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Celiac Disease Pre-Diagnosis, Testing & Symptoms

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If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

17,697 topics in this forum

  1. Not sure where to go from here?

    • 9 replies
    • 1,116 views
  2. Shocked - elevated TTG

    • 9 replies
    • 3,220 views
  3. My test results

    • 8 replies
    • 910 views

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  5. All the symptoms, not diagnosed

    • 2 replies
    • 786 views
  6. Could I have celiac disease?

    • 1 reply
    • 646 views
  7. Test Results?

    • 1 reply
    • 572 views
  8. Confused About Test Results

    • 2 replies
    • 772 views
  9. Lab Questions

    • 3 replies
    • 758 views
  10. Gluten Challenge

    • 18 replies
    • 2,022 views
    • 4 replies
    • 688 views
  11. Im very lost/ conflicting test results

    • 1 reply
    • 545 views
  12. Biopsy results – very confusing

    • 4 replies
    • 776 views
  13. gas-x

    • 1 reply
    • 976 views
  14. Itching

    • 3 replies
    • 3,683 views
  15. Does this sound like celiac?

    • 2 replies
    • 790 views
    • 3 replies
    • 815 views
  16. Familial pituitary adenoma

    • 1 reply
    • 556 views
  17. Should I get re-tested?

    • 2 replies
    • 651 views
  18. Is it enough to rule out celiac?

    • 3 replies
    • 742 views
    • 10 replies
    • 40,676 views
  19. Lab Results Help 1 2

    • 37 replies
    • 4,087 views
  20. Shortness Of Breath (the "sighs")? 1 2

    • 33 replies
    • 45,903 views
  21. Celiac advice please?

    • 1 reply
    • 554 views
    • 1 reply
    • 1,390 views
  22. 18 Years old and terrified

    • 1 reply
    • 821 views
137 137


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  • Forum Discussions

    Definitely get your doctor’s opinion on this, but give. everything you’ve shared I thing you’ve got two kids who need to be gluten-free. Be sure to share the study on rates of celiac disease among families with your doctor. They may not have the latest info on this.
    Doesn't sound implausible or arrogant at all. I'm almost 10 years in to an endless series of doctors (of varying specialties and levels of competence) leading me around in circles, unwilling to admit they don't know everything...and somehow letting me know there's no way to know what's wrong me, at the same time. Sadly it took me almost all this time to learn how to start asserting myself with these...
    Hi KMS83.  You might ask your doctor for an updated TTG blood test which shows the level of gluten antibodies in your system.  If your gluten antibodies are still high now, a year and a half after your initial diagnosis, that could be an indicator that you are still getting regularly exposed to gluten, whether directly or indirectly (via cross-contamination). Also, my personal advice i...