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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

18,914 topics in this forum

  1. Lemons111

    Geting tested/diagnosed during covid

    By Lemons111, Last action:
    • 19 replies
    • 3.7k views
    • Lemons111
    • Lemons111
  2. Catv25
    BergieF

    My celiac screening came back negative, but I still have a few questions

    By Catv25, Last action:
    • 4 replies
    • 1.4k views
    • BergieF
    • BergieF
  3. Mwutke
    Awol cast iron stomach

    Peripheral Neuropathy

    By Mwutke, Last action:
    • 4 replies
    • 1.5k views
    • Awol cast iron stomach
    • Awol cast iron stomach
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  4. EF-ATL
    knitty kitty

    High TTG IGG while on strict gluten-free diet? (Doc snuck in celiac blood test)

    By EF-ATL, Last action:
    • 3 replies
    • 1k views
    • knitty kitty
    • knitty kitty
  5. jaebowie
    Scott Adams

    How much do you have to pay out of pocket for a Celiac disease antibody test

    By jaebowie, Last action:
    • 1 reply
    • 1.1k views
    • Scott Adams
    • Scott Adams
  6. HunterMillerAZ
    trents

    Help Please! Symptoms pre-diagnosis

    By HunterMillerAZ, Last action:
    • 9 replies
    • 1.8k views
    • trents
    • trents
  7. Sarah Fisher
    Scott Adams

    Itching!!!

    By Sarah Fisher, Last action:
    • 2 replies
    • 1.2k views
    • Scott Adams
    • Scott Adams
  8. KatieM
    Scott Adams

    Seasonal Allergy Symptoms + More

    By KatieM, Last action:
    • 3 replies
    • 612 views
    • Scott Adams
    • Scott Adams
  9. jaebowie
    Kate333

    Scared to go to a doctor because of fear of being written off as a hypochondriac/being depressed

    By jaebowie, Last action:
    • 3 replies
    • 751 views
    • Kate333
    • Kate333
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  11. jaebowie
    knitty kitty

    Would a doctor order a blood test for Celiac Disease if a parent has it but you are asymptomatic?

    By jaebowie, Last action:
    • 1 reply
    • 567 views
    • knitty kitty
    • knitty kitty
  12. jaebowie

    After I eat I have a complete lack of energy and fatigue but when I do not eat anything I have severe stomach pain

    By jaebowie, Last action:
    • 0 replies
    • 476 views
    • jaebowie
    • jaebowie
  13. PumpkinChic
    Wheatwacked

    Getting tested and healing?

    By PumpkinChic, Last action:
    • 5 replies
    • 1.8k views
    • Wheatwacked
    • Wheatwacked
  14. Haveaniceday
    cyclinglady

    Is there anyway my test results are wrong?

    By Haveaniceday, Last action:
    • 1 reply
    • 1.6k views
    • cyclinglady
    • cyclinglady
  15. Haveaniceday
    GFinDC

    Does the amount of gluten consumed before and endoscopy matter?

    By Haveaniceday, Last action:
    • 1 reply
    • 991 views
    • GFinDC
    • GFinDC
  16. Guest

    Symptoms of celiac disease

    By Guest, Last action:
    • 0 replies
    • 562 views
    • Guest
    • Guest
  17. Haveaniceday
    Scott Adams

    Dr diagnosed me based on this (blood results inside)

    By Haveaniceday, Last action:
    • 2 replies
    • 1.5k views
    • Scott Adams
    • Scott Adams
  18. wtf
    cyclinglady

    Gluten-free diet

    By wtf, Last action:
    • 3 replies
    • 825 views
    • cyclinglady
    • cyclinglady
  19. Clara Douglas
    DJFL77I

    Gluten free 1 2

    By Clara Douglas, Last action:
    • 30 replies
    • 3.5k views
    • DJFL77I
    • DJFL77I
  20. lanlanonearth

    Child Temperature Change After Gluten-Free

    By lanlanonearth, Last action:
    • 20 replies
    • 4.2k views
    • lanlanonearth
    • lanlanonearth
  21. Fraser
    trents

    Not sure if my symptoms are Celiac

    By Fraser, Last action:
    • 10 replies
    • 2.3k views
    • trents
    • trents
  22. Anniefin
    cyclinglady

    Can the stomach still indicate celiac disease if I’ve been gluten-free for 4 months?

    By Anniefin, Last action:
    • 1 reply
    • 779 views
    • cyclinglady
    • cyclinglady
  23. Chelsea Smith
    Ann--Marie

    Blood Test Results

    By Chelsea Smith, Last action:
    • 11 replies
    • 5.7k views
    • Ann--Marie
    • Ann--Marie
  24. Catv25
    RMJ

    Is it possible I may have celiac, even though blood test came back negative?

    By Catv25, Last action:
    • 2 replies
    • 1.1k views
    • RMJ
    • RMJ
  25. Catv25

    Possible to have celiac even though tested negative?

    By Catv25, Last action:
    • 0 replies
    • 657 views
    • Catv25
    • Catv25
  26. Evabrooke-26

    Thoughts on Symptoms

    By Evabrooke-26, Last action:
    • 5 replies
    • 1.4k views
    • Evabrooke-26
    • Evabrooke-26
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  • Posts

    • Smith-Ronald
      Lymph nodes

      By Smith-Ronald · Posted

      Enlarged lymph nodes in neck and groin with celiac are not uncommon. They can take time to reduce even after going gluten-free. Monitoring is key.
    • Bayb
      Trying to read my lab results

      By Bayb · Posted

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      Constant low back, abdominal and pelvic pain!

      By Aussienae · Posted

      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      Why?

      By trents · Posted

      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      Why?

      By trents · Posted

      What kind of stool test was done? Can you be more specific? 
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