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Mtndog

Is The Sky Falling?

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I haven't been on in awhile and my account got deleted. But I'm baccckkk!

I just need to vent here. I just can't believe some of the things that people I know and care about are going through right now. We found this week that my good friend and old neighbor has such a rare form of blood cancer that there is NO name for it????????????WTF?????????????? It has spread to his lungs, stomach, colon and liver but since it's this unknown type of blood cancer that they can't even stage him and they have no idea what his prognosis is.

Then tonight, one of my friends in graduate school, who I had emailed for support because I'm having my exam defense on Monday and I thought I was stressed out, let me know that her baby (she's 4 months pregnant) has severe heart valve problems so they are seeing a specialist at Children's Hospital on Monday.

what is going on? I keep thinking things have just got to calm down for awhile and they never do.

Sad.


***************************

Beverly

Gluten free since 2005

In the midst of winter, I found there was within me an invincible summer.

Albert Careb

36_35_6[1].gif

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Sorry you've got so much stress right now, that you're friend's not doing well, and about your other friend's baby. Wow, sure seems that when it rains, it pours, doesn't it?


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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hi carla- It's me! beverly. good to see your smiling face. how have YOU been feeling?


***************************

Beverly

Gluten free since 2005

In the midst of winter, I found there was within me an invincible summer.

Albert Careb

36_35_6[1].gif

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Bev--I'm so sorry to hear of all this. It just dosen't seem fair sometimes....


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Ah, Beverley, it really does pour for you...I always think of you being such a comfort to others, and boy, you are the one who needs it the most! I'm thinking of you....

{{{{{{{{{{{{{hugs}}}}}}}}}}}}}}}}}}}}


Emily

diagnosed type one diabetic 1973

diagnosed celiac winter 2005

diagnosed hypothyroid spring 2006

But healthy and happy! 253.gif

11 year-old Son had negative blood panel, but went on gluten-free diet of his own volition to see if his concentration would improve, his temper abate, and his energy level would increase. Miraculous response!

The great are great only because we are on our knees.

--Pierre Joseph Proudhon (1809-1865)

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Hey B:

Good to hear from you. Lord knows, when it rains, it pours sometime. And it take a strong person to work things out. As we get older, unfortunatly, we will see more of bad things happening to good people. Who was it that said "life is not for sissies".

I hope that everything will settle down for you and hoping for strengh for you in helping your friends during a terrible time in their lives.

xxoo - Lisa :):)


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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hi carla- It's me! beverly. good to see your smiling face. how have YOU been feeling?

I knew who you were!!! :D Even without the picture!

Thanks for asking about me ... I've been taking my chinese herbs, seeing the acupuncturist, eating five meals a day featuring protein and veggies, avoiding caffeine, sugar, and alcohol, getting lots of rest, and I'm finally feeling better. I'm not 100%, doc says it'll take a year to get to where I should be, but I feel much, much better than I did. I'm still spending a lot of time around here ... it's just too boring to get all the rest I'm supposed to be getting!


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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Thanks everyone- I always think of that book "When Bad Things happen to Good People". have any of you read it? It really is wonderful.

Carla- I'm glad you're feeling better- that's good. see, there IS good news!


***************************

Beverly

Gluten free since 2005

In the midst of winter, I found there was within me an invincible summer.

Albert Careb

36_35_6[1].gif

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As we get older, unfortunatly, we will see more of bad things happening to good people. Who was it that said "life is not for sissies". xxoo - Lisa :):)

I so agree ...guess as we age, our friends do too and thus... :ph34r::unsure: we all start falling apart ;) and so do they.

I'm so sorry about your friends and your tool. gosh you've had a hard streak..Your still in my prayers.

how is your hubby doing? and you belly button? ;)

Carla B..glad your finding some answers and enjoy that HOT TUB that is my dream..

love to you both.

judy


Judy in Southern CA

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aw Bev...... :( You really do need a time of just....good things and peace. Your friends...what they need is miracles.

Nice to see you and I truly hope things calm down for you soon.


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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Hi Beverly. I will pray for you to have the strength to help you through your friends illness' and also strength to help them as much as you can. As you know, life can be much more then difficult at times. Many Hugs for you.


