Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Is It Normal?


GlutenWrangler

Recommended Posts

GlutenWrangler Contributor

Is it normal to have symptoms similar to a glutening for the first few days of taking a strong probiotic? The probiotic is definitely gluten-free. Thanks

-Brian

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guhlia Rising Star

My system couldn't handle probiotics. They made me awfully sick. I had to stop using them. I gave them a full week to work and I just stayed sick. I've heard the same from others. Perhaps some people are just sensitive to them.

Link to comment
Share on other sites
Guest cassidy

I have never had any reaction to them, but if you think about it, if the new good bacteria is killing off the old bad bacteria you might have some sort of a die off reaction. Last year I took an antifungal for candida and two different antibiotics for an amoeba and bad bacteria and those things made me feel terrible. After all that I took tons of probiotics and those never made me feel bad, but the die off from the first things was almost more than I could take.

I have no idea if that is a real possibility, but it sounds logical.

Link to comment
Share on other sites
GlutenWrangler Contributor

I did some reading and found something called excessive drainage syndrome, which can cause headache, diarrhea, bloating, and gas. It makes sense that it would feel like getting glutened. Thanks for the replies.

-Brian

Link to comment
Share on other sites
dionnek Enthusiast

does anyone know if probiotics and L-Glutamine are ok to take when yoiu are pregnant? I will check with my dr, but they are usually so clueless about stuff like this.

Link to comment
Share on other sites
GlutenWrangler Contributor

I read that probiotics are fine to take when you are pregnant. I would think that L-Glutamine would be fine too, because it is a naturally occuring amino acid in the body. But I think that you should double check with your doctor because I could be wrong.

-Brian

Link to comment
Share on other sites
Ursa Major Collaborator

I was supposed to take a probiotic when I had terrible diarrhea for a week and a half just recently (caused by some meds that were high in salicylates, long story). So, I started taking one I had in the house, and it made me feel terrible, and made the diarrhea worse. I checked the ingredients, and it had maltodextrin.

I went to the health food store to buy a new probiotic. Almost all of them had either dairy in them (whey and lactase I think), and the others had maltodextrin. I only found one without either, and with a guarantee of not containing any sucrose, starch, salt, preservatives, artificial colours, flavours or additives, or any corn, wheat, yeast, gluten, soy, dairy or animal by-products.

This one of course cost me $55.00 for 120 caps. Quite steep. But it worked to stop the diarrhea, and it didn't make me feel bad, even tough I was taking about ten a day. It is called HMF Forte, and is by Genestra Brands.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ArtGirl Enthusiast
Is it normal to have symptoms similar to a glutening for the first few days of taking a strong probiotic?

Dieoff is certainly a possibilty as some have reported this happening and they would feel worse before feeling better. When I first tried to take probiotics I would have very caustic D right away. I would try to stay with them because *everyone* said it was so important to good health. But, the negatives outweighed the positives and I stopped after trying probably 5 different brands/combinations.

It wasn't until I started looking for corn derivatives that I discovered that the ALL had either dairy, corn or soy. No wonder I had problems. Like Ursa said, it is very difficult to find a probiotic that doesn't have corn in it (dextrose, maltodextrin, citric acid, etc.)

So, if your symptoms don't improve, you might want to explore other food sensitivies.

Link to comment
Share on other sites
GlutenWrangler Contributor

I'm using HLC Intensive probiotics. This is from the website:

Each capsule contains:

HLC LAB4 Consortium......24 billion viable cells (may contain up to 30 billion)

L. acidophilus CUL 60

L. acidophilus CUL 21

Bifidobacterium bifidum CUL 20

Bifidobacterium lactis CUL 34

Other Ingredients: cellulose, silica, vegetable magnesium stearate.

HLC probiotics contain no dairy, casein, wheat, gluten, soy, corn, or other common allergens.

So I don't think they could cause me a problem with gluten or casein, right?

-Brian

Link to comment
Share on other sites
marciab Enthusiast

Brian,

Unfortunately, anyone can react to anything and we are all different. If it is a capsule, you could always open it and pour a little in applesauce, etc. if you still want to try it.

It's always possible that this is just too strong for you right now. Or maybe it is has gone bad. That would be the downside of supplements. You never know how they have been stored.

Also, I may be mistaken, but doesn't the L. in front of Acidophulus stand for lactose ?

Miso and sauerkraut also contain probiotics ... I found some chick pea miso at my health food store that is gluten-free, DF,CF, SF and it tastes great. Google fermented foods to find other natural probiotics.

Good luck ... marcia

Link to comment
Share on other sites
jerseyangel Proficient

Add me to the list of people who can not tolerate probiotics. The first one I tried, Culturelle, made me terribly nauseous. I took them for as long as I could stand it--about a week.

The second time, the probiotic was in a digestive enzyme--I immediately got gas, bloating and nausea.

I thought it must just be me because I read so much about people taking them and feeling better. I just felt worse. It's good to hear that I'm not the only one! (We say that a lot around here!) :D

Link to comment
Share on other sites
Ursa Major Collaborator

I looked it up, because mine have L. Acidophilus as well. It stand for Lactobacillus Acidophilus. No lactose involved.

Brian, I am stumped, I don't see anything that could cause you to be sick. Do you take them with a meal? If I take probiotics on an empty stomach, I get a stomach ache and feel nauseous.

Link to comment
Share on other sites
GlutenWrangler Contributor

It's not that I feel really sick right away. It's just the next morning what I get up I don't really feel good. I attribute it to my body getting rid of the toxins in my intestine. I feel a little better every day. This is my 5th day taking them. After 30 days I switch to the High Potency capsules which have half of the amount of bacteria that is in the Intensive capsules. If it doesn't get any better soon I'll just switch to the lower dose. I can't stop taking them because I think they will help with the D. I still have it almost 6 months into the diet. Maybe things have to get a little worse before they get better.

