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TinkerbellSwt

Can I Ask For A Prayer Too?

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If anyone can say a prayer for my son I would greatly appreciate it. Tomorrow we head back to CHOP to see his cardiologist. He has a dialted aorta and we are hoping that he is growing into it. If he isnt he either will get put on medication, he will get a beta blocker, or if its too bad he will have to have the surgery.

My poor baby has gone thru so much already. I am praying that he doesnt need medication or surgery.

Thank you in advance to all of you who can include him in your prayers.


Stephanie

Gluten free since October 05

son born severly premature due to

celiac

"True love stories never end" Richard Bach

"Did you ever stop thinking and forget to start again?" AA Milne

If you live to be a hundred, I want to live to be a hundred minus one day so I never have to live without you" AA Milne

Swimming Instructor #2 and Town Crier of Rachelville

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Of course I will put your son into my daily prayers. Good Luck with the doctor appt.


"Throw yourself a pity-party and you'll be the only guest." - Earlene Fowler

Diag. Celiac Disease by positive blood test 2/03/2004

Allergies - corn, soy, casein, egg whites and wheat

Morphia Scleroderma

Osteoarthritis

Hypothyroid and Hperthyroid

Essential Tremors

Asthma

Migraines

Fibromyalgia - diag. in 1978 when they called it Fibrositis

PAD Peripheral Artery Disease

Angina and Atrial Fibrillation

Gluten Ataxia

Vitiligo

Scoliosis of the spine (caused by malabsorption and it is horribly painful) This would be enough reason for someone to go gluten free.

