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Sore nose

Teresa811

By Teresa811
in Dermatitis Herpetiformis

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Teresa811 Newbie
Teresa811
Posted

Hi been diagnosed as celiac over 2 years ago have a bad episode at present with tongue and swollen sore nose looks like little blisters has anyone else had these symptoms and if so what made it stop please any advise would be fab 

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Ennis-TX Grand Master
Ennis-TX
Posted

Thinking I saw this earlier on another post....anyway I do have a thought on this. I get little blood blisters and sores in my mouth, and on my tongue from things I ended with allergies to. With celiac being a autoimmune disease it can sometimes effect your immune system, like make you more prone to random food allergies, histamine issues, food intolerance issues, and sensitivities. You might want to keep a food diary and mix up what you eating avoiding foods you have been eating for up to a week changing out sauces, oils, spices completely and see if you notice anything. If I eat anything with corn I get blood blisters in my mouth by example, a high PH food like if I use a undiluted vinegar on something had in the past giving me little sores...not had this happen in awhile. In the food diary keep track of the sores, body temperature, stool habits, how you feel, etc. Every little detail and see if you find some connection with foods you eat. Try a lower histamine diet perhaps if it is related to that.

cyclinglady Grand Master
cyclinglady
Posted
2 hours ago, Teresa811 said:

Hi been diagnosed as celiac over 2 years ago have a bad episode at present with tongue and swollen sore nose looks like little blisters has anyone else had these symptoms and if so what made it stop please any advise would be fab 

Teresa, 

You posted this same question yesterday.  You did get a response, but you did not answer the questions asked which might help you.  We can not diagnose you over the internet.  We are not doctors, but just people who can not consume gluten.  We share tips, our personal experiences, and ask questions about the gluten free diet.  

If you have or suspect DH, read through the DH section for coping strategies.  Keep to the gluten free diet.  Talk to your doctor!  It might NOT even be related to celiac disease!  

  • 2 weeks later...
selectivefocus Enthusiast
selectivefocus
Posted
On 1/18/2018 at 7:24 AM, Teresa811 said:

Hi been diagnosed as celiac over 2 years ago have a bad episode at present with tongue and swollen sore nose looks like little blisters has anyone else had these symptoms and if so what made it stop please any advise would be fab 

My daughters DH showed up first around her nose. Two theories here: You are either getting glutened without knowing it, your body is mistaking another grain as gluten (i.e. oats, corn, etc.) or you have another allergy that is bringing this out in you. I got a horrible, painful mouth ulcer last night from something containing corn syrup. I didn't react to corn at first and now I am. Be vigilant in what you are consuming. Just because something says it is gluten free does not mean it is or that you will not react to it. Processed boxed foods are notorious for this. I can help you if you want to go over your diet of what you have been consuming. I should also say that one of my kids cannot tolerate tapioca and it was making her DH way way worse. It basically was just exacerbating the immune response to gluten she was having. Celiac is such a nasty, complicated monster. 

selectivefocus Enthusiast
selectivefocus
Posted
On 1/18/2018 at 10:02 AM, cyclinglady said:

Teresa, 

You posted this same question yesterday.  You did get a response, but you did not answer the questions asked which might help you.  We can not diagnose you over the internet.  We are not doctors, but just people who can not consume gluten.  We share tips, our personal experiences, and ask questions about the gluten free diet.  

If you have or suspect DH, read through the DH section for coping strategies.  Keep to the gluten free diet.  Talk to your doctor!  It might NOT even be related to celiac disease!  

She might not have responses enabled to her posts. I didn't realize you had to enable responses for every individual post and was not getting emails and I thought no one was responding to me.

Teresa811 Newbie
Teresa811
Posted
  • Author
19 hours ago, selectivefocus said:

My daughters DH showed up first around her nose. Two theories here: You are either getting glutened without knowing it, your body is mistaking another grain as gluten (i.e. oats, corn, etc.) or you have another allergy that is bringing this out in you. I got a horrible, painful mouth ulcer last night from something containing corn syrup. I didn't react to corn at first and now I am. Be vigilant in what you are consuming. Just because something says it is gluten free does not mean it is or that you will not react to it. Processed boxed foods are notorious for this. I can help you if you want to go over your diet of what you have been consuming. I should also say that one of my kids cannot tolerate tapioca and it was making her DH way way worse. It basically was just exacerbating the immune response to gluten she was having. Celiac is such a nasty, complicated monster. 

Thank you so much it a vitamin I was taking it said gluten free but had wheat & starch what a nightmare this is to have can’t seem to do right for doing wrong & doctor gave me a anti biotic and boom 10x worse I said I was cealiac and this is a bad flare up had one 9 years ago so knew what it was just didn’t listen to me now it’s a lot worse than originally was arrghhh !!

thanks so much for reply 

cyclinglady Grand Master
cyclinglady
Posted
20 hours ago, selectivefocus said:

She might not have responses enabled to her posts. I didn't realize you had to enable responses for every individual post and was not getting emails and I thought no one was responding to me.

Thank you!  I will check that out.  ?

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  • 1 year later...
Sana2020 Newbie
Sana2020
Posted

I also get nose sores and dryness and haven’t figured it out necause even when I accidently ate gluten I didn’t get them . It’s a symptom I hate 

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