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floridanative

Amazing Stupidity

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Nisla - I don't know what to tell you but one of my closest friends in CA told me her Mother died of stomach cancer...I thought it was breast but that was after it spread from stomach to throat to breasts. The woman was dead at 67. I think your idea is worth a try and could prolong your Mom's life but don't be surprised if the pcp doesn't get on board....my Mother's pcp told her Celiac is really rare so I probably didn't have it, that was of course before my biopsy...anyway, I think you have to fight to even get tested correctly for Celiac so if your Mom wants to live in denial, her doc will probably be fine with that. It's just so sad and disturbing. If I was a doc that only knew how to put a band-aid on people instead of actually helping them....well I couldn't sleep at night, that's for sure!

Gotta get over to Marietta for a meeting. And in this lovely weather - not!


Dx'd with anemia - March 2005

Positive blood tests - Sept. 2005

Positive biopsy - Jan. 2006

Gluten free since 1-23-06

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I know Donna--your point is well taken about how your mom would never question a doctor. After thinking about this (and fuming) last night, I really think that my mom's doctor did the one test because he knows that my mom will never question what he says. She is a very compliant patient--will do or take anything she is told to by him. Last year, she could have died from complications of the Coumidin that he had her on--and it turned out she didn't even need to be on such a potent drug. That was discovered while she was in intensive care for 2 days! But even though it was causing such problems, she dutifully took it every day until he ALLOWED her to go off of it. Boggles the mind. Since I gave her the test info--I'm sure he did a 'token' test to appease me--and get me off her case, and his, so to speak.

Nini--I think your plan is worth a try! It's not meddling--you're just trying to get a point across to the thick-headed doctor. It's just sad that such lengths would be necessary.

Tiffany--Thanks, I knew you'd understand :)


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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My new doctor is from South Africa. He told me what I told him about the crap from other doctors and my having to force them to do a skin biopsy on my dermatitis herpetiformis did not surprise him. He said that North American doctors are not well trained, the drug companies dictate everything because the government gets a big kickback from them. He was upset at the fact that four specialists refused to see me about my thyroid when I had obvious nodules and that I was choking, that I had suffered previously from the bad pernicious anemia with no real answers and that they did not really want to check out celiac disease and did the test wrong in the first place. He hates our system and their pandering to drug companies. He feels the same thing as many of us do why doctors in North America won't pay attention to celiac disease is because they can't feed you pills for it.He said if his family didn't like it here so much he would go back to South Africa.

I just thought stupid doctors was a Canadian thing but after hearing all of you in the US I know it is an epidemic in North Americal. It is too bad everyone has had to suffer and others are still suffering because doctors don't care and are too stupid to care.


Rusla

Asthma-1969

wheat/ dairy allergies, lactose/casein intolerance-1980

Multiple food, environmental allergies

allergic to all antibiotics except sulpha

Rheumitoid arthritis,Migraine headaches,TMJ- 1975

fibromyalgia-1995

egg allergy-1997

msg allergy,gall bladder surgery-1972

Skin Biopsy positive DH-Dec.1 2005, confirmed celiac disease

gluten-free totally since Nov. 28, 2005

Hashimoto's Hypothyroidism- 2005

Pernicious Anemia 1999 (still anemic on and off.)

Osteoporosis Aug. 2006

Creative people need maids.

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Yea Rusla--we're all in the same boat on this one. Great news that you found a knowledgeable doctor--hang on to that one :D


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Even the younger generation are sold on 'dcotor knows best' and will not be proactive in their own behalf. My daughter told me she thought it was 'embarrasing' that I would presume to tell a doctor what tests I wanted. If I needed a specific test the doctor would order it - that I was being rude and arrogant.

This daughter's health issues are far more critical than mine! Obesity, high blood pressure, fibromyalgia, silent migraines, restless leg syndrome and multiple food intolerances and chronic depression. She just takes the medications and hopes for the best.

Very frustrating for me - and I guess likewise I am a frustration to her. Claire

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Guest nini

the thing that holds me back from following through on this plan is that I would have to pay a copay to see a Dr. that I really don't have any intention of becoming a patient of. I am happy with my new PCP. She's from India and is very knowledgeable about Celiac and autoimmune disorders. She doesn't just write a prescription and leave the room, she talks to me first, finds out if I even want a prescription or if I'm just trying to figure out what is wrong so that I can treat it myself.

my mom and my sister AND my bil are all of the mentality that the Dr. knows best and they seriously wait to get permission from the Dr. before trying ANYTHING. It's like they can't think for themselves anymore. My bil has been in and out of hospitals as long as I've known him. He's had part of his intestines removed for diverticulosis, gall bladder removed... God knows how many other surgeries, currently having a bout of severe migraines... and will he consider changing his diet??? Guess. GRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRRR

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Anything printed off the Internet by an informed patient is seen as being the 2006 equivilent of 'Snake Oil' and of no possible relevance to the 'medicate the symptoms ignore the cause' ethos of western medicine.

Amen sister! My Mom's doctor is that way. I suggested that anti deppressants were not appropriate for my Mom because of her heart condition and the recent study that showed patients with cardiac problems died a lot more when they were taking AD's. She had no clue, absolutely no clue! She said, "Oh no. They're perfectly safe! We've been prescribing them for years." I suggested that my Mom might do well with fish oil supplements for inflammation and mood. She didn't know what they were. She thought I meant mineral oil. Wow! I couldn't believe how clueless this doctor was. Do these people read?

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Okay - every time I find out about an idiotic remark made by a doctor regarding Celiac disease I think it can't get wose. And yet is continuously does.

I hear ya! After being diagnosed I talked to my dad and told him to get tested. He said that his brother, my uncle, had been tested YEARS AGO and the doc said "yeah, you have it, but you can eat gluten, as long as you don't feel sick"!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

So, needless to say, he is SOOOOOO not gluten-free. I hate doctors. I need to put that in the "I Hate" thread.


EnteroLab test positive for gluten intolerence and 2 gluten intolerence and celiac genes

DQ2 and DQ3 sub type DQ7 in December 2005

Gluten-free since Enterolab test, December 2, 2005.

Lame Advertisement Test positive for gluten intolerence in Sept 2005.

THEN found out that my fathers mother had nontropical sprue, she passed away at 40 from (stomach) cancer, had holes in her intestines when they caught it. I had no idea....

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This is an international scandal. What can we do about it? My doctor (in London) just told me that I dont have celiac disease as the bloods were neg and when I explained I can still have it (im SURE i have it, yadda yadda, gastroscopy next firday) he said 'Have you ever thought about having counselling?' I really wish i had said 'Have you ever thought about having training' but due to the foggyness im not as quick witted as i used to be.

We all need to fight this disgusting lack of regard for peoples health. Lord knows how many other people are suffering and dying because of these fools.

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