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Judyin Philly

Anyone Know How Evie Is?

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Hi All

Alot of us knew she had a dr apt on Nov 6th and don't think she's posted since then.

Does anyone know how she is or have contact info on her?

judy in philly


Judy in Southern CA

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Judy,

Have you heard anything?? There was an Evie "sighting" a short time ago...but no posts. Maybe she is back at home??


Rachel

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I hope she's home.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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I just heard from Evie's daughter Shirley,

I haven't writen her back yet as wanted to post this ASAP.

I'm hoping she won't mind me posting her email to me.

I'm going to write her and ask her if she has time to print out the messages we write to Evie on this thread and take them to her in the hospital. I think they will cheer her up. Jim did that for me when I want in the hospital and it sure was wonderful.

Here is the email--

Hi-

Evie (My Mom) is in the hospital in Missouri with a serious intestinal infection, C-Difficile and there has been a problem with her kidney (she has only one). The infection has caused problems with the kidney, plus several other areas. She hopes to get to come home by mid week next week. The C-Dif is a very strong and BAD bacteria that takes over when too many antibiotics have been prescribed. She is doing better and the kidney is doing better - just a slow long process. I know she misses her friends on the forum and am sure when she gets home, you will be hearing from her again. I will let her know you are praying for her and thinking of her. Shirley

At least we know that she is in the hospital and her daughter is there.

Judy


Judy in Southern CA

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Here is the email--

Hi-

Evie (My Mom) is in the hospital in Missouri with a serious intestinal infection, C-Difficile and there has been a problem with her kidney (she has only one). The infection has caused problems with the kidney, plus several other areas. She hopes to get to come home by mid week next week. The C-Dif is a very strong and BAD bacteria that takes over when too many antibiotics have been prescribed. She is doing better and the kidney is doing better - just a slow long process. I know she misses her friends on the forum and am sure when she gets home, you will be hearing from her again. I will let her know you are praying for her and thinking of her. Shirley

At least we know that she is in the hospital and her daughter is there.

Judy

Judy, thanks so much for sharing this with us. We have all been so worried and concerned about Evie. If you do e-mail her daughter back let her know that her mom is in our thoughts.

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Thank you so much for the update Judy.

We will continue to keep Evie in our prayers.

Evie we miss you and love you. We'll be here when you get home. :)

:wub::wub::wub:


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Evie, sending :wub:, with prayers that you will be well soon.


A family with Celiac disease, two brothers and two sisters.

Lyme Disease, Diagnosis October 19, 2006

May 2006 - December 2008 Gluten and Dairy Free

December 2008, while seeing improvement on the gluten free diet, I did not recover and so in December of 2008 began the SCD and now have hope for recovery.

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Dearest Evie......prayers for strength to kick that C. Diff in the you-know-what, and prayers for your strengthening and rejuvenation. I had C. diff once......I know how painful it is. We miss you!

God bless - - :)


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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Evie.

So sorry about this happening to you. Prayers that you will get through this soon and be well. :wub:


Lee

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Evie

We're so greatful to Shirley for letting us know your in the hospital.

We are all praying for you here.

We miss your smiling 'avatar' at the computer.

I'm glad your daughter can be with you now.

We'll be so looking forward to the time your well and posting with us again soon.

Love Hugs and Prayers coming your way.

judy in philly


Judy in Southern CA

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Evie,

I'm so glad that your sister has sent an email and that we were able to find out how you're doing. We all miss you and were very worried. Lots of hugs and prayers for you everyday. :wub: I know you are strong and will beat this so you can come home. We cant wait to see you back on the thread....we'll all be here when you get home. Hope those doctors are taking good care of you. :)

((((((hugs))))))))

:wub: -Rachel


Rachel

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Judy--Thanks for letting us know!

Evie,

Please feel better real soon! We miss you and are thinking about you and praying for a speedy recovery. :)


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Evie -Glad Judy tracked you down - I've been thinking of you.

