Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Spru Count High

dragonmom

By dragonmom
in Coping with Celiac Disease

Recommended Posts

dragonmom Apprentice
dragonmom
Posted

Since March 2004 when I was diagnosed with Celiac I have been, to the best of my knowledge, gluten free. My blood tests keep coming back high in spru levels. I am feeling - I don,t know weird. I lost 60 pounds really fast before I knew what was happening-now I have gained it all back. That would lead me to believe that my body was functioning(for my weird body) normally. I read lables - just lost...... :huh:

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guhlia Rising Star
Guhlia
Posted

It sounds like gluten is sneaking in somewhere... Either that or you have another intolerance that is causing an autoimmune reaction like casein sensitivity...

Link to comment
Share on other sites
daffadilly Apprentice
daffadilly
Posted

Are you eating a lot of gluten-free breads and crackers, cookies and cakes?

Link to comment
Share on other sites
coronalime Rookie
coronalime
Posted

I just had the same thing! I started Enbrel which suppreses your immune system for arthritis. They did a bunch of tests and I have been gluten free since like 2003 ish. Well he flat out told me I was not doing well on my diet. He said that if it does not say gluten free or you have not researched the product and know its gluten free then it does not go in or on the body. He said you must go to extremes you cant just read a label. I am sitting here today just reeling from this. I just assumed since my bowel movements have gotten better then I was coping fine. but I am wrong..way wrong. Good luck to you. I have to go back to the drawing board, and I may join a group here in town..Start buckling down and becoming one of those crazy gluten free people :)

Link to comment
Share on other sites
daffadilly Apprentice
daffadilly
Posted

welcome to the crazy bunch :lol::lol:

I highly recommend a local support group, there is invaluable current information there...

Our group in Houston is awesome, but I have heard of some smaller groups that uh, might be a little radical even for me, if that is believable :P

Link to comment
Share on other sites
happygirl Collaborator
happygirl
Posted

Are you eating out? Chances are, if you are eating out, even at gluten-free places, you have a high chance of cross contamination. I didn't start to get really better til I stopped eating out.

Another option--refractory Celiac. But, until your diet goes "crazy gluten free" (and girl, do I understand!) I would not wory about that quite yet.

Let us know what we can do to help. I bet we can come up with some culprits.

xoxo

Link to comment
Share on other sites
dragonmom Apprentice
dragonmom
  • Author
Posted

We rarely eat out, I make gluten-free meals- they go out for Italian when I'm working late. Could working in a grocery store that has a bakery make any difference? I do eat a lot of cheese. I have gained so much weight that I pretty much avoid gluten-free cookies,bread etc. I have also been reading about the chocolate cross contamination- I do like chocolate :) I'm going to try to limit my dairy-but does that make the spru test higher? Thanks for all the replies.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

no-the blood panel is specific to celiac antibodies.

I would try to "buckle" down (if possible)....and then have your bloodwork re-done. See how that is. Depending on that, you might want to do an endoscopy with multiple biopsies to check the status of your villi (and possibly refractory celiac)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Bayb
      - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep...
    2. Aussienae
      - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain.
    3. trents
      - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    4. trents
      - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

      What kind of stool test was done? Can you be more specific?
    5. mishyj
      - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,221
    • Most Online (within 30 mins)
      7,748
    lortaine
    Newest Member
    lortaine
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Bayb
      Trying to read my lab results

      By Bayb · Posted

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      Constant low back, abdominal and pelvic pain!

      By Aussienae · Posted

      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      Why?

      By trents · Posted

      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      Why?

      By trents · Posted

      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Why?

      By mishyj · Posted

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
×
×
  • Create New...