Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Calgary Tomorrow!


num1habsfan

Recommended Posts

num1habsfan Rising Star

Just doing what I said I would....starting a new topic for the next set of scary tests. We leave by bus 6 pm tomorrow, but are going into Yorkton around noon. i'm going to tryyyy steal an internet connection in Calgary, but no promises. If anyone wants to post and wish me luck before noon, that'd be great, otherwise i'll check your messages whenever I can. please please please send lots of your prayers, and luck, and love. These will be a very difficult next 4 days for me!!

~ lisa ~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Lisa, I hope everything goes well. I'll be praying.

2kids4me Contributor

Best of luck and good wishes for Calgary! Which hospital will you be going to?

I live south of Calgary so will yell from my back door - GOOD LUCK!

:)

Safe travels to and from!

Sandy

num1habsfan Rising Star
Best of luck and good wishes for Calgary! Which hospital will you be going to?

I live south of Calgary so will yell from my back door - GOOD LUCK!

:)

Safe travels to and from!

Sandy

Hehe. Well if I had extra time I'd plan a visit with u, but i'll be occupied already the 1 day i could uh...leave the room. Its back to Foothills again...and YAY only 1 more day of eating gluten!!! As much as I LOVE eating this stuff, it sux too.

*sighs* I'm in a worse mood now, sometimes makes me wish i didnt have friends at all :angry: (except for u guys, cuz i know u'd never turn on me!!)....if u wanna hear about it i'll post in here, just tell if first before I start blabbing..

~ lisa ~

2kids4me Contributor

Do tell!

Venting here is a form of therapy! :)

Use lots of emoticons - have some fun while you vent

Sandy

num1habsfan Rising Star
Do tell!

Venting here is a form of therapy! :)

Use lots of emoticons - have some fun while you vent

Sandy

Thanks Sandy...if they ever logged on here and read this, theyd kill me, but whatever. u guys obviously love me so right now it dont matter...

heres the basic story:

i havent talked to my best friend since last week. i sent her a txt on thursday sayin where she could find the post about my scope here on the board. yesterday i txted her askin if she said it, she said not yet, and her excuse was she was stayin at her boyfriends cuz of a storm (that i could live with)...

she finally comes online tonite, never asked about how i'm feelin/how my test went/etc AT ALL...jumped straight into braggin about her man, then got mad at me when i said i dont have any input since i havent been in a relationship before and that i'm distracted by calgary, etc...she also accused me of thinkin her news was just a waste of time, and then vanished offline...

I've been on the verge of a panic attack, nearly had 1 tonite, the last thing I needed was my "best friend" makin me feel like i'm completely meaningless :( *cries*

~ lisa ~

2kids4me Contributor

I am guessing your friend is under the age of 20 - she is in an egocentric self centered mode - in her mind - because you were worried about your upcoming scope and didn't have input about "her man"... then you dont care about her.

First off she is the one who is not caring and only wants her needs met right now - never mind that you need her support and are about to go on a long trip, alone, you're scared and a "good day" is hard to find when you have GI troubles.

If she DOES read this - she needs to step back and understand that YOU needed her at that moment , that YOU were reaching out and found empty space.

Perhaps if she has faced a scope before, she would understand your fears.

I can listen very well to my friends talk about relationships, but I tell ya, when I am taking one of my kids to the hospital the next day or adding a new diagnosis to our long list......my best friends offer hugs and support and ask how they can help. they dont get upset cause I didnt want to hear about their latest husband issue or about a cute thing their child did that day.

Sorry your friend bailed when you needed her - maybe she'll be there when you get back...and wanting to hear about you

Sandy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



num1habsfan Rising Star
I am guessing your friend is under the age of 20 - she is in an egocentric self centered mode - in her mind - because you were worried about your upcoming scope and didn't have input about "her man"... then you dont care about her.

First off she is the one who is not caring and only wants her needs met right now - never mind that you need her support and are about to go on a long trip, alone, you're scared and a "good day" is hard to find when you have GI troubles.

If she DOES read this - she needs to step back and understand that YOU needed her at that moment , that YOU were reaching out and found empty space.

Perhaps if she has faced a scope before, she would understand your fears.

I can listen very well to my friends talk about relationships, but I tell ya, when I am taking one of my kids to the hospital the next day or adding a new diagnosis to our long list......my best friends offer hugs and support and ask how they can help. they dont get upset cause I didnt want to hear about their latest husband issue or about a cute thing their child did that day.

Sorry your friend bailed when you needed her - maybe she'll be there when you get back...and wanting to hear about you

Sandy

Actually shes 27, which makes it even more hurtful. u'd think shes gone thru a lot more in those 5 years of life she has on me, and she'd be more mature.

ur right...i needed someone to turn to for a huge thing. friends are supposed to give each other support, especially when they know its somethin u cant get thru on ur own. usually i can live with her talkin about her boyfriend--girl talk, right?. but its not right when u ignore someones needs(like comfort, reassurance, etc) to talk about the usual/daily stuff.

