Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Trying To Read Test Results

Crystalkd

By Crystalkd
in Related Issues & Disorders

Recommended Posts

Crystalkd Contributor
Crystalkd
Posted

I'm asking this because I'm having other medical issues that I'm trying to resolve and maybe the test results aren't being look at correctly or others could be messed up by low levels

I've been gluten-free for almost two years now even though test results were negitive. I got a copy of the results after those test were run and decided to take another look at them. I'm igA deficent by 1 point. I know that this causes the blood test for Celiac to be pointless. My question is this: Given the fact that I have Cerebral Palsy as well what can low igA cause and what other blood test can it mess up.

Also in the Prometheus Celiac PLUS evaluation that is Serology and Genetics does the low igA only throw off the igA part of the test? They also tested HLA-DQ2 which was negitive but DQ8 was positive.

I have come to relize that the doc that ran the tests before I went gluten-free may make up in his mind what he thinks is wrong. He just tried to put me on a anti-depressant for acid reflux. He also found I have a hiatal hernea that wasn't there 2 years ago and a gall bladder poylop.

Thanks guys!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Doctors now adays feel that most everything is stess related.

Your hiatal hernia can certainly give you reflux.

Crystalkd Contributor
Crystalkd
Posted
  • Author

I know I have reflux. I'm fine with that. I've had problems with acid for a while. My main question is what other tests can being igA deffient throw off. And what does testing positive for the HLA-DQ8 gene mean? And does low igA mess with the genetic test like it does the blood tests. I've been tested for many auto immune disorders since and there are still lingering issues besides the acid. It's like there's one more missing peice to the puzzle and maybe it's right in front of my face.

lizard00 Enthusiast
lizard00
Posted

I'm IgA deficient, too. I don't know what other tests are IgA based, but since IgA is an antibody, my guess is it would be specific to immune system issues, if it is used in other testing. If you are not gluten free already, ask your doctor to run the IgG version of the tTG test. It is useful in those of us with IgA deficiency. It's not as specific to celiac as the IgA, but if it comes back elevated, it can be helpful in the diagnostic process. I didn't know about this test at the time, and never had it done.

It doesn't throw off any genetic testing, because whether your are IgA deficient doesn't change your genetic makeup. Testing positive for the gene means that you have a genetic marker associated with celiac disease. It doesn't mean that you will develop celiac, but it can help put some pieces together, especially if you have inconclusive blood tests. My doctor used my results to assess my risk, and used my dietary response to diagnose me.

Your test result from Prometheus should give you your risk factor based on your genetic results.

Crystalkd Contributor
Crystalkd
Posted
  • Author
I'm IgA deficient, too. I don't know what other tests are IgA based, but since IgA is an antibody, my guess is it would be specific to immune system issues, if it is used in other testing. If you are not gluten free already, ask your doctor to run the IgG version of the tTG test. It is useful in those of us with IgA deficiency. It's not as specific to celiac as the IgA, but if it comes back elevated, it can be helpful in the diagnostic process. I didn't know about this test at the time, and never had it done.

It doesn't throw off any genetic testing, because whether your are IgA deficient doesn't change your genetic makeup. Testing positive for the gene means that you have a genetic marker associated with celiac disease. It doesn't mean that you will develop celiac, but it can help put some pieces together, especially if you have inconclusive blood tests. My doctor used my results to assess my risk, and used my dietary response to diagnose me.

Your test result from Prometheus should give you your risk factor based on your genetic results.

Thank you. Before the gluten-free diet I had a laundry list of conditions that cleared up almost entirely on the diet but I'm starting to amass another list. It's shorter than the orginal. I was wondering if being low on igA by even 1 point could be throwing other tests off. I'll bring it up with my internist at the next appointment. It's confusing and I want to be on as little meducation as possible. Because the internist is convinced it's Ceilac and a gluten allergy but together he wants my mom to get tested to see what hers comes up with since we think it comes from her side. I'm trying to avoid the mess I ended up in two years ago. I have learned the hard way that seemingly unrelated things can and often are in my case at least connected.

Di-gfree Apprentice
Di-gfree
Posted

Hi Crystal, Have you been tested for thyroid problems? Hashimoto's, to be specific. I had/still have occasionally acid reflux and hiatal hernia (the latter which I, of course, still have... I imagine - lol). And I think those were symptoms of my Hashimotos (which I was diagnosed with a year ago). You have to have tsh, Free T3, Free T4, and TPO antibodies tested. And, if you do a search, here, you'll find more info about it. Of course, your thyroid may be absolutely fine...

Check out this website, too: :)

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,075
    • Most Online (within 30 mins)
      10,442
    callowaydorian
    Newest Member
    callowaydorian
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      Terrible Neurological Symptoms

      By Aretaeus Cappadocia · Posted

      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      I had MRI scan a few years ago showing everything normal, and now it's no longer triggering the nerve pain when I bow my head today - it only seemed to happen yesterday, and that was the only time it happened! Just seemed weird as no movement has caused my usual nerve pain before. It's normally just random.
×
×
  • Create New...