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Rachel--24

Omg...i Might Be On To Something

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:o OMG OMG OMG OMG !!! :o

:lol:

I slept! I slept all night!! I think I slept so well I didn't move!!! I woke up in the same position that I went to sleep. I don't remember waking up at all, not even a little. Girls (and guys), that's 7.5 hours!!! Now, I don't know if that's from the bugs being expelled, the DMPS treatment or the prayer I said before I went to bed, but whatever, I'll take it. :PB) I also dropped almost two pounds since yesterday! I think I can safely say that was due to my morning cleanout, lol! :lol:

I am interested in hearing that all of you have the ringing...(tinnitus?). I don't but my hubby does; I don't think I'd convince him to consider if he has lyme though, LOL.

It could be a symptom of metals too. I get ringing once in awhile. I don't know if occasionaly is normal or not.

Yeah, I was just thinking last night that it sucks to have so many major issues because I honestly don't know which thing is causing which symptoms, lol. I know I have metals issues, I just don't know how bad they are. My ART testing showed that Lyme was the major stressor on my body but I think the symptoms are coming from the metals and mold.

Hey Donna! Do you want to come up and do some pest relocation duties? :D:P

OMGOSH, a full night's sleep and the prospect of pest relocation duties! It's too much to think about!!! :lol: :lol: I was just thinking it's been a long time since I've had any serious relocation efforts! :lol:

I don't have much input on the meds other than it sure could be stirring things up, both bugs and metals. Maybe you should get some more of the pectin and use it?

I actually ordered some last week...it hasn't come yet. I decided to take chlorella again too so took some last night. I'm getting a massage today, so think I'll also do an epsom salt bath.

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ohhhhhhhhh you guys i am having a really tough time .the meds i was taking that were helping me so much seem to not be doing the trick and i just have no idea what to do. Anything i eat makes me absolutley miserable I have beyond no appetite. God I just really dont know what to do. Sorry for the rant

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I am interested in hearing that all of you have the ringing...(tinnitus?). I don't but my hubby does; I don't think I'd convince him to consider if he has lyme though, LOL.

Sherry

It can be caused by damage ... did he attend a lot of concerts when he was younger? You know that all these stupid kids that go around in the "booming" cars are going to have ringing for the rest of their lives!!!

Mine is not because of metals ..... my metals are low to gone.

I slept! I slept all night!!

YAY! I'm betting on the chelation. I'm telling you, there was a night and day difference back when I was chelating between my four days on and the three days off. I couldn't wait to get back on, and it wasn't because I liked using the suppositories!!!

ohhhhhhhhh you guys i am having a really tough time .the meds i was taking that were helping me so much seem to not be doing the trick and i just have no idea what to do. Anything i eat makes me absolutley miserable I have beyond no appetite. God I just really dont know what to do. Sorry for the rant

I don't know mia, I'm sorry. Do you want my LLMD's phone number? Maybe he could come up with something new for you.

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We had snow in lovely colorado yesterday, so you all enjoy your 70 degree weather.

:o:huh::o

Does Colorado not know that it's almost summer!?!?

We've been unseasonably cold this spring as well, but we've been around the 60's recently so I'm hoping we're getting back to normal.

I slept! I slept all night!! I think I slept so well I didn't move!!!

Now that is exciting!!! :D :D :D

My ART testing showed that Lyme was the major stressor on my body but I think the symptoms are coming from the metals and mold.

That would make sense to me. Any plans on carpet removal this summer/fall?

OMGOSH, a full night's sleep and the prospect of pest relocation duties! It's too much to think about!!! :lol: :lol: I was just thinking it's been a long time since I've had any serious relocation efforts! :lol:

We've got carpenter ants so you probably don't want to deal with ants that big. :huh: Exterminator is coming Tuesday morning, along with the landlord to pay for it. We've got the holes sealed that we found them coming through.....we'll be going through the weekend looking for more. The kids weren't too thrilled with the idea of going to bed with ants in the house so I'm glad we got them holed up for the night anyway.

Now I'm a little concerned about the "dust" they put spray in between the walls and if it will have any negative effects on us. I know one of the kids already had an LED that included insecticides.

ohhhhhhhhh you guys i am having a really tough time .the meds i was taking that were helping me so much seem to not be doing the trick and i just have no idea what to do. Anything i eat makes me absolutley miserable I have beyond no appetite. God I just really dont know what to do. Sorry for the rant

Mia, I'm sorry. Have you done muscle testing lately? Did you ever find an ART practitioner, or just a kines(how do you spell this word?).