*wishes i could talk to my guy friend*

~ lisa ~

2kids4me Contributor

cyber hugs {{{{{ }}}}}

sorry she wasnt there the way you needed. 27??! wow, and she vanished the minute she wasnt the center of attention, hmmm. This boyfriend must be something else to make her so shortsighted and selfish as to not realize that there are more serious things to discuss than "boys' in life.

Unbelievable!!

I know how much of a wreck I am before any "investigation".... one of the reasons I am awake right now! waiting for blood results on Kathryn....

Are you able to sleep the night before? or is the the fact that you are online speaking for itself? ;)

Sandy

** have they ever tested you for a systemic disease like Lupus or lyme disease or anything else that can cause GI symptoms but be a reuslt of systemic disease?

num1habsfan Rising Star

Thanks *hugs back*

I dunno how some people can be so obsessed with a significant other that they just forget about everyone else who matters just as much or more...

My parents already got up twice to yell at me to get to bed, think i may try in a few mins, but i was worked up enough already so this totally didnt help. i havent been able to sleep barely at all with the eatin all the gluten. its been basically passing out thats done it for me. I'll try sleep now, and try post again before I leave. *more hugs* thanks for lettin me rant and replyin so many times..

<3

~ lisa ~

ravenwoodglass Mentor

Lisa, Nothing much to add other than wishing things go smoothly for you. Cyber hugs and will keep you in my thoughts and prayers.

Daxin Explorer

Lisa,

Good luck with everything in Calgary. Hugs and prayers with you on your trip.

Sorry about your friend and her HUGE ego. She obviously doens't understand how important/nerve racking these things can be. We all understand though. Please keep up posted, and travel safely.

num1habsfan Rising Star
Lisa,

Good luck with everything in Calgary. Hugs and prayers with you on your trip.

Sorry about your friend and her HUGE ego. She obviously doens't understand how important/nerve racking these things can be. We all understand though. Please keep up posted, and travel safely.

Thanks *hugs you back too*

Its gonna be a longggg 3 days. If I didnt need someone along with me I'd be going alone, but you know when they give you sedation or whatever you need someone. So i get stuck with mom :P . But oh well i'll have my studying to keep me busy for 13 hours..for 3 straight days :lol:

Thank god for you guys, seriously...

~ lisa ~

num1habsfan Rising Star

Ooooo yay I am now so much more relaxed. I just got a couple of amazing texts from my closest guy friend...I think I'm gonna be re-reading it 9028340928304209 times on the trip :lol:. But you guys should still keep sending me your luck, too ;)

~ lisa ~

Phyllis28 Apprentice

Best of luck with your test. Sending hugs through the computer.

num1habsfan Rising Star
Best of luck with your test. Sending hugs through the computer.

Thanks *hugs you too*

Btw, Timbits = yummy, and these pyrogies i'll eat for dinner will be too :lol:

~ lisa ~

Nantzie Collaborator

I probably missed you by now. I hope everything goes well.

Nancy

num1habsfan Rising Star
I probably missed you by now. I hope everything goes well.

Nancy

Nope not quite ;). We're leaving into Yorkton in about 1/2 an hour, bus goes in 3 1/2 hours. Just so we can eat and I gotta pick somethin up at the house there. My mom is so annoying *sigh* wish i could go alone

~ lisa ~

mamaw Community Regular

Hey Lisa

As always you have my HUGS & Prayers..... You are such a trooper--- I know you will do well........ I'll be thinkin of you .......

mamaw

Judyin Philly Enthusiast

LISA,

JUST GOT ON TODAY NOW AND SAW THIS.

GOOD LUCK HONEY AND LET US KNOW HOW IT WENT WHEN EVER YOU FEEL UP TO IT.

PRAYERS

JUDY

2Boys4Me Enthusiast

Hey Lisa,

I guess you're "under" by now. I hope everything goes/went well.

num1habsfan Rising Star

I hope I'm doing this right :X I'm a friend of Lisa's posting for her because she doesn't have internet at the moment. She just wanted to give everyone a quick update on things.

Lisa said she's trying to drink the nasty salty-tasting laxative stuff, but it's making her sick. She said it makes the sore spot on her tummy burn. She threw up a little while ago and had a nose bleed. She's hoping she is keeping enough of the stuff down to be emptied enough for the test. Keep thinking of her, please!

Rusla Enthusiast

I met up with Lisa and her mother today after Lisa's torture session. She was not in the best of shape and not feeling too punky after a week of gluten and then torture at the hospital. However, now they are on their way back to Saskatchewan if the bus has even left yet. It sounds like they are taking the grand tour back and will be visiting every farm, hamlet and deserted village along the route. They are supposedly arriving in Saskatchewan at 8:30 tomorrow evening.

