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Guest celiacbuzzroom

Recommend A Doctor In You State

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Dr. Peter Park - general practitioner

Wilmington, Vermont (Deerfield Valley Health Center)

He is willing to test me for anything I want and lets me call the shots. Is willing to work with any other doc I see (either western or natural medicine).

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A second vote for Dr. Stefano Guandalini for pedi GI in the Chicago area. I would assume you could also find a good grown-up GI at the University of Chicago. Check their website at www.celiacdisease.net.

In the western suburbs of Chicago (Naperville), I would recommend Dr. Stephen Holland for grown ups. His website www.napervillegi.com has a lot of good information.

Our pediatrician, Dr. Linda Hamilton of Pediatric Health Assoc. in Naperville, did not hesitate to test our son for celiac disease. His only symptom was "failure to thrive". He did not have any diarrhea, stomach pain, stomach distention, or other "obvious" symptoms. She has been very supportive since his positive diagnosis via biopsy by Dr. Guandalini.

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Dr. Gale Cookingham- Allergist and she has celiac disease herself and was tested and suppourtive of enterolab. Flint, michigan office on fridays and port huron office monday through thursday.

AutumnE,

I live in Grand Rapids, MI and wonderful if you feel she is worth the drive? I'm not sure of any of the allergists in my area.

Thanks,

Melissa

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Dr. Pau. Hanchett, Fresno, California....I LOVE him, had never heard of Celiac until he mentioned it and said he'd test me for it.

And another thing, I told him months ago that if he had any new bewildered Celiac patients that needed support, they could call me. I got my second one just today, and we're meeting for coffee later this week. :)


SUSIE

Diagnosed January 2006

"I like nonsense. It wakes up the brain cells." ~Dr. Seuss

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Guest AutumnE

Melissa, She is lovely and well educated. Her and her husband both work there along with her dad. Dr Gail cookingham (the one with celiac) is there on fridays. Dr. Beane her husband is on mondays and saturdays. She doesnt do biopsy like an average GI. But she could help with dietary problems, intolerances, or allergies since it generally goes along with celiac disease in alot of cases.

Both of them are good at working with children also. But I dont recommend the dad (Dr Cory Cookingham) as he is very old, kinda grouchy, not patient, and Im not sure if he is familiar with enterolab. She did have to miss my sister's appt a few weeks ago so dr beane her husband saw her. She was glutened and it takes her approximately three days to recover enough to work.

4260 South Linden Road,

Flint, Michigan (MI)

810-733-3200

Toll free is 800-962-6751

Her regular office is in clarkston which is listed below. When I originally called to set up an appointment they said she didnt work there (error with a new medical assistant) because she wasnt a regular dr but she is there on fridays. Enterolab sent out her name with the genetic testing.

http://www.ucomparehealthcare.com/drs/mich...ngham_Gail.html

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Great topic! I was just thinking I need to find a new doc, because of recurring kidney pain.

Does anyone have a suggestion for Portland, OR?

Thanks for any help you can give.

Josh.

If you post this as a new topic you'll have more of a chance of most people seeing it. A lot of people wouldn't necessarily visit this topic, and stories of bad or rude doctors in your area can be valuable as well.

Nancy


The person who says it cannot be done should not interrupt the person who is doing it.

~Chinese Proverb

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Dr. Ziad Younis in Memphis, TN.


Amanda

Sometimes I wish someone out there would find me,

Till then I walk alone~Green Day

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Dr. Bradley Borsari

Fullerton, California (Southern California)

Can’t say enough about him!

After listening to my symptoms, he suspected celiac right away (I had never heard of it). Blood test and referral to a specialist for endoscopy = celiac diagnosis.

Very patient, younger doctor who knows his medicine!

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Dr. Leff

6553 E. Baywood Ave.

Mesa, AZ 85206

480-324-0999

Gastroenterologist

Tests all of his IBS patients for Celiac; believes that it is not necessary to do the endo, if the blood test is positive. Believes a positive diatary response is an answer in itself. Also believes that Celiac and gluten intolerance are the same thing. Also puts some patients without Celiac on the gluten-free diet if he thinks they will benefit from the diet.

A compasionette, caring doctor. *****


"Throw yourself a pity-party and you'll be the only guest." - Earlene Fowler

Diag. Celiac Disease by positive blood test 2/03/2004

Allergies - corn, soy, casein, egg whites and wheat

Morphia Scleroderma

Osteoarthritis

Hypothyroid and Hperthyroid

Essential Tremors

Asthma

Migraines

Fibromyalgia - diag. in 1978 when they called it Fibrositis

PAD Peripheral Artery Disease

Angina and Atrial Fibrillation

Gluten Ataxia

Vitiligo

Scoliosis of the spine (caused by malabsorption and it is horribly painful) This would be enough reason for someone to go gluten free.

Ocular Myastenia Gravis

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Didn't see anybody mention Dr. Fassano at the Univ of Maryland Medical Center in Baltimore. He is one of the best known celiac experts in the country and is usually quoted or featured in any articles you see in the popular press. He is a pediatric gastro (?) and only does the celiac clinic on Fridays, but I made an appointment with him for this Friday, months ago!


Self-diagnosed and gluten free since August 2004 (having suffered debilitating bouts of nausea, vomiting, bloating, diarrhea and stomach pain for 6 years).

Met with Dr. A. Fasano in Baltimore (Dec 2006), who felt I didn't need to be tested based on my history and positive response to the gluten-free diet.

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Old thread, but a positive shout for Dr. Craig Friesen in Kansas City, MO (Missouri), a pediatric GI. He made the connection between my son's reported proprioception / sensory problems and the possibility of vitamin E deficiency. Sure enough, he tested low, and we are about to begin supplementation. My son also has very small muscles (was suspected of possibly having a myopathy) - I have done some reading and it looks like vitamin E deficiency can sometimes cause symptoms like this.