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ohhhhhhhhh you guys i am having a really tough time .the meds i was taking that were helping me so much seem to not be doing the trick and i just have no idea what to do. Anything i eat makes me absolutley miserable I have beyond no appetite. God I just really dont know what to do. Sorry for the rant

Hiya I have been reading this thread for a while and i've gotten some really good ideas from it. I feel exactlythe same as you a lot of the time, I am frightened to eat cos I feel awful. I have started not to say anything to people now as i am sure they think i'm making it up, and I just feel so bad and oftern sit and cry, thinking there must be something really wrong with me because people shouldnt feel ill all teh time, and food is meant to fuel you, not make you sick! I think I am going to do the caveman diet, and have been reading the 'Eat right for your blood type' diet book, which seems to have a few good pointers too. I am also going to see someone about alergies, but I am not sure which way to turn for that as yet. It is really depressing feeling like c**P all the time isnt it!

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ohhhhhhhhh you guys i am having a really tough time .the meds i was taking that were helping me so much seem to not be doing the trick and i just have no idea what to do. Anything i eat makes me absolutley miserable I have beyond no appetite. God I just really dont know what to do. Sorry for the rant

Mia, I am soooo sorry!

YAY! I'm betting on the chelation. I'm telling you, there was a night and day difference back when I was chelating between my four days on and the three days off. I couldn't wait to get back on, and it wasn't because I liked using the suppositories!!!

Wow, wouldn't that be great if chelating helped me sleep?! Wow. My doctor mentioned something about a cream...I'm hoping I can use that instead of IVs or suppositories. Suppositories are right up there with enemas in my book. :lol: I can't wait to talk to him! I definitely had no ill effects except maybe a little bit of a headache, but not sure that's from the chelation, but I've had it since yesterday afternoon. It's minor though.

Does Colorado not know that it's almost summer!?!?

...

That would make sense to me. Any plans on carpet removal this summer/fall?

...

Now I'm a little concerned about the "dust" they put spray in between the walls and if it will have any negative effects on us. I know one of the kids already had an LED that included insecticides.

It is SOOOO cold here today!!! It's amazing, lol. I had to wear my winter coat out shopping!

Yeah, some of my "problems" may be related to previous relocation attemps wherein I'd use a can of spray on the little pesty things. :ph34r:

Hiya I have been reading this thread for a while and i've gotten some really good ideas from it. I feel exactlythe same as you a lot of the time, I am frightened to eat cos I feel awful. I have started not to say anything to people now as i am sure they think i'm making it up, and I just feel so bad and oftern sit and cry, thinking there must be something really wrong with me because people shouldnt feel ill all teh time, and food is meant to fuel you, not make you sick! I think I am going to do the caveman diet, and have been reading the 'Eat right for your blood type' diet book, which seems to have a few good pointers too. I am also going to see someone about alergies, but I am not sure which way to turn for that as yet. It is really depressing feeling like c**P all the time isnt it!

Lynne you should post more often! Sorry you are having problems. Some of us have seen improvement in the varieties of food we can eat...I'm hoping the same for you and for Miamia!

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I have tinnitus too but i have always connected it to hypothyridism. It started after my episode with mononucleosis. (both hypo and tinnitus)

I eat mostly according to the blood type diet, type 0 and it means no wheat or milk. I react very muc to gluten and milk. Now gluten-free bread mixes have all this potato starch and corn starch we are not supposed to have either and I avoid gluten-free bread too, but I have some gluten-free bread a few times a month.

I usually just make more dinner and save some for lunch the next day.

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Donna,

Good news about the challenge test...I'm glad it went well. :)

Not sure if the DMPS was the reason you slept so well but I guess you'll be able to tell if you have more IV's. I'm assuming you had the smallest dose (1cc?).....so I'm not sure it could make a big impact but you never know! I definately think your sleep problems could be caused by the metals. Hmmmm....maybe you have high copper....copper can cause insomnia the same as mercury....and DMPS pulls out copper first.

That would be very cool if the treatments allow you to put these sleepless nights behind you. WooHoo! :)

I dont think that Dr. S. would suggest suppositories BUT..if you really wanted I'm sure he'd be ok with it. LOL....I'm pretty sure this would be last on your list though. :lol:

He mostly uses DMPS.....he does use DMSA....or other stuff like NDF. If you need the chelation he'll probably let you choose the method. I think he likes Transdermal DMPS (cream) because its slower and more gentle than IV. For me it was worse because it contains glutathione.