Hopefully it won't happen like last time. They are hoping to return to Saskatchewan before next Christmas.

Judyin Philly Enthusiast

how sweet of you to meet them Rusla

thanks for the update.

judy

debmidge Rising Star

Hoping the best for you Lisa. Keep up the courage.

Deb

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,436
    • Most Online (within 30 mins)
      7,748

    lizzie42
    Newest Member
    lizzie42
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • lizzie42
      It was the tTG iga. The first test the range was that it needed to be under .05 and hers was .9 The repeat was a different lab and it said normal was 0-3 and hers was 109. The first test was part of a free study our DR recommended be celiac seemed unlikely at the time. Of course now it all comes together! So hers would have been 18x the upper limit on the first test and then even more on the second one if I'm doing the math right. The tests were a few months apart because it took a long time to get the first one back. 
    • trents
      Welcome to the forum, @lizzie42! Can you also supply the reference range for that celiac antibody test? Each lab uses its own reference ranges for the celiac antibody tests so we can't comment otherwise until we know. And was that the TTG-IGA? There is also a TTG-IGG celiac antibody test. There is a growing tendency for physicians to forego the endoscopy/biopsy when the tTG-IGA score is quite high. In the UK the that is 10x the high end of the normal range but different docs here in the USA may have their own protocols and not all of them will bypass the endoscopy/biopsy regardless of the blood test score. I also think docs are generally reluctant to do scopes on small children. The celiac rash is called dermatitis herpetiformis. There is a drug called Dapsone that is often effective for preventing dermatitis herpetiformis outbreaks but it is a strong med with some risks such that patients on it must be monitored for signs of liver stress? I think. I would be surprised if a doctor would prescribe it for a toddler. Other than that, the only thing I know of (besides eliminating gluten) that might help is a low iodine diet. Yes, there are gluten free sourdough bread products available. My wife picked up at Costco last year but I wasn't very impressed with it. The sourdough taste and smell was barely noticeable.  
    • lizzie42
      My 3yo was just diagnosed after months of iron supplements barely bringing up her ferritin. I say diagnosed but it's not official yet. Her tTG was 109, her ema was positive. Also she has a vitamin d deficiency in addition to the anemia. She also has the rash. It's been a rough road the last year and a half with her behavior and health and I'm relieved to have an answer.  Is she going to have to have a biopsy with numbers like that? I want to just start gluten-free immediately but waiting to try and schedule with a pediatric GI doctor. It will have to be remote because there isn't one here.  I hate having an answer but still feeding her gluten.  Also, how can I help her rash? We've used aquaphor her whole life thinking it was eczema. It helps a bit but not as much as it should for eczema.  I am a sourdough lover and make all our bread. Is there a such thing as gluten-free sourdough? At home I think the gluten-free will be no big deal. I make everything and the kids aren't really picky. I'm worried about when she starts school, eating at friends, etc. It's a little overwhelming! 
    • trents
      If I may put my two cents in here . . . Coffee (caffeine) is a double-edged sword when it comes to headaches. It can relieve them (that's why caffeine is put in many over the counter pain relievers) but it can also cause them - particularly if you consume coffee/tea/soda often and regularly and then are in a situation where you have to go without it for a longer stretch than you are used to. Those who suffer from migraines may likely be more sensitive to the effects of caffeine or the withdrawal of it I'm thinking. And then there is the potential negative impact caffeine can have on sleep patterns for many people. Disruption of sleep patterns is also a migraine trigger for some. I speak as a migraine sufferer myself. 
    • Sarah Grace
      Hello Knitty Kitty, Many thanks for asking about my progress.  Its mixed....  I've been taking Benfotiamine since November.  I started on 300mg, but I didn't notice any change.  Increased to 900mb in 300mg tablets throughout the day and initially it seemed to be a cure.  But then the Hypoglycaemia and migraines started to return...it's really very difficult for me to control my diet.  I'm still taking the Benfotiamine but I now take the Benfotiamine in the evening and usually about 600mg after my early evening meal.  I'm still very sensitive to carbs and especially alcohol and sugar, which makes any social activity really difficult especially in the evenings and having to avoid all gluten as well....anyway I guess most members of this forum are very familiar with this.   However, I do think the Benfotiamine is very helpful.  I still get significant vertigo (very wobbly at random moments) but I think my brain fog and insomnia have improved.  I'm quite active physically (gardening and dog walking etc), so need carbs for this.  I am a bit of a coffee addict and wonder what impact that might have? Any suggestions that you have that might further improve my diet and management of the hypoglycaemia would be much appreciated, as I definitely have failed to conquer the problem.
×
×
  • Create New...