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Wheatwacked

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Wheatwacked

  1. Every one is different. Depends on how much damage you have and your nutrient intake. Doctors generally tell you don't eat gluten, see you next year, but don't prescribe or recommend nutrient replenishment. Healing of the villi can take two or three months in younger people, several years in older people. The vitamins and minerals, as you already see, are...
  2. Until the testing is done you should continue to eat gluten, at least 2 slices of bread a day. You are 20 times over the normal and some countries will diagnose on that. Others like the US require an endoscopy with biopsies, additionally. If you start GFD before it you may not have enough damage for them to find. There may be additional benefits your health...
  3. Thus, plasma measurements likely do not accurately reflect tissue concentrations of choline. An alternative functional marker for choline deficiency is needed in a readily accessible tissue...At present, there is no definitive clinical test that can be used to identify persons who are choline deficient. Choline deficiency increases lymphocyte apoptosis and...
  4. Need the number and the range that particular lab uses
  5. Once on GFD the villi heal and absorbtion is normal. Vitamin D is the one to watch because we just don't eat much food with it and the RDA is only enough to prevent Rickets in our indoors based society. Unless you are getting lots of sun, it always stays low, leaving our autoimmune and mental health under powered. RDA's are set to the mininum. Best results...
  6. It is because the neocate has no choline. Rice milk has 2.1 mg/100 mg. Rice milk nutrition facts and analysis per 100 g
  7. The USA is the last place to take advice on choline. We don't even put choline in TPN because no one makes it here and can't import it so people die in the hospitals from non alcoholic fatty liver disease. Rice milk can make Thiamine (B1) deficiency worse. Liver, eggs, lean beef, milk are good sources.
  8. Dr Fine explained it well in article as a result of both parents having Celiac. Sorry but I've lost that article. Early Diagnosis of Gluten Sensitivity: Before the Villi are Gone
  9. Sad. But probably true. Perhaps go back to your ADD diet which you said you did well on but leave out the rice (carbohydrates) Dr Haas used very ripe bananas because they are easily digested. Less ripe bananas, starchier, cause a smaller glucose spike, important in diabetes, but not important when dealing with the malnutrition. Almost every symptom...
  10. The symptoms of celiac disease are similar to those who have CF but do not have a gluten allergy: abdominal pain, bloating, diarrhea, constipation and fatigue. So you already have two unrelated symptoms that could be Celiac. Possible cystic fibrosis and fatty liver. I bet there are more. There are over 200 symptoms that Celiac Disease can mimic. What...
  11. Wrong answer. The longer you delay the more damage to repair. And if they test positive, it is another risk factor for your own diagnosis as a 1st degree relative of a certified child. You whole family should go GFD, in my opinion, regardless of the doctors. This is only a medical issue as long as you eat gluten. Once you stop, and with all the essential...
  12. If you are ok with milk, 100% grass fed has omega 6:3 ratio of 1:1 while regular commercial milk is 5:1. White wheat flour is 22:1. Optimum for humans is less than 4:1. 25 mcg of vitamin D is enough to keep you from getting Rickets. For reference, I have been taking 250 mcg a day since 2015 and my blood plasma is steady at 80 ng/ml for over two years...
  13. Absolutely not acceptable. You will have to continue suffering needlessly while you have to continue to eat gluten for another year!? coeliac.org.uk: Coeliac disease blood tests and biopsy "If you have a positive blood test for coeliac disease, your GP will refer you to a gut specialist – a gastroenterologist. Usually, a biopsy of the gut is c...
  14. Antibiotics kill off both the good and bad gut bacteria indescriminately. Fermented foods help replenish and nourish the good. Homemade fermented dill pickles. Lately I've been drinking a ounce of the pickle juice and it has helped foot cramps. Could also be salt deficient if you are eating low salt diet. Salt tablets were used on hot sweaty days. Multiple...
  15. Inulin, Choline and Silymarin in the Treatment of Irritable Bowel Syndrome with Constipation-Randomized Case-Control Study Could we be overlooking a potential choline crisis in the United Kingdom? Less than 10% of population of developed countries eat the Rda of choline. Liver, eggs, steak, milk are the main contributors. 4 large eggs a day or...
  16. Scary looking side effects. Remicade Official Consumer Website With Celiac Disease your autoimmune is weak and many vitamin deficiencies due to malabsorbtion syndrome. Most with Celiac and many other autoimmune diseases have low or deficient vitamin D, less than 29ng/ml. Vitamin D moderates the immune system. Corticosteroids support the immune system...
  17. I commisserate with your story. My wife's was almost word for word. A nurse, allergies, miscarriages, endometriosis, passed of malnutrion after chemo for ovarian cancer at 57. Our son born in 1976 bloated up like a Biafra famine baby as soon as he was weaned. Was colicky from the get go. My mom just said that I got what I gave. Found a pediactric GI who was...
  18. Solgar is the only brand I've found of Thiamine HCl 500 mg. It is free of gluten. The WHO uses a test of 500 mg/day. If symptoms improve it is thiamine deficiency; treatment is to continue. Benfothiamine is a fat soluable synthetic form of thiamine that may work quicker at a lower dose but I think is more expensive. @knitty kitty has the experience with it...
  19. All those symptoms sounds suspeciously like Thiamine deficiency. "The total amount of thiamine in a person is approximately 30 mg, an amount which can be depleted within 2-3 weeks....The refining process for various foods, including rice and wheat flour, results in loss of thiamine (among other nutrients)... In fact, the widespread outbreaks of beriberi...
  20. A serious comorbidity with Celiac Disease is vitamin and mineral deficiencies. There are around 20 absorbed in the small intestine at risk. I have found Inulin (soluable fiber) helpful when I get bloated and anorexic.
  21. We could add to the mix that while only 1% of the population are diagnosed with Celiac Disease, 10% of the population are diagnosed with Non Celiac Gluten Sensitivity and the jury is still out whether NCGS is a precurser to Celiac. That raises the percentage to 11% that have serious problems with Gluten. And that doesn't include the people with Gluten Sensitivity...
  22. For taste and mouthfeel I prefer Ronzoni gluten-free.
  23. Vitamin D intoxication associated with hypercalcemia, hyperphosphatemia, and suppressed parathyroid hormone level is typically seen in patients who are receiving massive doses of vitamin D in the range of 50,000 to 1 million IU/d for several months to years. Total Vitamin D Intake and Risks of Early-Onset Colorectal Cancer and Precursors Calcium...
  24. The retrospective study, to be published in Mayo Clinic Proceedings in September, found that 44% of screened first-degree relatives had celiac disease. Of those patients, 94% had symptoms that were not classic or had no symptoms at all. Mayo Clinic study calls for screening of family members of celiac disease patients August 22, 2019
  25. Since the publication of the guideline in 2013 And that was the belief in 1976 when my son was diagnosed. More recently the Mayo Clinic has upgraded that to 47% of first degree relatives.
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