Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

14Month Update! Repeat Biopsy Results


designerstubble

Recommended Posts

designerstubble Enthusiast

Diagnosed 14 months ago Marsh 3b, scalloped duodenum, hiatus hernia.

Subsequent intolerances to MANY foods.

Severe anaemia, low vit d, major hairloss, severe adrenal fatigue, melasma, night sweats, neuropathy, depression, etc!

Repeat biopsy shows 'essentially NORMAL '

Not sure what they mean by essentially but normal sounds good to me.

I came back on to share this, for those of you out there that worry, fret, get anxious, cry, wonder when it's going to get better... It does happen. I was/am one of those that did all that worrying. I still have a way to go in regaining my former self. If indeed I ever will!! But... Healing DOES happen, it's happening for me on a diet that's severely restricted!

Keep at it! :-) x


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

This is excellent news :D

nvsmom Community Regular

Nice!  ;) Congrats!

cyclinglady Grand Master

Yes, it is great news! Congrats!

livinthelife Apprentice

It's super good news! You're right….it can and does get better!! Great job!

designerstubble Enthusiast

Aw thanks guys. I'm still not where I need to be, but I just thought sometimes it's nice to hear some success. I know when I was diagnosed I looked for any possible success threads! We are all or have been looking for hope that things get better. I just wanted to share, to show that slowly but surely it can be done. It took a lot of green juices and food restrictions! I'm hoping in another year I might even grow some hair back!! Lol. That'd be nice! X

IrishHeart Veteran

Congrats!!

 

and yes, just hang in there...I saw more results in symptom resolution (plus more hair regrowth) after 20 months.

 

Best wishes and stay the course. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



moosemalibu Collaborator

Wonderful news!!  :D

notme Experienced

fabulous!!!  lolz - i was going to ask about your hair, but you included that :)  i'm at about 3 1/2 years, now, and i am happy to report i have an under layer of 'baby hairs' and it's making my hair so much thicker and more full.  it takes a long time!  but i wasn't expecting it to actually grow back, i was just glad it stopped falling out haha ;) 

BlessedMommy Rising Star

That's wonderful! Great job sticking to the restricted diet, I know that it isn't easy. I'm vegetarian, gluten free, dairy free, and mostly sugar free.

designerstubble Enthusiast

That's wonderful! Great job sticking to the restricted diet, I know that it isn't easy. I'm vegetarian, gluten free, dairy free, and mostly sugar free.

Same as me!! I am also corn free (complete nightmare I must say) and have had avoid other food due to sons allergies such as nuts, legumes. All in all a complete pain the....!!!! Keep at it... 8-)
designerstubble Enthusiast

fabulous!!! lolz - i was going to ask about your hair, but you included that :) i'm at about 3 1/2 years, now, and i am happy to report i have an under layer of 'baby hairs' and it's making my hair so much thicker and more full. it takes a long time! but i wasn't expecting it to actually grow back, i was just glad it stopped falling out haha ;)

Yes, mine seemed to stop when a started vit d... Coincidence?? I don't know tbh. But I still take it just in case !!! I have a few tufts at hairline but would LOVE an all over growth spurt, love my hair to be thicker again... I wait and hope! X

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    2. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    3. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    4. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    5. - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,124
    • Most Online (within 30 mins)
      10,442

    HelloFlowersGoodbyeFlour
    Newest Member
    HelloFlowersGoodbyeFlour
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • cristiana
      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...