Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

How Long Should I Be Eating Gluten Before Endoscopy ?

MoMof2Boyz

Recommended Posts

MoMof2Boyz Enthusiast
MoMof2Boyz
Posted

Hi eveyone, I am having an endoscopy done to check for Barrett's esophagus and I thought I'd go ahead and ask for a celiac biopsy at the same time...get it all done in one shot!

I have been eating gluten for lunch and dinners and snacks for the past few months (I don't remember exactly maybe 2-3 months) but still eat some gluten free foods..mainly at breakfast

should I go ahead and have the biopsy done or have I not been eating enough gluten for very long. my appt. is Oct. 25

for the record I've had a negative blood test but I have Hashimoto's(autoimmune disorder)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


user853 Apprentice
user853
Posted

I think you will be fine. I was gluten-free for almost 5 months, then went back on gluten (only 1 serving a day) for 2 months before my endoscopy, which showed mild celiac.

bbuster Explorer
bbuster
Posted

I think you will be fine. I was gluten-free for almost 5 months, then went back on gluten (only 1 serving a day) for 2 months before my endoscopy, which showed mild celiac.

Agree. This was long ago, but I think our endo Dr. said the equivalent of a slice of bread a day for 4-5 weeks was enough. This was for my son and he was confirmed positive by both bloodwork and endoscopy.

GottaSki Mentor
GottaSki
Posted

You will be ready. Most Celiac Centers recommend 6 weeks for challenge. The University of Chicago recommends 12 weeks. Sounds like you'll be at 12 weeks by the time of your endo on the 25th.

Also, you don't need to ingest gluten at every meal. One slice of gluten containing bread per day is plenty.

Good Luck! Make sure your GI takes at least 6 samples for celiac biopsy - not all gastroenterologist are familiar with correct celiac biopsy procedure - sad, but true.

MoMof2Boyz Enthusiast
MoMof2Boyz
Posted
  • Author

thanks everyone!

MoMof2Boyz Enthusiast
MoMof2Boyz
Posted
  • Author

You will be ready. Most Celiac Centers recommend 6 weeks for challenge. The University of Chicago recommends 12 weeks. Sounds like you'll be at 12 weeks by the time of your endo on the 25th.

Also, you don't need to ingest gluten at every meal. One slice of gluten containing bread per day is plenty.

Good Luck! Make sure your GI takes at least 6 samples for celiac biopsy - not all gastroenterologist are familiar with correct celiac biopsy procedure - sad, but true.

How can I get the GI to take 6 samples?? I called today and requested 6 samples and the nurse told me no, they only take 2,...and when doing the EGD, the GI will be able to see the damage.

jerseyangel Proficient
jerseyangel
Posted

How can I get the GI to take 6 samples?? I called today and requested 6 samples and the nurse told me no, they only take 2,...and when doing the EGD, the GI will be able to see the damage.

Not true--they can't always see the damage. They need to view the samples (the more, the better--8-10 is ideal) under a microscope to see changes/damage to the villi even if they see something during the endo.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

How can I get the GI to take 6 samples?? I called today and requested 6 samples and the nurse told me no, they only take 2,...and when doing the EGD, the GI will be able to see the damage.

"Mushroom" provided this link to a paper regarding biopsies specifically for Celiac Disease. It is the clearest explanation I've seen to date:

Open Original Shared Link

Take a look and show it to your doctor. Unfortunately many GIs are not familiar with the best protocols for diagnosing Celaic Disease. Celiac damage to the small intestine can be spotty and early damage is not visible during the procedure - it can only be detected with biopsy. It is possible your doctor will see damage, but it is also possible they will not.

The best you can do is have a discussion with the doctor even if it is the day of the procedure. The nurse knows what the doctor "normally" does. This does not mean the doctor will refuse if you request more samples to give the best chance for diagnosis.

Good Luck :)

mushroom Proficient
mushroom
Posted

The damage has to be quite severe for the doctor to be able to see it with the naked eye; most damage is only picked up by the microscope. That is why it is hit and miss whether he scopes the right place(s) since it can be quite patchy -- the damage is not uniform..

kareng Grand Master
kareng
Posted

I think you need to have a meeting with the GI before the day of the procedure. Take him some info from reputable sources, like Celiac medical centers

Open Original Shared Link

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442
    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...