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Headache Survey


Newtoitall

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Newtoitall Enthusiast

I'd like for anyone willing to contribute by copy pasting with their answers.

What causes your headaches.

What are they like? How long do they last?

What do you Trust above all else to help get rid of the headaches.

Have you had trouble with any headache medications? (I.e contains gluten, soy, ect.)

When you take something, how long do you find it takes to help? does it totally elivate the headache?

Thanks again to anyone who can contribute, Please have others you know fill it out, the more the better for any future new members looking for quick easy info on something to take.


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srall Contributor

Since going gluten/dairy/corn free my headaches have really abated. It used to be I could have a migraine for days. Now I will get a headache if I need to eat. Unfortunately if I don't eat in time the headache might last the rest of the day. But it's usually gone by morning. They are not like migraines. Just tightness usually or sometimes just in my forehead. Does that make sense?

Mother of a Celiac Rookie

My daughter, with Celiac, who is now gluten, grain and corn, dairy, and chocolate free, gets headaches when she has something that she has an intolerance to. They usually last as long as that food is in her system. Most of the time they are also accompanied by stomachaches too, if not then sometimes they are caused by an on coming sickness. She has been getting a lot of headaches lately that we are trying to figure out...

eatmeat4good Enthusiast

Had daily migraine headaches for years and years. Sometimes unable to get out of bed 2 or 3 days.

Gluten free 6 months...now I only get a migraine with my menstrual cycle.

Susie M. Newbie

I'd like for anyone willing to contribute by copy pasting with their answers.

What causes your headaches.

What are they like? How long do they last?

What do you Trust above all else to help get rid of the headaches.

Have you had trouble with any headache medications? (I.e contains gluten, soy, ect.)

When you take something, how long do you find it takes to help? does it totally elivate the headache?

Thanks again to anyone who can contribute, Please have others you know fill it out, the more the better for any future new members looking for quick easy info on something to take.

I've been suffering from chronic migraines constantly for the last two years, and was really hoping when I found out that I had celiac disease that going gluten free would help. I was diagnosed and went gluten free last June. I've tried going Dairy free for two weeks, but that didn't seem to make much of a difference. If anyone has any suggestions, I'd definitely appreciate it.

As for my medications, my Walgreen's pharmacist has been really good about calling the manufacturer's and making sure everything is gluten free, and she has been able to find alternatives that are. The Imitrex does seem to help the pain, but it never goes completely away.

CarolinaKip Community Regular

I use to have 9 plus migraines a month until I went gluten-free. I'd go through so much migraine meds! Now I only get a dull headache when I get into some gluten. I have not had a migraine in 10 months gluten-free! A lot cheaper on meds now!

etta694 Explorer

Something.. I think dairy and acidic foods but I'm not sure, starts a whole series of sick feeling and an awful headache with sharp pain. I have taken acetaminophen but.. I was not thinking at all and didn't even look to see if it had gluten in it... but it killed the pain for 3 hours. It came back with a vengeance when I ate gluten free spaghetti sauce and rice pasta...and a gluten free peanut butter cookie. All acidic foods.

I hope there are some more posts here because this is a question for me too.

And now, from another thread, I think it may be SA (salicylic acid sensitivity! Ureka!


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  • 2 weeks later...
ilikepie Apprentice

A lot of foods I am intolerant to cause me headaches. The biggest offenders are sugars and alcohol. I can eat most whole raw fruits, but ANYTHING else sweet gives me major headaches. It usually depends on how much of it I eat. If I take a sip of alcohol or eat less than a teaspoon of cane sugar, I will have a severe throbbing headache for at least 4 or 5 days, day and night. It's best if I lay still and not talk or move. I used to take ibuprofen, which helped minimally, but, it's so hard on the stomach...not something I want to further aggravate. I usually just try to drink lots of water because it feels like it dehydrates me, or like all the water has been sucked out of my brain.

Kate79 Apprentice

I've been suffering from chronic migraines constantly for the last two years, and was really hoping when I found out that I had celiac disease that going gluten free would help. I was diagnosed and went gluten free last June. I've tried going Dairy free for two weeks, but that didn't seem to make much of a difference. If anyone has any suggestions, I'd definitely appreciate it.

As for my medications, my Walgreen's pharmacist has been really good about calling the manufacturer's and making sure everything is gluten free, and she has been able to find alternatives that are. The Imitrex does seem to help the pain, but it never goes completely away.

Just wondering if you've been tested for vitamin deficiency. Low levels of magnesium and vitamin d, among other things, can contribute to migraines.

Kate79 Apprentice

Going gluten free seems to have resolved most of my migraines. I still get them with my monthly cycle and if I accidentally have gluten. They vary in severity - before going gluten free I had low-level headaches that would last for several days as well as very severe migraines with nausea and vomiting that would keep me in bed for 1-2 days. I never found any regular or prescription medications that worked for me, so I just try to sleep it off when I get one.

Evangeline Explorer

Gluten causes me to get headaches. But after avoiding all grains for 2 months, I tried to eat corn again. It felt like my head was about to explode. My brain felt bigger than my skull.

I now believe I am part of those 45% of Celiacs who are intolerant to the gluten in corn as well and have begun a grain-free diet.

I don't take anything when I have a headache. I write down the foods I ate the day and that day and try to start noticing patterns.

T.H. Community Regular

I get very sudden, skull pounding headaches from some of my allergens, like sugar-cane, coffee (just inhaling near the stupid stuff), and soy.

I get a dizzying pounding headache that leads to vertigo when I get gluten. So far, all grains have given me the same headache, except that when I have tried some of these grains in the wild (some grow native, near me), I get no headache, so gluten cc is what I believe is the issue. I am growing some of these grains in my yard, as well, to determine if there are any grains that are actual problems, or if it's all gluten cc.

The biggest issue with this has been with corn in medication, so at the moment, ALL medication has given me a horrible headache, so I can't take any meds that help - they just make it worse. :-(

Sometimes a warm shower helps, sometimes a cold compress on my forehead, but usually, I just do something to distract myself and suffer for a while, unfortunately.

  • 3 weeks later...
jstwnttbhealthy Newbie

what gives me a headache or a migraine (depending on the amount ingested) is msg. it's in so many food under disguise: Open Original Shared Link

lizard00 Enthusiast

What causes your headaches.

Gluten and soy

What are they like? How long do they last?

migraine level, make me nauseaous

What do you Trust above all else to help get rid of the headaches.

nothing works except for time and rest

Have you had trouble with any headache medications? (I.e contains gluten, soy, ect.)

nope

When you take something, how long do you find it takes to help? does it totally elivate the headache?

it usually doesn't help at all (if it's gluten or soy related)

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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