Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Attending A Paid Catered Event


captaincrab55

Recommended Posts

captaincrab55 Enthusiast

Hi All, New here, diagnosed about 7 weeks ago witn DH (biopsy) & celiac disease several days latter (blood test)..

I was planing on attending a picnic for IBEW#24 at Conrad's Ruth Villa in Middle River Maryland on 8-9-09. I called the caterer, spoke with Brad and requested a list of foods that may contain Gluten or are gluten-free. He could only list the foods being served and recommended that I don't attend!...

I have several Questions; Do I have a right to know what's in the food being served?

Would this be a violation of the ADA laws?

Thanks, Tom

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

Is there a reason you HAVE to attend? If not, I wouldn't give them my business. If you need to go, then ask if they can reduce the price since they can't serve you. You can always throw in the ADA thing and they might cooperate but it seems like they don't really care. Good luck!

Link to comment
Share on other sites
captaincrab55 Enthusiast
Is there a reason you HAVE to attend? If not, I wouldn't give them my business. If you need to go, then ask if they can reduce the price since they can't serve you. You can always throw in the ADA thing and they might cooperate but it seems like they don't really care. Good luck!

Attending the event is at will and I won't attend unless I get some cooperation from the Caterer (in this case, the Owner too). This event usually brings out (weather permitting) between 2000 to 3000 people of all ages. With a group that size, I can easily see 20 to 30 people (maybe more) that can group together to make a difference in the future...

All seemed so easy to locate food out until this event.. I went to a wedding 2 weeks ago and Atlantic Caterers bent over backwards to assist me, even offered to make a special meal... Hershey Park was very helpful and easy to deal with. Out Back Steakhouse has a seperate gluten-free menu...

Long story short, this is my Test Case to make a difference for those that have DH and/or celiac disease... I just need to understand what rights One has with this Disease.. Are there any topics on One's rights?

Thanks, Tom

Link to comment
Share on other sites
Gemini Experienced

Long story short, this is my Test Case to make a difference for those that have DH and/or celiac disease... I just need to understand what rights One has with this Disease.. Are there any topics on One's rights?

Thanks, Tom

Link to comment
Share on other sites
tarnalberry Community Regular

As far as I know, private events are not in any way covered by the ADA. (This is why you don't have to have wheelchair access to your house, for instance.) It's always best to check with a lawyer, but the ADA generally covers public (city/state/federal) sources and "generally accessible to the public, and big enough" sorts of things.

Link to comment
Share on other sites
Mskedi Newbie

Like others have said, you don't have any rights in this instance, but you do have a voice. This company has heard your needs. Maybe in the future they will here from other people with Celiacs or allergies. Then they may decide it would be a good business decision to charge a bit extra for a special plate for such people. Maybe you won't make a difference right now with this company, but the more exposure people like us get (especially if it is polite exposure), the more likely companies are to see us as customers whose business they want.

Link to comment
Share on other sites
modiddly16 Enthusiast

No caterer is obligated to cater to you and your food illnesses or allergies but I'll be honest with you. I don't know a good one that wouldn't want to make sure you were taken care of. I've been working in event planning in DC and Baltimore for the past few months and we are working with Classic Catering in Owings Mills right now. If you're looking for a good caterer who truly cares, I recommend them for sure. Not that I'm trying make a sales pitch, just my experience up here!

If it's an event that you'd like to attend, since it seems like it's pretty big and would be fun. I'd express my disappointment in the catering company to whomever its appropriate to do so and just either eat before or bring my own food. Celiacs shouldn't have to miss out on fun things because other people don't get it!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Amyleigh0007 Enthusiast

I would bring my own food and when people asked why I wasn't eating the catered food I would be honest. I would say I tried to explain to the caterer my special dietary needs but they were very rude and unwilling to work with me. Maybe if they get business taken away from them (who wants to have rude caterers?) they will be more open minded in the future.

Link to comment
Share on other sites
The Fluffy Assassin Enthusiast
Attending the event is at will and I won't attend unless I get some cooperation from the Caterer (in this case, the Owner too). This event usually brings out (weather permitting) between 2000 to 3000 people of all ages. With a group that size, I can easily see 20 to 30 people (maybe more) that can group together to make a difference in the future...

All seemed so easy to locate food out until this event.. I went to a wedding 2 weeks ago and Atlantic Caterers bent over backwards to assist me, even offered to make a special meal... Hershey Park was very helpful and easy to deal with. Out Back Steakhouse has a seperate gluten-free menu...

Long story short, this is my Test Case to make a difference for those that have DH and/or celiac disease... I just need to understand what rights One has with this Disease.. Are there any topics on One's rights?

