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squirmingitch

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by squirmingitch

  1. squirmingitch
    https://www.mayoclinic.org/drugs-supplements/dapsone-oral-route/proper-use/drg-20063327 https://www.mayoclinic.org/drugs-supplements/dapsone-oral-route/side-effects/drg-20063327 within a few days (for dermatitis herpetiformis), or if they become worse, check with your doctor. https://www.mayoclinic.org/drugs-supplements/dapsone-oral-route...
  2. squirmingitch
    Mine hasn't either. It really tics me off b/c he only allows you to email him through his website & unless you take a screenshot of what you wrote, you have no record of the communication AND it also asks if you wish a reply to what you wrote him. I check YES, I do wish a reply. Well, this is what he considers a reply. I do not consider this a reply....
  3. squirmingitch
    Thanks cyclinglady! I emailed mine 2 weeks ago but re-emailed again yesterday b/c he had not yet signed on & he's a DOCTOR! I will keep after him until he does. We need to keep on top of this & hound them about it. With the link to the bill; you can see who has signed on to co-sponsor it so you can keep track. We need to keep on them. This is NOT...
  4. squirmingitch
    EMAIL YOUR US REPRESENTATIVE TODAY IN SUPPORT OF THE GLUTEN IN MEDICINE DISCLOSURE ACT OF 2019 Please personalize the sample letter pasted below. Email this letter to your local representative. A state-by-state directory is available at: https://www.house.gov/representatives?fbclid=IwAR3eNMLYkKJCJ52NLkbcZ7wqwGf9NafcHq-p9ydg7RZpvFNuz5ezQhhSv5I ...
  5. squirmingitch
    Those really dumb things are always the ones that get you. Sad but true.
  6. squirmingitch
    Very, very interesting. Thanks for posting that cyclinglady. I wish it went into more detail. Did this involve study subjects? How many? How long were they followed? Details, details.
  7. squirmingitch
    Hi Gem! ?We'll see you in September.??
  8. squirmingitch
    cyclinglady has great suggestions but sometimes you need both hands free. I often garden & need both hands free. Your baseball cap does not provide much air flow for cooling not to mention it doesn't give you much shade. My husband & I both wear this type straw hat. See all the vent holes in there? Nice air flow through there! Plus the brim all the...
  9. squirmingitch
    Ennis has given you great advice.
  10. squirmingitch
    If you got the bumps on your scalp for years prior to getting dh on your face & back, then it may be that the ones on your scalp will take longer to resolve HOWEVER, the Dapsone + diet should take care of that quickly. There are many skin issues celiacs get & many skin issues that are similar to dh so it really could be anything.
  11. squirmingitch
    Oh wow! Thanks so much for this information. I am certainly going to check into this & see if my little town has someone trustworthy to do it. I would love to have doe eyes again.
  12. squirmingitch
    I know this is a thread from 2 months ago & pretty much everything has been covered but I wanted to address the issue of glue & paper towels & toilet tissue. This has come up before & internet myths being what they are...... The glue used in paper towels or toilet paper is a synthetic glue so no worries that it contains wheat. Wheat glue...
  13. squirmingitch
    I wish I could tell you but I do not know. I don't imagine it contains wheat and I would imagine any of that stuff would all be synthetic chemical compounds. However, I have a question for you. Whattttttttt???? Eyeleash extensions that are lash by lash & permanent?????? How permanent? Applied by a cosmetologist? Apparently I am way behind the times...
  14. squirmingitch
    There are 2 "common" celiac genes. The gene testing is really used to rule out celiac not to confirm or diagnose celiac. There are blood tests (6 in a complete panel) for diagnostic purposes and then if there is even 1 positive, you move on to an endoscopy with biopsies. So back to the gene testing.... being positive for one or being positive for 2 doesn...
  15. squirmingitch
    https://www.celiac.ca/cca-statement-nima-gluten-sensor/
  16. squirmingitch
    Listen to RMJ.
  17. squirmingitch
    Ditto what RMJ & cyclinglady said. I would take that medication.
  18. squirmingitch
    But she is not symptom free. Besides your statement here saying, "she's basically symptom free" (emphasis mine), you said earlier: "Though she still gets a few headaches and is tired a lot" At 10 yrs old, if she were completely gluten free & has no other diseases, then she should feel fantastic all. the. time. The TTG numbers are telling...
  19. squirmingitch
    Just my 2 cents worth but I wouldn't trust a mechanically sorted oat flour if you gave me a free lifetime supply. Having said that, full disclosure, I can't do oats at all, not even purity protocol oats. In the lead up to confirming my problem with oats, I did call Bob's Red Mill & questioned them about their gluten-free oat products & they said they...
  20. squirmingitch
    Hey Chris, have you been tested for rheumatoid arthritis? Mine all seemed to start with affecting my feet. Just a thought of something to look into. Dried beans, sorted & washed & cooked for carbs. Home made re-fried beans. Also, protein makes a big difference & will cause you to depend less on carbs.
  21. squirmingitch
    The oats is an excellent question.
  22. squirmingitch
    Hey Alaskaguy, how's it going?
  23. squirmingitch
    It's not entirely unusual. Your body is probably going through gluten withdrawal. It's mad at you for taking away it's gluten & is rebelling. Your sister may or may not have gone through gluten withdrawal. Some don't but most do. Just google gluten withdrawal & see how many posts there are on the subject. You can ditch dairy & see if that...
  24. squirmingitch
    It's easy to make that mistake. I've certainly done it before.
  25. squirmingitch
    @Pauline12 and @Coltsneck24 You guys are replying to people who were on here in 2008. They have moved on & haven't posted here in years & years. Having said that, I will post about my experience with shingles vaccine. I have dh, my hubby does also. I know, weird right? It happens. Once one knows the symptoms, one is able to recognize symptoms...
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