Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Hidden Foods! Was Doing So Well!


Missmtl

Recommended Posts

Missmtl Newbie

So at my Dr's suggestion of going gluten free to see if it would help with my health issues of truncal weight gain, bloating, nsusea, burping, rashes, joint pain and fatigue, i started a gluten-free diet last Friday. It went amazingly well! My bloating went down to barely noticeable, i lost 3 pounds, no stomach pain, gas or bloating etc i was thrilled!

I made pizza last night using bob mills gluten-free crust mix and it is the first time for me to eat pizza snd not feeling sick or instantly ballooned tummy!

After dinner, my bf offered me a strawberry twizzler, I had 2 without thought that it might gave gluten in it and within the hour, i got little white bumps on my arms, stomach and puffy look in my legs, thrn burning and tingling hands, sore tummy and nausea, swollen red lymph node on jaw line near my ear!

I woke up this morning still feeling sick and bloated, bumpy and itchy.

I feel depressed, how will I get through this without making mistakes?

Is there a site that has a comprehensive list to type in and see if its gluten free that is accurate?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

I am not aware of a source such as you are looking for, and would not recommend it even if I did.

 

The problem with a list--any list--is that products change all the time. A list is based on a moment in time. The example of the product you have in hand may be newer, or older, than the information in the list.

 

It does seem overwhelming at first, but over time you get to know what isn't safe and what to question. If in doubt, read the ingredients. Wheat must be clearly disclosed in both the US and Canada. Rye and oats don't appear in unexpected places, but barley can be listed as malt without disclosing the source in the US.

 

Canada adopted new rules effective August 4, 2012, that require all gluten sources to be explicitly disclosed by naming the grain in question. Products packaged prior to that date may still be in stores.

 

Read the ingredients.

kareng Grand Master

The easiest rule to live by right now is:

 

Read the ingredients on everything with an ingredient list and don't eat anything you haven't prepared yourself or seen prepared. 

 

 

There are apps but they are limited.  There is no way they have info for every brand of everything.  Some compensate for that by saying the unlisted items have gluten, even when they don't.

Gemini Experienced

Twizzlers have wheat in them and it's clearly marked on the package.  Like others have said, you have to read all labels from now on.  This will become second nature very quickly so relax!

You will get there, even if you feel overwhelmed right now.

notme Experienced

yes, you will get very good at 'package flipping' - remove package from shelf, flip package over, read package (til you see gluten), flip package back over, put package back on shelf.

 

it's a little easier now with the allergy warning following ingredients if it's not clearly listed in the ingredients.

Adalaide Mentor

I live by the motto of every label, every time. I'm buying something I bought last week? I read the label. I'm buying more than one of something? I read all the labels. At home when I pick something up in the pantry, if I can't remember the actual store trip when I purchased something, I read the label. Eventually it will become second nature.

 

And just so you don't get disappointed later, if you walk into the grocery store and start picking up licorice, nearly all of it has wheat. Enough that it took me no time at all to realize I would never find good licorice in a store again.

Pegleg84 Collaborator

Yup, no more casually accepting offered food. Ask: What is it? what's in it? where's the package? I need to read the label. If you can't find out what's in it, don't eat it!

It's a learning curve, definitely. we've all messed up, and feel horrible, then get better, then mess up again, but you get better at it, and eventually it'll become second nature.

 

In the meantime, it sounds like the gluten-free diet it working for you! Which is great! This is just a bump in the road. Too bad it has to be so unpleasant.

 

I don't like licorice anyway, but I do believe you can find it gluten-free in health food stores on occasion, but just the black stuff.

 

Happy Healing


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



alesusy Explorer

"package flipping"! I love that definition....

May I add my Italian experience? We have a very active AIC association here (Associazione Italiana Celiachia). They actually print (and also have on their website, constantly updated) a list of all gluten-free products on sale in Italy, including those you find in normal supermarkets(which mayonnaise to buy? etc). Also a list of all hotels and restaurants in Italy guaranteeing gluten-free food. Plus, they give out certification to gluten-free products.

 

However, while I do trust them, it is not enough. Plus, I'm lactose-intolerant and a good part of those gluten-free foods is still going to make ME sick. Plus, they deal with food and proclaim for instance that lipsticks and hairspray and cosmetic creams are not ever a problem.  My own experience has been different. So - it's back to the learning curve and reading all labels, always.... and to package flipping!

GottaSki Mentor

Welcome!

Yep...package flippers are us!

Take a look at the "Newbie 101" thread -- it gives wonderful advise that will speed your transition to your gluten-free life. The transition is tough...I was brought to tears regularly during grocery store missions out of package flipping -- especially when I had to start carrying "cheaters" to read some of the teeny tiny print. It does become second nature....the best thing to do is think outside perimeter shopping - you see al the whole foods without many ingredients - meat, dairy, fruits and vegies are all found here....limit the processed foods...even processed foods labeleled gluten-free can be tough on your healing digestive system.

Hang in there and focus on that first piazza that didn't make you ill.

Read the newbie thread and ask lots of questions...it really does speed the transition :)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,083
    • Most Online (within 30 mins)
      10,442

    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...