Thanks, Tom

I think you should write a letter to your local's leadership pointing out the failure of this caterer to be accommodating (ironic, since that's what "catering" means) and suggest switching to Atlantic Caterers who did such a good job at the wedding you intended, and cc to the bad catering company's owner/manager/boss/whoever you can get. My fabulous psychic powers suggest that you'll find the bad caterers suddenly willing to cater to you a lot more readily than if you mention the ADA, which as mentioned above doesn't apply.

Link to comment
Share on other sites
captaincrab55 Enthusiast

Let me start by saying Thanks to All that chimed in with advice... One could read for weeks elsewhere and still not get the knowledge that one Topic here can bring to one dealing with DH and celiac disease..

After reading the replies, it looks like I'll back off on using the ADA... My State Legislator did send me an ADA link. I did reply to the link early yesterday, but will drop it... I will start writing letters to Praise food services that have helped me identify food ingredients and cc: the ones that aren't help-full. Hopefully, Conrad's Ruth Villa will get the message about helping one identify foods that contain GLUTEN by this time next year..

I was never known for my writing skills, but I will attempt an article for the IBEW LOCAL#24 newsletter and possibly get it printed in the International's IBEW newsletter.. Maybe someone can chime in with a good title for the article. I was thinking about, " Living With CELIAC Disease" as a title. Any help will be appreciated...

BTW, When I called Conrad's Ruth Villa inquiring about food ingredients, I never requested a special meal.

My intent was to locate a few foods that I could safely eat and bring other foods to make a complete meal. Instead of helping me with food ingredients, Brad Rudly Recommended that I don't attend the event. Keep in mind that I was required to pay for all that attended with me, including myself.

Link to comment
Share on other sites
www Newbie

My opinion....you are going about this the wrong way. The squeaky wheel gets the grease. Whether in politics, the media, gay rights issues it applies everywhere. Approach the caterer with the idea you WILL get what you want. If it si before the event, call them and tell them to make something you can eat. No threat, just state you EXPECT them to comply. After all, you stated you are required to pay for it.

If you come the day of the event, then come early and see the catering manager and state the same things. You WILL accommodate me. I paid for the meal, I will be accommodated.

In America, we've become for to PC and mousy. The folks who get paid attention to are usually in the minority and they get everything they ask for at the majorities expense. I have at events like this and have been served at the very least an overflowing fruit plate that is the envy of the other guests at my tabel. Find a spine for goodness sake!

Link to comment
Share on other sites
Gemini Experienced
My opinion....you are going about this the wrong way. The squeaky wheel gets the grease. Whether in politics, the media, gay rights issues it applies everywhere. Approach the caterer with the idea you WILL get what you want. If it si before the event, call them and tell them to make something you can eat. No threat, just state you EXPECT them to comply. After all, you stated you are required to pay for it.

If you come the day of the event, then come early and see the catering manager and state the same things. You WILL accommodate me. I paid for the meal, I will be accommodated.

In America, we've become for to PC and mousy. The folks who get paid attention to are usually in the minority and they get everything they ask for at the majorities expense. I have at events like this and have been served at the very least an overflowing fruit plate that is the envy of the other guests at my tabel. Find a spine for goodness sake!

My opinion....very bad idea and my spine is fully intact, thank you! <_<

All those obnoxious, squeaky wheels may get their way short term but there is back lash and it will come. Nothing more arrogant than demanding that someone accommodate you or else. I also wouldn't be so stupid as to do so in anything food related because God only knows what will end up in YOUR meal!

I have no problems bringing my own food when finding something gluten-free at a catered event is not happenin'. My food is always way better than theirs and then people won't get the dopey idea that Celiacs are actually disabled whiners. I also don't like being sick because someone with little experience or food knowledge screws up my plate. I think that most Celiacs receive much better treatment trying to be nice to begin with when inquiring about obtaining a gluten-free meal. I know I have.

Link to comment
Share on other sites
Gemini Experienced

BTW, When I called Conrad's Ruth Villa inquiring about food ingredients, I never requested a special meal.

My intent was to locate a few foods that I could safely eat and bring other foods to make a complete meal. Instead of helping me with food ingredients, Brad Rudly Recommended that I don't attend the event. Keep in mind that I was required to pay for all that attended with me, including myself.

Link to comment
Share on other sites
Mskedi Newbie
He should have been dope slapped with a stale, gluten-free roll!

:lol:

Link to comment
Share on other sites
modiddly16 Enthusiast

You certainly can't walk into a place and demand that they accommodate you. I'd be afraid of what would end up in my food as well and it's not the caterers fault that you have to pay for the event, it's the event planner. Sometimes you can contact them and explain your situation and they'll just charge you less. I've done this several times and usually if you're kind, patient and pleasant about it...people are willing to help you. Being spiteful and demanding won't help our cause at all!

