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JSegura226

Billirubin Elevated Pre Diiagnosis?

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I was going over my CBC that I had 3 weeks ago when I ended up in the Emergency room.... Now I don't know if the doctor did not notice it or he just decided not to bring it to my attention but I just realized that my Billirubin level was slightly elevated to 2.0 mg/dl... Now at the time of the blood work I was rapidly losing weight, dehydrated and my colon was inflamed so I'm not sure if that had anything to do with it but, did anybody have elevated Billirubin levels Pre-diagnoses? I have an appointment in a week to get complete blood work and some Vitamin panels done. Hopefully my Billi levels have dropped since going gluten-free.


Stomach pains and nausea since birth-Doctors considered Bulimia, Anorexia, other Neurological problems

Insomnia as a child and Night Terrors from age 5-14

Dx with Scoliosis at age 6

Performance in School declined immensely from grades 4th-12th

Foggy memory, Lack of concentration, and Slowed physical development from ages 4-20

Dx with ADD at age 14-Ritalin prescribed-taken for only 2 months

Scoliosis Bar and fusion and Chiari 1 Malformation Surgery at Age 17

Dx Celiac April '11

Gluten,Soy,Milk,Corn,GMO free starting 3/28/11

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I was going over my CBC that I had 3 weeks ago when I ended up in the Emergency room.... Now I don't know if the doctor did not notice it or he just decided not to bring it to my attention but I just realized that my Billirubin level was slightly elevated to 2.0 mg/dl... Now at the time of the blood work I was rapidly losing weight, dehydrated and my colon was inflamed so I'm not sure if that had anything to do with it but, did anybody have elevated Billirubin levels Pre-diagnoses? I have an appointment in a week to get complete blood work and some Vitamin panels done. Hopefully my Billi levels have dropped since going gluten-free.

I am not diagnosed , My bilirubin count has been in that range for atleast the last 5 years( 5 years ago was when I started ASKING for my blood test results ). My doc ( the one I am about to fire) doesnt seem to be concerned about it.

I am now seeing an endocrinologist and will see what she thinks about it .

I am very interested in others input on this topic


Gluten free Oct/09
Soy free Nov/10

 

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I am not diagnosed , My bilirubin count has been in that range for atleast the last 5 years( 5 years ago was when I started ASKING for my blood test results ). My doc ( the one I am about to fire) doesnt seem to be concerned about it.

I am now seeing an endocrinologist and will see what she thinks about it .

I am very interested in others input on this topic

After seeing your post I decided to look through my old medical records to see if my Billi levels were elevated on previous CBC tests. I found one from December of '09 and sure enough!!.. 2.1..It is funny because I now specifically remember the doctor calling me to tell me my blood count came back fine and that my billirubin was slightly elevated and it was nothing to worry about and we would talk about it on my next visit.. Guess he forgot..

Also the ER doctor 3 weeks ago told me it was nothing to worry about also and that some people just have a higher billirubin level that others.. I call Bull****!


Stomach pains and nausea since birth-Doctors considered Bulimia, Anorexia, other Neurological problems

Insomnia as a child and Night Terrors from age 5-14

Dx with Scoliosis at age 6

Performance in School declined immensely from grades 4th-12th

Foggy memory, Lack of concentration, and Slowed physical development from ages 4-20

Dx with ADD at age 14-Ritalin prescribed-taken for only 2 months

Scoliosis Bar and fusion and Chiari 1 Malformation Surgery at Age 17

Dx Celiac April '11

Gluten,Soy,Milk,Corn,GMO free starting 3/28/11

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Celiac can have impact on the liver. Can't say for sure but you might see those numbers come down after you have been gluten free for a while.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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My billirubin was slightly elevated before diagnosis. It normalized within 6 months gluten-free.


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Just to update,,,

I saw a new GI doctor yesterday.The other than my bilirubins my liver function tests were normal. She diagnosed me with gilbert-meulengracht syndrome,


Gluten free Oct/09
Soy free Nov/10

 

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