Hope you feel better soon and wishing you a speedy recovery!! :):)


It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill

Nikki

Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)

black_cat.gif

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We really miss you Evie! I am praying that you get well very soon!

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Miss you Evie and am sending get well quick wishes and prayers to you.


"Throw yourself a pity-party and you'll be the only guest." - Earlene Fowler

Diag. Celiac Disease by positive blood test 2/03/2004

Allergies - corn, soy, casein, egg whites and wheat

Morphia Scleroderma

Osteoarthritis

Hypothyroid and Hperthyroid

Essential Tremors

Asthma

Migraines

Fibromyalgia - diag. in 1978 when they called it Fibrositis

PAD Peripheral Artery Disease

Angina and Atrial Fibrillation

Gluten Ataxia

Vitiligo

Scoliosis of the spine (caused by malabsorption and it is horribly painful) This would be enough reason for someone to go gluten free.

Ocular Myastenia Gravis

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Praying for your speedy recovery and health. i had C diff this summer anad it was horrid. Sorry you're dealing with this and I hope they are taking very good care of you. Hugs, Beverly


***************************

Beverly

Gluten free since 2005

In the midst of winter, I found there was within me an invincible summer.

Albert Careb

36_35_6[1].gif

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Hi Friends.

This is the correspondence that Shirely and I had tonight.

I'm going to send the 'print topic' in a email for her to take to her mom as it wasn't on the main view topics tonight..

I'll try to keep an eye on it tomorrow and try to 'bump' it up for people to see who may not have been on line over the weekend.

love judy

**********************

Dear Shirley,

Thank you so very very much for posting when I know your so tired.

It means alot to all of us who care so much about your Mom.

She is a very strong lady but this is alot to try and fight off. I pray she can get home on Tuesday. She'll heal faster there and of course eat safely there. It's such a shame that the hospitals just don't 'get it' in helping hospitalized patients eat gluten-free food with no cross contamination. Have you been taking some food to her?

I just wish we knew this earlier, we could have sent some 'gluten-free' care baskets to her.

Home made soup from your Mom's freezer (if she has some made up) in a thermos would be good and mabe some hard boiled eggs. Shoot, just wish we closer to help you out. Well, Let's pray that she'll be out on Tuesday so she can eat safely.

Maybe others will have some ideas.

Tell you what, I'll do a post of the thread and send it in a email on the forum so it will be easy for you to just print and take to her. This way it will be so easy for you.

I'll go and post this now as there have been alot of well wishes posted.

Will you be staying on when your Mom gets out of the hospital?

Not sure where you live.

Take care and thanks for the post.

prayers coming for you and Evie.

judy

****************************8

Hi Judy-

This is Shirley-Visited Mom today and she has elevated blood pressure and is taking another Rx for that. She is swimming in pills! She appreciated your inquiry and is anxious to get home, maybe by Tuesday we hope. She is still very weak and not getting much she can eat at the hospital. Her cold seemed better and she is on oxygen but don't know if she will have that at home or not. Since her breathing is labored, maybe she will. Doc says she will be wearing the catheter home-Joy! Got to beat this bladder infection plus the nasty C-diff. Doc mentioned a pacemaker, but if the new heart Rx works, no pacemaker. Lots of health issues for her, but she is trying to be strong. Your thoughts and prayers help her and I will tell her you sent another reply. Go ahead and post and let others know how she is doing. She appreciates this forum a lot.


Judy in Southern CA

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bump- :)


Judy in Southern CA

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Thanks so much for another update Judy and Shirley.

Evie,

We love you and look forward to you coming home. Our prayers and thoughts are with you. :wub:


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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bump- :)

BUMP :rolleyes:


Judy in Southern CA

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Evie, still thinking of you and rooting for you to get better ASAP!! :)

Hope you get to come home soon!! :):):)


It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill

Nikki

Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)

black_cat.gif

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Evie - you're in my thoughts and prayers. :wub:


Lee

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Thanks for the update Judy!!! Still praying for her!

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Thanks so much for this Judy :)

Evie--We're all here thinking about you and sending positive get-well energy :D


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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