-Brian

Link to comment
Share on other sites
Nancym Enthusiast

I switched from trying probiotics to using kefir instead. It really seems much easier on the gut.

Link to comment
Share on other sites
Guest cassidy
does anyone know if probiotics and L-Glutamine are ok to take when yoiu are pregnant? I will check with my dr, but they are usually so clueless about stuff like this.

Both my ob/gyn and my holistic doctor said that probiotics are ok when pregnant. My holistic doctor said that both probiotics and digestive enzymes are very helpful when pregnant because your body is already straining so much to take care of the baby that any help you can give your gi system is beneficial. My health food store also said they are ok and I have been taking them the entire time with no problem.

Link to comment
Share on other sites
Guest AutumnE
I'm using HLC Intensive probiotics. This is from the website:

Each capsule contains:

HLC LAB4 Consortium......24 billion viable cells (may contain up to 30 billion)

L. acidophilus CUL 60

L. acidophilus CUL 21

Bifidobacterium bifidum CUL 20

Bifidobacterium lactis CUL 34

Other Ingredients: cellulose, silica, vegetable magnesium stearate.

HLC probiotics contain no dairy, casein, wheat, gluten, soy, corn, or other common allergens.

So I don't think they could cause me a problem with gluten or casein, right?

-Brian

vegetable magnesium stearate could be corn, what vegetable do they use for it? Alot of times they call it hypoallergenic because they pull out the protein part of the corn but I still have a reaction. Im not the only one either others sometimes are hypersensitive to it.

Link to comment
Share on other sites
GlutenWrangler Contributor

Autumn,

I don't think it's from corn because they say they don't use corn in their ingredients. I'm not sure which vegetable they use for the vegetable magnesium stearate. I tried to look that up myself a few days ago, but found no answers. I don't think I'm sensitive to corn anyway though. I've eaten it once since going gluten-free, and didn't have a problem.

Anyway the good news is that I feel pretty good today. I think that my body has finally adjusted and rid itself of most of the toxins. I'm glad that I can finally tolerate them. I had no idea so many people had trouble tolerating probiotics. Thanks everyone,

-Brian

Link to comment
Share on other sites
Guest AutumnE

Im glad your doing better :) It stinks to not feel well around the holidays.

Take Care

Link to comment
Share on other sites
TestyTommy Rookie

Add me to the list of people who react to probiotics.

I started taking one a couple of days ago. I got a stomach ache and felt bloated & gassy. Then I got the big D. It was similar to a gluten reaction, except when I was on gluten, I felt bloated and gassy, but could never pass any of the gas. This gas is definitely passing.

Will this wear off after a while? Is it a good sign? Or should I stop taking the probiotics?

Thanks for any advice any of you can offer.

Link to comment
Share on other sites
marciab Enthusiast

"Miso and sauerkraut also contain probiotics ... I found some chick pea miso at my health food store that is gluten-free, DF,CF, SF and it tastes great. Google fermented foods to find other natural probiotics. "

I had to come back here and let you know that I am having a major candida outbreak and I believe it is from the miso, etc.

I'm confused because I read that people with candida should avoid fermented foods (miso, etc), but they are also considered beneficial if they still contain live cultures (from the Body Ecology diet) ...

Just wanted to give y'all a heads up ... I am back on kefir for now, since this is what cleared me up the first time ...

Marcia

Link to comment
Share on other sites
debmidge Rising Star

add my husband to list of those who have celiac disease & can't take probiotics (reaction)

Link to comment
Share on other sites
GlutenWrangler Contributor

Tommy,

My first few days were pretty rough. I was about to stop taking them, but I decided to stick with it. Each day after that I got better and better. At this point my body has no problem tolerating the probiotics. I've been taking them for roughly 2 weeks now, and I'm definitely happy about the improvement. My healing process had kind of stalled, and now it seems like it's back on track, and I feel better than I have in a very long time.

If you have a bad mixture of intestinal flora, the probiotics will be able to help you. But in order to repopulate your intestine with good bacteria, the bad bacteria has to be removed. This cleansing period makes you feel like crap, but it should lessen and then disappear with time. If it doesn't get better, you might want to try another brand. Make sure there is no hidden gluten in the ingredients. I hope it works out for you. Good luck.

-Brian

Link to comment
Share on other sites
TestyTommy Rookie

Thanks, Brian. I'll stick it out for a couple of weeks and see what happens. Besides, what's a little belly ache and GI distress to a celiac?? :P

Link to comment
Share on other sites
GlutenWrangler Contributor

Couldn't have said it any better myself

Link to comment
Share on other sites
NoGluGirl Contributor
Brian,

Unfortunately, anyone can react to anything and we are all different. If it is a capsule, you could always open it and pour a little in applesauce, etc. if you still want to try it.

It's always possible that this is just too strong for you right now. Or maybe it is has gone bad. That would be the downside of supplements. You never know how they have been stored.

Also, I may be mistaken, but doesn't the L. in front of Acidophulus stand for lactose ?

Miso and sauerkraut also contain probiotics ... I found some chick pea miso at my health food store that is gluten-free, DF,CF, SF and it tastes great. Google fermented foods to find other natural probiotics.

Good luck ... marcia

Dear Marcia,

As far as I know, L. stands for Lactobacillus. That is the genus of the bacteria. That means the strain it is unique to. This normally states what family it is from. I do not think it has anything to do with dairy. The most common source of it is yogurt, though.

Sincerely,

NoGluGirl

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results

    2. - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

    3. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    4. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    5. - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,219
    • Most Online (within 30 mins)
      7,748

    SoCalSuzy
    Newest Member
    SoCalSuzy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
×
×
  • Create New...