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Wheatwacked

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Wheatwacked

  1. Did you mean 'foot' ?. That has been a long journey. Started with plantar faciitis, which I dealt with by hot showers down my back with shallow knee bends and gentle stretching. Part of the problem with PL is tightness of the Achilles Tendon. Even after gluten free then started the numbness, leathery skin, burning cold feet, etc. Kind of weird but...
  2. lifetime congested sinuses, prostate hypertrophy at 21, skinniest kid in school, sleep apnea, fibromyalgia, arthritis, foot neurapathy, never ending Seasonal affective disorder, had 35 pounds of bellyfat. I got dumber from 3rd grade on. Brain fog. Back then I had a list of 19 that improved just as a result of GFD. Later I tracked my food intakes and discovered...
  3. My son was diagnosed in 1976. I was in denial until 2014. I had it all my life, but the symptoms I had were not gastro related, so was never considered.
  4. Here is an article on non classic symptoms found with Celiac Disease. What Are the Symptoms of Celiac Disease?
  5. When my son was weaned in 1976 he was diagnosed. The doctor insisted that he was fed only Nutramigen. He quickly improved. Saved his life. They make a version for toddlers now also. He grew up strong and is now a professional life guard with several awards for heroism, saving lives. When he was diagnosed the doctor told us he has ADD and that when...
  6. You may have set a record for the time it took to go from symptom to diagnose. Many take up to 10 years and go through all kinds of medications and procedures because the results are only borderline. Take it as a heads up before you get really sick. Get your vitamin D blood plasma (25-hydroxyvitamin D) tested. It is common for Celiac Disease and most...
  7. Short answers: Yes, yes, yes, yes. Most of the nutrient tested only indicate plasma levels, which is tightly controlled. For example: Cell potassium concentration is around 140 mmol/L, whereas the normal range for plasma potassium varies between 3.2 and 6.2 mmol/L depending on age. Blood level may be fine but still not enough cellular potassium...
  8. That is concerning. Sounds like some kind of contamination in production. Take it back to the store or contact the company. Or just throw it away and never buy again. 🤑 Let your wallet do the talking.
  9. 42% of US adults are deficient in vitamin D Between 70% and 97% of Canadians demonstrate vitamin D insufficiency.
  10. I would be more concerned about low Thiamine, or too much supplemental calcium. A similar situation exists with vitamin D and cardiovascular calcification. The blame is placed on D, but the only cases cited seem to always involve supplementing Calcium along with vitamin D. American Bone Health : There is increasing evidence that too much calcium...
  11. Dermatitis herpetiformis: pathophysiology, clinical presentation, diagnosis and treatment* Dermatitis Herpetiformis (DH), also known as Duhring-Brocq dermatitis, is a chronic, recurrent disease, secondary to gluten hypersensitivity which main clinical manifestation is the occurrence of a papulovesicular pruriginous rash. Celiac Disease (celiac disease)...
  12. My first thought is vitamin D for the overall immune system failure. From your description you might be in negative numbers, if that were possible.😀 I have to take 10,00 IU a day to keep my blood level at 80 ng/ml. Started in 2015 and it took from Every time I stop, I start noticing issues (I stop answering the phone for one) in about two weeks. ...
  13. Low vitamin D and choline are also found in infertility.
  14. This is the most important. You may have Non Celiac Gluten Sensitivity which is officially diagnosed by ruling out Celiac Disease. Some researchers believe that Celiac and NCGS are are different levels of the same disease. Bottom line is they both respond to the same treatment. Absolute avoidance of wheat, rye and barley products and cross contamination....
  15. Hello @unicornflakes, there is a definate connection. It seems like there is not much direct research, though. Celiac Disease causes malabsorption which over time causes malnutrition. Specifically insuffucient choline can cause liver enzyme imbalance. Also low vitamin D is common in all autoimmune diseases, including celiac. Best results seem to be...
  16. I was addicted to vodka for 30 years until I started a gluten free diet. Gluten has opiod effects that can cause constipation. Unfortunately the official medical diagnosis of Celiac Disease still requires villi damage at Marsh 3 level. The autoimmune and other effects are not accepted as diagnostic. So even with high blood tests, if there is no Marsh...
  17. Hello Kathryn W. Sorry for the delay. According to the USDA Dept of Agricultural Research Service it is indeed gluten free. "ELISA data confirmed wheat leaves are devoid of gluten proteins as measured by specific antibody binding. Therefore, wheat grass contains no gluten and is safe for consumption by patients suffering from celiac disease or other...
  18. Hello AnnaHH and welcome. The short answer is yes. Gluten has an opiod effect that essentially numbs the body. When you stop eating gluten the effect wears off and new gluten intake hits you harder than it used to do. Eating gluten, I got addicted to 7-11's buttered hard rolls, turned me into an alcoholic in 1984 and gluten free diet freed...
  19. For the lovers of peanuts and caramel, Snickers are thankfully gluten-free. Snickers are manufactured by Mars but please note that Mars Bars are not gluten-free
  20. Did you feel better on those days you did not eat gluten? You have a gene, you have one positive antibody test and you responded well to gluten free diet. Is your goal to be diagnosed or to feel better? A medical diagnosis of Celiac Disease still requires a biopsy with Marsh 3 damage to the small intestine villi. Officially, except for DH they don...
  21. Yes. There are about 20 vitamins and minerals that can be deficient due to malabsorption caused by Celiac Disease small intestine damage. There will also be deficiencies caused by foods you avoid. Choline Deficiency Symptoms & Signs low energy levels of fatigue. memory loss. cognitive decline. learning disabilities...
  22. Breyers also has gluten free strawberry and vanilla.
  23. I like the idea of stainless steel straws.
  24. There is no single "magic bullet". Remember the phrase "there's a pill for that"? I think they were overenthusiastic. We have been advised to eat a "Healthy diet" that over the past sixty years has led to obesity, autoimmune diseases and metabolic diseases. High TSH levels usually indicate hypothyroidism, and low TSH levels usually indicate hyperthyroidism...
  25. I agree with trents. Even with formal diagnosis, I have read posts where the patient had biopsy and blood test positive diagnosis from a previous doctor, the new doctor would not believe it and new testing because the patient is gluten free comes back as not Celiac. Catch 22 there. It is not dissimular from friends and family of alcoholics persisting in...
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