"Throw yourself a pity-party and you'll be the only guest." - Earlene Fowler

Diag. Celiac Disease by positive blood test 2/03/2004

Allergies - corn, soy, casein, egg whites and wheat

Morphia Scleroderma

Osteoarthritis

Hypothyroid and Hperthyroid

Essential Tremors

Asthma

Migraines

Fibromyalgia - diag. in 1978 when they called it Fibrositis

PAD Peripheral Artery Disease

Angina and Atrial Fibrillation

Gluten Ataxia

Vitiligo

Scoliosis of the spine (caused by malabsorption and it is horribly painful) This would be enough reason for someone to go gluten free.

Ocular Myastenia Gravis

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Hey Bev -- I'm sorry you're having such a crappy time. How was your doctor's appointment? (Had to throw that in quickly, sorry.) It's really hard to know why such horrible things happen. I SURE wish I had the answers. All I know is that the Big Guy and I are going to have a REALLY long talk when I get there . . . . He has some 'splainin to do . . . . .

Please know that you are always in my thoughts and prayers, but will be EXTRA in the next few days.

Love & Hugs,

Lynne


Lynne

Courage does not always roar. Sometimes it is the quiet voice at the end of the day that says, "I'll try tomorrow".

"There's not a word yet, for old friends we've just met. Part Heaven, part space, or have I found my place? You can just visit, but I plan to stay, I'm going to go back there some day." Gonzo, in the Muppet Movie

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Oh it's so good to SEE my peeps here! It's been so long. elye- YOU guys are the ones that are comforting!

Lynne- I can just hear you now when you get to the Pearly Gates (A VERY VERY VERY LONG time from now) "Hey Big Guy, you got some 'splainin to do" (in your best Ricky Ricardo voice twinged with a Southern accent). How the heck would that sound?????????????? :ph34r:

My belly button is fine but the darn surgeon cancelled my appt on friday for emergency surgery so now I can't get in to see him until NEXT Friday. Apparently, someone up there thinks that I need to walk around longer with this thing sticking out. it doesn't hurt anymore though, so that's good.

DingoGirl- How are you?????? I saw some tazorac cream in my in-laws bathroom and thought of you. Ouch!

Hugs to all, B


***************************

Beverly

Gluten free since 2005

In the midst of winter, I found there was within me an invincible summer.

Albert Careb

36_35_6[1].gif

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Beverly, I am sorry to get off topic. But, your photo is great. You are certainly beautiful and such a nice smile.


"Throw yourself a pity-party and you'll be the only guest." - Earlene Fowler

Diag. Celiac Disease by positive blood test 2/03/2004

Allergies - corn, soy, casein, egg whites and wheat

Morphia Scleroderma

Osteoarthritis

Hypothyroid and Hperthyroid

Essential Tremors

Asthma

Migraines

Fibromyalgia - diag. in 1978 when they called it Fibrositis

PAD Peripheral Artery Disease

Angina and Atrial Fibrillation

Gluten Ataxia

Vitiligo

Scoliosis of the spine (caused by malabsorption and it is horribly painful) This would be enough reason for someone to go gluten free.

Ocular Myastenia Gravis

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Hi Sweetie!!!!!!!!!!! Aww shucks, thanks for the compliments. I've been trying to get that photo up here for so long because I was so HAPPY when it was taken. We were out on Orcas Island in Puget Sound and my hubby had just taken me out for a romantic dinner of gluten-free seafood and wine. It was a lovely night!


***************************

Beverly

Gluten free since 2005

In the midst of winter, I found there was within me an invincible summer.

Albert Careb

36_35_6[1].gif

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I've been trying to get that photo up here for so long because I was so HAPPY when it was taken. We were out on Orcas Island in Puget Sound and my hubby had just taken me out for a romantic dinner of gluten-free seafood and wine. It was a lovely night!

LOVE THE NEW PICTURE TOO.

THIS ROMANTIC DINNER SURE AGREE'S WITH YOU.

HOPE YOUR DOING BETTER WITH THE BELLY BUTTON..AT LEAST DOESN'T HURT..HOPE YOU CAN GET IN SOON.

SO YOU HAD TO GO BACK IN AND START FROM SCRATCH...BUMMER .... :ph34r: WISH SCOTT COULD HAVE JUST PUT THE OLD INFO AND POST HISTORY BACK UP.

HAVE A GREAT DAY...MISSED HEARING FROM YOU

LOVE

JUDY


Judy in Southern CA

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So, how are you feeling? Have you found a new place to live yet?

I love the new pic!

Judy, we got a sauna, not a hot tub ... so I'm not living your dream! I do love it though.


