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Beverage

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Beverage

  1. Last time i checked, Burts Bees does not label anything gluten free. They had 1 lip balm that contained gluten, and their site said their products can be made on shared equipment.
  2. Some docs in the US are diagnosing without the endoscopy. My step granddaughter (age 19) and I were both diagnosed by different docs based on blood test, DNA test, and response to gluten free diet. If you haven't already had the Celiacs blood tests done, you would have to eat gluten again for many weeks prior. I do have a letter from my doc saying i...
  3. I don't get typical intestinal symptoms when glutened. I feel fine for weeks trying something new, then bam I feel like I've been hit by a truck, joint and bone aches, can't think straight, no energy, etc. I tried gluten free Oreos and it took eating a few a day over at least a month until the bag was almost gone, then wham.
  4. I started going gray at 23, a very white streak that looked cool at first but quickly expanded. I did not have typical intestinal symptoms, lots of extreme allergies and got a lot of colds. I wasn't diagnosed with Celiacs until age 59. I realized the connection immediately. Now I'm 68 and normal greying for my age.
  5. I was 59 when diagnosed with Celiacs. I had not had the typical intestinal symptoms, mostly the pain, brain fox, etc. When I started gluten free, OMG, I couldn't get enough food and I dropped a ton of water weight / inflammation in the first few weeks. I was like a teenager, couldn't get enough and didn't gain back any weight, was actually too thin (bcuz...
  6. While you are following the advice of the above very knowledgeable people, you might want to try adding some vitamin C and magnesium to help things move along. If you've been undiagnosed with celiacs and had intestinal issues also, you are probably low on a lot of nutrients. On vitamin C, docs that know anything about supplements will tell you to increase...
  7. I agree, gluten free does not mean good for you. If you look at the labels of "gluten free" things like bread, pasta, etc., most are full of starches and gums and all kinds of refined things that we have been told for decades to not eat. I just try to eat real food, aka whole food, meat and veggies. I started a garden a few years ago to grow veggies...
  8. I'd ask that person more specifics, brand, etc. and call the company that makes them.
  9. I had lingering acid reflux, silent reflux, dry cough after meals, exacerbated my asthma. Doc tried to put me on acid reducers, but we need acid to digest and release vitamins so they can be absorbed in the intestines. If we reduce acid, food does not digest, and can rot or ferment and cause all kinds of havoc, which is probably what was causing my symptoms...
  10. YIKES! "Eating out at any restaurant is always risky, even if they offer a gluten-free menu, but if you accept such risks the listing below may be helpful." is your only warning? Just watch them prepare a regular burrito, they tap the utensils onto the flour tortilla and back into the filling or sauce. Based on the ones I tried when first diagnosed, the...
  11. I had been using Aveeno before my diagnosis, and figured out it was causing me issues, probably I was touching my skin, a simple scratch could do it, and it getting to my mouth. I can tolerate oats but only if they are the Purity Protocol oats, which aren't what would be in Aveeno or any body or skin products. If Purity Protocol would be used, the company...
  12. I had it done at the time that I was tested for Celiacs (blood testing only). My celiacs tests were super high positive, and all the attention went to that. The super high dairy results got ignored. But recently I inhaled some mold, and I got really sick, couldn't get into my doc for awhile, so I went back and reviewed those old blood test results, thought...
  13. I cannot eat oats, gluten free or even certified gluten free, unless they are Purity Protocol. https://www.glutenfreewatchdog.org/news/oats-produced-under-a-gluten-free-purity-protocol-listing-of-suppliers-and-manufacturers/ Try cutting out the oat milk and anything else that contains oats for awhile and see how you do.
  14. We're told over and over that we need to consider more than just the ingredients, it can be exposure in the processing. There are so many ragu or marinara sauces available that are actually labeled gluten free. I strongly encourage you to spend a little time at your grocery store looking at all the labels. Buy small jars of any labeled gluten free, try them...
  15. I lost my sense of smell years ago, it was what made me try a naturopathic doctor in 2015, and he diagnosed me with Celiacs. It's come back from time to time, some supplements seemed to help, like thiamine and K2, but then it faded away again. Since it came back occasionally, it gave me hope that it wasn't nerve damage. Weirdly, it came back like gang busters...
  16. I agree with @trents You'll have much better results with a no gluten diet. Also consider other sources that could possibly be sneaking in that may not be so obvious as eating it. I've had some surprise glutenenings by petting pets that eat gluten (they lick themselves and then you pet them, and then it's on your hands). The doc that diagnosed...
  17. I recommend nuts.com for nuts and dry beans. They have a gluten free section. I've never had an issue with their gluten-free stuff. I'll soak and cook a big batch of beans, then freeze in smaller portions to use in recipes.
  18. I've been glutened by thinks marked gluten free, but with the warning about shared equipment. Contacted the company, similar clean out process to what you describe. I don't eat anything labeled that way anymore.
  19. I applaud you for being so conscientious. If it gets on her lips, she's ingesting it by simply licking her lips. I stay away from wheat germ oil in all products. For me, one of the worst things when I get glutened is wracking my brain for what the heck did it. Making sure all body products for both of you are labeled gluten free helps tremendously...
  20. Great to hear a partner so understanding, caring, and supportive. Oats was a problem for me, even gluten free oats, until I found "purity protocol" oats. But for at least a few months, she should cut out all oats until feeling better, then try reintroducing a little bit to see if any reaction. You mention a ranch...is she currently around animals...
  21. Sounds like you are in the UK. With blood numbers that high, I thought docs in UK would give an official diagnosis without the biopsy. You should ask about that, so you can get support faster. I'd try to find and print out anything that supports that in your country, get another appointment and take all of it with you. Even in the US now, some docs...
  22. Is soy sauce in Korea also made from wheat like it usually is in US? I'd be concerned that even if asking about gluten, they would not be aware of or think of some like that.
  23. Clean well as others have said, use a toothbrush or brush of some kind to clean out all corners, edges, valleys, etc. After all that cleaning, I would also make a batch of gluten free waffle mix and make a bunch of waffles and throw them out, don't eat those. Perhaps that will help pick up any remaining stuck on or hard to get stuff. I did this with one...
  24. I reacted to Aussie Bites. I have also reacted to Bob's gluten free oats and granola. The only oats I can tolerate are Purity Protocol oats. But for now, stay away from all oats until you feel better, and for awhile after. Then try Purity Protocol oats to see if you can eat those or not. https://www.glutenfreewatchdog.org/news/oats-produced-under-a...
  25. Food, sauces, etc. can get really cooked onto the inside of grills and on grates, which have lots of places to hide. On my gas grill, i scrubed inside with balled up aluminum foil, sponges, and stiff toothbrush to get off all black cooked on stuff. I might have used a small amount of EASY OFF oven cleaner (EASY OFF is the one recommended by the grilling...
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