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Guest celiacbuzzroom

Recommend A Doctor In You State

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tacoma, wa:

dr. lustig

part of mary bridge children's health center. awesome doc. after going to another doc here for my daughter who is dealing with fructose malabsorption, I switched to him and got way more answers and way more proactive care.

My son will be going to him to finish the confirmation of celiac disease. just a great doc!

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Dr. Wataru Tamura in Oro Valley, Arizona. He's part of Foothills Gatroenterology.

He's a bit quirky, but seems nice, thorough, and extremely knowledgable about celiac disease. I went to see him after my first GI doc. said, essentially, 'you have celiac. Here's a nutritionist to tell you what to eat. bye.'

Dr. Tamura, on the other hand, started immediately talking about the fact that people with celiac disease can have food intolerances, vitamin deficiences, allergies, and other issues, so we should be checking me out for these right away to get me as healthy as possible.

Considering that I - who have never had a known allergic reaction to food before - had an anaphylactic reaction to 'something' the same day I went in for blood tests for allergies, I'm very glad I'm with Dr. Tamura now and not my first doctor!

Does this Doctor work with kids? My daughter is 10 years old and was diagnosed by Dr. Hasan, But I'm not really satisfied with him.

T.H.

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No help here in North Carolina...still trying to seek a DR. who cares enough to do some research. <_<

Not sure where you live in NC, but I was finally helped at Highland Neurology Center, 3645 Cape Center Dr., Fayetteville, NC..Neurologist there has helped me immensely! The phone number is 910-483-9200

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I secong this one! She also now practices in Marlette, Michigan a day a week, not sure which day.

She is good with celiac because her whole family has it. However, she doesn't use enterolab for testing and she had my boys tested and they came back negative and going with symptoms I am sure they have at least gluten sensitivity. I have active gluten sensitivity and it runs rampant in my husbands family. They also have eosinophilic esphogitis. But, I think if I have it done she would accept it as a diagnosis.

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Hi,

I'm new to the forum. I am hoping that someone can help me. I have recently decided to move to the northwest part of ohio. I moved from Pittsburgh, Pa. I can not drive the 6 hours to get to my doc back home that was excellent with celiac. Is there any chance that anyone knows of a doc that has some knowledge of celiac in the toledo, fort wayne, lima area? I would appreciate any information anyone has. I have tried so many doctors in this area and it seems that I know more than they do and I'm tired of having to tell them what is what and what to do rather than them knowing. :(

Thanks

HI, our adult son diagnosed a year ago (silent symptoms) recently moved to Pittsburgh PA. Who did you see as a doctor when you lived there. Pittsburgh Celiacs don't seem to say much. I phoned UPMC and girl tried to put me onto asthma and allergy doctors. Then I asked for GI and she said digestive disorders drs, gave me some names, phoned a week ago and no replies. So wouldn't bother going to them anyway. he is very good about following gluten-free diet and can cook, but he still needs to see someone to see healing, any deficiencies, nutrition etc. We live in NH so it is difficult. Plus can you recommend any restaurants that you know genuinely do gluten-free. gluten-free registry lists some supposedly gluten-free places, but when you check menus and comments, they don't seem at all consistent. thanks.

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Not sure where you live in NC, but I was finally helped at Highland Neurology Center, 3645 Cape Center Dr., Fayetteville, NC..Neurologist there has helped me immensely! The phone number is 910-483-9200

Hi Kathy - you see Dr. Serano too. Yes they are helpful and caring. Do you know if there are any care groups for celiac around Fayetteville?

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Ohio

For you people in Ohio --- you have several gluten-free groups available to you.. Childrens hospital of Columbus has great resourses for gluten-free. Mary Kay Sharrett is the gluten-free dietician & she can put you on to doctors who understand celiac & gluten intolerance.

The GIG (gluten intolerance group) has a branch in Canton... I think there may be a CSA group as well....

hth

mamaw

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Pittsburgh Pa

Three Rivers Endo, Moon Twp 412-262-1000 Dr Ernest Stanley

Allegheny General Hospital has a group in the Wexford area- beside Outback Restaurant

Dr Colatrella & Dr Gloriosio- south of Pittsburgh

hth

blessings

mamaw

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I really need a second opinion and made an appointment to meet with Dr. Colatrella in 2 weeks! Thanks for the recommendation -- I am really hoping he can help me!

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Hi,

I'm new to the forum. I am hoping that someone can help me. I have recently decided to move to the northwest part of ohio. I moved from Pittsburgh, Pa. I can not drive the 6 hours to get to my doc back home that was excellent with celiac. Is there any chance that anyone knows of a doc that has some knowledge of celiac in the toledo, fort wayne, lima area? I would appreciate any information anyone has. I have tried so many doctors in this area and it seems that I know more than they do and I'm tired of having to tell them what is what and what to do rather than them knowing. :(

Thanks

Who did you see in Pittsburgh? Our son recently moved to Pittsburgh and we are trying to find a celiac dr. for him. University of Pittsburgh was useless.

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Have you checked out your local celiac group? That's how I ended up finally finding a celiac friendly doc where I am.

I had found a link for the group in your area here:

http://home.earthlink.net/~celiac9/

My children and I have all been diagnosed with celiacs and some with gluten intolerances within the past 3 years. I am looking for a good doctor in the South Jersey area or Philadelphia who understand the disease and can help us.

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Hi Kathy - you see Dr. Serano too. Yes they are helpful and caring. Do you know if there are any care groups for celiac around Fayetteville?

Just saw this..sorry...I do not know if there are any groups in fville area

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