Celiac.com Sponsor (A1):

Celiac.com Sponsor (A1-m):

  • You've found your Celiac Tribe! Join our like-minded, private community and share your story, get encouragement and connect with others.


    • Sign In
    • Sign Up

Both kids NEGATIVE!!!!!!!!!!!

Rate this topic

Recommended Posts

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):

3 hours ago, Deades said:

I am so excited for my kids (ages 21 and 19).  They had the blood test and it was negative for both. So happy for them.  However, we know it may be dormant and can appear any time.  Mine was dormant until last year.

My boys are 21 and 24.  They have tested negative before, but if symptoms arise, they get tested.  One had some symptoms And tested -  it was negative.  Worked out the problem - not Celiac.

But it is good for them to keep it in mind. 




Share this post

Link to post
Share on other sites

That's great news. Good they know to retest if any symptoms pop up down the line. If and when they do develop celiac they will have you to help them with the ins and out of staying safe. Hope you are healing well and feeling better.

Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

Share this post

Link to post
Share on other sites

Yay! My kids are negative too. I am going to have them screened every 2 years while they are still growing. I don't want to wait until they are not growing to diagnose it. (By then, they probably would have had it for 2-3 years, esp since 50% don't have typical symptoms). Of course, if they develop symptoms, I'll have them retested sooner. 

I think the current guidelines say screen first degree relatives every 2-3 years or if symptoms develop. However, I was only diagnosed last year, and there were no guidelines at that time. My pedi called a very well respected pedi GI and he made his "best guess" at the time.  I think the recommendations on screening relative will be changing over the next 5-10 years


Share this post

Link to post
Share on other sites

Hooray, hooray! Great news! 

Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

Share this post

Link to post
Share on other sites

Congrats!  My kid tested normal too.  She will get re-tested if symptoms develop.  Our doctor also checked her thyroid and anemia issues too, since that was how I presented.  

Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now