to exercise in the last 2-3 months, so that's about six months since I've gone gluten free.


Gluten free since Feb 2006, Dairy and Soy free since 2009

Anemic off and on since 2003

Negative tTG Ab, IgA, Gliadin Ab IgA, wheat allergy (IgE) blood tests (Feb 2006)

Positive wheat allergy skin test(Apr 2006)and dietary response (Feb 2006)

Celiac grandmother (Dx in 1940s, "grew out of it")

Training for my first triathlon to support the Crohn's and Colitis Foundation of America.

~Amy

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For me in the beginning there were two issues keeping me from sleeping much at all. One was I was so malnourished I could not get enough exercise to get tired. I was eating a lot of food each day with no appetite. The other more important issue was just plain "anxiety". I could not convince myself in the beginning I would recover. I would lay awake in the bed for hours and stare at the clock. It was as if I was afraid I would fall asleep and never wake up. I had to take some medication for about 6 weeks to help calm me down. Finally I started to notice some positive physical changes (gained a few pounds). When I realized I was not going to die anytime soon I relaxed and was able to give up all meds. Today everything is fine.

Tom

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I have had chronic sleep problems for ages. Gluten-free since March with slow improvement in various areas. My NP gave me amatryptaline recently instead of Ambien CR (have tried several meds and naturals). She says it slows down the gut and that is what I'm finding. I have averaged probably 6 out of 7 full nights of sleep since starting, where I was getting 1/7 for years and years and years.

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I'm 1.5 years gluten-free and my sleep has improved, but not dramatically. My main problem is staying asleep. I've recently started taking time realeased melatonin and it's helping a lot.

My daughter has the same problem...but she's 5.5 years old and part of that is a kid just plain fighting going to sleep! Her doctor told us the melatonin was good for getting you to sleep, but it doesn't keep you asleep. Magnesium is what keeps you asleep once you get there. He reccomended epsom salt baths twice a week to help boost her magnesium levels. That seems to have helped alot...she's sleeping through the night after 2 weeks of baths. Since she's only 5 they only do it twice a week, but I imagine an adult could take the baths more often, or even take a magnesium supplement. Hope this helps!


Ellen

Diabetic for 30 years, Celiac for 1.5 years

Mom of one daughter on Gluten-free/Caisen-free diet, and another "normal" non-food allergied daughter

Wife to a husband of allergy to ALL antibiotics, to the point of where he cna't eat poultry or fish because they absorbe it in their meat when slaughtered.

Basically a family that eats NOTHING without a reaction.

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I've had sleep problems my whole life. I could never fall asleep and I was always so fatigued (though I'm not sure if the always being tired part was related to the celiac or just because I didn't get much sleep to begin with). I've only been on the gluten free diet for about a week and my sleep hasn't improved much. It sounds like it will get better though according to what everyone else has said so that's good.

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