Ocular Myastenia Gravis

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Stephanie--

I will pray. That's a lot for a little guy to handle...


~~~~~~~

Jen

Indianapolis, IN

gluten-free since Feb 2005

dairy-free

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I'll say a prayer for your son--sending good thoughts and a hug your way :)


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Your son and family will be in my prayers. I believe in prayer.


jennyj

Diagnosed March 2006 celiac sprue

Severe iron deficent anemia Jan 2002

Hypoglecemia 2000

"I can do all things through Christ who strenghtens me"

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You, him, and the rest of your family will be in my prayers. I really do understand. Feel free to PM me if I can help in ANY way. My daughter just had her 2nd open heart surgery, so I'm here if you have any questions or anything.


If you're looking for info on how to get started on the gluten-free diet, check out this List for Newly Diagnosed.

Self - Pain free since going gluten-free 9/05 (suffered from unexplained joint pain entire life), asthma improving, allergies improving, mysterious rash disappeared (probably DH)

Husband - Type 1 diabetic, Negative bloodwork

Son - Elevated IgA, Very high IgG, 2 negative biopsies - HLA DQ2 and DQ8 positive, Amazing dietary response since 1/06

Daughter - Congenital Heart Defect (2 surgeries), Reflux, choking issues, eczema, egg allergy - HLA DQ2 positive, Good dietary response (via me because of nursing) since 9/05

"All things happen for good for those who love God..." Romans 8:28

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You got it Stephanie.

judy


Judy in Southern CA

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If anyone can say a prayer for my son I would greatly appreciate it. Tomorrow we head back to CHOP to see his cardiologist. He has a dialted aorta and we are hoping that he is growing into it. If he isnt he either will get put on medication, he will get a beta blocker, or if its too bad he will have to have the surgery.

My poor baby has gone thru so much already. I am praying that he doesnt need medication or surgery.

Thank you in advance to all of you who can include him in your prayers.

I will put him on our church prayer network, there are dozens of people praying every evening for the intentions that come through. I will also includ him in my prayers also.

Bernadette


Montana

Self-diagnosed after many tests and no results to feel better

Gluten Free since 8-6-2005

Lactose free for many years

Casein Free since 02/14/06

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If anyone can say a prayer for my son I would greatly appreciate it. Tomorrow we head back to CHOP to see his cardiologist. He has a dialted aorta and we are hoping that he is growing into it. If he isnt he either will get put on medication, he will get a beta blocker, or if its too bad he will have to have the surgery.

My poor baby has gone thru so much already. I am praying that he doesnt need medication or surgery.

Thank you in advance to all of you who can include him in your prayers.

Stephanie, you and your son will definitely be in my thoughts :) I am hoping the appointment goes well tomorrow, please keep us posted.

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Stephanie, I will keep you all in my prayers. LL


Lee

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[stephanie; I am sorry you are all going tru such a rough time, include my prayers for you, son and the Dr. tomorrow. Hope all works out smoothly/ not too much more anxiety. I will pm/ you if you like. :) 'God is good' evie

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Guest Robbin

:) I will be happy to pray for you and your son. The little guy has had enough, that is for sure. Little Megan is living proof of the power of prayer-bless her.

Please, everyone pray for our evie too . God bless her too.

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Stephanie,

Of course....I'll be praying for that adorable little boy of yours.


Rachel

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Prayer said!

If it helps any, we were told this year that our son (who had open-heart surgery at 9 years ago) that he now has a dilated aorta and mitral valve prolapse. This was told to us by the doctor who replaced the cardiologist who had taken care of him since he was 7 weeks old.

We went back to the old cardiologist (who had moved 2 hours away), who disagreed with the new cardiologist. He said that since DS had had open-heart surgery through the aorta, it was expected that it appear slightly dilated, but that even so, he wouldn't call it a dilated aorta. He also went over measurements and definitions and explained in great detail why he didn't think DS had mitral valve prolapse, either.

Perhaps your cardiologist is being ultra-cautious? It might not hurt to get a second opinion. Our DS's cardiologist is in Danville,PA--pm me if you'd like his name--we've always thought he was wonderful. Good luck!

:) I will be happy to pray for you and your son. The little guy has had enough, that is for sure. Little Megan is living proof of the power of prayer-bless her.

Please, everyone pray for our evie too . God bless her too.

COuld you update me on evie? I'm a little out of the loop, I'm afraid...

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The power of prayer is an amazing thing . . . consider me on the prayer list -- may your family be blessed with the healing of your son.


Lynne

Courage does not always roar. Sometimes it is the quiet voice at the end of the day that says, "I'll try tomorrow".

"There's not a word yet, for old friends we've just met. Part Heaven, part space, or have I found my place? You can just visit, but I plan to stay, I'm going to go back there some day." Gonzo, in the Muppet Movie

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OK.. we are back from the doctors. Took a long time. The cardiologist said he is fine. The dialated aorta is still there, but on the Z scale ( um not quite sure what that is ) Colin is at a 3. A dangerous level is a 6 or more. He has been hanging on a 3 for a while now.

He had a rough time with the ultrasound. He was great in the beginning. Just watching the tech and seeing the screen, watching his heart beat. Then all of a sudden he started to cry out, such a heart wrenching cry, I almost started to cry. I just wanted to pick him up and comfort him. I am sure all you mothers out there know how I felt. Even though there is no pain in the procedure. He was scared and it ripped me to shreds.

But its all over. We dont have to go back to the cardiologist for 6 months this time! The first time was 3 months, the second 4 months, now 6!! moving right along!

Fiddle- I dont know how you did it with your child. I give you such great credit for going thru what you did.

I know how a sick child can make you feel and its a tough thing to go thru.

Thank you to everyone who said a prayer for Colin. Obviously they all helped!!! :)


Stephanie

Gluten free since October 05

son born severly premature due to

celiac

"True love stories never end" Richard Bach

"Did you ever stop thinking and forget to start again?" AA Milne

If you live to be a hundred, I want to live to be a hundred minus one day so I never have to live without you" AA Milne

Swimming Instructor #2 and Town Crier of Rachelville

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No, he just got upset. He didnt like being held there I imagine. When he was just a baby, 3 months early, he was a lot more cooperative with all their procedures. Now that he is getting older he realizes what is going on around him. And he just plain old doesnt like it!!!


Stephanie

Gluten free since October 05

son born severly premature due to

celiac

"True love stories never end" Richard Bach

"Did you ever stop thinking and forget to start again?" AA Milne

If you live to be a hundred, I want to live to be a hundred minus one day so I never have to live without you" AA Milne

Swimming Instructor #2 and Town Crier of Rachelville

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Now that he is getting older he realizes what is going on around him. And he just plain old doesnt like it!!!

HI Setef...smart kid i'd say. glad the apt is over and it went well esp with the Chillies.

judy


Judy in Southern CA

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Will do!!


Negative biopsy for celiac 1980

Fibromyalgia 1980

IBS 1980

Interstitial Cystitis 1992

Systemic yeast

Diagnosed w/ Chronic Lyme Disease 2000

Diagnosed w/ Chronic babesia 2000

Tachycardia 2001

Asthma 2005

Have had Lyme and babesia for

about 48 yrs.

Began gluten-free July 19 '06

Native TEXAN living in Missouri

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OK.. we are back from the doctors. Took a long time. The cardiologist said he is fine. The dialated aorta is still there, but on the Z scale ( um not quite sure what that is ) Colin is at a 3. A dangerous level is a 6 or more. He has been hanging on a 3 for a while now.

He had a rough time with the ultrasound. He was great in the beginning. Just watching the tech and seeing the screen, watching his heart beat. Then all of a sudden he started to cry out, such a heart wrenching cry, I almost started to cry. I just wanted to pick him up and comfort him. I am sure all you mothers out there know how I felt. Even though there is no pain in the procedure. He was scared and it ripped me to shreds.

But its all over. We dont have to go back to the cardiologist for 6 months this time! The first time was 3 months, the second 4 months, now 6!! moving right along!

Fiddle- I dont know how you did it with your child. I give you such great credit for going thru what you did.

I know how a sick child can make you feel and its a tough thing to go thru.

Thank you to everyone who said a prayer for Colin. Obviously they all helped!!! :)

So glad your appt went as well as did. Colin just did not like the looks of that place, old enoigh now to notice

things like that. Did you know we have a way here of sending out prayers that really help?? :o Hope you are OK too!! evie

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