They all have their pros and cons....oral, IV or transdermal...its hard to know which chelator (or method of transmission) will be most effective..I just picked what I thought would work out best for me. You can always switch if something is not working for you.

I still have to take my porphyrin test...I've had the kit over 2 weeks now and still havent done it! I'm totally lagging on this but hopefully if I get it done on Tuesday I'll be able to get the results back before my phone consult with Dr. Amy.

I cant believe I havent done this yet...yeah....apparantly I've lost focus again. :ph34r:

Mia,

Sorry to hear that you're not feeling well. :(

Hopefully your Dr.'s can make some changes that will work better for you. I think if you can get ART it would be very helpful. I'll be thinking of you.

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Hiya I have been reading this thread for a while and i've gotten some really good ideas from it. I feel exactlythe same as you a lot of the time, I am frightened to eat cos I feel awful. I have started not to say anything to people now as i am sure they think i'm making it up, and I just feel so bad and oftern sit and cry, thinking there must be something really wrong with me because people shouldnt feel ill all teh time, and food is meant to fuel you, not make you sick!

Hi Lynne :)

Welcome to our monster thread. :P

Most of us here can relate to all of this. I agree that its not normal to have so many problems with foods. I did used to sit and cry (pretty much everyday) during the first couple years when I really wasnt getting any answers....or feeling any better. I'm doing MUCH better these days....hang in there...once you figure out whats causing you to feel bad things can definately improve. :)

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Heres my update. :)

I have nothing new to report as far as testing (cuz I've been neglecting this), no new treatments....no appts till my phone consult on the 9th.

Only new thing is that I went through my trial size mineral supplements and now I've ordered everything since I didnt have ANY problems with this brand! YAY....this is like a mini miracle. :)

Thank God there are some companies that are totally hypoallergenic and pure. It doesnt seem like I'll need to go back to the dreaded mineral IV's. :D

I just hope they are being absorbed.

I'm still doing fun things that I've missed out on the past 5 years. Last night I went to Great America (amusement park). It was fun....the only bad part was that it was COLD. :angry:

Where did our 100 degree weather go?? It was actually probably not as cold as I *thought* it was....because most people were in shorts...but STILL...it was nowhere near what we were having last week. I would have preferred some serious heat. :D

I only went on a couple rides....none of the big ones. I'm not really into stuff that spins you around...they make me sick...even before all of these health issues.

I couldnt believe the freakin admission though...OMG...$65 to get in...AND I couldnt even bring my food. :angry:

I knew I wouldnt be able to bring my stuff in without a medical note ( I need to get one of these!) but I figured I could go out to my car if I wanted....BUT NO....they wouldnt even allow people to leave and re-enter. :angry:

Anyways....it all worked out. I had no choice but to eat cheese pizza, pretzel and nachos. :D

Amazingly...I only got some very minor symptoms from the pizza (i ate 2 slices) and the pretzel and nachos didnt affect me. :)

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Rachel,

So good to hear you're able to go out and have a good time. :D

Now I have another appointment to look forward to......the 9th for you and the 5th for Donna. :)

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Hey Carla, I sent you a text. I'm okay...barely. LOL! I hit my head at 2 in the morning, and my room started spinning, and I got a horrible headache. Long story short, I think I'm fine. My head still hurts, but I'm not dead. :D

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Ahhhh, massage! Wonderful invention! :P

So she's working on me and asks if I want my stomach done. Yeah, I think it's probably a good idea, but I didn't say anything about why. So she's moving stuff around and says "oh"...so I say, "is that my liver?" She confirms and I say, yeah it's probably a little overburdened right now. :) Then she hits another spot and says "oh, your stomach too". I hadn't mentioned my stomach but then told her about Thursday night. Pretty amazing, lol Anyway, had a great massage, a nice long epsom/baking soda bath and am now about to chow down on some chicken. Life is good! :lol:

I definately think your sleep problems could be caused by the metals. Hmmmm....maybe you have high copper....copper can cause insomnia the same as mercury....and DMPS pulls out copper first.

I just looked at my hair elements and copper was above the 50th percentile...he had it highlighted on my sheet, but we've never discussed it. I'll ask about it when I see him--I also want to ask about the RBC too.

