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Wheatwacked

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Everything posted by Wheatwacked

  1. You may have set a record for the time it took to go from symptom to diagnose. Many take up to 10 years and go through all kinds of medications and procedures because the results are only borderline. Take it as a heads up before you get really sick. Get your vitamin D blood plasma (25-hydroxyvitamin D) tested. It is common for Celiac Disease and most...
  2. Short answers: Yes, yes, yes, yes. Most of the nutrient tested only indicate plasma levels, which is tightly controlled. For example: Cell potassium concentration is around 140 mmol/L, whereas the normal range for plasma potassium varies between 3.2 and 6.2 mmol/L depending on age. Blood level may be fine but still not enough cellular potassium...
  3. That is concerning. Sounds like some kind of contamination in production. Take it back to the store or contact the company. Or just throw it away and never buy again. 🤑 Let your wallet do the talking.
  4. 42% of US adults are deficient in vitamin D Between 70% and 97% of Canadians demonstrate vitamin D insufficiency.
  5. I would be more concerned about low Thiamine, or too much supplemental calcium. A similar situation exists with vitamin D and cardiovascular calcification. The blame is placed on D, but the only cases cited seem to always involve supplementing Calcium along with vitamin D. American Bone Health : There is increasing evidence that too much calcium...
  6. Dermatitis herpetiformis: pathophysiology, clinical presentation, diagnosis and treatment* Dermatitis Herpetiformis (DH), also known as Duhring-Brocq dermatitis, is a chronic, recurrent disease, secondary to gluten hypersensitivity which main clinical manifestation is the occurrence of a papulovesicular pruriginous rash. Celiac Disease (celiac disease)...
  7. My first thought is vitamin D for the overall immune system failure. From your description you might be in negative numbers, if that were possible.😀 I have to take 10,00 IU a day to keep my blood level at 80 ng/ml. Started in 2015 and it took from Every time I stop, I start noticing issues (I stop answering the phone for one) in about two weeks. ...
  8. Low vitamin D and choline are also found in infertility.
  9. This is the most important. You may have Non Celiac Gluten Sensitivity which is officially diagnosed by ruling out Celiac Disease. Some researchers believe that Celiac and NCGS are are different levels of the same disease. Bottom line is they both respond to the same treatment. Absolute avoidance of wheat, rye and barley products and cross contamination....
  10. Hello @unicornflakes, there is a definate connection. It seems like there is not much direct research, though. Celiac Disease causes malabsorption which over time causes malnutrition. Specifically insuffucient choline can cause liver enzyme imbalance. Also low vitamin D is common in all autoimmune diseases, including celiac. Best results seem to be...
  11. I was addicted to vodka for 30 years until I started a gluten free diet. Gluten has opiod effects that can cause constipation. Unfortunately the official medical diagnosis of Celiac Disease still requires villi damage at Marsh 3 level. The autoimmune and other effects are not accepted as diagnostic. So even with high blood tests, if there is no Marsh...
  12. Hello Kathryn W. Sorry for the delay. According to the USDA Dept of Agricultural Research Service it is indeed gluten free. "ELISA data confirmed wheat leaves are devoid of gluten proteins as measured by specific antibody binding. Therefore, wheat grass contains no gluten and is safe for consumption by patients suffering from celiac disease or other...
  13. Hello AnnaHH and welcome. The short answer is yes. Gluten has an opiod effect that essentially numbs the body. When you stop eating gluten the effect wears off and new gluten intake hits you harder than it used to do. Eating gluten, I got addicted to 7-11's buttered hard rolls, turned me into an alcoholic in 1984 and gluten free diet freed...
  14. For the lovers of peanuts and caramel, Snickers are thankfully gluten-free. Snickers are manufactured by Mars but please note that Mars Bars are not gluten-free
  15. Did you feel better on those days you did not eat gluten? You have a gene, you have one positive antibody test and you responded well to gluten free diet. Is your goal to be diagnosed or to feel better? A medical diagnosis of Celiac Disease still requires a biopsy with Marsh 3 damage to the small intestine villi. Officially, except for DH they don...
  16. Yes. There are about 20 vitamins and minerals that can be deficient due to malabsorption caused by Celiac Disease small intestine damage. There will also be deficiencies caused by foods you avoid. Choline Deficiency Symptoms & Signs low energy levels of fatigue. memory loss. cognitive decline. learning disabilities...
  17. Breyers also has gluten free strawberry and vanilla.
  18. I like the idea of stainless steel straws.
  19. There is no single "magic bullet". Remember the phrase "there's a pill for that"? I think they were overenthusiastic. We have been advised to eat a "Healthy diet" that over the past sixty years has led to obesity, autoimmune diseases and metabolic diseases. High TSH levels usually indicate hypothyroidism, and low TSH levels usually indicate hyperthyroidism...
  20. I agree with trents. Even with formal diagnosis, I have read posts where the patient had biopsy and blood test positive diagnosis from a previous doctor, the new doctor would not believe it and new testing because the patient is gluten free comes back as not Celiac. Catch 22 there. It is not dissimular from friends and family of alcoholics persisting in...
  21. You new doctor sounds like a keeper. Make sure to look at Vitamin D (25-Hydroxyvitamin D) plasma. Research, and my own experience indicates that higher levels around 80 ng/ml (equivelant to 200 nmole/L) provide protection from autoimmune diseases. As my vitamin D went up I became less acutely affected by cross contamination. Vitamin D and the Immune...
  22. told me I was being a hypochondriac and said it was fibromyalgia. Jeez Louise, the endoscopy report says it in plain english. As if fibromyalgia isn't real. Who's side are they on? and who is it on the other side? Using Marsh Scores to Diagnose Celiac Disease "Most healthcare providers won't diagnose celiac disease until your intestinal...
  23. Celiac Disease causes malabsorption. Malabsorption and deficiencies in diet cause all sorts of problems. No reason to not take steps to correct the deficiencies while continuing gluten for the testing. Thiamin Deficiency is difficult to determine. Fastest way is to supplement and evaluate your response. It can cause all of your symptoms, but it is unlikely...
  24. You have a diagnosis of Celiac Disease by biopsy, the gold standard of diagnosis. Accept it. Damage villi due to Celiac Disease causes malabsorption. Two weeks is not enough time to heal the years of damage done by malnutrition. That can take months to years. In the meantime you have immediate relief of otherwise unexplained diarrhea. Diarrhea itself...
  25. Hi Lara C, welcome to the forum. This is an older thread so you may not get an answer from Diana07. Celiac Disease is often misdiagnosed as IBS. Here's a weird comment I found that strikes me as medical newspeak: "While IBS and functional dyspepsia are not considered autoimmune ailments, there is reason to believe that some sort of immune system...
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