Link to comment
Share on other sites
www Newbie

Everyone misunderstood my post. No demands or threats should be made. I did not write the words threaten or demand. You should instead ACT like your diet needs should be accommodated. If asking nicely is not well received, then you might consider an attitude change of you "expect" to be accommodated.

When a person wears jeans, t-shirt and flip flops you are judged by your appearance and taken less seriously than someone wearing better clothes and more dressed up.

Hey folks...calm down.

Link to comment
Share on other sites
Gemini Experienced
Approach the caterer with the idea you WILL get what you want. If it si before the event, call them and tell them to make something you can eat. No threat, just state you EXPECT them to comply. After all, you stated you are required to pay for it.

If you come the day of the event, then come early and see the catering manager and state the same things. You WILL accommodate me. I paid for the meal, I will be accommodated.

If you re-read your original post here above, you stated you EXPECT them to comply and they WILL accommodate you. I saw you added no threat but those 2 sentences sounded awfully arrogant to me and it is not an attitude I would ever use on anyone. As for the appearance thing, that's comparing apples to oranges, even though your basic opinion is correct....you are treated better if you are well dressed and groomed. I am just trying to figure out how that has anything to do with a food issue.

Would you really eat anything prepared, unseen, by a catering company after saying something like that? You are a bigger risk taker than I am! ;)

No one is getting upset about this so we don't need to be told to calm down. I just think you have to walk a fine line when asking for a food intolerance to be accommodated. If there is initial resistance, I drop it because I figure they are idiots and don't know enough about food to get it right. :lol: There will be more and more folks who do gluten free catering in future so it won't be long before things become easier on that front. Whoever would have thought that a company as mainstream as Betty Crocker would do a gluten-free line?

Link to comment
Share on other sites
lovegrov Collaborator
Hi All, New here, diagnosed about 7 weeks ago witn DH (biopsy) & celiac disease several days latter (blood test)..

I was planing on attending a picnic for IBEW#24 at Conrad's Ruth Villa in Middle River Maryland on 8-9-09. I called the caterer, spoke with Brad and requested a list of foods that may contain Gluten or are gluten-free. He could only list the foods being served and recommended that I don't attend!...

I have several Questions; Do I have a right to know what's in the food being served?

Would this be a violation of the ADA laws?

Thanks, Tom

Maybe I missed it, but who is Brad? Is he the owner or the chef? If not, move up the chain to somebody who really knows something.

richard

Link to comment
Share on other sites
captaincrab55 Enthusiast
Maybe I missed it, but who is Brad? Is he the owner or the chef? If not, move up the chain to somebody who really knows something.

richard

Brad is the person @ Conrad's Ruth Villa located in Middle River, Maryland that answered the phone. I did ask for a manager and Brad recommended that I don't attend.. It was like he was afraid of catching CELIAC Disease

Link to comment
Share on other sites
captaincrab55 Enthusiast

Little Up-date that I didn't include in my last Post.

I sent a CERTIFIED Return Receipt letter to Conrad's Ruth Villa yesterday.. I did cc: a few people, including; Friends with CELIAC Disease. They should get the letter today.

Link to comment
Share on other sites
captaincrab55 Enthusiast

The letter I wrote to Conrad's Ruth Villa yesterday arrived today. Fred Conrad called the Local #24 officer that I cc: the letter, so he could contact me.. First off he informed me that he didn't employee anyone by the name of Brad and apologized that someone gave a fictitious name. He then went on to inquire about CELIAC Disease and the Gluten Free diet..

Long story short, Conrad's Ruth Villa will check with their food vendors for ingredients and relay that information to me early next week. There was also an offer to special batter and fry up some chicken just for me. I declined, knowing that cross contamination could easily happen.

The call ended with Fred Conrad Thanking me for bringing CELIAC Awareness to Conrad's Ruth Villa.

Link to comment
Share on other sites
Mskedi Newbie

Sounds like it's good you wrote the letter! :)

Link to comment
Share on other sites
captaincrab55 Enthusiast
Sounds like it's good you wrote the letter! :)

The letter did turn out as a, "WIN WIN for CELIAC Disease Awareness".. It did cost $5.54 to send the letter Certified Return Receipt, but it assured me that my message would be delivered to someone that could be held accountable. In this case, the letter reached the property owner / caterer (same person)..

Now I must offer a, "Big Thanks" to all that "Chimed In" on this Topic...

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,069
    • Most Online (within 30 mins)
      7,748

    angie78
    Newest Member
    angie78
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fluka66
      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...