The metals would make sense for me...the timing is about right for when it all started. If chelating the metals would allow my neurotransmitters to get back to more normal levels I'd bet a LOT of things would clear up for me, lol.

I'm pretty sure this would be last on your list though. :lol:

Ohhh sooooo looooow on that list. :lol:

He mostly uses DMPS.....he does use DMSA....or other stuff like NDF. If you need the chelation he'll probably let you choose the method. I think he likes Transdermal DMPS (cream) because its slower and more gentle than IV. For me it was worse because it contains glutathione.

They all have their pros and cons....oral, IV or transdermal...its hard to know which chelator (or method of transmission) will be most effective..I just picked what I thought would work out best for me. You can always switch if something is not working for you.

I do really well with glutathione (at least the liposomal oral kind)...when Anna tested me DMPS was actually the best. I think he's worried about my gut more than anything so he'll probably want IV or cream.

I cant believe I havent done this yet...yeah....apparantly I've lost focus again. :ph34r:

:rolleyes::rolleyes::lol:

Heres my update. :)

Cool about the minerals!!!!

I LOVE Great America but haven't been there in ages. My traveling friend and I used to get season passes and go many times during the summers. Yeah, I'm a huge kid at heart and I LOVE the big roller coasters...the bigger and spinnier the better. :P

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Hi all just wondering what people think the best place to get tested for allergies etc? I would like to get some tests but not sure which direction to go. Any opinions/experiences? Thanks!

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Hey Carla, I sent you a text. I'm okay...barely. LOL! I hit my head at 2 in the morning, and my room started spinning, and I got a horrible headache. Long story short, I think I'm fine. My head still hurts, but I'm not dead. :D

I got your text. Joy was concerned about you. :) Haven't you hit your head on your nightstand before?

Welcome Lynne!

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I got your text. Joy was concerned about you. :) Haven't you hit your head on your nightstand before?

I don't think I've hit my nightstand before. I might, but I don't remember! LOL! :lol:

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Donna, YAY on sleeping! A big clue maybe!!!! Keep working on that detox....wanna get those metals out and the bugs too.

Lynne, welcome! Can you tell us more about what you have tried and what testing you have had? The allergies might be secondary to other things, maybe we could make some suggestions. In terms of allergy testing, you can do a blood test, skin testing or provocative testing that is a combo of skin testing and drops in your mouth. You can also do more alternative testing like ART, BIOSET or various other varieties. You can also do elimination diets to determine allergies.

If it is true food allergies, I think elimination diets are the most accurate by far if you are careful when you do them. Also the least expensive, LOL! Blood testing is the least accurate as I understand. Plus even if antibiodies are picked up there is no strong connection with severity and discomfort of symptoms.

I recently did ART on foods, and am following those recommendations. I think it was helpful, but I know I would not get better just looking at foods. My LLMD once told me, just give 20% of your attention to foods. That was before we found out I was celiac--so of course being gluten-free and also SF is a high priority now. I have reintroduced small amounts of dairy.

Sherry

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Kassandra, glad you are ok.

Rachel, sounds like you had fun, and glad the foods are not bothering you too much.

Andrea, :o on the ants! I'd be concerned about the pesticide, but you also have to have the ants dealt with. Can you call Dr. E. about some prevention? Increase your chlorella, etc.?

Mia hope there is relief soon, is there a clue there that the meds stopped working?

Julie, I know you might not be able to read, but am thinking of you and hoping the outbreak is easing.

Jin, are you out there?

Sherry

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I LOVE Great America but haven't been there in ages. My traveling friend and I used to get season passes and go many times during the summers. Yeah, I'm a huge kid at heart and I LOVE the big roller coasters...the bigger and spinnier the better. :P

I used to love all kinds of rollercoasters too. It's been many, many years since I've been on one though.

Kassandra, glad you are ok.

Ditto. :)

Andrea, :o on the ants! I'd be concerned about the pesticide, but you also have to have the ants dealt with. Can you call Dr. E. about some prevention? Increase your chlorella, etc.?

She's usually off on Tuesdays. I'll pop another email to her. I've got one I sent on Tuesday about something else so she may not be around. She's usually quicker on replying.

