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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Beverage
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How long before felling better ?
Beverage replied to AsmaeB's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I ignored my doc's instructions to not eat oats, I ate Bob's gluten-free oats and gluten-free granola. It took about a month, but I got horribly glutened. I tried other gluten-free oats and still got sick. I eliminated them for awhile, thinking I was one of those that reacted to oats. Then I tried "purity protocol" oats and no reactions anymore. Here's a...- 12 replies
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- acne
- alopecia areata
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All my life I've had tons of cavities, also severe sensitivity pain at times due to enamel issues, continuing cavities. I found this toothpaste has helped restore some enamel loss. At my cleanings, a few small spots were found, and I brush with this and then dab on a little at that spot. If i get a super sensitive spot at gums when brushing, I'll dab on a...
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Is Gluten-Free Wheat Flour a Game Changer for Celiacs?
Beverage commented on Jefferson Adams's article in Gluten-Free Grains and Flours
Below 20ppm? How far below? Thought most with Celiacs need below 20ppm.- 13 comments
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- biotechnology
- celiac disease
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I reacted to Bob's gluten free oats. I can eat purity protocol oats, but some Celiacs cannot eat oats at all. Definitely pets, they lick themselves all over, then you pet them. Oops.. There are many good grain free pet foods available. Also any home remodeling going on? I got sick from old plaster, which apparently can contain wheat paste.
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Doing any home remodeling? I got glutened bigly tearing into old walls. Any pets? My pets eat gluten free, but I've gotten glutened petting neighbor's dog and forgetting to wash my hands. Also feeding their chickens got me, there are grains in the feed and dust from that was floating in their little house.
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Vitamin supplements
Beverage replied to NanceK's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Magnesium glycinate is supposed to be the best for sleep, but for some, causes insomnia. It makes me sleep wonderfully for about 2 nights, then insomnia after that. I have read in several different places that some people react like that, apparently it's the glycine. I now use a different Magnesium with no glycinate. -
Feeling of food getting stuck
Beverage replied to HayleighNoWhey's topic in Related Issues & Disorders
Before I was diagnosed with Celiac's, I had a lot of acid reflux, food getting stuck all the time, it was awful. It reduced a lot after I was finally diagnosed and healed a bit, but some still persisted. It seemed to be further up my esophagus as time went on, chronic dry cough and scratchy voice, asthma worsened. I finally went back to my ENT... -
Fever From Gluten?
Beverage replied to tannilisa's topic in Parents, Friends and Loved Ones of Celiacs
That's more like the symptoms I get after being glutened, like a flu, joint and muscle aches and mentally down. Sometimes I get a low fever, but I rarely get fever normally, even with Covid I didn't get above 99, normal temp is 97 max. That's the frustrating part, never really know if it's gluten or a cold/flu. Only difference for me since I don't usually... -
Does Olive Garden Have a Gluten-Free Menu?
Beverage commented on Jefferson Adams's article in Additional Concerns
Every celiac I know that has ventured to eat at Olive Garden has gotten glutened. Hard pass.- 1 comment
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- menu
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Mom Called Selfish for Making Gluten-Free Cake for Daughter's Birthday
Beverage commented on Jefferson Adams's article in Additional Concerns
Ridiculous to expect someone with Celiac to make a cake containing gluten for any reason! The exposure to gluten flour in the air is totally unacceptable. Gluten flour shouldn't even be in the kitchen she uses for her food prep. Period.- 8 comments
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I have had good results with B vitamins, similar to @knitty kitty I take a good B complex, plus b12 in form Methylcobalamin, and a B1 thiamine in form of benfotiamine. These have all really helped me with energy and especially asthma. I have also used flush niacin for improving my energy, I'm 68 and doing really well. I noticed it got rid of the...
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Do I Really Need A Biopsy?
Beverage replied to Krisgideon's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In 2015 i was diagnosed with celiacs based on high blood test and positive response to gluten free diet. On my own, I also got the dna test to help me accept the reality. I have an official letter from a naturopathic MD that says I have celiacs based on these3 things. No biopsy. Just recently my step granddaughter (no blood relation to me) was diagnosed... -
I totally reacted to Bob's gluten free oats. Then I was eating gluten-free Harvest purity protocol oats for years with no problem, but reacted on most recent purchase. I then found out gluten-free Harvest had been removed from the purity protocol list because independent tests showed some gluten. Check the purity protocol list again and try a different brand...
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Yes it's confusing and overwhelming and distressing. But it will get better as you learn. The best advice I was given was by the naturopathic doc that diagnosed me (after decades of mis-diagnosis from traditional docs)..."remember eyes, ears, nose, and throat all lead to the same place." I'm extremely careful, no gluten in my kitchen, but accidents...
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Confusing blood tests results
Beverage replied to Olfy75's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks. Recently I was pushed by a naturopath I hadn't gone to before to start taking Folic Acid. I questioned it at the time, but I went ahead and took it. OMG I felt horrible. My BP systolic went from 110's-120's up to 140's and diastolic from 60's-70's up to 80's. I felt awful, felt heavy heart pounding, exhausted, irritable, not my sweetie pie... -
Confusing blood tests results
Beverage replied to Olfy75's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Wheatwacked why does it say avoid on B9 FOLIC ACID??? -
Could this be symptoms of celiac?
Beverage replied to itaca's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I didn't have the so-called typical celiac symptoms. Mine were more like you are having. Remember to keep eating gluten every day until you do get screened. Best wishes. -
Source of "glutenated"
Beverage replied to Xsmama's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Also consider if you are getting exposed to any airborne gluten. feeding farm animals (I got glutened bad from feeding my neighbor's chickens), home construction going on? Glue? Playdough? Petting or getting licked by pets that eat gluten? -
Supplements?
Beverage replied to Flower Fairy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have osteopenia also had a really hard time swallowing pills. I find capsules, rather than hard tablets, much easier. Capsules also don't have binders and in general are better absorbed. I take procapslabs.com and no digestive upset like I used to get. I have also read articles by Dr Jonathan Wright, a well known naturopathic doc here around Seattle... -
An update-More tests and information
Beverage replied to pikauchu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
"High RBC, and low MCH, with borderline low MCV" That sounds like my blood tests. I have Thalassemia, aka Mediterranean Anemia, a genetic anemia. I'm half Portuguese, a few family have it also. What is your heritage?