Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Why Do I Do This To Myself?


loxleynew

Recommended Posts

loxleynew Apprentice

I was diagnosed gluten intolerant in january. Things went good I stopped eating gluten for 4-5 months and pretty much all my symptoms went away. Sigh of relief yay!

Recently Ive been drinking beer again and eating gluten filled food. Like a lot pasta/pizza ect. I feel like CRAP again. Why do I do this to myself??? My fatigue is back 100x and my acne is back sigh. I get random stomach cramps.

Sorry I just needed to vent! I just went back gluten free hopefully for good this time! I know it will take weeks to get this crap out of my system I just don't know anymore. I'm lost.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Don't be too hard on yourself...eating completely gluten-free is tough - especially the eating out part...I've had many cravings for gluten filled items, but resisted because I've been sick for so many years that the thought of becoming more sick scares me into keeping strictly gluten-free.

When those nasty cravings are strong - try to remember how much worse you feel eating gluten. And if you slip, get back on the gluten-free train as quickly as possible.

Replacing items like beer and pizza can help too...look for gluten free options that replicate your favorites, keep them stocked and ready to munch on when the need arises.

Hang in there!

ravenwoodglass Mentor

I am glad to hear your back off the gluten filled train. Please do as the other poster suggested and keep safe options available. It isn't easy but you know what gluten is doing to you and it just isn't worth it.

Ahorsesoul Enthusiast

No reason to give up your beer or pizza/pasta. Just find the gluten free kind. Yes, you may have to order it and it'll cost more. You did this because it's hard to be gluten free. No need to beat yourself up, the gluten already done that. Looking forward to hearing that you are gluten free and feeling better.

MDRB Explorer

I'm one of those people who has never deliberately cheated with the diet, the only reason for this is that honestly every time I see regular bread or pizza or anything containing gluten, I immediately picture diarrhea, stomach pain etc. I know it sounds kind of twisted, but I think what might help you stick to the diet is to sort of train your brain to find those foods disgusting by remembering how sick you get when you eat them.

lovegrov Collaborator

I'm not endorsing this, but the fact is that the VAST majority of people with celiac have or will cheat. I have not done so in 8 years, but I am no saint.

richard

CGally81 Enthusiast
Don't be too hard on yourself...eating completely gluten-free is tough - especially the eating out part...I've had many cravings for gluten filled items, but resisted because I've been sick for so many years that the thought of becoming more sick scares me into keeping strictly gluten-free.

When those nasty cravings are strong - try to remember how much worse you feel eating gluten. And if you slip, get back on the gluten-free train as quickly as possible.

Replacing items like beer and pizza can help too...look for gluten free options that replicate your favorites, keep them stocked and ready to munch on when the need arises.

Hang in there!

I too have had cravings for gluten-filled items that I normally haven't eaten in forever! I even thought of having pancakes, despite having not eaten them since I was in elementary school!

Btw, not that I advocate cheating on the diet, but I hear that if you take gluten enzymes - or whatever exactly they're called - enzymes that help your body break down gluten, supposedly you can eaten foods with gluten in them without hurting yourself, since the enzymes will take care of it for you before your body can attack it.

But I don't know if it's 100% safe. I'd read about people taking the enzymes before eating gluten food and feeling just fine. However, one guy who said that he would take the enzymes before eating the food, said that when he decided to stop eating gluten cold turkey (the enzymes were getting too expensive), he suffered powerful withdrawal symptoms such as muscle spams and heartburn and so on. Apparently his body still accepted the gluten to some degree, even if it didn't go to his intestine or get assaulted by his immune system. So I'd say that if you do intend to cheat on your diet by taking the enzymes to prevent the side effects, look into it very carefully and decide if it really is worth it or not.

If you get glutened again and feel the effects, try taking chewable L-glutamine, and eating fish. Those are said to reduce the symptoms, and fish worked really well for me back before I went gluten-free. I noticed no matter how I'd felt other times in the day, I always felt great after eating the fish, but I didn't know why.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

Do you really think people purposely cheat? That is a revelation to me. I can't imagine cheating or even wanting that pain and physical illness it would cause me.

If enzymes really prevented an autoimmune response to gluten, the pharm companies would be all over that. Come on, that isn't true. You have to prevent the damage to your gut so it can work properly and protect you from much more insidious disease. If you have science to back up what you've heard about enzymes, please post the link. I would really like to study that.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    2. - CC90 replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    3. - Wheatwacked replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    4. - Wheatwacked commented on Scott Adams's article in Origins of Celiac Disease
      19

      Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)

    5. - trents replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,188
    • Most Online (within 30 mins)
      10,442

    Lhughes327
    Newest Member
    Lhughes327
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possibly way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
    • cristiana
      Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal.  My TTG score was completely through the roof at the time, greater than 100 which was then the cut off max. for my local lab.  Yet when my biopsy results came back, I was told I was stage 3 on the Marsh scale.  I've come across the same thing with at least one other person on this forum who was told everything looked normal, but the report was not talking about the actual biopsy samples, which had to be looked at through a microscope and came back abnormal.
×
×
  • Create New...