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Hi, thanks for your reply, i have had accupuncture for some things, which helped for a little while, I did have something a few years ago for allergy where they get you to hold a metal stick thing and pots of substances and measure some energy (dont know what it was called) which said I should avoid Aspartame, MSG and dairy. I had a blood test sent away years ago which said to avoid dairy milk, and I was told by a reflexologist/palmist I should avoid chocolate and wheat! (not sure how he knew that tho!) SO apparently I should be off wheat/dairy/chocolate/MSG/aspartame/milk. Phew! But something is still upseting me, when I go back to basics I am ok and start to feel good but then I start to feel ill again when I introduce anything that is not remotely plain. It very annoying, because sometimes I would like to have something a bit different! I had two days off things and yesterday I started to feel a bit better, my head cleared a bit, and I actually felt like doing the hoovering and laundry this morning!!!!! WOW! now thats a total change, but i wish I knew what it was that was actually affecting me so badly!

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Guest LittleMissAllergy

TMI alert:

ecoffee question.

So I finally figured it out last night. I got a regular fleet "extra" bottle (holds like 8 oz. of liquid) and dumped it out and filled it with warm caffeine free instant coffee (next time im asking my mom for caffeinated). I accidentally squeezed the air out of the tip though before I used it so it didnt function properly so I only got about half in. I still held the 4 oz though, and it seemed to work a *little* and it got out a tiny bit of what seemed like impacted stool. Okay, that's enough for the yucky details...I'll get to my question. I had HORRIBLE nausea afterward, for HOURS into the night. I did it around 9:00 and I felt like vomiting until 3:00 in the morning. Is this normal?

I also had another question. My doctor said that I can "pulse" the Biaxin because I was herxing so badly, so I did. I started taking one on one day and two on another, and I started to come out of the herx and feel okay! But then I took one dose two days in a row, then ramped back up to two, and then yesterday rolled around and I was sicker than i'd ever been in my life. I'm so terrified...I didn't even get to take any Biaxin. That's what prompted doing the ecoffee. I just didn't know what to do. I wanted to go to the ER, I felt THAT horrible, but my mom told me no. I couldn't breathe, my heart was palpitating, my right side AND my left side hurt in my ribcage (and it still does this morning!) and worst of all- I had this really scary neck/jaw pain and pressure, and pulsating and pain in my lymph and thyroid area that made me feel like I was going to pass out.

Anyone ever experience ANY of that? Why did it happen if I didn't take any Biaxin? Do I take Biaxin today? I know you're not all doctors but this is such a terrifying position to be in...not being able to contact my LLMD until Tuesday...and the conventional doctors that I have don't even know what's going on, they wouldn't know what to do with me.

Sorry to post all of that here and totally dump this on you guys...but I've never been so sick, or scared.

I hope you all are well...and doing better than I am at the moment.

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So what does basic and plain diet mean, Lynne?

when i'm feeling ok, pretty much my diet consists of chicken, rice, rice pasta, cucumber, bananas, lettuce, tuna, rice cakes, water, sometimes a little soya in tea, cocacola, I was feeling really good this morning, I just had some sainsburys freefrom gluten free sausages with potato croquettes and eggs (the potato things and eggs seem ok with usually) and now getting cracking headache and feeling really irritable and angry with everything!!!

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I did have something a few years ago for allergy where they get you to hold a metal stick thing and pots of substances and measure some energy (dont know what it was called) which said I should avoid Aspartame, MSG and dairy.

Sounds like BioSET. That was pretty accurate for me on the foods. I tried doing an elimination diet, but couldn't finish because I never got to a point where I wasn't reacting, so I had the BioSET done which gave me a starting point. Turns out that the based foods on the elimination diet were mostly foods that showed up in BioSET as reactive. Once I cut those out, I had my base diet, then I started introducing stuff in a little at a time using the BioSET results as a guideline for which foods to add when.

ecoffee question.

Can't help you with this one, but I don't remember anyone here saying they felt nauseated...

when i'm feeling ok, pretty much my diet consists of chicken, rice, rice pasta, cucumber, bananas, lettuce, tuna, rice cakes, water, sometimes a little soya in tea, cocacola, I was feeling really good this morning, I just had some sainsburys freefrom gluten free sausages with potato croquettes and eggs (the potato things and eggs seem ok with usually) and now getting cracking headache and feeling really irritable and angry with everything!!!

The two things that really stand out for me are the soya and the sausages. The soya in general just isn't good, and the sausages may contain spices and even though they are gluten free, the spices can still bother. I react to some spice, but not all. The other thing is potato croquettes...how are they made...does it have dairy in it? That could be another issue. The other thing you might look into is grains in general...I have a hard time with most grains, but I can do a little bit of rice if I don't have too much.

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