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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So, how are you feeling? Have you found a new place to live yet?

I love the new pic!

Judy, we got a sauna, not a hot tub ... so I'm not living your dream! I do love it though.

Oh my gosh! I'd take the sauna too! They really are good for you.

I'm feeling better with a few blips here and there- I legumed myself to pieces the other night when I ate 4 Reese's pb cups. I was stressed out, they were here and I thought "oh maaybe it was just the apartment." Wrong! I was in screeching joint pain the next day and LEARNED my lesson. I've realized that I don't "truly" have FMS- but my legume intolerance sure does a good job of mimicking it. :ph34r:

The persistent nausea, D and all that has totally cleared up. it's so strange- we went back yesterday to try and finish panicking and after 3 hours I felt nauseous and my hubby broke out in a cold sweat- I had forgotten ALL about that symptoms of hiss. He never has them anywhere else. So we had to ditch.

He's back up there today with his brother and our downstairs neighbor doing more packing. I had to beg out because I have to defend my PhD Qualifying Exam tomorrow (the one I took back in June). YIKES! :ph34r:

It's for the best though because yesterday when I walked in, I found that our landlord has started patching up the celilings (where I suspect the problem lies) while our stuff was still in there. i cannot express HOW ANGRY I am aabout it. We are paid through sept 30th and he never even asked to enter the apartment, never mind do work. There were paint chips all over the kitchen.

But we did find a place to live. It's aa 3 bedroom house with a big back yard for less than we were paying in NH. I'm seeing visions of puppiesrunning about!


***************************

Beverly

Gluten free since 2005

In the midst of winter, I found there was within me an invincible summer.

Albert Careb

36_35_6[1].gif

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Bev,I'm so sorry you are having such a rotten time.

Seems there's alot of hard times going on with our members lately :(

BTW-luuurve the new photo-looking good!!

:):)

Edit:Glad you guys have found a new place!(Puppies!!!!)


It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill

Nikki

Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)

black_cat.gif

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That's really funny/strange about the apt. making both of you sick! That's great news about the house, about the FMS being legume intolerance, and that you don't have to help move :P . See, you have some good news thrown in there, too!!

Yea, we got the sauna for the health benefits. We live in a 90 year old house and the master brm. is a finished attic. Adam's closet opened into the unfinished part of the attic where there were windows, so we had just finished that room and a new closet for him, which left his old closet for the sauna. It fits perfectly! This morning I put jojoba oil on my hair and got a sauna and hot oil treatment all in one! I'm really loving it. It's also very relaxing.


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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Yes, Bev, awesome photo....and a new place....and PUPPIES!!! Yes, some little Bernese puppies....we need new dogs on the board here, the Dingos do get tired of chasing after everybody....

SO glad you found a new place! I think I"ve written about my House of Terror on this board before...had to move into parents' for three months and every time I'd go back home would have major D....so crazy....but I think the house was haunted and that was the problem...the new girl who bought it sold it after a year, the next-door-neighbor told me that no one lived there longer than a year of year-and-a-half :ph34r: SCARY

BTW what is wrong with your belly button? seems everyone knows but me!


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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I have a herniated belly button- YUCK!!!!!!!!!!!

Yes- I agree...more dogs... I was at the house we're renting today doing some cleaning and I sat in the baackyard dreaming of a big fluffy one bounding through the snow this winter!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

WAIT- HOUSE OF TERROR? i haven't heard about it? Do tell what you mean!


***************************

Beverly

Gluten free since 2005

In the midst of winter, I found there was within me an invincible summer.

Albert Careb

36_35_6[1].gif

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WAIT- HOUSE OF TERROR? i haven't heard about it? Do tell what you mean!

Yeah-come on Susan-DETAILS!!!!!

:o


It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill

Nikki

Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)

black_cat.gif

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Beverly,

Wow! There is a lot going on for you. I guess I have my answer from the R2 thread.

Good luck with your test tomorrow.

I'm so glad you are out of that apartment. Sounds absolutely awful. Be sure to keep us posted on how your doing AND when you get those pups. :P


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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oh you guys....House of Terror is an awful, awful story...don't want to take over this thread....actually would require more like a book to tell what happened and how it changed my life - no, changed ME forever - and not in good ways.

(edited - I posted about it and then TOOK IT OFF!!! it's Bev's thread!!) :)

Yes -Bev - puppies, bounding through the snow!! that's what you need!


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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