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After listening to my symptoms, he suspected celiac right away (I had never heard of it). Blood test and referral to a specialist for endoscopy = celiac diagnosis.

Very patient, younger doctor who knows his medicine!

I want to say same as above about:

Pavan Sachan, MD (gastro)

NJ - affiliated with Trinitas Hospital

Offices in Union, Union County

Linden, Union County

Center for Digestive Diseases

My gastro, Steven Fiske, MD of West Orange NJ, knows about celiac as well. Affiliated with St. Barnabas Medical Center


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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Wow this is a great thread, and still very valuable. I finally found an outstanding pediatric gastro for my son. I was so happy I was almost overwhelmed. I was beginning to think I would never find a ped. gastro. for my son, and those from Portland know it does not get much better than Doernbecher's.

Dr. Terry

Doernbecher Childrens Hospital

3181 Sw Sam Jackson Park Rd

Portland, OR 97239

She was outstanding! She listened to my son's history for 30 minutes and accepted his previous blood work and dietary response to the gluten free diet as diagnosis, provided his tTG was going down. I am happy to report he went from 21 (<7 is normal) to 4.3 in eight months.


Jenny

Son 6 yrs old, Positive blood work, Outstanding dietary response, no biopsy.

Household mostly gluten free since 3/07

Me: HLA-DQ 02 & 0302 (DQ 08), which I ran & analyzed myself!Currently gluten lite, negative tTG, asymptomatic

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Dr. Anca Pop in Memphis, TN. Unbelievably thorough, kind and compassionate.


Iron deficiency without anemia, unexplained weight loss 2/2003

Positive celiac biopsy 4/2003

Autoimmune thyroiditis 8/2005

Gluten Free Since 2003

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Dr. Peter Park in Wilmington, VT. (half hour west of Brattleboro).

Deerfield Valley Health Center

He is a regular MD. Open to natural alternatives. Willing to let me research and will test or try anything I suggest. Willing to correspond with other docs both holistic and traditional.

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For us, we had 2 local saviors--(in Portland, OR)

Dr. Kelvin Snyder, Sunset Pediatrics

Dr. William Marshall, peds GI, Emanuel Hospital

For the adults out there in PDX, I see a GREAT internal medicine Dr who happens to specialize in nutrition and Celiac Disease (and I don't have celiac disease). Her name is Char Glenn at the Nob Hill Internal Medicine Clinic.

I'm glad Jenny finally found a great Dr at OHSU. I did my internship there and my best friend works at Doernbechers. I have a love/hate relationship with that hospital. I learned a lot there, they do a lot of great things there, but I was somewhat butchered during a surgery there when I was 8 and have had to learn to live with some difficult respiratory abnormalities since then. Working at a hospital, I know things happen no matter where, it just sucks when it happens personally!!


Rachelle 20dance.gif

Daughter diagnosed 1/06 bloodwork and biopsy
-gluten-free since 1/06

Son tested negative-bloodwork (8/07), intestinal issues prompted biospy (3/08), results negative, but very positive dietary response, Dr. diagnosed Celiac disease (3/8)

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CENTRAL FLORIDA

Dr. Henry Levine

1817 N. Mills Avenue

Orlando, FL 407-896-1726

After being blown off by my GP, my internist ('if you had celiac disease, you would be underweight, not overweight' AND that rash is foliculitis, not DH"), and my allergist not having a clue until I begged him for some type of gluten/celiac testing and coming back elevated...........I found a great GI doc on my very first try (after lots of research on docs).

I saw him today and he was wonderful, open-minded and actually listened. Base on my bloodwork, symptoms and the chronic DH rash that won't go away (he recognized immediately) he is almost 100% sure that I have celiac disease.

I am having two more tests and he scheduled a biopsy ahead of time. I also found out that I am newly Diabetic...what a shock!!! I also have Hashimoto's disease which seems to have quite a bit of crossover of patients into gluten sensitivity.

What a caring man. He told me I was NOT crazy and that he would get me feeling better very soon. He was very supportive of the dietician I told him I was going to be working with too.

Rebecca

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I haven't seen her personally, but she works with the local support group:

Dr. Iqbal in Longmont, CO


EnteroLab test positive for gluten intolerence and 2 gluten intolerence and celiac genes

DQ2 and DQ3 sub type DQ7 in December 2005

Gluten-free since Enterolab test, December 2, 2005.

Lame Advertisement Test positive for gluten intolerence in Sept 2005.

THEN found out that my fathers mother had nontropical sprue, she passed away at 40 from (stomach) cancer, had holes in her intestines when they caught it. I had no idea....

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Dr. Noel Peterson, naturopath

560 First Street

Lake Oswego, OR 97034

503 636 2734

very intelligent and up on all the research, listens well


diagnosed with celiac disease in 2002--all test numbers off the charts

dairy free since 2000, soy free since 2007

other food intolerances: citrus, sesame, potatoes, corn, coffee

fibromyalgia, osteoporosis

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any suggestions for insurance-less person in NC, or Utah, since I will be moving there shortly?? I know I need to get insurance, it is just not affordable right now, and i def need to get in to see the DR. to see what all is going on with me..


~~Jodi~~

diagnosed celiac around age 6

gluten free from age 6-age 12ish

Gluten free (again) since November 2007

People Say I am on a DIET, I tell them its a LIFESTYLE

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Children's Pediatric Gastroenterology, PC

Knoxville, Tn affiliated with East Tennessee Childrens Hospital

Our ARNP Teresa Renner in London , KY referred us and is very understanding and easy to work with about Celiac.

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