How long before felling better ?

[AsmaeB]

Hello everyone,

I was diagnosed with celiac disease at the end of September 2023 and immediately started the gluten-free diet. Ever since I was a little girl, I've often been ill, and throughout my childhood I was underweight and severely deficient in iron and vitamin D in particular. In my pre-adolescence, I began to have difficulty standing, running etc., and after more than a year of tests and X-rays, no diagnosis could be made. Fortunately, in adolescence it went away on its own. The doctors never really understood why I was so often ill as a child. I changed doctors and treatments several times, but nothing helped. Around the age of 14, I started to lose a lot of my hair, and by the age of 18 I had severe alopecia. Several years later I had an event in my life that deeply affected me and I suffered a great deal of stress for a long time, since when I've also started to lose my eyebrows. After a major eyebrow loss this summer, I decided to do something about all this and understand what is going on with me. After a lot of research, I realized that I might have celiac disease. 
 

I was diagnosed with the disease in September and my gastroenterologist has put me on a strict diet which I follow to the letter (I eat almost no processed foods and those I do eat rarely I check for contamination). However, I don't feel that my symptoms are improving. True, I no longer have a constant gut ache or dizziness, but apart from that, my acne is still present and has even worsened, my hair and eyebrows don't seem to be improving (I still loss lots of them) and I'm constantly tired. I have a diet where I eat very little dairy, lots of protein and fruits, vegetables, oilseeds, etc.. 

I'm 6 months into a gluten-free diet, how long did it take you to see your skin, hair and fatigue improve for those who also had these symptoms in particular? 

Thank you very much 

[trents]

What kind of vitamin and mineral supplements are you on? At this stage of healing, you will need more than what you can get from your food alone. Your small bowel villous lining is still trashed and very inefficient in absorbing nutrients.

Are you still consuming oats?

Edited February 16, 2024 by trents

[Scott Adams]

Are you sure your diet is 100% gluten-free? This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):

 

 

[AsmaeB]

On 2/16/2024 at 5:38 PM, trents said:

What kind of vitamin and mineral supplements are you on? At this stage of healing, you will need more than what you can get from your food alone. Your small bowel villous lining is still trashed and very inefficient in absorbing nutrients.

Are you still consuming oats?

I see. I take iron, vitamin C, vitamin D, Magnesium, MSM and fish oil. I also eat oats but only the gluten free one. 
 

Is there other supplements that you can recommend ? 

[AsmaeB]

On 2/16/2024 at 7:35 PM, Scott Adams said:

Are you sure your diet is 100% gluten-free? This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):

 

 

Yess i have read this article when I discovered this website in September (but I didn’t read the comment section, I’ll make sure to do it thank you). I’m being very careful with what I eat, I rarely eat transformed food and I always read the labels (even for pepper, salt, etc) to make sure there is no contamination. 

[trents]

MSM?

You are omitting the most important ones. You should also be adding:

• Sublingual B12
• a high potency B-complex
• Magnesium Glycinate
• 5000-1000 IU of D3 (Does your fish oil contain D3?)
• zinc

Make sure all are gluten free.

Edited February 18, 2024 by trents

[Scott Adams]

8 hours ago, AsmaeB said:

I see. I take iron, vitamin C, vitamin D, Magnesium, MSM and fish oil. I also eat oats but only the gluten free one. 
 

Is there other supplements that you can recommend ? 

Around 9% of those with celiac disease cannot tolerate oats, even the gluten-free versions, so you may want to try eliminating them for a while to see if it helps with your recovery.

[DeannaHoward]

On 2/18/2024 at 10:00 AM, trents said:

MSM?

You are omitting the most important ones. You should also be adding:

• Sublingual B12
• a high potency B-complex
• Magnesium Glycinate
• 5000-1000 IU of D3 (Does your fish oil contain D3?)
• zinc

Make sure all are gluten free.

I agree with the Vitamin B Complex, my energy levels have improved immensely, I take it daily.  Make sure to buy a good quality of Vitamin B-Complex, because you pay for what you get.

[AsmaeB]

On 3/6/2024 at 11:48 AM, DeannaHoward said:

I agree with the Vitamin B Complex, my energy levels have improved immensely, I take it daily.  Make sure to buy a good quality of Vitamin B-Complex, because you pay for what you get.

How to determine if the B-Complex is good quality ? And what brand do you take ?  

[Scott Adams]

I take (Nature Made) B-Complex (Costco).

[trents]

Same as Scott Adams, I take Nature Made B-Complex from Costco. Don't know if you have Costco where you live.

[Beverage]

I ignored my doc's instructions to not eat oats, I ate Bob's gluten-free oats and gluten-free granola. It took about a month, but I got horribly glutened. I tried other gluten-free oats and still got sick. I eliminated them for awhile, thinking I was one of those that reacted to oats. Then I tried "purity protocol" oats and no reactions anymore. Here's a list. Check it regularly as it can change. 

https://www.glutenfreewatchdog.org/news/oats-produced-under-a-gluten-free-purity-protocol-listing-of-suppliers-and-manufacturers/

[trents]

Beverage, about 10% of celiacs react to the protein in oats, avenin, the same as they do wheat gluten. It may not be that gluten cross contamination is your issue with oats but cross reaction with avenin.